scholarly journals ASSOCIATION BETWEEN SEEKING HEALTH INFORMATION ON THE INTERNET AND PALLIATIVE CARE KNOWLEDGE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S262-S262
Author(s):  
YuJun Zhu ◽  
Susan Enguidanos

Abstract Background: National and state surveys have found that only 8% - 17% of people know what palliative care (PC) is. Anecdotal reports also suggest many of those knowledgeable have misconceptions about PC. This lack of knowledge or misconceptions about PC can serve as barriers to accessing palliative care for seriously ill patients. Additionally, individuals often use the internet to seek health information, but it is unclear if this improves palliative care health literacy. Methods: We used the Health Information National Trends Survey 5, Cycle 2 (2018), a nationally representative dataset (n=3,504) to compare self-rated PC knowledge level with actual knowledge. We conducted chi-square and logistic regression to examine the association between PC knowledge and seeking health information on the internet. Results: About 33% of participants self-reported having PC knowledge. When these individuals were queried about specific PC knowledge, 58% failed to answer three basic questions correctly. After controlling for demographic and socioeconomic status, using the Internet to seek health information was positively associated with being knowledge about PC (P=0.006, OR=1.64), while having less than high school education was associated with lower PC knowledge. Implications: We found that self-reported PC knowledge may not reflect actual PC knowledge and thus clinicians should be sure to define the service when introducing it to patients. In addition, since use of internet in seeking health information is significantly associated with PC knowledge, it is important to ensure that internet PC information is valid, reliable, easy to access, and presented in simple language.

2019 ◽  
Vol 32 (5-6) ◽  
pp. 453-461
Author(s):  
Kelly M. Shaffer ◽  
Chandylen L. Nightingale

Objective: The demands of providing unpaid care for someone with a disabling health condition (i.e., informal caregiving) can limit attention to one’s own health needs. Using a nationally representative survey, this study examines whether caregivers report different healthcare utilization relative to non-caregivers. Method: Participants in the Health Information National Trends Survey 5, Cycle 1 reported whether they provided unpaid care and healthcare utilization outcomes. Logistic regressions and chi-square tests with jackknife variance estimation were used. Results: Caregivers ( N = 391) did not differ from non-caregivers ( N = 2,894) in time since routine checkup or number of healthcare appointments in the past year ( p values > .25). Among caregivers, number of healthcare appointments differed according to caregivers’ relationship to the care recipient ( p = .04). Discussion: Findings suggest that informal caregivers access routine healthcare at a frequency similar to non-caregivers. Further research should determine whether this utilization is optimal, or whether increased utilization during caregiving might help attenuate caregivers’ longer term morbidity.


2019 ◽  
Author(s):  
Leila Ahmadian ◽  
Reza Khajouei ◽  
Sudabeh Kamali ◽  
Moghaddameh Mirzaee ◽  
Arefeh Ameri

BACKGROUND Today, the Internet may be a promising tool for interventions for pregnant women. However, these kinds of tools are only helpful if users are ready to use them. OBJECTIVE The present study was conducted with the aim of readiness assessment of pregnant women to use the Internet to access health information about pregnancy and childbirth. METHODS This study was carried out on a sample of 384 pregnant women. Data were collected using a valid and reliable questionnaire. The first section of this questionnaire collected demographic characteristics of the participants. The second part of the questionnaire contains 27 questions covering the following components: infrastructure readiness (6 questions); affordability readiness (3 questions); and skill readiness (12 questions). Data were analyzed with SPSS 19.0 using descriptive statistics, Chi-square test, and T-test. RESULTS This study was carried out on a sample of 384 pregnant women. Data were collected using a valid and reliable questionnaire. The first section of this questionnaire collected demographic characteristics of the participants. The second part of the questionnaire contains 27 questions covering the following components: infrastructure readiness (6 questions); affordability readiness (3 questions); and skill readiness (12 questions). Data were analyzed with SPSS 19.0 using descriptive statistics, Chi-square test, and T-test. CONCLUSIONS The use of the Internet by pregnant women depends on factors such as infrastructure, affordability, and skills readiness. This study showed that speed and the quality of the Internet, hardware and software availability, affordability of the Internet, and access to the Internet training were factors in measuring E-health readiness assessment. CLINICALTRIAL Not applicable


2019 ◽  
Vol 3 (s1) ◽  
pp. 136-137
Author(s):  
Amelia Barwise ◽  
Andrea Cheville ◽  
Mark Wieland ◽  
Ognjen Gajic ◽  
Alexandra Greenberg-Worisek

