scholarly journals Measurement for Something as Personal as Dressing is Not Personalized

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 263-264
Author(s):  
Sheryl Zimmerman ◽  
Lindsay Prizer
Keyword(s):  
Caregiver Burden ◽  
Daily Living ◽  
Dementia Care ◽  
Critical Assessment ◽  
Care Practice ◽  
Practice Recommendations ◽  
Outcomes Of Care ◽  
Donabedian Model ◽  
Guide Care

Abstract In 2018, the Alzheimer’s Association set forth Dementia Care Practice Recommendations in nine domains, one being support for activities for daily living (e.g., dressing, toileting, eating/nutrition). For example, preservation of dressing independence is important for dignity, autonomy, and to decrease caregiver burden. Measurement is necessary to guide care and assess outcomes related to dressing, but availability of related measures to assess processes, structures, and outcomes of care has not been examined; more so, the extent to which the related measures are person-centered is completely unexplored territory. This session will present a critical assessment of available measures grounded in the Donabedian Model. Of 21 identified measures, 4 assessed dressing alone, 16 included dressing as part of a larger scale, and 1 included dressing as a part of a scale to screen for dementia; none were person-centered. This session will suggest modifications to and need for new measures for person-centered dressing.

scholarly journals The Need for Person-Centered Measures for Dementia Research and Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 262-263
Author(s):  
Sam Fazio ◽  
Sheryl Zimmerman ◽  
Laura Gitlin
Keyword(s):  
Psychosocial Care ◽  
Dementia Care ◽  
Assessment Tools ◽  
Care Practice ◽  
Practice Recommendations ◽  
Item Development ◽  
Dementia Research ◽  
Detection And Diagnosis ◽  
Person Centered Approach ◽  
Guide Care

Abstract The importance of person-centered medical and psychosocial care has become widely recognized, but there is abundant evidence that care is not always person-centered. In 2018, the Alzheimer’s Association published their evidence-informed Dementia Care Practice Recommendations, which address nine domains all grounded in a person-centered perspective. Following that work, the Association launched LINC-AD -- Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living with Alzheimer's and Dementia. An early effort of LINC-AD, and the focus of this symposium, examined what measures are available to guide care and assess outcomes, and the extent to which they embrace person-centeredness. The results have been disappointing. This session will highlight the importance of person-centered measures in five domains of the Dementia Care Practice Recommendations, based on comprehensive reviews of literature. Each paper, presented by LINC-AD research advisors, will examine available measures and raise questions about gaps using a person-centered lens. Katie Maslow will describe frequently used measures and identify person-centered measures that could be added to studies of alternate procedures intended to increase detection and diagnosis. Drs. Mast and Molony will discuss a person-centered approach to item development and testing for assessment. Emilee Ertle will discuss the need to measure interpersonal and contextual factors associated with behavioral expressions. Drs. Prizer and Zimmerman will compare measures of dressing ability and their person-centered components. Dr. Calkins will examine the strengths and limitations of environmental assessment tools. As Discussant, Dr. Gitlin will integrate the findings from all five presentations, suggesting directions for the future.

scholarly journals Alzheimer’s Association Dementia Care Practice Recommendations

2018 ◽  
Vol 58 (suppl_1) ◽  
pp. S1-S9 ◽  
Author(s):  
Sam Fazio ◽  
Douglas Pace ◽  
Katie Maslow ◽  
Sheryl Zimmerman ◽  
Beth Kallmyer
Keyword(s):  
Dementia Care ◽  
Care Practice ◽  
Practice Recommendations

OP27 Dissemination and implementation in dementia care practice: a systematic scoping review

2016 ◽  
Vol 70 (Suppl 1) ◽  
pp. A19.2-A19
Author(s):  
I Lourida ◽  
R Abbott ◽  
I Lang ◽  
M Rogers ◽  
B Kent ◽  
...  
Keyword(s):  
Scoping Review ◽  
Dementia Care ◽  
Care Practice ◽  
Dissemination And Implementation

scholarly journals The Effect of Long Term Care Resources on Burdens for Caregiving People Living with Dementia in Taiwan

