The impact of obstacles to health and rehabilitation services on functioning and disability: a prospective survey on the 12-months after discharge from specialist rehabilitation for acquired brain injury

Author(s):  
Melissa Legg ◽  
Michele Foster ◽  
Rachel Jones ◽  
Melissa Kendall ◽  
Jennifer Fleming ◽  
...  
2021 ◽  
Vol 4 ◽  
pp. 25
Author(s):  
Eileen Mitchell ◽  
Nicola Philips ◽  
Elayne Ahern ◽  
Grainne McGettrick ◽  
David Mockler ◽  
...  

Background: Acquired brain injury (ABI) refers to any type of brain damage after birth.  ABI from either traumatic or non-traumatic origin is a leading cause of death and long-term disability globally.  The impact of an ABI can be cognitive and/ or physical, greatly affecting their ability to function independently.  With a lack of specialist inpatient rehabilitation facilities and services many of these survivors reside within the community either alone, with family or in residential facilities.  Up-to-date evidence is required to indicate which forms of community rehabilitation are most effective in improving cognitive and physical outcomes for survivors. This systematic review aims to explore the clinical effectiveness of community neuro-rehabilitation services for persons living with an ABI. Methods: A systematic review of relevant electronic databases will be undertaken to identify eligible published randomised controlled trials.  The PRISMA statement will be used to guide the systematic review.  From running the initial search, we aim to submit the paper for publishing within 6 months.  This process will be completed using Covidence software.  Two reviewers will independently screen the search results and select studies using pre-defined selection criteria, extract data from and assess risk of bias for selected studies.     Discussion: This systematic review will aim to explore the clinical effectiveness of community neuro-rehabilitation services for persons with an ABI.  It plans to review and synthesize the current best available evidence base. A goal of this study is to positively inform ongoing service development within a quality framework. Systematic review registration: PROSPERO CRD42020148604 (26/02/2020)


2021 ◽  
Vol 9 (1) ◽  
Author(s):  
Sara Assecondi ◽  
Rong Hu ◽  
Gail Eskes ◽  
Michelle Read ◽  
Chris Griffiths ◽  
...  

Following publication of the original article [1], the authors flagged that the article had published with the Acknowledgements erroneously excluded from the declarations at the end of the article.


2018 ◽  
Vol 19 (3) ◽  
pp. 258-269 ◽  
Author(s):  
Jacinta M. Douglas

Working in neurological rehabilitation brings with it numerous opportunities to gain an understanding of the factors that contribute to shaping meaningful living and wellbeing for those tackling the major life changes encountered following acquired brain injury (ABI). These opportunities come in many forms: challenging and brave clients, wise and worrying families, questioning and inspiring colleagues, empowering and limiting work environments and rigid and advancing policy and legislative contexts.Our personal and collective understanding ofthe things that helpandthe things that get in the wayof effective rehabilitation continuously emerges from the convergence of the experience and knowledge afforded by these opportunities. The aim of this paper is to considerthe things that helpandthe things that get in the wayas they have been identified by people with ABI, their families and those who work with them and have been further evidenced through research targeted towards improving short, medium and long-term outcomes for those living with the consequences of ABI. Thesethingsas discussed in this paper capture the essential role of the self, the importance of rights and access to rehabilitation, the impact of the family and the contribution of social connection.


2021 ◽  
Author(s):  
Yael Benn ◽  
Mark Jayes ◽  
Martin Casassus ◽  
Marney Williams ◽  
Colin Jenkinson ◽  
...  

Acalculia, an acquired disability following a stroke or brain injury, involves difficulty processing numerical information and/ or calculations. Acalculia is not routinely screened for, and as a result there is a lack of understanding about the nature and prevalence and the impact of the condition. This qualitative study was initiated by stroke survivors with a strong interest in acalculia. Sixteen stroke/brain injury survivors with acalculia and seven carers were interviewed using semi-structured online interviews. Participants ranged in age, gender, time post onset, country of residence and numeracy level prior to brain injury. Data were analysed using thematic analysis. Three main themes were identified: Awareness and Diagnosis; Emotional and Practical Impact (independence); Support, Coping Strategies and Self-training. Participants and carers repeatedly referred to the lack of awareness and treatment for acalculia and the impact acalculia has had on their lives and independence. Practical impacts included managing money, making appointments, using timetables, organising social activities and employment, and managing medication. Our results highlight the urgent need to develop suitable assessments and interventions for acalculia and the scope for this to be PCPI-led. The data also reveal useful strategies and suggestions regarding effective timing, targets and approaches for intervention.


2021 ◽  
Vol 12 ◽  
Author(s):  
Lowri Wilkie ◽  
Pamela Arroyo ◽  
Harley Conibeer ◽  
Andrew Haddon Kemp ◽  
Zoe Fisher

Individuals with Acquired Brain Injury (ABI) suffer chronic impairment across cognitive, physical and psycho-social domains, and the experience of anxiety, isolation and apathy has been amplified by the COVID-19 pandemic. A qualitative evaluation was conducted of 14 individuals with ABI who had participated in series of COVID adapted group-based intervention(s) that had been designed to improve wellbeing. Eight themes were identified: Facilitating Safety, Fostering Positive Emotion, Managing and Accepting Difficult Emotions, Promoting Meaning, Finding Purpose and Accomplishment, Facilitating Social Ties, (Re)Connecting to Nature, and Barriers to Efficacy. Findings are discussed with respects to recent theoretical developments in positive psychology and wellbeing science and support the use of online and outdoor interventions to enhance wellbeing in individuals living with ABI during the COVID-19 pandemic. This paper makes a unique contribution to second wave positive psychology (PP2.0) through the application of recent advances in wellbeing science to an ABI population during the COVID-19 pandemic. In doing so, this paper lays the foundation for new interventions that not only reduce impairment and distress, but also create opportunities for meaning and enhanced wellbeing in people living with chronic conditions and those individuals living with ABI in particular.


2006 ◽  
Vol 21 (1) ◽  
pp. 76-81 ◽  
Author(s):  
Michael J. Smith ◽  
Frances L. Vaughan ◽  
Linda J. Cox ◽  
Helen McConville ◽  
Mark Roberts ◽  
...  

2019 ◽  
Vol 13 (3) ◽  
pp. 84-98
Author(s):  
David Brodsky ◽  
Mardelle McCuskey Shepley

Aim: This study focused on long-term care (LTC) settings for individuals with acquired brain injury (ABI). The goals were (1) to assess the impact of facility configuration on social interactions between residents and staff and (2) obtain a better understanding of staff and resident perceptions of the built environment. Background: A few studies have explored the relationship between the built environment and social interaction in LTC facilities, but there is little empirical data about ABI-specific LTC facilities. Methods: A literature review was conducted on the impact of the built environment on the LTC of brain injury survivors. Via a questionnaire, staff and residents in two settings, one with patient rooms off corridors and the other with patient rooms surrounding a common space, rated the effectiveness of the built environment in promoting social interaction. Behavioral observation was conducted on 18 residents for a duration of 4 hr per resident. Results: Via questionnaires, staff rated the corridor facility as more effective in promoting social interaction, but no significant differences were found between the assessments of the two resident populations. Contrary to staff questionnaire results, residents in the open configuration facility exhibited more social behaviors. Conclusions: Building configuration may impact social interaction between staff and residents in ABI-specific LTC facilities and potentially impact staff and resident quality of life. However, configuration cannot be viewed in a vacuum; residents’ physical and mental limitations, demographic information, and staff engagement must be also considered.


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