scholarly journals The Need for Person-Centered Measures for Dementia Research and Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 262-263
Author(s):  
Sam Fazio ◽  
Sheryl Zimmerman ◽  
Laura Gitlin
Keyword(s):  
Psychosocial Care ◽  
Dementia Care ◽  
Assessment Tools ◽  
Care Practice ◽  
Practice Recommendations ◽  
Item Development ◽  
Dementia Research ◽  
Detection And Diagnosis ◽  
Person Centered Approach ◽  
Guide Care

Abstract The importance of person-centered medical and psychosocial care has become widely recognized, but there is abundant evidence that care is not always person-centered. In 2018, the Alzheimer’s Association published their evidence-informed Dementia Care Practice Recommendations, which address nine domains all grounded in a person-centered perspective. Following that work, the Association launched LINC-AD -- Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living with Alzheimer's and Dementia. An early effort of LINC-AD, and the focus of this symposium, examined what measures are available to guide care and assess outcomes, and the extent to which they embrace person-centeredness. The results have been disappointing. This session will highlight the importance of person-centered measures in five domains of the Dementia Care Practice Recommendations, based on comprehensive reviews of literature. Each paper, presented by LINC-AD research advisors, will examine available measures and raise questions about gaps using a person-centered lens. Katie Maslow will describe frequently used measures and identify person-centered measures that could be added to studies of alternate procedures intended to increase detection and diagnosis. Drs. Mast and Molony will discuss a person-centered approach to item development and testing for assessment. Emilee Ertle will discuss the need to measure interpersonal and contextual factors associated with behavioral expressions. Drs. Prizer and Zimmerman will compare measures of dressing ability and their person-centered components. Dr. Calkins will examine the strengths and limitations of environmental assessment tools. As Discussant, Dr. Gitlin will integrate the findings from all five presentations, suggesting directions for the future.

scholarly journals Measurement for Something as Personal as Dressing is Not Personalized

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 263-264
Author(s):  
Sheryl Zimmerman ◽  
Lindsay Prizer
Keyword(s):  
Caregiver Burden ◽  
Daily Living ◽  
Dementia Care ◽  
Critical Assessment ◽  
Care Practice ◽  
Practice Recommendations ◽  
Outcomes Of Care ◽  
Donabedian Model ◽  
Guide Care

Abstract In 2018, the Alzheimer’s Association set forth Dementia Care Practice Recommendations in nine domains, one being support for activities for daily living (e.g., dressing, toileting, eating/nutrition). For example, preservation of dressing independence is important for dignity, autonomy, and to decrease caregiver burden. Measurement is necessary to guide care and assess outcomes related to dressing, but availability of related measures to assess processes, structures, and outcomes of care has not been examined; more so, the extent to which the related measures are person-centered is completely unexplored territory. This session will present a critical assessment of available measures grounded in the Donabedian Model. Of 21 identified measures, 4 assessed dressing alone, 16 included dressing as part of a larger scale, and 1 included dressing as a part of a scale to screen for dementia; none were person-centered. This session will suggest modifications to and need for new measures for person-centered dressing.

scholarly journals Person-Centered Assessment: Evaluating Positive Psychosocial Measures in Dementia Research

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 263-263
Author(s):  
Sheila Molony ◽  
Benjamin Mast
Keyword(s):  
Cognitive Impairment ◽  
Family Caregivers ◽  
Instrument Development ◽  
Social Relationship ◽  
Psychological Wellbeing ◽  
Future Directions ◽  
Item Development ◽  
Dementia Research ◽  
Item Content ◽  
Person Centered Approach

Abstract Person-centered principles continue to redefine the nature of dementia care, but less attention has been given to integration of person-centered principles into clinical assessment and dementia research. As a result, identification of deficits and cognitive impairment tends to dominate clinical and research efforts, whereas strengths and positive characteristics need more research. This paper examines existing positive psychosocial measures of psychological wellbeing, hope, spirituality, resilience, social relationship, dignity, and at-homeness. Many of these measures demonstrate strong psychometric properties and have been identified as promising outcome measures for strengths-based studies and approaches to care. This paper will evaluate the extent to which these measures used a person-centered approach to item development and testing, and whether item content is consistent with person-centered principles. Future directions for instrument development require greater inclusion of people living with dementia and family caregivers.

scholarly journals Alzheimer’s Association Dementia Care Practice Recommendations

2018 ◽  
Vol 58 (suppl_1) ◽  
pp. S1-S9 ◽  
Author(s):  
Sam Fazio ◽  
Douglas Pace ◽  
Katie Maslow ◽  
Sheryl Zimmerman ◽  
Beth Kallmyer
Keyword(s):  
Dementia Care ◽  
Care Practice ◽  
Practice Recommendations

scholarly journals The Integration of Psychosocial Care into National Dementia Strategies Across Europe: Evidence from the Skills in DEmentia Care (SiDECar) Project

