scholarly journals Brazilian Twin Registry: A Bright Future for Twin Studies/Twin Research: Twin Study of Alcohol Consumption and Mortality; Oxygen Uptake in Adolescent Twins/In the News: Superfecundated Twins In Vietnam; Adolescent Twin Relations; Twin and Triplet Co-Workers; A Special Twin Ultrasound; Monozygotic Twins With Different Skin Color; Identical Twin Returns from Space

2016 ◽  
Vol 19 (3) ◽  
pp. 292-296 ◽  
Author(s):  
Nancy L. Segal
Keyword(s):  
Alcohol Consumption ◽  
Oxygen Uptake ◽  
Skin Color ◽  
Monozygotic Twins ◽  
Twin Studies ◽  
Cultural Influences ◽  
Well Being ◽  
Factors Affecting ◽  
Twin Research ◽  
Twin Registry

The establishment of the Brazilian Twin Registry for the study of genetic, social, and cultural influences on behavior is one of eleven newly funded projects in the Department of Psychology at the University of São Paulo. These 11 interrelated projects form the core of the university's Center for Applied Research on Well-Being and Human Behavior. An overview of the planned twin research and activities to date is presented. Next, two recent twin studies are reviewed, one on the relationship between alcohol consumption and mortality, and the other on factors affecting maximal oxygen uptake. Twins cited in the media include the first identified superfecundated twins in Vietnam, adolescent twin relations, twins and triplets who work together, monozygotic twins with different skin tones and a co-twin control study that addresses the effects of space travel.

scholarly journals Australian Twin Registry: 30 Years of Progress

2012 ◽  
Vol 16 (1) ◽  
pp. 34-42 ◽  
Author(s):  
John L. Hopper ◽  
Debra L. Foley ◽  
Paul A. White ◽  
Vincent Pollaers
Keyword(s):  
Twin Studies ◽  
Well Being ◽  
Full Potential ◽  
Medical Council ◽  
Twin Registry ◽  
Pair Comparisons ◽  
Baseline Information ◽  
The University ◽  
Health And Well Being ◽  
Online Software

The Australian Twin Registry (ATR) is a national volunteer resource of twin pairs and higher-order multiples willing to consider participating in health, medical, and scientific research. The vision of the ATR is ‘to realize the full potential of research involving twins to improve the health and well-being of all Australians’. The ATR has been funded continuously by the National Health and Medical Council for more than 30 years. Its core functions entail the recruitment and retention of twin members, the maintenance of an up-to-date database containing members’ contact details and baseline information, and the promotion and provision of open access to researchers from all institutes in Australia, and their collaborators, in a fair and equitable manner. The ATR is administered by The University of Melbourne, which acts as custodian. Since the late 1970s the ATR has enrolled more than 40,000 twin pairs of all zygosities and facilitated more than 500 studies that have produced at least 700 peer-reviewed publications from classical twin studies, co-twin control studies, within-pair comparisons, twin family studies, longitudinal twin studies, randomized controlled trials, and epigenetics studies, as well as studies of issues specific to twins. New initiatives include: a Health and Life Style Questionnaire; data collection, management, and archiving using a secure online software program (The Ark); and the International Network of Twin Registries. The ATR's expertise and 30 years of experience in providing services to national and international twin studies has made it an important resource for research across a broad range of disciplines.

scholarly journals Monozygotic Triplets: Concordance and Discordance for Cleft Lip and Palate / Twin Research Reviews: Depression in Mothers of Multiples; Depression in Mothers and Fathers of ART Conceived Multiples; Epigenetic Differences in Monozygotic Twins; Congenital Anomalies in Surviving Twins / Headlines × Two: Twin Chefs; The World's Largest Twin Registry; Twin Table Tennis Champions

2009 ◽  
Vol 12 (4) ◽  
pp. 403-406 ◽  
Author(s):  
Nancy L. Segal
Keyword(s):  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Monozygotic Twins ◽  
Table Tennis ◽  
Tennis Players ◽  
Mothers And Fathers ◽  
Twin Research ◽  
Twin Registry ◽  
Reproductive Techniques ◽  
Mz Twins

AbstractA review of twin research on cleft lip and palate is presented. This information is accompanied by a look at the lives of young monozygotic (MZ) male triplets concordant for cleft lip, but discordant for the type and placement of the cleft and for the presence of cleft palate. Research on depression in mothers and fathers of twins conceived naturally and by artificial reproductive techniques follows. Current findings and implications of epigenetic differences in MZ twins are also summarized. Interesting life history events surrounding MZ twin chefs and table tennis players, as well as plans to construct the world's largest twin registry, are presented in the final section.