2021 ◽  
Author(s):  
Yang-Hao Ou ◽  
Ming-Che Chang ◽  
Wen-Fu Wang ◽  
Kai-Ming Jhang
Keyword(s):  
Caregiver Burden ◽  
Long Term Care ◽  
Dementia Care ◽  
Care Team ◽  
Control Group ◽  
Term Care ◽  
People With Dementia ◽  
Home Based ◽  
Caregiver Group

Abstract Background: There is an increasing awareness of caregiver's burden, especially in those caring for people with dementia. The caregiver burden has been studied extensively in Western countries; however, the interpretation of the results and replication of the intervention may deem unfit in the Chinese culture. Therefore, this study identifies the change in caregiver burden by interventional methods under current Taiwan's long-term care Act 2.0.Method: A total of 2,598 newly diagnosed dementia outpatients was evaluated by the Changhua Christian Hospital dementia care team. Eighty patients utilize one of the three care resources, including community-based services (n = 33), home-based services (n = 19), or taking care by foreign caregivers (n = 28). Participants in the control group were selected by matching their global CDR score, gender, age, and caregivers' age with a 1:4 ratio. All caregivers completed the Zarit Burden Interview (ZBI) questionnaires before and six months after utilizing the care resources. Results: The home-based and the foreign caregiver groups have the highest baseline ZBI scores with 37.63±16.14 and 36.57±17.14, respectively. The second ZBI score was assessed about six months after the baseline showing that the home-based group remained the highest caregiver burden (ZBI = 31.74±12.23) and the foreign caregiver group showed the lowest burden (ZBI = 25.68±12.09). The mean difference in the ZBI score confirmed that the foreign caregiver group had the most improvement, averaging a decrease of 17.99±31.08 points (adjust observation time). A linear regression model showed that home-based care and foreign caregiver contributes the most reduction in caregiver burden (-11.83 and -19,07 ZBI scores, respectively).Conclusion: Caring for people with dementia includes caring for their caregivers. Dementia care team should provide proper social resources, which are crucial in the alleviation of caregiver burden.

Caregiver burden assessed in dementia care networks in Germany: findings from the DemNet-D study baseline

2016 ◽  
Vol 21 (9) ◽  
pp. 926-937 ◽  
Author(s):  
Franziska Laporte Uribe ◽  
Steffen Heinrich ◽  
Karin Wolf-Ostermann ◽  
Sylvia Schmidt ◽  
Jochen René Thyrian ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Dementia Care

The Patterns of Caregiving Activities for Family Caregivers of Older Adults in Hong Kong: An Exploratory Latent Class Analysis

2020 ◽  
Author(s):  
Jing Huang ◽  
Pui Hing Chau ◽  
Edmond Pui Hang Choi ◽  
Bei Wu ◽  
Vivian W Q Lou
Keyword(s):  
Older Adults ◽  
Hong Kong ◽  
Activities Of Daily Living ◽  
Latent Class Analysis ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Daily Living ◽  
Latent Class ◽  
Class Analysis ◽  
High Demand

Abstract Objectives This study identified the classes (i.e., patterns) of caregivers’ activities, based on their engagements in caregiving activities, and explored the characteristics and the caregiver burden of these classes. Methods This study was a secondary analysis of a cross-sectional survey on the profiles of family caregivers of older adults in Hong Kong. A latent class analysis approach was adopted to classify family caregivers (N = 932) according to their routine involvements in 17 daily caregiving activities: 6 activities of daily living (ADLs) and 8 instrumental activities of daily living activities (IADLs) in addition to emotional support, decision making, and financial support. Multinomial logistic regression and multiple linear regression illuminated the characteristics of the classes and compared their levels of caregiver burden. Results The family caregivers fell into 5 classes: All-Round Care (High Demand, 19.5%), All-Round Care (Moderate Demand, 8.2%), Predominant IADLs Care (High Demand, 23.8%), Predominant IADLs Care (Moderate Demand, 32.5%), and Minimal ADLs and IADLs Care (Low Demand, 16.0%). These classes exhibited different characteristics in terms of care recipients’ cognitive statuses and caregiver backgrounds. The levels of caregiver burden differed across classes; the All-Round Care (High Demand) class experienced the highest levels of caregiver burden. Discussion This study contributes to existing scholarship by turning away from a predefined category of care tasks to explore the patterns of caregiving activities. By identifying caregiving activity patterns and understanding their associated characteristics and caregiver burden, prioritizing and targeting caregiver support interventions better is possible.

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