The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities

2009 ◽  
Vol 34 (2) ◽  
pp. 153-162 ◽  
Author(s):  
Kate Davis ◽  
Susana Gavidia-Payne
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Children With Disabilities ◽  
Professional Support ◽  
Young Children With Disabilities ◽  
The Impact

Impact of Challenging Behavior on Marginalized and Minoritized Caregivers of Children With Disabilities

2021 ◽  
pp. 027112142110520
Author(s):  
Nicole B. Adams ◽  
Stacy N. McGuire ◽  
Hedda Meadan ◽  
Melanie R Martin ◽  
Adriana K. Terol ◽  
...  
Keyword(s):  
Early Childhood ◽  
Young Children ◽  
Challenging Behavior ◽  
Mexican American ◽  
Children With Disabilities ◽  
Common Occurrence ◽  
Structured Interviews ◽  
Cultural Interpretation ◽  
Young Children With Disabilities ◽  
The Impact

Challenging behavior (CB) is a common occurrence in early childhood and frequently occurs in young children with disabilities. CB is also culturally perceived and includes differences in how caregivers understand and define the topography of CB. Despite the cultural interpretation, CB is known to impact the child and their family but there has been little exploration of what marginalized caregivers perceive as the impact of the CB that their young children with disabilities exhibit. We used semi-structured interviews to explore the perceptions of 24 caregivers, who identified as Black, Mexican American, and White, about the impact of their child’s CB. Caregivers shared how the CB impacted themselves, their families, their child, and others. Although much of the impact was similar among caregivers, we discuss nuanced differences across ethnic groups.

scholarly journals Housing, Health, and Happiness

2009 ◽  
Vol 1 (1) ◽  
pp. 75-105 ◽  
Author(s):  
Matias D Cattaneo ◽  
Sebastian Galiani ◽  
Paul J Gertler ◽  
Sebastian Martinez ◽  
Rocio Titiunik
Keyword(s):  
Quality Of Life ◽  
Cognitive Development ◽  
Child Health ◽  
Young Children ◽  
Perceived Stress ◽  
Large Scale ◽  
The Impact ◽  
Prevalence Of Anemia

We investigate the impact of a large-scale Mexican program to replace dirt floors with cement floors on child health and adult happiness. We find that replacing dirt floors with cement significantly improves the health of young children measured by decreases in the incidence of parasitic infestations, diarrhea, and the prevalence of anemia, and an improvement in children's cognitive development. Additionally, we find significant improvements in adult welfare measured by increased satisfaction with their housing and quality of life, as well as by lower scores on depression and perceived stress scales. (JEL I12, I31, J13, O15)

Hearing Loss–Related Issues Affecting Quality of Life in Preschool Children

2020 ◽  
pp. 019459982096247
Author(s):  
Miranda Lindburg ◽  
Banan Ead ◽  
Donna B. Jeffe ◽  
Judith E. C. Lieu
Keyword(s):  
Quality Of Life ◽  
Hearing Loss ◽  
Focus Group ◽  
Young Children ◽  
Focus Groups ◽  
Academic Medical Center ◽  
Schools For The Deaf ◽  
The Impact ◽  
Parent Proxy

Objective The impact of hearing loss (HL) on quality of life (QOL) in young children has not been examined systematically. The objective of this study was to examine patient, parent, and professional perspectives on experiences and situations that affect the QOL in young children with HL and to identify themes that emerged from coded data to develop a parent-proxy QOL measure for young children with HL. Study Design Qualitative study with 6 focus groups followed by semistructured interviews with other parents and professionals as stakeholder checks. Setting Academic medical center and local schools for the deaf. Methods Audiology department clinic lists were used to identify eligible participants, who included 5- to 7-year-old children with permanent HL and parents of 2- to 7-year-old children with permanent HL. A sample of 6 children and 12 parents participated in focus groups. An audiology department and multiple schools for the deaf in the area were contacted to recruit for professional participants, resulting in a sample of 10 professionals who participated in focus groups. Focus groups and interviews were audiotaped and transcribed verbatim. Inductive thematic analysis of focus group transcripts identified key concepts and emerging themes of how HL affects young children. Results Six themes emerged from the data: behavior, feelings, environments, social/activities, family, and hearing equipment. Child, parent, and professional focus group themes overlapped well, and data saturation was reached. Conclusion These qualitative data provided insight into HL-related issues affecting young children’s QOL and were used to create items for a new parent-proxy QOL questionnaire.

