Friendship Quality, Friendship Quantity, and Social Participation in Adults with Traumatic Brain Injury

AbstractAdults with traumatic brain injury (TBI) often report reduced social participation and loss of friends, but little is known about quality of friendship after TBI. Our objective was to characterize social participation, friendship quantity, and friendship quality of adults with TBI and a comparison group of uninjured adults. Participants included 18 adults with moderate to severe TBI and 16 of their informant friends; and 18 uninjured adults and 11 of their informant friends. The main measures used were the Participation Assessment with Recombined Tools-Objective, the Social Network Questionnaire, and the McGill Friendship Questionnaire. Participants with TBI reported significantly less social participation and had fewer total friends, although this difference was not statistically significant. Adults with TBI differed from their friends on one measure of friendship quality, but reports for friendship quality were high in both groups. Adults with TBI reported overall high levels of friendship quality despite having lower levels of social participation compared with uninjured adults. Future research should investigate how the balance of quantity and quality of friendships relates to satisfaction with social participation and overall quality of life.

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Self-awareness four years after severe traumatic brain injury: discordance between the patient’s and relative’s complaints. Results from the PariS-TBI study

Clinical Rehabilitation ◽

10.1177/0269215517734294 ◽

2017 ◽

Vol 32 (5) ◽

pp. 692-704 ◽

Cited By ~ 6

Author(s):

Camille Chesnel ◽

Claire Jourdan ◽

Eleonore Bayen ◽

Idir Ghout ◽

Emmanuelle Darnoux ◽

...

Keyword(s):

Quality Of Life ◽

Traumatic Brain Injury ◽

Brain Injury ◽

Severe Traumatic Brain Injury ◽

Significant Relationship ◽

Injury Severity ◽

Chronic Phase ◽

Functional Independence ◽

Severe Tbi

Objective: To evaluate the patient’s awareness of his or her difficulties in the chronic phase of severe traumatic brain injury (TBI) and to determine the factors related to poor awareness. Design/Setting/Subjects: This study was part of a larger prospective inception cohort study of patients with severe TBI in the Parisian region (PariS-TBI study). Intervention/Main measures: Evaluation was carried out at four years and included the Brain Injury Complaint Questionnaire (BICoQ) completed by the patient and his or her relative as well as the evaluation of impairments, disability and quality of life. Results: A total of 90 patient-relative pairs were included. Lack of awareness was measured using the unawareness index that corresponded to the number of discordant results between the patient and relative in the direction of under evaluation of difficulties by the patient. The only significant relationship found with lack of awareness was the subjective burden perceived by the relative (Zarit Burden Inventory) ( r = 0.5; P < 0.00001). There was no significant relationship between lack of awareness and injury severity, pre-injury socio-demographic data, cognitive impairments, mood disorders, functional independence (Barthel index), global disability (Glasgow Outcome Scale), return to work at four years or quality of life (Quality Of Life after Brain Injury scale (QOLIBRI)). Conclusion: Lack of awareness four years post severe TBI was not related to the severity of the initial trauma, sociodemographic data, the severity of impairments, limitations of activity and participation, or the patient’s quality of life. However, poor awareness did significantly influence the weight of the burden perceived by the relative.

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Social participation and quality-of-life of patients with traumatic brain injury living in the community: A mixed methods study

Brain Injury ◽

10.1080/02699052.2016.1199901 ◽

2016 ◽

Vol 30 (13-14) ◽

pp. 1590-1598 ◽

Cited By ~ 8

Author(s):

Kaoruko Takada ◽

Hironobu Sashika ◽

Hidetaka Wakabayashi ◽

Yoshio Hirayasu

Keyword(s):

Quality Of Life ◽

Traumatic Brain Injury ◽

Mixed Methods ◽

Brain Injury ◽

Social Participation ◽

Mixed Methods Study

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A-110 Post-Traumatic Growth in Relation to Quality of Life in Individuals with Moderate/Severe Traumatic Brain Injury

Archives of Clinical Neuropsychology ◽

10.1093/arclin/acab062.128 ◽

2021 ◽

Vol 36 (6) ◽

pp. 1159-1159

Author(s):

Alison A Fedio ◽

Marina Dekarchuk ◽

Carrie Roper ◽

James Sexton ◽

Brandy Dinklocker ◽

...

