scholarly journals Informal Caregiving Between Residents in LTC Facilities in India: Demanding or Rewarding Role

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 244-245
Author(s):  
Shantha Balaswamy
Keyword(s):  
Older Adult ◽  
Emotional Support ◽  
Exploratory Study ◽  
South India ◽  
Labor Policy ◽  
Personal Accomplishment ◽  
Care Recipient ◽  
Unpaid Labor ◽  
Personal Experiences ◽  
Role Demands

Abstract Research on caring for older adult with health problems by Informal caregivers (IC) in the community in developing countries like India is increasing. However, IC in institutions is largely unacknowledged. This exploratory study examines the perceived role, demands, and rewards of informal caring for residents in independent LTC facilities in South India. A total of 187 residents were interviewed in Tamil and Kannada using structured and open-ended questions on demographics, health, mental health, residents’ interactions, tasks performed and personal experiences. About 50% reported assisting other residents with ADLs, 30% helped with IADLs, and 75% provided emotional support. The caregivers’ appraisals as residents and their relationship with care-recipient was both positive and negative. In addition to socialization, personal accomplishment, caregivers reported emotional exhaustion, stress, and burnout. Implications related to paid and unpaid labor policy in LTC and reducing IC stress are discussed.

Perceptions of family‐centred care among caregivers of children with cerebral palsy in South India: An exploratory study

2021 ◽  
Author(s):  
Deepalaxmi Paresh Poojari ◽  
Shashikiran Umakanth ◽  
G. Arun Maiya ◽  
Bhamini Krishna Rao ◽  
Marie Brien ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Exploratory Study ◽  
South India ◽  
Children With Cerebral Palsy

Attitudes of Iranian nurses toward caring for dying patients

2008 ◽  
Vol 6 (4) ◽  
pp. 363-369 ◽  
Author(s):  
Sedigheh Iranmanesh ◽  
Helen Dargahi ◽  
Abbas Abbaszadeh
Keyword(s):  
Emotional Support ◽  
Death And Dying ◽  
Negative Attitude ◽  
Decision Makers ◽  
Attitudes Toward Death ◽  
The People ◽  
Dying Patients ◽  
Personal Experiences ◽  
Reflective Narrative

ABSTRACTObjective:To examine the attitudes of Iranian nurses toward caring for dying patients.Methods:Nurses' attitudes toward death and caring for dying patients were examined by using two types of questionnaires: the Death Attitude Profile–Revised (DAP-R) and Frommelt's Attitude towards Caring for Dying Patients (FATCOD), both with a demographic survey.Results:The results showed that most respondents are likely to view death as a natural part of life and also as a gateway to the afterlife. The majority reported that they are likely to provide care and emotional support for the people who are dying and their families, but they were unlikely to talk with them or even educate them about death. They had a tendency not to accept patients and their families as the authoritative decision makers or involve families in patient care. Nurses' personal views on death, as well as personal experiences, affected their attitudes toward care of the dying.Significance of results:Lack of education and experience, as well as cultural and professional limitations, may have contributed to the negative attitude toward some aspects of the care for people who are dying among the nurses surveyed. Creating a reflective narrative environment in which nurses can express their own feelings about death and dying seems to be a potentially effective approach to identify the factors influencing their interaction with the dying. Continuing education may be required for Iranian palliative care nurses in order to improve the patients quality of care at the end of life.

scholarly journals A profile of Australian mental health carers, their caring role and service needs: results from the 2012 Survey of Disability, Ageing and Carers

2018 ◽  
Vol 28 (6) ◽  
pp. 670-681 ◽  
Author(s):  
S. Diminic ◽  
E. Hielscher ◽  
M. G. Harris ◽  
Y. Y. Lee ◽  
J. Kealton ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Physical Health ◽  
Emotional Support ◽  
Service Use ◽  
Adult Child ◽  
Household Survey ◽  
Care Recipient ◽  
Service Needs ◽  
Formal Service

AbstractAimsPlanning mental health carer services requires information about the number of carers, their characteristics, service use and unmet support needs. Available Australian estimates vary widely due to different definitions of mental illness and the types of carers included. This study aimed to provide a detailed profile of Australian mental health carers using a nationally representative household survey.MethodsThe number of mental health carers, characteristics of carers and their care recipients, caring hours and tasks provided, service use and unmet service needs were derived from the national 2012 Survey of Disability, Ageing and Carers. Co-resident carers of adults with a mental illness were compared with those caring for people with physical health and other cognitive/behavioural conditions (e.g., autism, intellectual disability, dementia) on measures of service use, service needs and aspects of their caring role.ResultsIn 2012, there were 225 421 co-resident carers of adults with mental illness in Australia, representing 1.0% of the population, and an estimated further 103 813 mental health carers not living with their care recipient. The majority of co-resident carers supported one person with mental illness, usually their partner or adult child. Mental health carers were more likely than physical health carers to provide emotional support (68.1%v.19.7% of carers) and less likely to assist with practical tasks (64.1%v.86.6%) and activities of daily living (31.9%v.48.9%). Of co-resident mental health carers, 22.5% or 50 828 people were confirmed primary carers – the person providing the most support to their care recipient. Many primary mental health carers (37.8%) provided more than 40 h of care per week. Only 23.8% of primary mental health carers received government income support for carers and only 34.4% received formal service assistance in their caring role, while 49.0% wanted more support. Significantly more primary mental health than primary physical health carers were dissatisfied with received services (20.0%v.3.2%), and 35.0% did not know what services were available to them.ConclusionsResults reveal a sizable number of mental health carers with unmet needs in the Australian community, particularly with respect to financial assistance and respite care, and that these carers are poorly informed about available supports. The prominence of emotional support and their greater dissatisfaction with services indicate a need to better tailor carer services. If implemented carefully, recent Australian reforms including the Carer Gateway and National Disability Insurance Scheme hold promise for improving mental health carer supports.

