scholarly journals Support for Adjusting the Intentions of Family Members and Users Regarding Care Service Use: Aimed at Care Management

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 852-852
Author(s):  
Kazutaka Masuda
Keyword(s):  
Care Management ◽  
Service Use ◽  
Care Service ◽  
Family Members ◽  
Theory Approach ◽  
Negative Feedback Loops ◽  
Care Managers ◽  
The Family ◽  
Home Nursing Care ◽  
Grounded Theory Approach

Abstract In Japan, there are key healthcare professionals for home nursing care for elderly people called Care Managers. The care manager coordinates the service while adjusting the family situation and the user’s intentions. The purpose of this study was to examine the practical structure of support for adjusting the intentions of family members and users regarding care service use. Data from seven cases, where family members and users have different intentions regarding care service use, were analyzed using the grounded theory approach. The phenomenon of “confirmation of discrepancies” was discovered with six sub-categories: adjusting the intentions of users and their families, effort to restore relationships, expression of intention to refuse involvement, expression of desire for adjustment, arrangement of opportunities for adjustment of intentions, and appropriate service adjustment. Four patterns occurred in the process of “confirmation of discrepancies”: smooth adjustment, restoration and promotion of mutual relationships, failure to reach an agreement, and negative feedback loops. These patterns were based on a combination of the care managers’ degree of understanding strength, the managers’ degree of insistence, the managers’ degree of representation of mutual feelings, the degree of managers’ prediction of life prospects, the degree of trust in care managers, and the degree of expression of family anxiety.

The Origins and Development of Socioemotional Wealth Within Next-Generation Family Members: An Interpretive Grounded Theory Study

2019 ◽  
Vol 32 (4) ◽  
pp. 396-424 ◽  
Author(s):  
Linda Murphy ◽  
Jolien Huybrechts ◽  
Frank Lambrechts
Keyword(s):  
Grounded Theory ◽  
Family Members ◽  
Theory Approach ◽  
Next Generation ◽  
Socioemotional Wealth ◽  
Life Paths ◽  
The Family ◽  
Generation Family ◽  
Key Events ◽  
Grounded Theory Approach

Adopting an interpretive grounded theory approach, we find that key events in the early lives of next-generation family members fuel a sense of belonging and identity, which lies at the heart of their socioemotional wealth. As next-generation family members interact more with the family business, they interpret nonfinancial aspects of the firm as an answer to a larger variety of affective needs, which broadens and strengthens their interactive socioemotional wealth frame of mind. In line with our life course theory lens, we observe how key events that build up socioemotional wealth greatly influence the life paths of next-generation family members.

Perception of family sense of coherence during parental transition: A qualitative study

2020 ◽  
pp. 135910532091406 ◽  
Author(s):  
Fei Wan Ngai ◽  
Pui Sze Chan
Keyword(s):  
Sense Of Coherence ◽  
Perinatal Period ◽  
Support Network ◽  
Theory Approach ◽  
Social Support Network ◽  
Structured Interviews ◽  
Factors Affecting ◽  
The Family ◽  
Confucian Philosophy ◽  
Grounded Theory Approach

This study described the perspectives and interplay of factors affecting the family sense of coherence of Chinese couples during the perinatal period. We adopted a grounded theory approach and conducted semi-structured interviews with 36 Chinese couples during pregnancy and at 2–3 months postpartum. Four major themes emerged involving meaningfulness, comprehensibility, and manageability of new parenthood and factors affecting the family sense of coherence. The strong sense of family unity and harmony embedded in the Confucian philosophy and the collective coping, in particular the strong social support network, seemed to contribute to couple’s experience of new parenthood as meaningful, comprehensible, and manageable.

