Big Data & Society
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Published By Sage Publications

2053-9517, 2053-9517

2022 ◽  
Vol 9 (1) ◽  
pp. 205395172110692
Author(s):  
Irina Lut ◽  
Katie Harron ◽  
Pia Hardelid ◽  
Margaret O’Brien ◽  
Jenny Woodman

Research has shown that paternal involvement positively impacts on child health and development. We aimed to develop a conceptual model of dimensions of fatherhood, identify and categorise methods used for linking fathers with their children in administrative data, and map these methods onto the dimensions of fatherhood. We carried out a systematic scoping review to create a conceptual framework of paternal involvement and identify studies exploring the impact of paternal exposures on child health and development outcomes using administrative data. We identified four methods that have been used globally to link fathers and children in administrative data based on family or household identifiers using address data, identifiable information about the father on the child's birth registration, health claims data, and Personal Identification Numbers. We did not identify direct measures of paternal involvement but mapping linkage methods to the framework highlighted possible proxies. The addition of paternal National Health Service numbers to birth notifications presents a way forward in the advancement of fatherhood research using administrative data sources.


2022 ◽  
Vol 9 (1) ◽  
pp. 205395172110653
Author(s):  
Moritz Büchi ◽  
Noemi Festic ◽  
Michael Latzer

People's sense of being subject to digital dataveillance can cause them to restrict their digital communication behavior. Such a chilling effect is essentially a form of self-censorship in everyday digital media use with the attendant risks of undermining individual autonomy and well-being. This article combines the existing theoretical and limited empirical work on surveillance and chilling effects across fields with an analysis of novel data toward a research agenda. The institutional practice of dataveillance—the automated, continuous, and unspecific collection, retention, and analysis of digital traces—affects individual behavior. A mechanism-based causal model based on the theory of planned behavior is proposed for the micro level: An individual's increased sense of dataveillance causes their subjective probability assigned to negative outcomes of digital communication behavior to increase and attitudes toward this communication to become less favorable, ultimately decreasing the intention to engage in it. In aggregate and triggered through successive salience shocks such as data scandals, dataveillance is accordingly hypothesized to lower the baseline of free digital communication in a society through the chilling effects mechanism. From the developed theoretical model, a set of methodological consequences and questions for future studies are derived.


2022 ◽  
Vol 9 (1) ◽  
pp. 205395172110706
Author(s):  
Marthe Stevens ◽  
Rik Wehrens ◽  
Johanna Kostenzer ◽  
Anne Marie Weggelaar-Jansen ◽  
Antoinette de Bont

Recent buzzes around big data, data science and artificial intelligence portray a data-driven future for healthcare. As a response, Europe's key players have stimulated the use of big data technologies to make healthcare more efficient and effective. Critical Data Studies and Science and Technology Studies have developed many concepts to reflect on such overly positive narratives and conduct critical policy evaluations. In this study, we argue that there is also much to be learned from studying how professionals in the healthcare field affectively engage with this strong European narrative in concrete big data projects. We followed twelve hospital-based big data pilots in eight European countries and interviewed 145 professionals (including legal, governance and ethical experts, healthcare staff and data scientists) between 2018 and 2020. In this study, we introduce the metaphor of dreams to describe how professionals link the big data promises to their own frustrations, ideas, values and experiences with healthcare. Our research answers the question: how do professionals in concrete data-driven initiatives affectively engage with European Union's data hopes in their ‘dreams’ – and with what consequences? We describe the dreams of being seen, of timeliness, of connectedness and of being in control. Each of these dreams emphasizes certain aspects of the grand narrative of big data in Europe, makes particular assumptions and has different consequences. We argue that including attention to these dreams in our work could help shine an additional critical light on the big data developments and stimulate the development of responsible data-driven healthcare.


2022 ◽  
Vol 9 (1) ◽  
pp. 205395172110696
Author(s):  
Pascal D König ◽  
Stefan Wurster ◽  
Markus B Siewert

A major challenge with the increasing use of Artificial Intelligence (AI) applications is to manage the long-term societal impacts of this technology. Two central concerns that have emerged in this respect are that the optimized goals behind the data processing of AI applications usually remain opaque and the energy footprint of their data processing is growing quickly. This study thus explores how much people value the transparency and environmental sustainability of AI using the example of personal AI assistants. The results from a choice-based conjoint analysis with a sample of more than 1.000 respondents from Germany indicate that people hardly care about the energy efficiency of AI; and while they do value transparency through explainable AI, this added value of an application is offset by minor costs. The findings shed light on what kinds of AI people are likely to demand and have important implications for policy and regulation.


2022 ◽  
Vol 9 (1) ◽  
pp. 205395172110707
Author(s):  
Richard Milne ◽  
Alessia Costa ◽  
Natassia Brenman

In this paper, we examine the practice and promises of digital phenotyping. We build on work on the ‘data self’ to focus on a medical domain in which the value and nature of knowledge and relations with data have been played out with particular persistence, that of Alzheimer's disease research. Drawing on research with researchers and developers, we consider the intersection of hopes and concerns related to both digital tools and Alzheimer's disease using the metaphor of the ‘data shadow’. We suggest that as a tool for engaging with the nature of the data self, the shadow is usefully able to capture both the dynamic and distorted nature of data representations, and the unease and concern associated with encounters between individuals or groups and data about them. We then consider what the data shadow ‘is’ in relation to ageing data subjects, and the nature of the representation of the individual's cognitive state and dementia risk that is produced by digital tools. Second, we consider what the data shadow ‘does’, through researchers and practitioners’ discussions of digital phenotyping practices in the dementia field as alternately empowering, enabling and threatening.


