Croatian Perspectives for Person Centered Care in Oncology

2014 ◽  
Vol 4 (1) ◽  
pp. 19-22
Author(s):  
Zoran Rakusic ◽  
Ana Misir Krpan ◽  
Vesna Bisof ◽  
Kristina Ruza Samardjic

In the last decade there has been a strong development and new discoveries in the field of oncology. Molecular biology has undergone the greatest evolution and this makes difficult for clinicians to follow closely. In fact, among thousands of new discoveries, only few have truly led to clear benefit for patients. When studying a person on a molecular level, we must never forget the person as a whole.There are more treatment options that should be tailored to each patients’ characteristics and wishes. Therefore, in developing person cantered care we should be attentive to the critical features of person centered medicine, i.e., ethical commitment, cultural sensitivity, holistic scope, relational focus, individualized care, common ground for diagnosis and care, people-centered organization of services, and person-centered health education and research. This paper summarized Croatian efforts to develop person-centered care for oncological conditions.

Author(s):  
Juan E Mezzich ◽  
Levent Kirisci ◽  
Ihsan Salloum ◽  
Jitendra Trivedi ◽  
Sujit Kumar Kar ◽  
...  

Background: A world-wide movement is emerging for person centered medicine and healthcare collaboratively developed by the International College of Person Centered Medicine and a number of global institutions through annual Geneva Conferences and International Congresses as well as scholarly publications. While frequently quoted definitional note have been advanced through this maturational process, efforts are needed to conceptualize and measure systematically person-centered care.Objectives: These included the elucidation of the core concepts of person centered medicine and healthcare, the design of a prototype measuring instrument, and the study of its metric structure, acceptability, reliability and validity.Methods: The following methodological approaches were employed: A systematic review of the literature, consultation exercises with broad international panels composed of health professionals and representatives of patient and family organizations, and quantitative and qualitative data analyses.Results: The following key concepts underlying person centered medicine were elucidated: 1) Ethical Commitment, 2) Cultural Sensitivity, 3) Holistic scope, 4) Relational Focus, 5) Individualized Care, 6) Common Ground for Collaborative Diagnosis and Care, 7) People-centered Systems of Care, and 8) Person-centered Education and Research. On this basis, a Person-centered Care Index was developed composed of 8 broad items and 33 sub-items, each measured on a 4-point scale. The study of its metric structure revealed high Cronbach internal consistency (0.95), scale unidimensionality through factor analysis (69 % of the variance accounted for by the first factor), and interesting inter-correlations such as the sub-item attaining the highest correlation with the global average score being “fulfillment of the person’s life project” (0.88). Validation studies in California, London and Lucknow (India) showed quite high levels of inter-rater reliability (above 0.80 intra-class correlations for most items) and substantial content validity.Discussion: The elucidated core concepts of person centered medicine appear to be consistent with those of international studies on the bases of person- and people-centeredness in primary care and on research and implementation of person centered care. The concepts are also consistent with the key domains of person-centered diagnostic approaches. Further validation studies with larger samples in diverse settings and cultures seem to be warranted.Conclusions. The emerging core concepts of person centered medicine appear to be solid. The Person-centered Care Index built on such concepts appears to have suitable metrics and promising acceptability, reliability and content validity. Further empirical research is recommended.


Author(s):  
Ann M. O’Hare ◽  
Nancy C. Armistead

Contemporary patterns of care for patients with advanced kidney disease are far from person-centered. Large changes to health systems, payment structures, quality measurement, patient and provider education, and the culture in which care is delivered will be needed to support a more person-centered approach to care for members of this population. To uphold the essence of who our patients are, efforts are needed throughout the illness trajectory to foster the development of strong patient–provider relationships and extend the reach of these relationships across settings, to educate our patients about their treatment options and what to expect in the future, to offer opportunities for patients to involve their family members and close friends in their care, and ultimately to promote a culture in which providers are flexible, creative, and tireless in working with their colleagues and with their patients and their families to fulfill the mission of person-centered care of finding the “right treatment for the right person at the right time.”


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 267-267
Author(s):  
Ryann Engle ◽  
A Lynn Snow ◽  
Valerie Clark ◽  
Shibei Zhao ◽  
Christopher Gillespie ◽  
...  

Abstract The Department of Veterans Affairs (VA) began its culture transformation journey in 2006, supporting its nursing homes in providing high-quality, person-centered care in person-centered environments. We implemented a quality improvement intervention to support frontline staff from low-performing VA nursing homes in providing high-quality care using a whole-person, whole-team approach. The intervention consisted of a bundle with four components: 1) specialized frontline staff huddles that encouraged high-quality frontline staff communication and collaboration, 2) micro-root cause analyses and targeted interventions to promote resident sleep and reduce resident falls through individualized care, 3) in-depth frontline conversations regarding residents’ distress behaviors and mobility, and 4) targeted, team-based, person-centered performance improvement projects. The intervention was implemented at 8 low-performing VA nursing homes (August 2018 - April 2019) via in-person and virtual sessions and facilitated through CLC-based champions and intervention team-based coaches. We monitored the intervention’s impact using pre-post Centers for Medicare and Medicaid Services quality star ratings. We also conducted 17 post-intervention interviews with key informants at 7 participating nursing homes and conducted a content analysis of the data. Pre intervention, all 8 nursing homes had a history of being 1 or 2 stars in overall quality. Post intervention, 3 homes increased 1 star; 1 home increased 2 stars; 2 homes increased 3 stars; 2 homes increased 4 stars. Post intervention, participants perceived improved delivery of person-centered care (e.g., providing individualized sleep hygiene, de-implementing alarms). Our findings suggest a whole-person, whole-team intervention can effectively and efficiently improve both person-centered care and care quality.