2021 ◽  
Vol 18 (7) ◽  
pp. 3422
Author(s):  
Ilaria Chirico ◽  
Rabih Chattat ◽  
Vladimíra Dostálová ◽  
Pavla Povolná ◽  
Iva Holmerová ◽  
...  
Keyword(s):  
Content Analysis ◽  
Clinical Practice ◽  
Social Services ◽  
Psychosocial Care ◽  
Psychosocial Interventions ◽  
System Of Care ◽  
Dementia Care ◽  
Integrated System ◽  
Health And Social Services

There is evidence supporting the use of psychosocial interventions in dementia care. Due to the role of policy in clinical practice, the present study investigates whether and how the issue of psychosocial care and interventions has been addressed in the national dementia plans and strategies across Europe. A total of 26 national documents were found. They were analyzed by content analysis to identify the main pillars associated with the topic of psychosocial care and interventions. Specifically, three categories emerged: (1) Treatment, (2) Education, and (3) Research. The first one was further divided into three subcategories: (1) Person-centred conceptual framework, (2) Psychosocial interventions, and (3) Health and social services networks. Overall, the topic of psychosocial care and interventions has been addressed in all the country policies. However, the amount of information provided differs across the documents, with only the category of ‘Treatment’ covering all of them. Furthermore, on the basis of the existing policies, how the provision of psychosocial care and interventions would be enabled, and how it would be assessed are not fully apparent yet. Findings highlight the importance of policies based on a comprehensive and well-integrated system of care, where the issue of psychosocial care and interventions is fully embedded.

OP27 Dissemination and implementation in dementia care practice: a systematic scoping review

2016 ◽  
Vol 70 (Suppl 1) ◽  
pp. A19.2-A19
Author(s):  
I Lourida ◽  
R Abbott ◽  
I Lang ◽  
M Rogers ◽  
B Kent ◽  
...  
Keyword(s):  
Scoping Review ◽  
Dementia Care ◽  
Care Practice ◽  
Dissemination And Implementation

scholarly journals The public health end-of-life care movement: history, principles, and styles of practice

2018 ◽  
Author(s):  
Aliki Karapliagou ◽  
Allan Kellehear ◽  
Klaus Wegleitner
Keyword(s):  
Public Health ◽  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Psychosocial Care ◽  
Care Practice ◽  
Life Care ◽  
The Public ◽  
Civic Practice ◽  
Practice Methods

This chapter briefly outlines the history, key concepts, and main practice methods from public health approaches to end-of-life care. Although linked to psychosocial care approaches, its main methods draw not from psychology or health services inspired approaches but rather from health promotion, community development, and civic engagement. Key methods covered include community volunteering, social networking, community engagement, and compassionate communities and cities. The aim of these kinds of approaches is to embed palliative care practice as a social and civic practice in all sectors of society and to ensure that palliative care as a policy is represented in all civic policies (e.g. schools, workplaces, faith groups, and cultural activities) and not solely in health care.

Rural community-based nurses’ self-reported knowledge and skills in the provision of psychosocial care to palliative and end-of-life clients and carers

2021 ◽  
pp. 1-9
Author(s):  
Eli Ristevski ◽  
Michael Leach ◽  
Ellen Bolton ◽  
Melissa Spargo ◽  
Anny Byrne ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Rural Community ◽  
Psychosocial Care ◽  
Assessment Tools ◽  
Formal Training ◽  
Educational Strategies ◽  
Community Based ◽  
Knowledge And Skills ◽  
Practice Gaps

Abstract Objective This study examined rural community-based nurses' self-reported knowledge and skills in the provision of psychosocial care to rural residing palliative and end-of-life clients and carers. We further sought to determine correlates of knowledge gaps to inform workforce education and planning. Method Nurses from a rural area of Victoria, Australia, were invited to complete an electronic questionnaire rating their knowledge against 6 national palliative care standards and 10 screening and assessment tools. A 5-point scale of (1) No experience to (5) Can teach others was used to rate knowledge. Results were classified into three categories: practice gaps, areas of consolidation, and strengths. Descriptive and logistical regression was used to analyze data. Results A total of 122 of 165 nurses (response rate = 74%) completed the survey. Of these nurses, 87% were Registered Nurses, 43% had ≥10 years' experience in palliative care, and 40% had palliative care training. The majority of practices across the standards and screening and assessment tools were rated as knowledge strengths (N = 55/67, 82%). Gaps and areas of consolidation were in the use of client and carer assessment tools, the care of specific populations such as children, supporting carers with appropriate referrals, resources, and grief, and facilitating the processes of reporting a death to the coroner. Lack of formal training and lower years of experience were found to be associated with practice gaps. Significance of results Our study found rural nurses were confident in their knowledge and skills in the majority of psychosocial care. As generalist nurses make up the majority of the rural nursing workforce, further research should be undertaken on what educational strategies are needed to support and upskill rural community-based nurses to undertake formal training in palliative care.

Sign in / Sign up

Export Citation Format

Share Document