Keyword(s):

Quality Of Life ◽

Traumatic Brain Injury ◽

Brain Injury ◽

Post Traumatic Growth ◽

Severe Tbi ◽

Functioning Inventory ◽

Post Traumatic ◽

Personal Functioning ◽

Relationship Of

Abstract Objective Post-traumatic growth (PTG) is known to benefit individuals in recovery from traumatic brain injury (TBI) as they process and reframe personal losses. The purpose of this study was to assess the relationship of PTG with different domains of quality of life (QOL) in individuals following TBI. Method Fifteen adults (8 M, 7 F; mean age 31; 4 yrs post moderate/severe TBI) composed a personal statement for 3 minutes. Raters identified references to TBI and PTG in patients’ writing samples. Patients completed the Neurobehavioral Functioning Inventory (NFI) to assess physical, cognitive, and emotional/behavioral functioning, as well as the QOL Inventory to assess importance of, and satisfaction with, various domains of personal functioning. Results of independent samples t-tests (p < 0.05 and/or Cohen’s d > 0.80) are reported. Results Patients scored in the average range on the NFI. Seven of the 15 patients opted to address PTG, and the same seven individuals also wrote about their TBI. Those who addressed these topics reported higher educational level and longer loss of consciousness following TBI. Demonstrating large effect sizes, results revealed individuals endorsing PTG had higher QOL in domains involving productivity and agency (work, helping, play, creativity), whereas those not endorsing PTG had higher QOL in social domains (children, neighbors, community). Total QOL and other domains (e.g., health, money, love) did not differ between groups. Conclusions Results suggest that benefits of accepting and growing as a result of one’s brain injury include active self-development and contributions to society. Neurorehabilitation should encourage productivity as a means of enhancing PTG.

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Cognitive Retraining in Traumatic Brain Injury: Experience from Tertiary Care Center in Southern India

Journal of Neurosciences in Rural Practice ◽

10.1055/s-0041-1722817 ◽

2021 ◽

Author(s):

Mohammed Afsar ◽

Dhaval Shukla ◽

Binukumar Bhaskarapillai ◽

Jamuna Rajeswaran

Keyword(s):

Quality Of Life ◽

Traumatic Brain Injury ◽

Brain Injury ◽

Perceived Stress ◽

Processing Speed ◽

Symptom Reporting ◽

Post Intervention ◽

Cognitive Retraining ◽

Severe Tbi

Abstract Objective Traumatic brain injury (TBI) is a leading cause of mortality and chronic disability across the globe. This study aimed to understand the effects of cognitive retraining (CR) intervention on neuropsychological functions, symptom reporting, and quality of life in patients with moderate to severe TBI. Materials and Methods The present single-group intervention study with a pre–post design included 12 patients diagnosed with moderate to severe TBI within 3–24 months post injury. Outcome measures included National Institute of Mental Health and Neuro Sciences (NIMHANS) Neuropsychology Battery, Perceived Stress Scale, Rivermead Post-Concussion Symptom Questionnaire, World Health Organization Quality of Life Scale—Brief, and Visual Analogue Scale. All patients underwent a total of 20 sessions of hospital-based CR, spanning over a period of 2 months. The CR included tasks targeting to enhance processing speed, attention, executive function, learning, and memory. Outcome assessments were conducted at baseline and immediately at post intervention. Statistical Analysis Mean, standard deviation, frequency, and percentage were used as measures of descriptive statistics. Pre- and postintervention scores were compared using Wilcoxon signed-rank test. Results The results showed that at post intervention, significant improvements were found in processing speed, working memory, planning, visuo-spatial construction, visual memory, and verbal encoding. Subjective symptom reporting, perceived stress, and quality of life in psychological domain also improved. Conclusion CR can be helpful in improving not only cognition but also symptom reporting and quality of life in moderate to severe TBI.

