Dignity in cancer patients with a life expectancy of a few weeks. Implementation of the factor structure of the Patient Dignity Inventory and dignity assessment for a patient-centered clinical intervention: A cross-sectional study

2018 ◽  
Vol 16 (6) ◽  
pp. 648-655 ◽  
Author(s):  
Andrea Bovero ◽  
Nader Alessandro Sedghi ◽  
Rossana Botto ◽  
Chiara Tosi ◽  
Valentina Ieraci ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Life Expectancy ◽  
Cancer Patients ◽  
Factor Structure ◽  
Well Being ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Patient Centered ◽  
Cross Sectional ◽  
Loss Of Dignity

AbstractObjectiveHospice is a favored setting for dignity care. Studies on dignity dimension in end-of-life patients are growing. The Patient Dignity Inventory (PDI) is a tool that can lead to interesting information on dignity-related aspects of suffering. The study aimed to investigate dignity among end-of-life cancer patients, by examining the Italian version of the PDI factor structure and assessing the relationship between dignity and other patients’ psychosocial and spiritual variables to improve a patient-centered clinical practice.MethodThis is a cross-sectional study. Data were collected using a battery of self-administered validated rating scales. The sample included 127 hospice patients with a life expectancy of a few weeks and a Karnofsky Performance Status ≤40. Factor structure and concurrent validity of PDI and correlations between dignity and anxious and depressive symptomatology, quality of life, demoralization, personal coping styles, spiritual well-being, and spiritual daily experience were analyzed.ResultFactor analysis highlighted a five-factor solution, accounting for 60% of the overall variance. The factors were labeled Psychological Distress, Social Support, Physical Symptoms and Dependency, Existential Distress, and Loss of Purpose/Meaning. Dignity assessment evidenced that self-blame coping style, emotional and physical well-being, and depression were the loss of dignity significant predictors (R2 = 0.605; p < 0.01).Significance of resultsThe results point out the intercultural validity of the PDI and empower an accurate detection of dignity-related distress sources in the daily clinical practice. Personality traits seem to have an active role in the loss of dignity, whereas spirituality is confirmed to be positively involved in dignity enhancement.

scholarly journals The prevalence of perceived stigma and self-blame and their associations with depression, emotional well-being and social well-being among advanced cancer patients: evidence from the APPROACH cross-sectional study in Vietnam

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Nguyen Tuong Pham ◽  
Jia Jia Lee ◽  
Nhu Hiep Pham ◽  
Thi Do Quyen Phan ◽  
Khoa Tran ◽  
...  
Keyword(s):  
Depressive Symptoms ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Well Being ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Perceived Stigma ◽  
Advanced Cancer Patients ◽  
Cross Sectional ◽  
Self Blame

Abstract Background There is very limited evidence on the existence of cancer-related perceived stigma and self-blame among patients with advanced cancer in Asia, and how they are associated with psychosocial outcomes. This study aimed to address the gap in the current literature by (1) assessing perceived stigma, behavioural self-blame and characterological self-blame among Vietnamese patients with advanced cancer, and (2) investigating the associations of perceived stigma and self-blame (behavioural and characterological) with depression, emotional well-being and social well-being. Methods This cross-sectional study involved 200 Vietnamese patients with stage IV solid cancer. Depression was measured using the Center for Epidemiologic Studies Depression (CES-D) Scale. Emotional well-being and social well-being were measured with the relevant domains of the Functional Assessment of Cancer Therapy-General (FACT-G) scale. Perceived stigma was assessed using the sense of stigma subscale of Kissane’s Shame and Stigma Scale. Behavioural self-blame and characterological self-blame were measured by the patients’ answers to the questions on whether their cancer was due to patient’s behaviour or character. Multivariable linear regressions were used to investigate the associations while controlling for patient characteristics. Results Approximately three-fourths (79.0%, n = 158) of the participants reported perceived stigma with an average score of 20.5 ± 18.0 (out of 100). More than half of the participants reported behavioural self-blame (56.3%, n = 112) or characterological self-blame (62.3%, n = 124). Higher perceived stigma was associated with lower emotional well-being (ß = -0.0; p = 0.024). Behavioural self-blame was not significantly associated with depressive symptoms, emotional well-being or social well-being. Patients who reported characterological self-blame reported greater depressive symptoms (ß = 3.0; p = 0.020) and lower emotional well-being (ß = -1.6; p = 0.038). Conclusion Perceived stigma and self-blame were common amongst Vietnamese advanced cancer patients. Perceived stigma was associated with lower emotional well-being while characterological self-blame were associated with greater depressive symptoms and lower emotional well-being. Interventions should address perceived stigma and self-blame among this population.

