scholarly journals Person-Centered Assessment: Evaluating Positive Psychosocial Measures in Dementia Research

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 263-263
Author(s):  
Sheila Molony ◽  
Benjamin Mast
Keyword(s):  
Cognitive Impairment ◽  
Family Caregivers ◽  
Instrument Development ◽  
Social Relationship ◽  
Psychological Wellbeing ◽  
Future Directions ◽  
Item Development ◽  
Dementia Research ◽  
Item Content ◽  
Person Centered Approach

Abstract Person-centered principles continue to redefine the nature of dementia care, but less attention has been given to integration of person-centered principles into clinical assessment and dementia research. As a result, identification of deficits and cognitive impairment tends to dominate clinical and research efforts, whereas strengths and positive characteristics need more research. This paper examines existing positive psychosocial measures of psychological wellbeing, hope, spirituality, resilience, social relationship, dignity, and at-homeness. Many of these measures demonstrate strong psychometric properties and have been identified as promising outcome measures for strengths-based studies and approaches to care. This paper will evaluate the extent to which these measures used a person-centered approach to item development and testing, and whether item content is consistent with person-centered principles. Future directions for instrument development require greater inclusion of people living with dementia and family caregivers.

scholarly journals The Need for Person-Centered Measures for Dementia Research and Care

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 262-263
Author(s):  
Sam Fazio ◽  
Sheryl Zimmerman ◽  
Laura Gitlin
Keyword(s):  
Psychosocial Care ◽  
Dementia Care ◽  
Assessment Tools ◽  
Care Practice ◽  
Practice Recommendations ◽  
Item Development ◽  
Dementia Research ◽  
Detection And Diagnosis ◽  
Person Centered Approach ◽  
Guide Care

Abstract The importance of person-centered medical and psychosocial care has become widely recognized, but there is abundant evidence that care is not always person-centered. In 2018, the Alzheimer’s Association published their evidence-informed Dementia Care Practice Recommendations, which address nine domains all grounded in a person-centered perspective. Following that work, the Association launched LINC-AD -- Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living with Alzheimer's and Dementia. An early effort of LINC-AD, and the focus of this symposium, examined what measures are available to guide care and assess outcomes, and the extent to which they embrace person-centeredness. The results have been disappointing. This session will highlight the importance of person-centered measures in five domains of the Dementia Care Practice Recommendations, based on comprehensive reviews of literature. Each paper, presented by LINC-AD research advisors, will examine available measures and raise questions about gaps using a person-centered lens. Katie Maslow will describe frequently used measures and identify person-centered measures that could be added to studies of alternate procedures intended to increase detection and diagnosis. Drs. Mast and Molony will discuss a person-centered approach to item development and testing for assessment. Emilee Ertle will discuss the need to measure interpersonal and contextual factors associated with behavioral expressions. Drs. Prizer and Zimmerman will compare measures of dressing ability and their person-centered components. Dr. Calkins will examine the strengths and limitations of environmental assessment tools. As Discussant, Dr. Gitlin will integrate the findings from all five presentations, suggesting directions for the future.

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

scholarly journals Focus Group Findings on Needs and Supports for Family Caregivers Caring for a Family Member with Cognitive Impairment (S749)

2018 ◽  
Vol 55 (2) ◽  
pp. 683-684
Author(s):  
Jill Slaboda ◽  
Robin Fail ◽  
Brynn Bowman ◽  
Amy Wade ◽  
Lisa Morgan ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Focus Group ◽  
Family Member ◽  
Family Caregivers

Future Directions

2017 ◽  
Author(s):  
Paul B. Rosenberg
Keyword(s):  
Cognitive Impairment ◽  
Diagnosis And Treatment ◽  
Future Directions ◽  
Psychological Treatments ◽  
Best Estimate ◽  
The Future ◽  
Near Future

Predicting the future of medical and psychological treatments is uncertain work at best, and the discussion below will likely cover some “promising” avenues of research that will go nowhere. But clinicians are eager to know what is coming in the near future in terms of diagnosis and treatment and we will present our best estimate of these innovations below. The reader should note in advance that our approach to cognitive impairment is in rapid flux but to depression already pretty solidly established.

What explains variations in the clinical use of mild cognitive impairment (MCI) as a diagnostic category?

2008 ◽  
Vol 20 (4) ◽  
pp. 697-709 ◽  
Author(s):  
Tiago Moreira ◽  
Julian C. Hughes ◽  
Thomas Kirkwood ◽  
Carl May ◽  
Ian McKeith ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Clinical Practice ◽  
Mild Cognitive Impairment ◽  
Cognitive Aging ◽  
Diagnostic Category ◽  
Clinical Use ◽  
Structured Interviews ◽  
Clinical Culture ◽  
Diagnosis Of Dementia ◽  
Dementia Research

ABSTRACTBackground: Mild cognitive impairment (MCI) is proposed to describe the transitional stage between normal cognitive aging and dementia. It has had significant impact in the field of dementia research, but it remains controversial whether or not it should be used as a diagnostic category in clinical practice.Methods: Semi-structured interviews were carried out with international experts (N = 37) in the field of dementia research and practice. These interviews explored the advantages and difficulties of using MCI as a clinical diagnosis.Results: There is wide variation in the clinical use of MCI. This variation depends on institutional factors and two types of cultural factors: (a) clinical culture, and (b) the “evidential culture” – how research and guidelines figure in clinical practice.Conclusion: The study shows the importance of combining values-based practice with evidence-based practice in the early diagnosis of dementia.

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