scholarly journals Tribute to Dr Louis Keith: Twin and Physician Extraordinaire/Twin Research Reports: Influences on Asthma Severity; Chimerism Revisited; DNA Strand Break Repair/Media Reports: Twins Born Apart; Elevated Twin Frequencies; Celebrity Father of Twins; Conjoined Twinning

2014 ◽  
Vol 17 (5) ◽  
pp. 494-497
Author(s):  
Nancy L. Segal
Keyword(s):  
Twin Studies ◽  
Asthma Severity ◽  
Strand Break ◽  
Conjoined Twins ◽  
Factors Affecting ◽  
Twin Research ◽  
Dna Strand Break ◽  
Repair Mechanisms ◽  
Media Reports ◽  
Dna Strand

The International Society for Twin Studies has lost a valued friend and colleague. Dr Louis Keith, Emeritus Professor of Obstetrics and Gynecology at Northwestern University, in Chicago, passed away on Sunday, July 6, 2014. His life and work with twins will be acknowledged at the November 2014 International Twin Congress in Budapest, Hungary. Next, twin research reports on the severity of asthma symptoms, a case of chimerism, and factors affecting DNA breakage and repair mechanisms are reviewed. Media reports cover twins born apart, elevated twin frequencies, a celebrity father of twins, and a family's decision to keep conjoined twins together.

scholarly journals The Charles Perkins Centre's Twins Research Node

2016 ◽  
Vol 19 (4) ◽  
pp. 393-396 ◽  
Author(s):  
Lucas C. Ferreira ◽  
Jeffrey M. Craig ◽  
John L. Hopper ◽  
Susan E. Carrick
Keyword(s):  
Twin Studies ◽  
Research Facility ◽  
Twin Research ◽  
Twin Registry ◽  
Health Related ◽  
Level Of Understanding

Twins can help researchers disentangle the roles of genes from those of the environment on human traits, health, and diseases. To realize this potential, the Australian Twin Registry (ATR), University of Melbourne, and the Charles Perkins Centre (CPC), University of Sydney, established a collaboration to form the Twins Research Node, a highly interconnected research facility dedicated specifically to research involving twins. This collaboration aims to foster the adoption of twin designs as important tools for research in a range of health-related domains. The CPC hosted their Twins Research Node's launch seminar entitled ‘Double the power of your research with twin studies’, in which experienced twin researchers described how twin studies are supporting scientific discoveries and careers. The launch also featured twin pairs who have actively participated in research through the ATR. Researchers at the CPC were surveyed before the event to gauge their level of understanding and interest in utilizing twin research. This article describes the new Twins Research Node, discusses the survey's main results and reports on the launch seminar.

scholarly journals Terminating Twins: Survival of One/Twin Research Reviews: Twin Discordance for Primordial Dwarfism; Twin Study of Public Service Motivation; Four-Parameter Model for Twin Research; Global Twinning at a Peak; Germline Differences of Monozygotic Twins/In the News: Twins and Dyngus Day; Triplets Born in Austrian Displaced Persons’ Camp; Superior, Film About Estranged Identical Twin Sisters; Adopting Own Twins After Surrogacy; Twins and Primordial Dwarfism Revisited

2021 ◽  
pp. 1-4
Author(s):  
Nancy L. Segal
Keyword(s):  
Public Service ◽  
Monozygotic Twins ◽  
Twin Studies ◽  
Public Service Motivation ◽  
Identical Twin ◽  
Multiple Birth ◽  
Displaced Persons ◽  
Twin Research ◽  
The Family ◽  
Primordial Dwarfism

Abstract Selective termination is the term used for the elimination of an abnormal fetus. In contrast, multifetal pregnancy reduction refers to the termination of one or more members of a twin or higher-order multiple birth set, respectively, to reduce the high risks associated with these pregnancies. The procedure can also be used when a serious physical condition is detected prenatally in a member of a multiple birth set. In a minority of cases, selective termination has reduced two healthy fetuses to one when parents wanted just one additional child in the family. In the present article, the perspectives of a surviving twin whose family wished to terminate both healthy fetuses are examined. Next, past and present twin studies of primordial dwarfism, public service motivation, an analytical model, the global twinning rate and germline differences are summarized. The article concludes with a synopsis of twin-related news that covers twins and Dyngus Day, triplets born in an Austrian displaced persons’ camp, the film Superior — about estranged identical twin sisters, a couple adopting their own twins after surrogacy and a new case of twins and primordial dwarfism, a condition introduced in the research reviews.

scholarly journals First Steps of the Mexico Twin Registry (RGMex-MexTR) at the University of Guadalajara