scholarly journals LIVING-APART-TOGETHER RELATIONSHIPS: EXPLORING OLDER ADULT BLACK WOMEN’S PERSPECTIVES ON CAREGIVING EXCHANGES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S911-S912
Author(s):  
Nytasia Hicks
Keyword(s):  
Black Women ◽  
Older Adult ◽  
Emotional Support ◽  
Living Arrangements ◽  
Future Expectations ◽  
Spousal Caregiving ◽  
Physical Support ◽  
Living Apart Together ◽  
Core Concepts ◽  
Qualitative Descriptive

Abstract Recent research suggests that the preference for living-apart-together (LAT) relationships, where individuals are committed to one another but reside in separate households, has increased among older adults. However, older adult LAT couples prefer not to exchange care to maintain autonomy. In this study, we examine future expectations of spousal caregiving exchanges among older adult black women in LAT relationships. Eleven black women ages 60-74 (married and unmarried) completed two semi-structured phone interviews about future spousal caregiving expectations as to receiving and providing emotional, financial, and physical support. Regarding providing spousal care, findings from this qualitative descriptive study suggest that participants were consistent in their intent to provide emotional support, yet divided in visualizing themselves providing both financial and physical support for a spouse. As to receiving care from a spouse, participants envisioned their spouses providing emotional support, but responses were inconsistent on the expectation of spouses providing financial and physical support. Participants anticipate receiving emotional and physical support from their adult children and/or close family members instead of spouses. Autonomy, level of commitment, and the exchange of health information were also identified as core concepts. This study has implications for applications to different intimate relationships regarding living arrangements, to professionals supporting caregiving families, and to further studies of family gerontology.

scholarly journals EMERGING ADULT CAREGIVERS: PERCEPTIONS OF OLDER ADULT CARE RECIPIENTS, QUALITY OF CONTACT, AND AGEISM

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S952-S952
Author(s):  
Anastasia E Canell ◽  
Grace Caskie
Keyword(s):  
Older Adults ◽  
Older Adult ◽  
Social Role ◽  
Emerging Adult ◽  
Care Recipient ◽  
Adult Care ◽  
Care Recipients ◽  
Adult Caregivers ◽  
Quality Of Contact

Abstract Approximately 12-18% of family caregivers to older adults in the U.S. are 18-25 years old (i.e., emerging adulthood), yet minimal research has focused on this subgroup of caregivers (Levine, 2005; Smyth, Blaxland, & Cass, 2011). Individuals’ perceptions of an older adult’s social role relate to their attitudes toward older adults as a group (Hummert, 1999; Kite & Wagner, 2002). However, whether perceptions that emerging adult caregivers hold of older adults are specific to the social role of “care-recipient” has not been studied. A sample of 210 informal caregivers (ages 18-25) were surveyed to collect qualitative responses regarding perceptions of an older adult care-recipient (age 65+) and to assess quality of contact with the care-recipient and ageist attitudes. Participants were asked to provide five adjectives describing their older adult care-recipient. Approximately 43% provided a set of adjectives in which 80%-100% were coded as positive adjectives (e.g., “active”, “wise”); similarly, half of the sample’s adjective sets contained 0%-25% negative adjectives (e.g., “helpless”, “obnoxious”). The quality of contact with the care-recipient was significantly correlated (p<.001) with the percentage of positive (r=.47) and negative (r=-.49) adjectives. Scores on the Fraboni Scale of Ageism were also significantly correlated (p<.01) with the percentage of positive (r=-.19) and negative (r=.20) adjectives. Overall, these emerging adult caregivers had generally positive perceptions of their older adult care-recipients, and these perceptions reflected the positive quality of contact with the care-recipient. Less ageist attitudes’ relationship with more positive and less negative perceptions may have implications for experiences within a caregiving dyad.

scholarly journals COMMUNICATION IN THE CONTEXT OF FAMILY CAREGIVING: AN EXPLORATORY STUDY OF UGANDAN CHILDREN ON ANTIRETROVIRAL THERAPY

