scholarly journals Opening government health data to the public: benefits, challenges, and lessons learned from early innovators

2016 ◽  
Vol 24 (2) ◽  
pp. 345-351 ◽  
Author(s):  
Erika G Martin ◽  
Grace M Begany
Keyword(s):  
Health Care ◽  
Data Quality ◽  
New York State ◽  
Open Data ◽  
Health Data ◽  
Community Empowerment ◽  
Theory Approach ◽  
Data Movement ◽  
Department Of Health ◽  
Open Data Movement

Objective: Government agencies are rapidly developing web portals to proactively publish “open” data that are searchable, available in nonproprietary formats, and with unlimited use and distribution rights. In this dynamic environment, we aimed to understand the experiences of 2 early leaders in open health data, the US Department of Health and Human Services and the New York State Department of Health. Materials and Methods: Semistructured interviews with 40 practitioners and policymakers elicited value propositions, capabilities required for successful open data programs, and strategies for improving impact and sustainability. Transcripts were analyzed using a grounded theory approach to identify common perspectives and divergent viewpoints. Results: Respondents were optimistic about the value of open data, reporting numerous opportunities to advance the triple aim of lower costs, improved health care quality, and better population health. Benefits to agencies include enhanced data quality and more efficient operations. External benefits include improved health literacy, data-driven changes in health care delivery, consumer engagement, and community empowerment. Key challenges are resources, cultural resistance, navigating legal and regulatory issues, and data quality. Discussion: The open data movement will likely continue, but success requires sustained leadership, resources, organizational cultural change, promotion of data use, and governance. Jurisdictions that are initiating open data programs can incorporate these lessons from early innovators. Conclusions: The open data movement has a bright future but unknown long-term impact. To maintain momentum, important directions for the field include reconsidering legal guidance on protecting health data in the open data era and quantifying the return on investment.

scholarly journals The State of Open Data: Histories and Horizons

2019 ◽  
Author(s):  
Tim Davies ◽  
Stephen B. Walker ◽  
Mor Rubinstein ◽  
Fernando Luis Perini
Keyword(s):  
Communities Of Practice ◽  
Open Data ◽  
The State ◽  
Data Movement ◽  
The Past ◽  
The World ◽  
To Come ◽  
Open Data Movement ◽  
New Phase ◽  
Real World Problems

Its been ten years since open data first broke onto the global stage. Over the past decade, thousands of programmes and projects around the world have worked to open data and use it to address a myriad of social and economic challenges. Meanwhile, issues related to data rights and privacy have moved to the centre of public and political discourse. As the open data movement enters a new phase in its evolution, shifting to target real-world problems and embed open data thinking into other existing or emerging communities of practice, big questions still remain. How will open data initiatives respond to new concerns about privacy, inclusion, and artificial intelligence? And what can we learn from the last decade in order to deliver impact where it is most needed? The State of Open Data brings together over 60 authors from around the world to address these questions and to take stock of the real progress made to date across sectors and around the world, uncovering the issues that will shape the future of open data in the years to come.

Armchair Auditors: Crowdsourcing Analysis of Government Expenditures

2015 ◽  
Vol 12 (1) ◽  
pp. 71-91 ◽  
Author(s):  
Daniel E. O'Leary
Keyword(s):  
United Kingdom ◽  
Local Governments ◽  
Open Data ◽  
Information And Communications Technology ◽  
Government Expenditures ◽  
Data Movement ◽  
The United Kingdom ◽  
Wide Range ◽  
Potential Benefits ◽  
Open Data Movement

ABSTRACT Increasingly, there is interest in using information and communications technology (ICT) to help build a “better world.” As an example, the United Kingdom has initiated an “open data” movement to disclose financial information about federal and local governments and other organizations. This has led to the use of a wide range of technologies (Internet, Databases, Web 2.0, etc.) to facilitate disclosure. However, since there is a huge cost of generating and maintaining open data, there also is a concern: “will anyone do anything with the data?” In a speech in 2009, David Cameron, the Prime Minister of the United Kingdom, used the term “armchair auditor” to describe crowdsourcing analysis of that data. In that speech, Cameron (2009) noted: “Just imagine the effect that an army of armchair auditors is going to have on those expense claims.” Accordingly, as more and more countries and organizations generate open data, those “armchair auditors” could play an increasingly important role: to help crowdsource monitoring of government expenditures. This paper investigates a number of potential benefits and a number of emerging concerns associated with armchair auditors.

Improving Data Quality in Health Care

2010 ◽  
pp. 1877-1881
Author(s):  
Karolyn Kerr ◽  
Tony Norris
Keyword(s):  
Health Care ◽  
New Zealand ◽  
Data Quality ◽  
Good Practice ◽  
Health Data ◽  
Strategic Approach ◽  
The Right ◽  
Data Collections ◽  
And Control ◽  
Care Demands

The increasingly information intensive nature of health care demands a proactive and strategic approach to data quality to ensure the right information is available to the right person at the right time in the right format. The approach must also encompass the rights of the patient to have their health data protected and used in an ethical way. This article describes the principles to establish good practice and overcome practical barriers that define and control data quality in health data collections and the mechanisms and frameworks that can be developed to achieve and sustain quality. The experience of a national health data quality project in New Zealand is used to illustrate the issues.