scholarly journals The Changes of Cancer Patients’ Perception, Attitude and Clinical Practice in Complementary and Alternative Medicine during COVID-19: A multicenter before-after cross-sectional study

2021 ◽  
Author(s):  
Yichao Wang ◽  
Geliang Yang ◽  
Zhan Gu ◽  
Chengyan Wang ◽  
Huiqing Zhang ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Alternative Medicine ◽  
Cancer Treatment ◽  
Complementary And Alternative Medicine ◽  
Cancer Patients ◽  
Medical Service ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Service Pattern

Abstract Background With the rapid spread of COVID-19 worldwide, the clinical practice in cancer treatment of complementary and alternative medicine (CAM) becomes significantly different. This study was designed to explore the changes of China’s cancer patients’ perception, attitude and clinical practice in CAM after the pandemic of COVID-19. Methods A multicenter before-after cross-sectional study was conducted, including 448 cancer patients by a survey. Results For perception, half of the cancer patients (51.2%) reported they had received adequate information in CAM cancer treatment and had a great expectation in medical appointment pattern (40.2%). For attitudes, most of the cancer patients (79.4%) had full of confidence in CAM cancer treatment and showed a strong desire to learn more about CAM (70.2%). Nearly half of the cancer patients (44.0%) presented their oncology clinics had been greatly affected by COVID-19, however, most (82.8%) refused to the online medical service pattern. For clinical practice, Chinese herbal medicine was widely used before (89.5%) / after (90.3%) the epidemic of COVID-19 and the main purpose of receiving CAM therapy was to improve immune system (71.8%). The frequency of patients’ visiting the clinic decreased significantly (P < 0.001), and most (90.0%) didn’t change their follow-up pattern. The majority of the cancer patients (83.3%) were identified as CAM users and the only predictive factor was national health insurance in the multivariable logistic regression model. Conclusion China’s cancer patients show more interest and confidence in treating cancer by CAM, and the new medical pattern such as medical appointment, has been gradually accepted during the COVID-19 pandemic. However, the cancer patients’ perception in CAM and online medical service pattern still need to be improved.

scholarly journals The Changes of Cancer Patients' Perception, Attitude and Clinical Practice in Complementary and Alternative Medicine during COVID-19: A Multicenter Before-After Cross-Sectional Study

2021 ◽  
Author(s):  
Yichao Wang ◽  
Geliang Yang ◽  
Zhan Gu ◽  
Chengyan Wang ◽  
Huiqing Zhang ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Alternative Medicine ◽  
Cancer Treatment ◽  
Complementary And Alternative Medicine ◽  
Cancer Patients ◽  
Medical Service ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Service Pattern

Abstract Background: With the rapid spread of COVID-19 worldwide, the clinical practice in cancer treatment of complementary and alternative medicine (CAM) becomes significantly different. This study was designed to explore the changes of China’s cancer patients’ perception, attitude and clinical practice in CAM after the pandemic of COVID-19. Methods: A multicenter before-after cross-sectional study was conducted, including 448 cancer patients by a survey. Results: For perception, half of the cancer patients (51.2%) reported they had received adequate information in CAM cancer treatment and had a great expectation in medical appointment pattern (40.2%). For attitudes, most of the cancer patients (79.4%) had full of confidence in CAM cancer treatment and showed a strong desire to learn more about CAM (70.2%). Nearly half of the cancer patients (44.0%) presented their oncology clinics had been greatly affected by COVID-19, however, most (82.8%) refused to the online medical service pattern. For clinical practice, Chinese herbal medicine was widely used before (89.5%) / after (90.3%) the epidemic of COVID-19 and the main purpose of receiving CAM therapy was to improve immune system (71.8%). The frequency of patients’ visiting the clinic decreased significantly (P < 0.001), and most (90.0%) didn’t change their follow-up pattern. The majority of the cancer patients (83.3%) were identified as CAM users and the only predictive factor was national health insurance in the multivariable logistic regression model. Conclusion: China’s cancer patients show more interest and confidence in treating cancer by CAM, and the new medical pattern such as medical appointment, has been gradually accepted during the COVID-19 pandemic. However, the cancer patients’ perception in CAM and online medical service pattern still need to be improved.