Family caregiver's experiences in caring for a patient with terminal cancer at home in Japan

2007 ◽  
Vol 5 (4) ◽  
pp. 389-395 ◽  
Author(s):  
Tomomi Sano ◽  
Etsuko Maeyama ◽  
Masako Kawa ◽  
Yuki Shirai ◽  
Mitsunori Miyashita ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Service ◽  
Family Members ◽  
Primary Caregivers ◽  
Palliative Care Service ◽  
Terminal Cancer ◽  
Time Of Death ◽  
The Family ◽  
Personal Qualities ◽  
At Home

ABSTRACTObjectives:The aim of the study was to clarify the care experience of primary caregivers when caring for a terminal cancer patient in the home with the assistance of a home palliative care service. Participants were asked to provide background data and to evaluate their experience of caregiving and of the patient's response throughout the period of home palliative care, up to the time of death.Methods:One hundred twelve primary family caregivers were a mailed self-report questionnaire, and 74 valid questionnaires were returned (response rate 66%).Results:Ninety percent felt that the patient's condition of mind and body was reasonably stable, and 75% felt that the death was peaceful. About 90% reported a deepening of their bond with the patient and that the bond of other family members deepened also. Sixty percent reported that the burden of caregiving was not too great or not felt at all. Approximately 90% judged that the patient retained his or her own personal qualities to the end. Ninety percent also felt that they had done their best in their caregiving and judged that home care had been beneficial for the deceased, for the primary caregiver him/herself, and for other family members. These primary caregivers' evaluations of caring for a terminally ill patient at home in conjunction with a home palliative care service were both high and positive.Significance of results:Our findings suggest that it is important to maintain the patient's personal qualities up to the time of death through appropriate symptom management, to respect the family bond of the household, and to provide professional support in order to reduce the load on the family. If appropriate care is provided, peaceful home death will be possible, resulting in significant benefits for patients and their families in Japan.

‘Family stigma’ among family members of people with mental illness in Indonesia: A grounded theory approach

2021 ◽  
pp. 1-22
Author(s):  
Muhammad Arsyad Subu ◽  
Del Fatma Wati ◽  
Nabeel Al-Yateem ◽  
Netrida Netrida ◽  
Vetty Priscilla ◽  
...  
Keyword(s):  
Mental Illness ◽  
Grounded Theory ◽  
Family Members ◽  
Theory Approach ◽  
People With Mental Illness ◽  
Grounded Theory Approach

scholarly journals Life Experiences of Women (Housewives) Diagnosed Hiv – Aids in Serang

2019 ◽  
Author(s):  
Eka Ernawati ◽  
Siti Yuyun Rahayu ◽  
Titis Kurniawan
Keyword(s):  
Care Service ◽  
Health Care Service ◽  
Family Members ◽  
Hiv Status ◽  
Hiv Diagnosis ◽  
Unique Problem ◽  
Interview Method ◽  
Depth Interview ◽  
The Family ◽  
Experiences Of Women

Background: HIV transmitted to the housewives who are not in sexual high risk behavior affects to the complicated and unique problem. It does not only trigger psychological, physical, social and spirituality problems but also the problem of responsibility to take care of their children and family. Objective: To explore the experiences of housewives infected with HIV in order find the new insights. The findings are expected to be the references in either educational or health care service of HIV patients. Methods: The research is qualitative-and the study design is phenomenological. The data were collected by using in-depth interview method upon 7 HIV-infected women in coastal area of Serang and Rangkasbitung. The data analysis used Colaizzi. Results: The results of the study showed 3 themes, including the unknowing of HIV information, losing a partner and the desire to get married, self-stigmatized and child-discrimination concern, telling the family members regarding the patients’ HIV status and the treatment, and preparing for death. Several experiences of HIV-infected women covered physics, socio-psychology and spirituality. The new themes were discovered, including heredity, unknowing of HIV information before HIV-diagnosis, telling the family members regarding the patients’ HIV status and the treatment, and preparing for death. Conclusion: Therefore, it is important for counselors to provide holistic and complete care in order to develop aprogramorexploringadiscussiontopicofHIV-infected women in counseling program.    

scholarly journals A Grounded Theoretical Analysis of Room Elements Desired by Family Members and Visitors of Hospitalized Patients: Implications for Medical/Surgical Hospital Patient Room Design

2018 ◽  
Vol 12 (1) ◽  
pp. 124-144 ◽  
Author(s):  
Emily S. Patterson ◽  
Elizabeth B.-N. Sanders ◽  
Steven A. Lavender ◽  
Carolyn M. Sommerich ◽  
Sanghyun Park ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Family Members ◽  
Theory Approach ◽  
Hospital Patient ◽  
Interior Space ◽  
Hospital Room ◽  
Design Concepts ◽  
Room Design ◽  
Improve Hospital ◽  
Grounded Theory Approach