Improving Data Quality in Health Care

2011 ◽  
pp. 218-225 ◽  
Author(s):  
Karolyn Kerr ◽  
Tony Norris
Keyword(s):  
Health Care ◽  
New Zealand ◽  
Data Quality ◽  
Good Practice ◽  
Health Data ◽  
Strategic Approach ◽  
The Right ◽  
Data Collections ◽  
And Control ◽  
Care Demands

The increasingly information intensive nature of health care demands a proactive and strategic approach to data quality to ensure the right information is available to the right person at the right time in the right format. The approach must also encompass the rights of the patient to have their health data protected and used in an ethical way. This article describes the principles to establish good practice and overcome practical barriers that define and control data quality in health data collections and the mechanisms and frameworks that can be developed to achieve and sustain quality. The experience of a national health data quality project in New Zealand is used to illustrate the issues.

Corpus Phonetics

2019 ◽  
Vol 5 (1) ◽  
pp. 91-107 ◽  
Author(s):  
Mark Y. Liberman
Keyword(s):  
Intellectual Property ◽  
Open Data ◽  
Linguistic Analysis ◽  
Data Movement ◽  
Limited Access ◽  
Speech Patterns ◽  
Open Data Movement

Semiautomatic analysis of digital speech collections is transforming the science of phonetics. Convenient search and analysis of large published bodies of recordings, transcripts, metadata, and annotations—up to three or four orders of magnitude larger than a few decades ago—have created a trend towards “corpus phonetics,” whose benefits include greatly increased researcher productivity, better coverage of variation in speech patterns, and crucial support for reproducibility. The results of this work include insights into theoretical questions at all levels of linguistic analysis, along with applications in fields as diverse as psychology, medicine, and poetics, as well as within phonetics itself. Remaining challenges include still-limited access to the necessary skills and a lack of consistent standards. These changes coincide with the broader Open Data movement, but future solutions will also need to include more constrained forms of publication motivated by valid concerns for privacy, confidentiality, and intellectual property.

scholarly journals The Challenges of Open Data Movement for Education: What is the Say of Young Employees and Students in Croatia?

2021 ◽  
pp. 374-383
Author(s):  
Branka Mraović
Keyword(s):  
Young People ◽  
Open Data ◽  
Technical Knowledge ◽  
Data Movement ◽  
Data Policy ◽  
Data Portal ◽  
Open Data Movement ◽  
The Impact ◽  
The City ◽  
Shed Light

This paper aims to shed light on how students and young employees in Croatia assess their education for open data and what is their opinion on the compliance of the central Open Data Portal with the needs of young people as well as how they evaluate open data policy related to the young people in Croatia. This research highlights the lack of technical knowledge as a serious obstacle to the productive use of open data. As many as 56% of respondents from companies that have undergone digital transformation believe that they do not have enough knowledge to participate in open data projects, and the same scepticism is expressed by 59.6% of non-technical respondents and 45.7% of students. The data presented in this paper is part of a broader empirical research on the impact of digitalization on the transformation of the Croatian economy, carried out by the author in late 2018 on a sample of 51 young employees from 10 companies in the city of Zagreb and 70 students from 16 technical and non-technical Faculties of Zagreb University.

Qualitative Perspectives on a Facilitated Change in Provincial Pharmacare Coverage

2005 ◽  
Vol 138 (2) ◽  
pp. 30-34
Author(s):  
Peter L. Twohig ◽  
Wayne Putnam ◽  
Dawn Frail
Keyword(s):  
Health Care ◽  
Health Care Professionals ◽  
Educational Interventions ◽  
Delivery Systems ◽  
Computer Assisted ◽  
Theory Approach ◽  
Policy Changes ◽  
Department Of Health ◽  
Provider Perspectives ◽  
Future Policy

Background: During 2000, Nova Scotia's Department of Health implemented policy changes and educational interventions to encourage a switch from wet nebulization therapy to dry-dose delivery systems. The policy changes applied to beneficiaries of the Nova Scotia Pharmacare Programs, while the educational interventions had a broader provincial perspective. Methods: Researchers from Dalhousie University's Department of Family Medicine subsequently interviewed family physicians, pharmacists, and other health professionals to gather their views on the initiative. A single researcher (PLT) conducted interviews in the summer of 2001 in two settings. Interviews were audiotaped and transcribed. Analysis was guided by a grounded theory approach and facilitated by the use of QSR N5, a software program designed for computer-assisted qualitative data analysis. Results: The results are discussed in several categories, including the role of evidence, change strategies, user devotion to older delivery systems, and health care provider perspectives on policy change. Conclusion: Health care professionals interviewed agreed that this was a well-designed initiative in many respects. Participants identified several key elements that offer insights for future policy-implementation design, execution, and evaluation.

Open data movement in Greece

2013 ◽  
Author(s):  
Charalampos Alexopoulos ◽  
Lefkothea Spiliotopoulou ◽  
Yannis Charalabidis
Keyword(s):  
Open Data ◽  
Data Movement ◽  
Open Data Movement
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