The Relationship Between Symptom Severity and Caregiver Burden in Cancer Patients Under Palliative Care: A Cross-Sectional Study

2021 ◽  
pp. 082585972110457
Author(s):  
Emir Celik ◽  
Muhammed Samil Aslan ◽  
Nilay Sengul Samanci ◽  
Mehmet Karadag ◽  
Tarik Saglam ◽  
...  
Keyword(s):  
Palliative Care ◽  
Cancer Patients ◽  
Caregiver Burden ◽  
Symptom Severity ◽  
Well Being ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Incurable Cancer ◽  
Cross Sectional ◽  
Mean Values

Introduction Hospitalization is a stressful experience both for primary caregivers (PCs) and cancer patients alike. Although there is significant evidence that PCs of cancer patients can experience significant caregiver burden (CB), less is known about the relationships between PCs and patient symptom severity that influence CB. Methods: In this cross-sectional study, measures of the symptom severity were obtained from cancer patients. The PCs were assessed for CB. Associations between patients' symptoms and demographic characteristics and CB were investigated using multivariate analyses. Results: A total of 98 participants (patient-caregiver dyads) filled the questionnaires. According to the Zarit Burden Interview results, 65.3% of PCs had a high CB. Pain, tiredness, nausea, depression, drowsiness, well-being, and dyspnea had significantly higher mean values in those with high CB (p < .05). Financial difficulties, first-degree relationships with the patient, higher anxiety levels, and more pronounced tiredness appear to be the variables most predictive with high CB. Conclusion: In conclusion, the present study showed CB of PCs among a group of hospitalized incurable cancer patients. PCs of more symptomatic cancer patients had a higher CB, according to our findings. This emphasized the significance of palliative care. Appropriate guidance should be provided for the psychostress caused by the CB.

scholarly journals Psychometric properties of the Depression Stigma Scale (DSS) in Chinese cancer patients: a cross-sectional study

BMJ Open ◽  
2019 ◽  
Vol 9 (7) ◽  
pp. e028429 ◽  
Author(s):  
Lei Zhu ◽  
Juntao Yao ◽  
Liyang Wu ◽  
Jun Wang ◽  
Mengting Qiu ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Psychometric Properties ◽  
Cancer Patients ◽  
Factor Structure ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Stigma Scale ◽  
Symptoms Of Depression ◽  
Chinese Cancer Patients

ObjectivesThe Depression Stigma Scale (DSS) is commonly used to assess depression stigma in the general population and in people with depression. The DSS includes two 9-item subscales assumed to measure personal depression stigma (ie, personal perceptions of depression) and perceived depression stigma (ie, perceptions of how others perceive depression). The aim of the present study was to examine its psychometric properties in terms of validity and reliability in Chinese cancer patients.DesignA cross-sectional study design.Participants and settingsThis study focused on 301 Chinese cancer patients recruited from two hospitals in Xi’an, China.MethodsExploratory factor analysis (EFA) and confirmatory factor analysis (CFA) were used to assess the factor structure. Internal consistency was assessed using Cronbach’s alpha. To examine concurrent validity, symptoms of depression were used as the criterion.ResultsFor each subscale of the DSS (ie, personal and perceived depression stigma), the EFA and CFA confirmed a two-factor structure: weak-not-sick (ie, perceiving that depression is not a real illness, but rather a sign of weakness) and discrimination (ie, perceiving that depressed people are discriminated against). The Cronbach’s alphas were adequate, ranging from 0.70 to 0.80. Symptoms of depression were positively but weakly correlated to personal and perceived depression stigma.ConclusionsThe DSS appeared to show satisfactory psychometric properties in our sample of cancer patients. Both personal depression stigma and perceived depression stigma subscales consisted of two underlying aspects.

Conflict Avoidance in Old Age

GeroPsych ◽  
2017 ◽  
Vol 30 (2) ◽  
pp. 61-70 ◽  
Author(s):  
Lia Oberhauser ◽  
Andreas B. Neubauer ◽  
Eva-Marie Kessler
Keyword(s):  
Social Support ◽  
Perceived Social Support ◽  
Well Being ◽  
Cross Sectional Study ◽  
Conflict Avoidance ◽  
Subjective Well Being ◽  
Sectional Study ◽  
Cross Sectional ◽  
Adult Lifespan ◽  
Set Up

Abstract. Conflict avoidance increases across the adult lifespan. This cross-sectional study looks at conflict avoidance as part of a mechanism to regulate belongingness needs ( Sheldon, 2011 ). We assumed that older adults perceive more threats to their belongingness when they contemplate their future, and that they preventively react with avoidance coping. We set up a model predicting conflict avoidance that included perceptions of future nonbelonging, termed anticipated loneliness, and other predictors including sociodemographics, indicators of subjective well-being and perceived social support (N = 331, aged 40–87). Anticipated loneliness predicted conflict avoidance above all other predictors and partially mediated the age-association of conflict avoidance. Results suggest that belongingness regulation accounts may deepen our understanding of conflict avoidance in the second half of life.

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