OBJECTIVES/SPECIFIC AIMS: Immigrants to North America receive more interventions at end of life.The reasons for this are not entirely clear but may potentially be due to knowledge gaps. The primary objective of this study was to measure and describe levels of perceived knowledge about palliative care among immigrants to the US compared to those born in the US. Our secondary objective was to identify trusted sources for seeking information about palliative care among immigrants and compare these trusted sources with those born in the US. We hypothesized that immigrants would have less knowledge of palliative care than those born in US and would trust different sources for information about palliative care. METHODS/STUDY POPULATION: We analyzed data from the nationally representative 2018 Health Information National Trends Survey (HINTS 5, cycle 2). Questionnaires were administered via mail between January and May 2018 to a population-based sample of adults. The primary outcome of interest was assessed using the item “How would you describe your level of knowledge about palliative care?” The secondary outcome of interest was determined using the item “Imagine you had a strong need to get information about palliative care, which of the following would you most trust as a source of information about palliative care?” All analyses were complete case analyses and conducted with survey commands using SAS 9.3 (SAS Institute Inc, Cary, NC, USA). Descriptive statistics were calculated, and bivariate analyses run between the outcomes of interest and sociodemographic characteristics (age, sex, education, race/ethnicity, nativity, English language proficiency). Multivariable logistic regressions were conducted to assess the role of nativity, controlling for statistically significant and relevant sociodemographic variables. Jackknife weighting was used to generate population-level estimates. RESULTS/ANTICIPATED RESULTS: The response rate was 33% (n=3384) and included 2846 (85.3% weighted) born in the US and 492 (14.7% weighted) not born in the USA. About 70% of those born in the US and 77% of immigrants (weighted) responded that they had “never heard of palliative care.” Trusted sources of palliative care were very similar between the groups (all p > 0.05). Both groups’ preferred trusted source of palliative care knowledge was “health care provider,” with over 80% of respondents in each group selecting this option. Printed materials and social media were the least popular trusted sources among both groups. After adjusting for relevant sociodemographic characteristics, we found no association between poor knowledge of palliative care and nativity (p=0.22). Female respondents had 2.5-fold increased odds of reporting low levels of perceived knowledge of palliative care (OR = 2.58, 95% CI = 1.76-3.78; p<0.001). Education was an important predictor of perceived knowledge of palliative care; as education level increased, so did perceived knowledge of palliative care (p < 0.001). DISCUSSION/SIGNIFICANCE OF IMPACT: Perceived knowledge of palliative care is poor generally, regardless of birthplace. Trusted sources for palliative care are similar between immigrants and those born in the US. Education is important and is a strong predictor of perceived knowledge of palliative care. Women perceive they have lower levels of knowledge of PC than men. Differences in end of life care between immigrants and non-immigrants cannot be explained by knowledge differences. Further research is needed to examine the potential factors including suboptimal communication between providers and immigrant patients to understand why these differences are noted. Future strategies for improving knowledge of palliative care should target health care providers as the key trusted source of information to help address deficits noted in this study.


2009 ◽  
Vol 15 (1_suppl) ◽  
pp. 16-29
Author(s):  
Jiali Ye ◽  
Zhiheng Xu ◽  
Bamidele Adesunloye

Information seeking has significant impact on improving cancer preventive activities and health decision making. This study sought to compare Black and White adults on cancer information seeking and the choice of primary information sources. Non-Hispanic Black and non-Hispanic White adults completed Health Information National Trends Surveys (HINTS) collected in 2003 and in 2005. The results of bivariate analyses showed that Whites were more likely than Blacks to be cancer information seekers for both years (2003: 49.0% vs. 40.8%, p < .001; 2005: 54.6% vs. 46.9%, p = .008). However, after controlling for sociodemographic variables, race was not significantly associated with cancer information seeking. Both racial groups increased their likelihood of cancer information seeking from 2003 to 2005, although the increase was only statistically significant for Whites ( p < .001). Health providers and the Internet were the top two most selected primary cancer information sources for both racial groups. These findings indicate that sociodemographic factors, such as gender, education, and cancer history, may shape the racial difference in health information seeking among the general population. Among all the information sources, health care providers and the Internet play the most important role in providing cancer-related information.


2019 ◽  
Vol 21 (7) ◽  
pp. 970-973 ◽  
Author(s):  
Jennifer L Pearson ◽  
Meghan Moran ◽  
Cristine D Delnevo ◽  
Andrea C Villanti ◽  
M Jane Lewis

