Transforming Practice to Support Person-Centered Care for Patients With Advanced Kidney Disease

Author(s):  
Ann M. O’Hare ◽  
Nancy C. Armistead

Contemporary patterns of care for patients with advanced kidney disease are far from person-centered. Large changes to health systems, payment structures, quality measurement, patient and provider education, and the culture in which care is delivered will be needed to support a more person-centered approach to care for members of this population. To uphold the essence of who our patients are, efforts are needed throughout the illness trajectory to foster the development of strong patient–provider relationships and extend the reach of these relationships across settings, to educate our patients about their treatment options and what to expect in the future, to offer opportunities for patients to involve their family members and close friends in their care, and ultimately to promote a culture in which providers are flexible, creative, and tireless in working with their colleagues and with their patients and their families to fulfill the mission of person-centered care of finding the “right treatment for the right person at the right time.”

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512510251p1-7512510251p1
Author(s):  
Elizabeth Jayne Braun ◽  
Erin Casey Phillips ◽  
Hannah Corner ◽  
Shayla Murphy ◽  
Alayna Pullara ◽  
...  

Abstract Date Presented Accepted for AOTA INSPIRE 2021 but unable to be presented due to online event limitations. Health care is shifting from volume to value, and there is a need to define the distinct value of services. OT is founded on the principles of person-centered care, and the intentional use of these strategies must be part of evidence-based outcomes in order to solidify the value of OT services. This study examined the use of person-centered care in clinical practice, and results were used to develop capacity-building strategies for implementation of a person-centered approach. Primary Author and Speaker: Elizabeth Jayne Braun Additional Authors and Speakers: Erin Casey Phillips, Hannah Corner Contributing Authors: Shayla Murphy, Alayna Pullara, and Nathan Kies


2014 ◽  
Vol 4 (1) ◽  
pp. 19-22
Author(s):  
Zoran Rakusic ◽  
Ana Misir Krpan ◽  
Vesna Bisof ◽  
Kristina Ruza Samardjic

In the last decade there has been a strong development and new discoveries in the field of oncology. Molecular biology has undergone the greatest evolution and this makes difficult for clinicians to follow closely. In fact, among thousands of new discoveries, only few have truly led to clear benefit for patients. When studying a person on a molecular level, we must never forget the person as a whole.There are more treatment options that should be tailored to each patients’ characteristics and wishes. Therefore, in developing person cantered care we should be attentive to the critical features of person centered medicine, i.e., ethical commitment, cultural sensitivity, holistic scope, relational focus, individualized care, common ground for diagnosis and care, people-centered organization of services, and person-centered health education and research. This paper summarized Croatian efforts to develop person-centered care for oncological conditions.


JMIR Aging ◽  
10.2196/17136 ◽  
2020 ◽  
Vol 3 (1) ◽  
pp. e17136 ◽  
Author(s):  
Rozanne Wilson ◽  
Diana Cochrane ◽  
Alex Mihailidis ◽  
Jeff Small

Background In long-term residential care (LTRC), caregivers’ attempts to provide person-centered care can be challenging when assisting residents living with a communication disorder (eg, aphasia) and/or a language-cultural barrier. Mobile communication technology, which includes smartphones and tablets and their software apps, offers an innovative solution for preventing and overcoming communication breakdowns during activities of daily living. There is a need to better understand the availability, relevance, and stability of commercially available communication apps (cApps) that could support person-centered care in the LTRC setting. Objective This study aimed to (1) systematically identify and evaluate commercially available cApps that could support person-centered communication (PCC) in LTRC and (2) examine the stability of cApps over 2 years. Methods We conducted systematic searches of the Canadian App Store (iPhone Operating System platform) in 2015 and 2017 using predefined search terms. cApps that met the study’s inclusion criteria underwent content review and quality assessment. Results Although the 2015 searches identified 519 unique apps, only 27 cApps were eligible for evaluation. The 2015 review identified 2 augmentative and alternative cApps and 2 translation apps as most appropriate for LTRC. Despite a 205% increase (from 199 to 607) in the number of augmentative and alternative communication and translation apps assessed for eligibility in the 2017 review, the top recommended cApps showed suitability for LTRC and marketplace stability. Conclusions The recommended existing cApps included some PCC features and demonstrated marketplace longevity. However, cApps that focus on the inclusion of more PCC features may be better suited for use in LTRC, which warrants future development. Furthermore, cApp content and quality would improve by including research evidence and experiential knowledge (eg, nurses and health care aides) to inform app development. cApps offer care staff a tool that could promote social participation and person-centered care. International Registered Report Identifier (IRRID) RR2-10.2196/10.2196/17136


2018 ◽  
Vol 39 (03) ◽  
pp. 223-230 ◽  
Author(s):  
Jennifer Brush ◽  
Michelle Bourgeois ◽  
Natalie Douglas

AbstractThe current mandate for person-centered care throughout the health care system, and especially in the nursing home industry, requires that speech–language pathologists ensure that the services they provide to elders with dementia are skilled, person centered, and relevant to positive overall health outcomes. Guidelines developed by the Association Montessori International Advisory Board for Montessori for Aging and Dementia are one avenue toward such skilled and person-centered services. The purpose of this article is to provide clinicians with practical strategies for guiding their assessment, goal writing, and intervention plans to meet the expectations of a person-centered approach to services for elders with dementia, using the Montessori approach as a philosophical guide.


Author(s):  
Mieke J.L. Bogerd ◽  
Pauline Slottje ◽  
Francois G. Schellevis ◽  
Anneliet Giebels ◽  
Mieke Rijken ◽  
...  

AbstractAim:To develop a proactive person-centered care approach for persons with (multiple) chronic diseases in general practice, and to explore the impact on ‘Quadruple aims’: experiences of patients and professionals, patient outcomes and costs of resources use.Background:The management of people with multiple chronic diseases challenges health care systems designed around single disease. Patients with multimorbidity often receive highly fragmented care that may lead to inefficient, ineffective and potentially harmful treatments and neglect of essential health needs. A more comprehensive, person-centered approach is advocated for persons with multiple morbidities. However, examples on how to provide more person-centered care and evidence of its impact are scarce. A group of Dutch general practitioners (GPs) took the initiative to develop such a care approach.Methods/Design:Mixed methods with a development and pilot-testing phase. The proactive person-centered approach will be developed using an action-based research design consisting of multiple plan-act-observe-reflect-adjust cycles. In each cycle, experiences of patients and primary care professionals from 13 practices will be collected via interviews, observations and focus groups. Starting point for the first cycle is a ‘person-centered consultation’ of up to 1 h in which the GP discusses the health status and health care needs of the patient. Furthermore, shared decisions between GP and patient are made on treatment goals and follow-up. In the pilot-test phase, a nested case cohort study allows to explore the impact of the new approach on ‘Quadruple aim’ outcomes comparing persons with and without exposure to the new care approach.Discussion:This study will provide a proactive person-centered approach for persons with multimorbidity in primary care and estimate its potential impact on quadruple outcomes.


2019 ◽  
Vol 74 (3) ◽  
pp. 407-416 ◽  
Author(s):  
Natalie Freidin ◽  
Ann M. O’Hare ◽  
Susan P.Y. Wong

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