scholarly journals Understanding needs and expectations of heart failure patients and their caregivers regarding digital health - the PASSION-HF project

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
A Palant ◽  
B Zippel-Schultz ◽  
CF Ski ◽  
J Brandts ◽  
C Eurlings ◽  
...  

Abstract Funding Acknowledgements Type of funding sources: Public grant(s) – EU funding. Main funding source(s): INTERREG-NWE Background/Introduction Current heart failure (HF) healthcare provision is not sufficient. Due to demographic changes and subsequent increases in comorbidities, along with unequal distribution of medical care in rural areas, alternative approaches need be sought. The use of eHealth applications has potential to enable patients to become more self-sufficient. The "PASSION-HF" project aims to develop an interactive decision-making system – a virtual doctor – that provides solutions based on current guidelines and artificial intelligence. Patient independence is maximized through 24/7 access to personalized HF-management. Furthermore, the application defines decision points, where medical professionals need to be included. Purpose To understand needs and expectations of HF patients and their informal caregivers in regard to a virtual doctor. Methods We conducted an exploratory mixed-methods study within the Netherlands, UK, Ireland and Germany. Semi-structured qualitative interviews were supplemented by a standardized questionnaire. The interviews focused on i) acceptance and motivation to use a virtual doctor and ii) experience and perception of current health care provision. The interviews were analysed using the content analysis according to Mayring (2010) with the help of "ATLAS.TI" software. Additional information about the role of informal caregivers, technology acceptance and decision-making processes was collected via questionnaires. Results A total of 49 patients and 33 informal caregivers were interviewed. Most patients were male (76%), aged between 60 and 69 years (43%). Three key themes were identified in regard to an interactive decision-making system: 1) Reassurance, because patients felt uncertain about their condition and their symptoms, they had a strong desire for an application that could monitor their health 24/7, was able to spot deteriorations, before they occured and gave them instant feedback about their current health status; 2) Personalized advice, e.g. patients wanted the virtual doctor to adapt medication, sport activities and food recommendations to their current health status; and 3) Transparency, e.g. patients wanted to know, where the recommendations are coming from and justifications for management modifications. Interview findings also identified that the HF-nurses play a significant role in the care and management of the condition. Across all countries with HF-nurses, they were the primary point of contact, when patients had any HF related concerns.  Conclusion The findings provide valuable information for the development and implementation of eHealth solutions. Patients want reassurance, independently of the availability of healthcare services, combined with personalized advice regarding day-to-day management of their HF. For the next step, we are planning a multicentre clinical trial to test the prototype of the application. Here all decisions are examined by a clinical committee and benefits are evaluated.

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e046160
Author(s):  
Bettina Zippel-Schultz ◽  
Alexander Palant ◽  
Casper Eurlings ◽  
Chantal F Ski ◽  
Loreena Hill ◽  
...  

ObjectiveHeart failure is a growing challenge to healthcare systems worldwide. Technological solutions have the potential to improve the health of patients and help to reduce costs. Acceptability is a prerequisite for the use and a successful implementation of new disruptive technologies. This qualitative study aimed to explore determinants that influence the acceptance of patients and their informal caregivers regarding a patient-oriented digital decision-making solution—a doctor-at-home system.DesignWe applied a semistructured design using an interview guide that was based on a theoretical framework influenced by established acceptance theories. The interviews were analysed using a content analysis.SettingA multicentred study in four European countries.ParticipantsWe interviewed 49 patients and 33 of their informal caregivers. Most of the patients were male (76%) and aged between 60 and 69 years (43%). Informal caregivers were mostly female (85%). The majority of patients (55%) suffered from heart failure with mild symptoms.ResultsFour main categories emerged from the data: needs and expectations, preferences regarding the care process, perceived risk and trust. Participants expressed clear wishes and expectations regarding a doctor-at-home, especially the need for reassurance and support in the management of heart failure. They were receptive to changes to the current healthcare processes. However, trust was identified as an important basis for acceptance and use. Finally, perceived risk for decision-making errors is a crucial topic in need of attention.ConclusionPatients and informal caregivers see clear benefits of digitalisation in healthcare. They perceive that an interactive decision-making system for patients could empower and enable effective self-care. Our results provide important insights for development processes of patient-centred decision-making systems by identifying facilitators and barriers for acceptance. Further research is needed, especially regarding the influence and mitigation of patients and informal caregivers’ perceived risks.


2004 ◽  
Vol 8 (38) ◽  
Author(s):  
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...  

