scholarly journals ‘If We Hadn’t Left … We Would Have All Died’: Escaping Famine on the Greek Island of Chios, 1941–44

Author(s):  
Violetta Hionidou

Abstract The decision-making processes of historical famine-induced migration movements have rarely been examined in detail. This article discusses such a movement from the Greek island of Chios and into Turkey in the early 1940s using first-hand accounts of famine survivors collected in the period 1999–2009. This article outlines the unfolding famine situation, describes the point at which individuals made the decision to leave or to stay and examines how that decision was implemented. The decision-making involved an elaborate process where pros and cons were assessed, where the wishes of individual family members were taken into consideration and where the long-term wellbeing of the family unit was the most important factor in any decision made. Difficult decisions, some of which may today appear irrational, were made. The article argues that individuals, even in crises situations, demonstrate agency and plan their actions and future, albeit within the constraints of a given situation.

2012 ◽  
Vol 60 (2_suppl) ◽  
pp. 121-134 ◽  
Author(s):  
Benedetta Cappellini ◽  
Elizabeth Parsons

Exploring our relationship with mealtime leftovers tells us a lot about not only our relationships with waste, but with one another, in the home. In our study of British mealtimes we explore how leftovers are transformed and reused as meals. We refer to theories of disposal in exploring the skills involved in transforming leftovers. We also explore the motivations behind these transformations. Drawing on the work of Miller (1998) we examine how the reuse of leftovers involves sacrifice by individual family members for the greater good of the whole family. We also find that reusing and eating up leftovers involves a collective sacrifice by family members which marks out their membership to the family unit.


2012 ◽  
Vol 21 (1) ◽  
pp. 43-51 ◽  
Author(s):  
Jill R. Quinn ◽  
Madeline Schmitt ◽  
Judith Gedney Baggs ◽  
Sally A. Norton ◽  
Mary T. Dombeck ◽  
...  

Background To support the process of effective family decision making, it is important to recognize and understand informal roles that various family members may play in the end-of-life decision-making process. Objective To describe some informal roles consistently enacted by family members involved in the process of end-of-life decision making in intensive care units. Methods Ethnographic study. Data were collected via participant observation with field notes and semistructured interviews on 4 intensive care units in an academic health center in the mid-Atlantic United States from 2001 to 2004. The units studied were a medical, a surgical, a burn and trauma, and a cardiovascular intensive care unit. Participants Health care clinicians, patients, and family members. Results Informal roles for family members consistently observed were primary caregiver, primary decision maker, family spokesperson, out-of-towner, patient’s wishes expert, protector, vulnerable member, and health care expert. The identified informal roles were part of families’ decision-making processes, and each role was part of a potentially complicated family dynamic for end-of-life decision making within the family system and between the family and health care domains. Conclusions These informal roles reflect the diverse responses to demands for family decision making in what is usually a novel and stressful situation. Identification and description of these informal roles of family members can help clinicians recognize and understand the functions of these roles in families’ decision making at the end of life and guide development of strategies to support and facilitate increased effectiveness of family discussions and decision-making processes.


2009 ◽  
Vol 7 (3) ◽  
pp. 315-321 ◽  
Author(s):  
Marie T. Nolan ◽  
Mark T. Hughes ◽  
Joan Kub ◽  
Peter B. Terry ◽  
Alan Astrow ◽  
...  

AbstractObjective:Several studies have reported high levels of distress in family members who have made health care decisions for loved ones at the end of life. A method is needed to assess the readiness of family members to take on this important role. Therefore, the purpose of this study was to develop and validate a scale to measure family member confidence in making decisions with (conscious patient scenario) and for (unconscious patient scenario) a terminally ill loved one.Methods:On the basis of a survey of family members of patients with amyotrophic lateral sclerosis (ALS) enriched by in-depth interviews guided by Self-Efficacy Theory, we developed six themes within family decision making self-efficacy. We then created items reflecting these themes that were refined by a panel of end-of-life research experts. With 30 family members of patients in an outpatient ALS and a pancreatic cancer clinic, we tested the tool for internal consistency using Cronbach's alpha and for consistency from one administration to another using the test–retest reliability assessment in a subset of 10 family members. Items with item to total scale score correlations of less than .40 were eliminated.Results:A 26-item scale with two 13-item scenarios resulted, measuring family self-efficacy in decision making for a conscious or unconscious patient with a Cronbach's alphas of .91 and .95, respectively. Test–retest reliability was r = .96, p = .002 in the conscious senario and r = .92, p = .009 in the unconscious scenario.Significance of results:The Family Decision-Making Self-Efficacy Scale is valid, reliable, and easily completed in the clinic setting. It may be used in research and clinical care to assess the confidence of family members in their ability to make decisions with or for a terminally ill loved one.