2022 ◽  
Vol 9 (1) ◽  
pp. 205395172110664
Author(s):  
Lukas Engelmann

Epidemiology is a field torn between practices of surveillance and methods of analysis. Since the onset of COVID-19, epidemiological expertise has been mostly identified with the first, as dashboards of case and mortality rates took centre stage. However, since its establishment as an academic field in the early 20th century, epidemiology’s methods have always impacted on how diseases are classified, how knowledge is collected, and what kind of knowledge was considered worth keeping and analysing. Recent advances in digital epidemiology, this article argues, are not just a quantitative expansion of epidemiology’s scope, but a qualitative extension of its analytical traditions. Digital epidemiology is enabled by deep and digital phenotyping, the large-scale re-purposing of any data scraped from the digital exhaust of human behaviour and social interaction. This technological innovation is in need of critical examination, as it poses a significant epistemic shift to the production of pathological knowledge. This article offers a critical revision of the key literature in this budding field to underline the extent to which digital epidemiology is envisioned to redefine the classification and understanding of disease from the ground up. Utilising analytical tools from science and technology studies, the article demonstrates the disruptive expectations built into this expansion of epidemiological surveillance. Given the sweeping claims and the radical visions articulated in the field, the article develops a tentative critique of what I call a fantasy of pathological omniscience; a vision of how data-driven engineering seeks to capture and resolve illness in the world, past, present and future.


2021 ◽  
Vol 8 (2) ◽  
pp. 205395172110401
Author(s):  
Anna Sapienza ◽  
Sune Lehmann

For better and worse, our world has been transformed by Big Data. To understand digital traces generated by individuals, we need to design multidisciplinary approaches that combine social and data science. Data and social scientists face the challenge of effectively building upon each other’s approaches to overcome the limitations inherent in each side. Here, we offer a “data science perspective” on the challenges that arise when working to establish this interdisciplinary environment. We discuss how we perceive the differences and commonalities of the questions we ask to understand digital behaviors (including how we answer them), and how our methods may complement each other. Finally, we describe what a path toward common ground between these fields looks like when viewed from data science.


2021 ◽  
Vol 8 (2) ◽  
pp. 205395172110255
Author(s):  
Wim Naudé ◽  
Ricardo Vinuesa

This paper draws lessons from the COVID-19 pandemic for the relationship between data-driven decision making and global development. The lessons are that (i) users should keep in mind the shifting value of data during a crisis, and the pitfalls its use can create; (ii) predictions carry costs in terms of inertia, overreaction and herding behaviour; (iii) data can be devalued by digital and data deluges; (iv) lack of interoperability and difficulty reusing data will limit value from data; (v) data deprivation, digital gaps and digital divides are not just a by-product of unequal global development, but will magnify the unequal impacts of a global crisis, and will be magnified in turn by global crises; (vi) having more data and even better data analytical techniques, such as artificial intelligence, does not guarantee that development outcomes will improve; (vii) decentralised data gathering and use can help to build trust – particularly important for coordination of behaviour.


2021 ◽  
Vol 8 (2) ◽  
pp. 205395172110461
Author(s):  
Bernhard Rieder ◽  
Yarden Skop

Over recent years, the stakes and complexity of online content moderation have been steadily raised, swelling from concerns about personal conflict in smaller communities to worries about effects on public life and democracy. Because of the massive growth in online expressions, automated tools based on machine learning are increasingly used to moderate speech. While ‘design-based governance’ through complex algorithmic techniques has come under intense scrutiny, critical research covering algorithmic content moderation is still rare. To add to our understanding of concrete instances of machine moderation, this article examines Perspective API, a system for the automated detection of ‘toxicity’ developed and run by the Google unit Jigsaw that can be used by websites to help moderate their forums and comment sections. The article proceeds in four steps. First, we present our methodological strategy and the empirical materials we were able to draw on, including interviews, documentation, and GitHub repositories. We then summarize our findings along five axes to identify the various threads Perspective API brings together to deliver a working product. The third section discusses two conflicting organizational logics within the project, paying attention to both critique and what can be learned from the specific case at hand. We conclude by arguing that the opposition between ‘human’ and ‘machine’ in speech moderation obscures the many ways these two come together in concrete systems, and suggest that the way forward requires proactive engagement with the design of technologies as well as the institutions they are embedded in.


2021 ◽  
Vol 8 (2) ◽  
pp. 205395172110436
Author(s):  
Kristoffer Albris ◽  
Eva I Otto ◽  
Sofie L Astrupgaard ◽  
Emilie Munch Gregersen ◽  
Laura Skousgaard Jørgensen ◽  
...  

If you are an anthropologist wanting to use digital methods or programming as part of your research, where do you start? In this commentary, we discuss three ways in which anthropologists can use computational tools to enhance, support, and complement ethnographic methods. By presenting our reflections, we hope to contribute to the stirring conversations about the potential future role(s) of (social) data science vis-a-vis anthropology and ethnography, and to inspire other anthropologists to take up the use of digital methods, programming, and computational tools in their own research.


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