Objective: To identify family members’ and visitors’ needs with relation to the design of a hospital room. Background: There is a trend toward incorporating family zones in hospital patient rooms in order to improve patient satisfaction and encourage family caregivers to stay longer and overnight. Method: A mixed-method study was employed. Interviews of patients and family caregivers were conducted to understand opportunities to improve hospital room designs based on recent experiences. Features intended to support short-term and overnight visitors were embedded in five full-scale simulated room design concepts. Small groups of family caregivers and patients toured two room design concepts and reacted real time to room features. A grounded theory approach was employed to identify emerging themes. Results: A theoretical design framework is developed for the needs of family members and visitors for a range of time periods. This framework is founded upon desires to help make the patient feel more comfortable. There are various levels of helping the patient feel more comfortable, including visiting, keeping company, providing support, providing assistance, and being a caregiver. Beyond this core need, family members and visitors must take care of their own needs in order to feel comfortable in the hospital room. Activities associated with these needs include sitting, relaxing, eating, working, tending to daily needs, and resting overnight. Conclusions: Potential implications for architects, healthcare planners, and interior space designers are described. Design and renovation guidance for the hospital room environment in order to support the needs and expectations of families and visitors is provided.

scholarly journals Perspectives on Dementia Service Use and Family Caregiving Among the Oneida Nation of Wisconsin

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 710-710
Author(s):  
Mary Wyman ◽  
Nickolas Lambrou ◽  
Debra Miller ◽  
Sunshine Wheelock ◽  
Florence Petri ◽  
...  
Keyword(s):  
Family Caregiver ◽  
Family Caregiving ◽  
Service Use ◽  
Care Service ◽  
Qualitative Interviews ◽  
Community Based Participatory Research ◽  
Dementia Care ◽  
Community Based ◽  
Caregiver Support ◽  
The Family

Abstract Prevalence of dementia among American Indian/Alaska Natives (AI/AN) is higher than in white populations, and AI/AN communities experience dementia care service gaps. This study explored perspectives within AI/AN communities regarding dementia, the family caregiver role, and home and community-based service use. Using tenets of Community-Based Participatory Research, qualitative interviews and a brief survey were conducted with 22 members of the Oneida Nation of Wisconsin (mean age 71 years, 73% female). Of the sample, 63.6% identified as a past or current family caregiver for a loved one with dementia. Awareness of services varied; 82% were aware of memory cafes, 75% knew of the caregiver support group, and 43% were familiar with dementia care specialist services. Thematic analysis revealed shared values of involving the family and community in dementia care, and offer guidance to support greater engagement in services. Implications for culturally-tailored service provision within AI/AN communities are discussed.

scholarly journals Integrated health Services for Children: a qualitative study of family perspectives

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Rose-Marie Satherley ◽  
Raghu Lingam ◽  
Judith Green ◽  
Ingrid Wolfe
Keyword(s):  
Young People ◽  
Integrated Care ◽  
Service Use ◽  
Care Service ◽  
Holistic Approach ◽  
Essential Components ◽  
The Family ◽  
Family Perspectives ◽  
Related Quality

Abstract Background There is increasing evidence that integrated care improves child related quality of life and reduces health service use. However, there is limited evidence on family perspectives about the quality of integrated care for children’s services. This study aimed to understand children, young people, and caregivers’ perceptions of a new integrated care service, and to identify essential components of integrated care for children and young people with ongoing conditions. Methods A qualitative analysis of in-depth interviews with caregivers and children included families (N = 37) with children with one of four ongoing conditions (asthma, eczema, epilepsy, constipation) who had experienced a new integrated care service delivered in South London, UK. Results Four key components of integrated services identified were: that the key health-worker understood the health needs of the family in context; that professionals involved children and caregivers in treatment; that holistic care that supported the family unit was provided; and that families experienced coordination across health, social, and education systems. Conclusions Children and families identify care navigation and a holistic approach as key components that make high quality integrated care services. Service developments strengthening these aspects will align well with family perspectives on what works and what matters.

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