scholarly journals The impact of influenza-like illness in young children on their parents: a quality of life survey

2013 ◽  
Vol 23 (5) ◽  
pp. 1651-1660 ◽  
Author(s):  
Maria Yui Kwan Chow ◽  
Jiehui Kevin Yin ◽  
Leon Heron ◽  
Angela Morrow ◽  
Alexa Dierig ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Influenza Like Illness ◽  
The Impact

MODELING OF THE SYSTEM OF FAMILY PREPARATION FOR PSYCHOLOGICAL AND PEDAGOGICAL CORRECTIONAL SUPPORT OF AN EARLY-AGE CHILD WITH DISABILITIES

2021 ◽  
Vol 68 (3) ◽  
Author(s):  
G. Orazayeva ◽  
Keyword(s):  
Young Children ◽  
Children With Disabilities ◽  
Individual Characteristics ◽  
Psychological State ◽  
Early Age ◽  
Young Children With Disabilities ◽  
The Individual ◽  
High Level ◽  
Oriented System

The article reveals the need to prepare a family raising a child with disabilities for psychological and pedagogical correctional work. A model of a personality-oriented system of preparing parents for psychological and pedagogical correctional support for young children with disabilities is provided. The model is built taking into account the individual characteristics of parents, such as social status, psychological state, type of motivation to acquire knowledge in the field of upcoming activities. The model of the system of preparing parents to support a child with disabilities is based on the structural and content components included in it, which ensure a high level of target orientation of the system for the development of parents ' stable readiness and ability for new activities. The article assumes that the proposed system of training parents will ensure an increase in the quality of psychological and pedagogical correctional support for young children with disabilities.

Remote Delivery of Services for Young Children With Disabilities During the Early Stages of the COVID-19 Pandemic in the United States

2021 ◽  
pp. 105381512110376
Author(s):  
Elizabeth A. Steed ◽  
Ngoc Phan ◽  
Nancy Leech ◽  
Renee Charlifue-Smith
Keyword(s):  
Early Childhood ◽  
Young Children ◽  
Children With Disabilities ◽  
The United States ◽  
Special Education Services ◽  
School Closures ◽  
Young Children With Disabilities ◽  
Remote Services ◽  
Method Approach

This study used a nationally distributed survey to explore how classroom-based early childhood personnel delivered remote services to young children with disabilities and their families during the early months of the U.S. response to the COVID-19 pandemic. A concurrent equal status fully mixed-method approach was used to analyze 221 participants’ responses to closed- and open-ended survey questions. Findings indicated that children with disabilities received modified special education services during school closures; most comments noted that early childhood personnel shifted to provide remote coaching to families. Other comments mentioned one-on-one services and accommodations for remote learning. Personnel described some benefits of remote services such as improved partnerships with families. Top reported challenges included children not receiving the same quality of services and high levels of educator stress. These and other study findings are discussed regarding the implications of COVID-19 for providing services to young children with disabilities and their families.

Self-Compassion and Quality of Life in Adults Who Stutter

2020 ◽  
Vol 29 (4) ◽  
pp. 2097-2108
Author(s):  
Robyn L. Croft ◽  
Courtney T. Byrd
Keyword(s):  
Quality Of Life ◽  
Social Connectedness ◽  
The Self ◽  
Future Research ◽  
Self Compassion ◽  
Adults Who Stutter ◽  
And Gender ◽  
Relationship Of ◽  
The Impact

Purpose The purpose of this study was to identify levels of self-compassion in adults who do and do not stutter and to determine whether self-compassion predicts the impact of stuttering on quality of life in adults who stutter. Method Participants included 140 adults who do and do not stutter matched for age and gender. All participants completed the Self-Compassion Scale. Adults who stutter also completed the Overall Assessment of the Speaker's Experience of Stuttering. Data were analyzed for self-compassion differences between and within adults who do and do not stutter and to predict self-compassion on quality of life in adults who stutter. Results Adults who do and do not stutter exhibited no significant differences in total self-compassion, regardless of participant gender. A simple linear regression of the total self-compassion score and total Overall Assessment of the Speaker's Experience of Stuttering score showed a significant, negative linear relationship of self-compassion predicting the impact of stuttering on quality of life. Conclusions Data suggest that higher levels of self-kindness, mindfulness, and social connectedness (i.e., self-compassion) are related to reduced negative reactions to stuttering, an increased participation in daily communication situations, and an improved overall quality of life. Future research should replicate current findings and identify moderators of the self-compassion–quality of life relationship.

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