2015 ◽  
Vol 48 (5) ◽  
pp. 672-693 ◽  
Author(s):  
P. Kajubi ◽  
Anne R. Katahoire ◽  
David Kyaddondo ◽  
Susan R. Whyte
Keyword(s):  
Antiretroviral Therapy ◽  
Thematic Analysis ◽  
Emotional Support ◽  
Family Caregiving ◽  
Exploratory Study ◽  
Family Dynamics ◽  
Participant Observation ◽  
Diagnosis And Treatment ◽  
Aids Diagnosis ◽  
Depth Interviews

SummaryIt is important to consider the complexities of family dynamics when deciding when and how to communicate with HIV-infected children about their illness and treatment. Previous research has focused on providers’ and caregivers’ perspectives on whether, when and how to disclose HIV/AIDS diagnosis and treatment to HIV-infected children. From the perspective of HIV-infected children, communication does not mean just giving information about illness and treatment, but also encompasses emotional and material care. This paper places communication within the broader framework of caregiving in family situations. This exploratory study was conducted in Jinja district, Uganda, between November 2011 and December 2012. Through participant observation and in-depth interviews, communication by, and with, HIV-infected children in the context of family situations was explored from the perspectives of 29 HIV-infected children aged 8–17 years on antiretroviral therapy (ART) using content thematic analysis. Children’s communication with caregivers about their illness and treatment varied depending on whom they were living with and the nature of caregiving. Although a mother’s care was considered best, children described others who cared ‘like a mother’. For some, caregiving was distributed among several relatives and non-relatives, while others felt they had hardly anyone to care for them. Caregiving from the children’s perspective involved emotional support, expressed verbally and explicitly in messages of concern, encouragement conveyed in reminders to take medicines, attention when sick and confidential conversations about the challenges of having HIV and taking ART. Caregiving was also communicated implicitly in acts of provision of food/drinks to take with medicines, counting pills to confirm they had taken the medicines and accompanying children to treatment centres. Children’s communication about their health and medicines and the care they received was to a large extent shaped by the nature of their relatedness to their caregivers, the extent to which caregiving was dispersed among several people and who else in the household was infected with HIV and on medication.

Women Support Providers Are More Susceptible Than Men to Emotional Contagion Following Brief Supportive Interactions

2011 ◽  
Vol 35 (4) ◽  
pp. 611-616 ◽  
Author(s):  
Eran Magen ◽  
Paul A. Konasewich
Keyword(s):  
Gender Differences ◽  
Physical Health ◽  
Emotional Support ◽  
Exploratory Study ◽  
Emotional State ◽  
Emotional Contagion ◽  
Additional Research ◽  
Costs And Benefits ◽  
Support Providers ◽  
Naturalistic Setting

People in distress often turn to friends for emotional support. Ironically, although receiving emotional support contributes to emotional and physical health, providing emotional support may be distressing as a result of emotional contagion. Women have been found to be more susceptible than men to emotional contagion in certain contexts, but no studies examined the context of providing support to a troubled friend in a naturalistic setting. Our exploratory study aimed to test for gender differences in emotional contagion as a result of offering emotional support to a troubled friend. We studied naturalistic informal supportive interactions among 48 pairs of friends. Following an 8-min interaction with a troubled friend, (a) women were more likely than men to experience a deterioration in their positive emotional state and (b) changes in women’s emotional state were positively correlated with changes in their troubled friends’ emotional state, whereas changes in male support providers’ emotional state were unrelated to changes in their troubled friends’ emotional state. These results suggest that women are more susceptible than men to emotional contagion following brief interactions with a troubled friend, thereby highlighting the importance of conducting additional research into the costs and benefits of exchanging emotional support among friends.

scholarly journals “We Really Help, Taking Care of Each Other”: Older Homeless Adults as Caregivers

2019 ◽  
Vol 5 ◽  
pp. 233372141989476
Author(s):  
Sarah Rosenwohl-Mack ◽  
Margot Kushel ◽  
Claire Ramsey ◽  
Margaret Handley ◽  
Kelly R. Knight
Keyword(s):  
Qualitative Study ◽  
Family Member ◽  
Older Adult ◽  
Family Caregiving ◽  
Qualitative Interviews ◽  
Care Recipient ◽  
Homeless Adults ◽  
Adult Participants ◽  
Taking Care

Objectives: Many older homeless adults maintain contact with family. We conducted a qualitative study examining the role of family caregiving for older homeless adults. Method: We conducted semi-structured qualitative interviews with a sample of 46 homeless participants who reported spending at least one night with a housed family member in the prior 6 months. Results: A total of 13 of 46 older adult participants provided caregiving. Themes included (a) the death of the care recipient led to the participant’s homelessness; (b) feeling a duty to act as caregivers; (c) providing care in exchange for housing; (d) caregivers’ ability to stay was tenuous; (e) providing care conflicted with the caregiver’s needs; and (f) resentment when family was ungrateful. Discussion: In a sample of older homeless adults in contact with family, many provided caregiving for housed family. For some, caregiving precipitated homelessness; for others, caregiving provided temporary respite from homelessness, and for others, caregiving continued during homelessness.

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