Author(s):  
SUJITA KUMAR KAR ◽  
Amit Singh

Background: Person centered care is a holistic management approach that emphasizes attention to the particularities of the person in context. Trying to fit a general model of care to every patient with a given disorder may not be effective enough to meet the distinct needs of the patient as a person. The Dhat syndrome, being a culture bound syndrome with diverse symptoms and inter-individual variations, may require a care model that can address the unique needs of the person presenting for help.Objectives: A literature review was conducted to analyze different management strategies for the Dhat syndrome. It also explored the relevance and feasibility of a person centered approach for the Dhat syndrome. Methods: An extensive web search on the Medline database was carried out using the keyword “Dhat syndrome”. Relevant studies were analyzed with focus on management strategies for the Dhat syndrome.Results: A total of sixty five articles were found through September 2016 in the Medline database. Out of these, seventeen articles dealing with management of the Dhat syndrome were identified for analysis. Most studies advocated the role of anti-anxiety and antidepressant medications for Dhat syndrome. Several studies also emphasized the role of sex education, relaxation exercises, supportive psychotherapy as well as structured psychotherapies such as cognitive behavior therapy and insight oriented psychotherapy for the Dhat syndrome. Some studies focused on issues relevant to person centered care for an effective treatment of the syndrome, including empathetic listening, non-confrontational attitude, individualized care, and collaborative approachesDiscussion: Various dimensions of person centered care seem to be applicable to the treatment of the Dhat syndrome. This approach tenders promising ways toward enhanced clinical effectiveness to help people experiencing this syndrome.Conclusions: A person centered management approach may be an effective, feasible and acceptable model of care for patients presenting the Dhat syndrome, reflecting wide-ranging recommendations from a critical review of the literature.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S698-S699
Author(s):  
Diana White ◽  
Sarah Dys ◽  
Jaclyn Winfree ◽  
Serena Hasworth ◽  
Ozcan Tunalilar

Abstract Policies and practices have increasingly focused on person-centered care (PCC) to improve quality of life for long-term care residents and staff. Adequate staffing has been a consistent barrier to implementing and sustaining PCC practices. The purpose of this paper is to explore the association between job satisfaction and PCC practices. This research was conducted in a stratified random sample of 33 Oregon nursing homes which were representative in terms of quality, profit/nonprofit ownership, and urban/rural location. Data were collected from 415 staff who completed the staff assessment of person-directed care, direct care worker job satisfaction scale, turnover intention, and organizational belongingness. Consistent with other research, job satisfaction is significantly and negatively correlated with turnover intention (r=-.66) and positively associated with belongingness (r=.66). It is also significantly correlated with scales related to five PCC practices: personhood, autonomy, knowing the person, individualized care, and relationships. Regression analyses examined how these five aspects of PCC practices were associated with 1) job satisfaction and 2) number of deficiencies. Perceptions of practices to support autonomy, personhood, and relationships were associated with higher ratings of job satisfaction among staff. In general, those reporting these practices were in place at least half of the time or with at least half of the residents, showed significantly greater positive associations with job satisfaction (p<.05). Only lower staff reports of autonomy practices were associated with higher deficiencies (p<.05). Findings from this research suggest that supporting PCC practices benefit staff through increased job satisfaction and potentially reduced turnover.


Author(s):  
Yvette M. McCoy

Purpose Person-centered care shifts the focus of treatment away from the traditional medical model and moves toward personal choice and autonomy for people receiving health services. Older adults remain a priority for person-centered care because they are more likely to have complex care needs than younger individuals. Even more specifically, the assessment and treatment of swallowing disorders are often thought of in terms of setting-specific (i.e., acute care, skilled nursing, home health, etc.), but the management of dysphagia in older adults should be considered as a continuum of care from the intensive care unit to the outpatient multidisciplinary clinic. In order to establish a framework for the management of swallowing in older adults, clinicians must work collaboratively with a multidisciplinary team using current evidence to guide clinical practice. Private practitioners must think critically not only about the interplay between the components of the evidence-based practice treatment triad but also about the broader impact of dysphagia on caregivers and families. The physical health and quality of life of both the caregiver and the person receiving care are interdependent. Conclusion Effective treatment includes consideration of not only the patient but also others, as caregivers play an important role in the recovery process of the patient with swallowing disorders.


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