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Functional Outcomes and Health-Related Quality of Life After Severe Traumatic Brain Injury: A Review

Clinical Nursing Research ◽

10.1177/1054773818792459 ◽

2018 ◽

Vol 29 (7) ◽

pp. 433-439 ◽

Cited By ~ 1

Author(s):

Salizar Mohamed Ludin ◽

Nor’ain Abdul Rashid

Keyword(s):

Quality Of Life ◽

Traumatic Brain Injury ◽

Brain Injury ◽

Severe Traumatic Brain Injury ◽

Functional Improvement ◽

Health Related Quality ◽

Related Quality ◽

Health Related ◽

Severe Tbi

Throughout recovery, patients with severe traumatic brain injury (TBI) show physical and functional improvement, but continue to have cognitive and psychosocial problems. The aim of this article was to review the literature regarding the functional and health-related quality of life (HRQOL) outcomes in severe TBI. There were 15 articles reviewed, 13 of them were quantitative studies and two were narrative review. Most of the articles showed an improvement occurs rapidly at 6 months post-injury. There were several factors that influence the outcome after TBI, most of it was the Glasgow Coma Scale (GCS) on admission, age, educational level, duration of posttraumatic amnesia (PTA), and length of stay (LOS) in the Intensive Care Unit (ICU). Thus, health care workers should help the survivors of severe TBI in the recovery process to ensure the latter can attain maximum function and quality of life.

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Associations between social participation and subjective quality of life for adults with moderate to severe traumatic brain injury

Disability and Rehabilitation ◽

10.3109/09638288.2013.834986 ◽

2013 ◽

Vol 36 (17) ◽

pp. 1409-1418 ◽

Cited By ~ 44

Author(s):

Alison M. McLean ◽

Tal Jarus ◽

Anita M. Hubley ◽

Lyn Jongbloed

Keyword(s):

Quality Of Life ◽

Traumatic Brain Injury ◽

Brain Injury ◽

Social Participation ◽

Severe Traumatic Brain Injury ◽

Subjective Quality ◽

Subjective Quality Of Life

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Challenges and Opportunities for Neuroimaging in Young Patients with Traumatic Brain Injury: a Coordinated Effort towards Advancing Discovery from the ENIGMA Pediatric Moderate/Severe TBI Group

10.31234/osf.io/y2txh ◽

2019 ◽

Cited By ~ 4

Author(s):

Emily L. Dennis ◽

Karen Caeyenberghs ◽

Robert F. Asarnow ◽

Talin Babikian ◽

Brenda Bartnik-Olson ◽

...

Keyword(s):

Traumatic Brain Injury ◽

Brain Injury ◽

Meta Analysis ◽

Young Patients ◽

Future Research ◽

Childhood And Adolescence ◽

Developmental Issues ◽

Challenges And Opportunities ◽

Severe Tbi ◽

Advance Research

Traumatic brain injury (TBI) is a major cause of death and disability in children in both developed and developing nations. Children and adolescents suffer from TBI at a higher rate than the general population; however, research in this population lags behind research in adults. This may be due, in part, to the smaller number of investigators engaged in research with this population and may also be related to changes in safety laws and clinical practice that have altered length of hospital stays, treatment, and access to this population. Specific developmental issues also warrant attention in studies of children, and the ever-changing context of childhood and adolescence may require larger sample sizes than are commonly available to adequately address remaining questions related to TBI. The ENIGMA (Enhancing NeuroImaging Genetics through Meta-Analysis) Pediatric Moderate-Severe TBI (msTBI) group aims to advance research in this area through global collaborative meta-analysis. In this paper we discuss important challenges in pediatric TBI research and opportunities that we believe the ENIGMA Pediatric msTBI group can provide to address them. We conclude with recommendations for future research in this field of study.

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