Abstract Significance US smokers of Natural American Spirit, a brand marketed as “organic” and “additive-free,” are more likely than other cigarette smokers to believe that their brand might be less harmful than other brands. This article (1) describes the prevalence of belief that “organic” and “additive-free” tobacco is less harmful than regular tobacco products in the US population and (2) describes the sociodemographic characteristics of adults who believe tobacco products with these descriptors are less harmful. Methods Data were drawn from the 2017 Health Information National Trends Survey (HINTS), a nationally representative survey of US adults. Logistic regression models were used to examine correlates of the belief that “organic” or “additive-free” tobacco products are less harmful than regular tobacco products. Results Overall, 26.7% of US adults and 45.3% of adult smokers believe that “organic” tobacco products are less harmful than regular tobacco products. Similarly, 35.2% of US adults and 47.1% of smokers believe that “additive-free” tobacco products are less harmful. When examining gender, age, education, race/ethnicity, sexual orientation, and smoking status, only age (adjusted odds ratio [aOR] ~0.98, 95% confidence interval [CI]: 0.97, 0.99 for both outcomes) and smoking status (current vs. never smokers, aOR ~1.78, 95% CI 1.03, 3.07 for both outcomes) were correlates of believing that “organic” or “additive-free” tobacco is less harmful than regular tobacco products. Conclusions Belief that “organic” and “additive-free” tobacco products are less harmful than other products is widespread. Younger adults and current smokers are most likely to be misinformed by “organic” or “additive-free” tobacco product descriptors. Implications Belief that “organic” and “additive-free” tobacco products are less harmful than other products is widespread among US adults and most prevalent among smokers. Removal of terms that incorrectly imply reduced harm may correct current and future consumers’ misperceptions about the brand.


2019 ◽  
Vol 58 (1) ◽  
pp. 39-47.e3 ◽  
Author(s):  
Jinhai Huo ◽  
Young-Rock Hong ◽  
Reetu Grewal ◽  
Sandhya Yadav ◽  
Isaac W. Heller ◽  
...  

2018 ◽  
Vol 36 (30_suppl) ◽  
pp. 1-1
Author(s):  
Robert Michael Daly ◽  
Marwan S. Abougergi

1 Background: The Centers for Medicare and Medicaid Services (CMS) has identified 10 conditions for hospitalization among patients receiving chemotherapy that are potentially preventable through appropriately managed outpatient care. CMS plans to measure hospitals’ performance based on frequency of admission for: anemia, dehydration, diarrhea, emesis, nausea, neutropenia, fever, pain, pneumonia, and sepsis. Our objective was to measure hospital utilization patterns for these conditions. Methods: Nationally representative data from the 2004 and 2014 National Inpatient Sample were analyzed. Adults with stage IV solid tumors admitted with a principal diagnosis of one of the ten conditions were identified using ICD-9 codes provided by CMS. The primary outcome was number of admissions. Secondary outcomes were total hospitalization costs, length of stay (LOS), and in-hospital mortality rate. Proportions and count data were compared using chi-square and binomial test, respectively. Results: Between 2004 and 2014, potentially preventable hospitalizations increased from 64,053 to 85,740 (p < 0.01). The most frequent reason for admission was pneumonia (32%) in 2004 and sepsis (41%) in 2014. Table 1 provides the results for the year 2014 by condition. Hospitalizations for sepsis had the longest mean LOS (p < 0.01), highest mean total costs (p < 0.01) and most frequently resulted in death (p < 0.01). Conclusions: The Department of Health and Human Services states, “Improving patients’ quality of life by keeping patients out of the hospital is a main goal of cancer care.” Despite supportive care advances, the increased frequency of hospitalization demonstrates a need for continued symptom management innovation. Infectious symptoms should be a focus of these technologies given their high prevalence, mortality and resource utilization. [Table: see text]


2018 ◽  
Author(s):  
Kelly M. Shaffer ◽  
Philip I. Chow ◽  
Wendy F. Cohn ◽  
Karen S. Ingersoll ◽  
Lee M. Ritterband

BACKGROUND Informal caregivers express strong interest in technology innovations to help them in their caregiving role; however, divides across sociodemographic characteristics in internet and technology access may preclude the most vulnerable caregivers from accessing such resources. OBJECTIVE This study aims to examine caregivers’ internet use, both generally and for seeking health-related information, and whether usage differs as a function of caregivers’ characteristics. METHODS Data were analyzed from the Health Information National Trends Survey 5 Cycle 1. Participants were included in analyses if they self-identified as providing uncompensated care to a close individual. Caregivers reported internet use factors, age, education, rurality, general health, distress, and objective caregiving burden. We used chi-square tests of independence with jackknife variance estimation to compare whether internet use factors differed by caregivers’ characteristics. RESULTS A total of 77.5% (303/391) caregivers surveyed reported ever using the internet. Of internet users, 88.1% (267/303) accessed from a home computer and 83.2% (252/303) from a mobile device. Most caregivers accessed health information for themselves (286/391, 73.1%) or others (264/391, 67.5%); fewer communicated with a doctor over the Web (148/391, 37.9%) or had a wellness app (171/391, 43.7%). Caregivers reporting younger age, more education, and good health were more likely to endorse any of these activities. Furthermore, two-thirds of caregivers (258/391, 66.0%) endorsed trust in health information from the internet. CONCLUSIONS Computers and mobile devices are practical platforms for disseminating caregiving-related information and supportive services to informal caregivers; these modalities may, however, have a more limited reach to caregivers who are older, have less education, and are in poorer health.


Sign in / Sign up

Export Citation Format

Share Document