2021 ◽  
pp. 136749352110399
Author(s):  
Stephanie Allen ◽  
Stephen K Bradley ◽  
Eileen Savage

Parent programmes are often used in the clinical management of children with ADHD. Research into parent programmes has predominantly been concerned with their effectiveness and much less attention has been paid to the impact that they may be having on the family and the inter-relationships between family members. This study explores the perspectives and experiences of parents of children with ADHD, who participated in a parent programme, including its impact on the family unit. A purposive sample of six mothers of children with ADHD who completed a 1-2-3 Magic parent programme in Ireland was invited to take part in this qualitative study. Data were collected by means of individual in-depth, semi-structured interviews and a narrative inquiry approach further informed analysis of the interview data. Two major narrative constructions of experience: ‘parent programme as positive’ and ‘parent programme as negative’ were identified. Outcomes from this study illustrated some unintended consequences caused by the parent programme (i.e. sibling rivalry and conflict arising between family members). Mothers believed that the parent programme was a beneficial intervention, but it was not without its flaws and they felt it was helpful for their family when used in conjunction with other supports and mediations.


Author(s):  
Xiangjin KONG ◽  
Mingjie ZHAO

LANGUAGE NOTE | Document text in Chinese; abstract also in English.在具有家庭主義特徵的中國社會文化語境下,儒家家庭本位思想對病人知情同意權的影響是客觀實在。以自由主義和個人主義為理論基礎的個人自主知情同意原則要想在中國本土的醫療實踐中發揮應有作用,突顯家庭在知情同意過程中的主導地位是重要前提。在中國的醫療實踐中,知情同意的模式必須融入中國儒家家庭本位思想,才能更好地發揮其作用。Opinion polls released recently show that the majority of people in China today think that informed consent in medical practice is necessary, with more than half favoring family decision making over individual, autonomous patient decision making. Based on these opinion polls, this essay argues that the liberalism and liberal individualism that emphasize individual autonomy do not square with the Confucian tradition.The essay submits that the “family decision” model is designed to embody Confucian family ethics and maximize the benefit of family involvement in medical decision making. The family model includes both the patient and his or her close family members in the decision making process. The Confucian ethics of humanness (ren) – the highest moral virtue – and filial piety (xiao) – the foundation of all moral virtue – support family as the most appropriate authority for medical decisions. Further, the essay explores how the family as a unit is better positioned to work with the physician at critical moments to protect the interests of the patient. This means that the family, not the patient, is in authority, and that in some cases, it is acceptable for family members to hide “medical information” from the patient with the cooperation of the physician. The essay concludes that the family is, and should be treated as, a significant moral participant in medical decision making.DOWNLOAD HISTORY | This article has been downloaded 99 times in Digital Commons before migrating into this platform.


2018 ◽  
Vol 1 (1) ◽  
pp. 353-359
Author(s):  
Anna Timofiejczuk ◽  
Jaroslaw Brodny ◽  
Andrzej Loska

Abstract The article is a review of completed research on developed and implemented innovative and technologically advanced technical systems. According to the Industry 4.0 concept they can have a significant impact on the efficiency of production processes and product development. In this perspective, the key aspect seems to be maintenance management of technical systems, realized both in the operate phase as well as during service and repair works. There were discussed research results of authors and developed application solutions supporting decision-making processes, in terms of three main periods of realization of exploitation processes: short, medium and long-term.


2018 ◽  
Author(s):  
Aluisius Hery Pratono ◽  
Maria Felecia Cindy Hutomo

This study aims to discuss the concept of family orientation by addressing the question of how individual family members relate to the family business. This study extends the previous works on entrepreneurial family orientation. Family orientation has five dimensions, such as tradition, trust, loyalty, stability, and interdependency.


2021 ◽  
pp. 109-128
Author(s):  
Michael K. MacKenzie

This chapter makes three arguments in support of the claim that we need inclusive deliberative processes to shape the future in collectively intentional, mutually accommodating ways. First, inclusive collective decision-making processes are needed to avoid futures that favour the interests of some groups of people over others. Second, deliberative processes are needed to shape our shared futures in collectively intentional ways: we need to be able to talk to ourselves about what we are doing and where we want to get to in the future. Third, deliberative exchanges are needed to help collectivities avoid the policy oscillations that are (or may be) associated with the political dynamics of short electoral cycles. Effective processes of reciprocal reason giving can help collectivities maintain policy continuity over the long term—when continuity is justified—even as governments and generations change.


Author(s):  
Veronica Dussel ◽  
Barbara Jones

In this chapter, we will focus on the importance of caring for the family of a child with a life-limiting condition (LLC) or life-threatening condition as a unit, each of the family members being integral to the well-being and care of the others. We recognize that the family unit itself is embedded within a wider context including the health and social care system, and more broadly within its society and culture. We discuss the concept of family, exploring the impact of having a child with an LLC, and how families adjust to this. We then expand on considerations about how to offer effective and timely support and help. We have included parents’ narratives with the aim of adding depth to the discussion, and in recognition of the truth of families’ own experiences.


Sign in / Sign up

Export Citation Format

Share Document