Summary of new report published by WHO, assessing the current health status of the internally displaced people in Darfur, Sudan,


2015 ◽  
Author(s):  
◽  
Cai Hu

[ACCESS RESTRICTED TO THE UNIVERSITY OF MISSOURI AT AUTHOR'S REQUEST.] Essay 1 analyzes the married couples' retirement decision using the PSID data. I employ the proportional hazard model to examine the factors that influence the retirement decision of husband and wife, and focus on examining the correlation of husband and wife's retirement status. This essay finds that an individual is more likely to retire if his or her spouse has retired. The retirement hazard is higher if an individual is in worse health. The worse health status also affects the spouse's retirement hazard, but the spouse effect is asymmetry. With the wife in worse health, the husband's retirement hazard decreases. With the husband in worse health, the wife's retirement hazard increases. I also find that the greater the social security income or pension, the higher the retirement hazard. But for the spouse effect, the husband's social security income or pension has impact on the retirement schedule of his wife, while I find no significant impact of wife's retirement benefit on husband's retirement timing. Essay 2 explores the transitions of health status using PSID data from 1984 to 2011 with the ordered logit model and the Cox proportional hazards model. The result shows that the impact of current health status on future health status is relatively large. A worse current health status would lead to a smaller probability for health deterioration, but it is less likely to be in a good health status in the future. There is strong health persistence. Social economics factors' impact on latent health status is also significant, although the magnitude is relatively small. Higher income level and education level would decrease the likelihood of health deterioration, and individuals with high income and high education would be more likely to be in better health status. When comparing different occupations, white-collar job is less associated with health deterioration, and this type of worker is more likely to be in better health status. Essay 3 applies the competing risks model to estimate the movement of corporate credit ratings using WRDS COMPUSTAT data. The credit rating variable is the Standard and Poor's long-term domestic issuer credit rating. The explanatory variables contain measures of leverage, liquidity, current profitability and future profitability. I estimate the impacts of these financial ratios on the upward and downward of credit rating. In addition, I estimate samples before and after the 2008 subprime crisis to study the influence of financial crisis on the credit rating. The result shows that firms with a higher liquidity are more likely to be upgraded and less likely to be downgraded. The impact of liquidity is weaker after the crisis. I find that when the current level of profitability increases, the firm is more likely to be upgraded than to be downgraded. The effect of current profitability is larger after the crisis. Firms with higher leverage ratio are more likely to be upgraded and less likely to be downgraded. And the effect of leverage is similar before and after the crisis.


2015 ◽  
Vol 12 (1) ◽  
pp. 14
Author(s):  
Insook Lee ◽  
Kowoon Lee ◽  
Sung Jae Kim ◽  
Kyung Sook Bang ◽  
Hee Seung Choi

2018 ◽  
Vol 32 (2) ◽  
pp. 143-152
Author(s):  
Bishnu G.C.

This study tries to find out the current health status and the care practices of the retired elderly Professors of Kathmandu. Descriptive research design has been followed and all together 30 male and 10 female retired professors were selected conveniently. Structured questionnaire was used to collect the data and information. This study reveals that, most of the respondents (around 50%) were from 60-69 years young-old age group. In most cases, economic condition (around 90% have their own pension), marital life (around 62.5% are currently married) and family support (more than 90%) of the respondents were satisfactory about their current health status. Their physical health seems good but they were still suffering from the backache (100%), poor eye sight (80%), pain around the waist (60%), gastritis (60%) and headache (40%) which was often in elderly age due to auto immune and wear and tear theory. It was found that some of them were suffering from different chronic and acute diseases but they were cared and supported by their family members in their hard time. They had practiced regular medical checkups due to satisfactory family life and economic status.


2003 ◽  
Vol 56 (2) ◽  
pp. 155-170 ◽  
Author(s):  
Laraine Winter ◽  
M. Powell Lawton ◽  
Katy Ruckdeschel

Kahneman and Tversky's (1979) Prospect theory was tested as a model of preferences for prolonging life under various hypothetical health statuses. A sample of 384 elderly people living in congregate housing (263 healthy, 131 frail) indicated how long (if at all) they would want to live under each of nine hypothetical health conditions (e.g., limited to bed or chair in a nursing home). Prospect theory, a decision model which takes into account the individual's point of reference, would predict that frail people would view prospective poorer health conditions as more tolerable and express preferences to live longer in worse health than would currently healthy people. In separate analyses of covariance, we evaluated preferences for continued life under four conditions of functional ability, four conditions of cognitive impairment, and three pain conditions—each as a function of participant's current health status (frail vs. healthy). The predicted interaction between frailty and declining prospective health status was obtained. Frail participants expressed preferences for longer life under more compromised health conditions than did healthy participants. The results imply that such preferences are malleable, changing as health deteriorates. They also help explain disparities between proxy decision-makers' and patients' own preferences as expressed in advance directives.


2017 ◽  
Author(s):  
Najet Guefradj

This layer represents the percentage of total Disability-Adjusted Life Year attributable to unsafe water, sanitation and handwashing for 15-49 year-old females in 2015. One DALY can be thought of as one lost year of "healthy" life. The sum of DALYs across a population help to quantify the burden of disease, and to evaluate the gap between current health status and an ideal health situation. Estimates and additional related resources can be found in the Global Burden of Study here: http://ghdx.healthdata.org/gbd-2015 For more information, visit the Institute for Health Metrics and Evaluation website: http://www.healthdata.org/gbd Gender Health Youth


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