2019 ◽  
Vol 22 (6) ◽  
pp. 609-610
Author(s):  
Guillermo A. Cervantes-Cardona ◽  
Tania E. Cervantes-Nápoles ◽  
Gabino Cervantes-Guevara ◽  
Olga R. Manzo-Palomera ◽  
Alejandro González-Ojeda ◽  
...  
Keyword(s):  
Social Sciences ◽  
Latin America ◽  
Twin Studies ◽  
Research Community ◽  
Short Term ◽  
Twin Research ◽  
Twin Registry ◽  
The World ◽  
The University

AbstractDespite the well-known relevance of twin studies in the medical and social sciences and the growing number of twin registries throughout the world, Latin America has not fully incorporated into the twin research community. We describe the first steps taken toward developing a twin registry in Mexico: its aim, organization, recruiting potential and main short-term objectives.

scholarly journals The Norwegian Twin Registry

2016 ◽  
Vol 26 (1-2) ◽  
Author(s):  
Thomas S. Nilsen ◽  
Ingunn Brandt ◽  
Nikolai Czajkowski ◽  
Peggy Knudsen ◽  
Per Magnus ◽  
...  
Keyword(s):  
Mental Health ◽  
Large Population ◽  
Twin Studies ◽  
Population Based ◽  
Twin Data ◽  
Twin Research ◽  
Health Lifestyle ◽  
Twin Registry ◽  
The 1960S ◽  
Access To Data

The Norwegian Twin Registry (NTR) is a large population based twin cohort for research purposes. At present,<br />the registry has 14 692 complete twin pairs with information on zygosity and to varying degree information on<br />somatic and mental health, lifestyle and demographics. The registry covers birth years 1895-1960 and 1967-<br />1991. NTR was established in 2009, at the Norwegian Institute of Public Health, as a merger of three major<br />twin panels, the oldest originating in the 1960s. Since then Norwegian twin research has been a notable<br />contributor to twin research internationally. Norwegian twin researchers have published over 250 papers based<br />on Norwegian twin data, spanning a broad range of somatic and mental health phenotypes. In twin studies of<br />heritability a data structure with both variance within and between pairs is required. Therefore a large sample is<br />necessary, especially when studying rare diseases and conditions, and it is of vital importance to expand the<br />registry. NTR is actively recruiting new twins, both young and older, but declining response rates are a<br />challenge. The value of NTR is greatly enhanced through the linkage possibilities offered by Norway’s many<br />nationwide registries (medical, demographic, and socio-economic). Access to data is permitted by the NTR<br />steering group and will in most instances need permission from the Regional Ethics Committee.

Clinical trials — the personal perspective of the research physician?

2020 ◽  
Vol 75 (3) ◽  
pp. 256-263
Author(s):  
Maria Y. Egorova ◽  
Irina A. Shuvalova ◽  
Olga I. Zvonareva ◽  
Igor D. Pimenov ◽  
Olga S. Kobyakova ◽  
...  
Keyword(s):  
Clinical Trials ◽  
Medical Care ◽  
New Technologies ◽  
Healthcare Providers ◽  
Study Drug ◽  
Well Being ◽  
Personal Perspective ◽  
Public And Private ◽  
Factors Affecting ◽  
To Receive

Background. The organization of clinical trials (CTs) requires the participation and coordination of healthcare providers, patients, public and private parties. Obstacles to the participation of any of these groups pose a risk of lowering the potential for the implementation of CTs. Researchers are a key human resource in conducting of CT. Their motivation for participation can have a significant impact on the recruitment and retention of patients, on the quality of the data collected, which determines the overall outcome of the study. Aims to assess the factors affecting the inclusion of Russian physicians-researchers in CT, and to determine their role in relations with patients-participants. Materials and methods. The study was organized as a part of the Russian multicenter face-to-face study. A survey was conducted of researchers from 10 cities of Russia (20172018). The participation in the survey for doctors was anonymous and voluntary. Results. The study involved 78 respondents. Most research doctors highly value the importance of research for science (4,84 0,39), society (4,67 0,46) and slightly lower for participating patients (4,44 0,61). The expectations of medical researchers are related to improving their financial situation and attaining new experience (n = 14; 18,18%). However, the opportunity to work with new technologies of treatment and diagnosis (n = 41; 52,56%) acted as a motivating factor. According to the questionnaire, the vast majority of research doctors (n = 29; 37,18%) believe that the main reason for patients to participate in CT is to receive quality and free medical care. The most significant obstacle to the inclusion of participants in CT was the side effects of the study drug (n = 38; 48,71%). Conclusions. The potential of clinical researchers in Russia is very high. The patient-participant acts for the research doctor as the subject of the study, and not the object, so the well-being of the patient is not indifferent to the doctor. However, the features of the functioning of our health care system form the motivation of doctors-researchers (additional earnings, professional self-development) and the way they perceive the motivation of patients (CT as an opportunity to receive quality medical care).

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