End-of-Life Healthcare Service Needs Among Children With Neurological Conditions

The summary of the series on development of diabetes register in low-mid income country indicated that there is capacity for diabetes services in every hospital, but quality of service needs to improve at all tiers of the healthcare system. The “need to develop proposal for healthcare service improvement” was highlighted.

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Sentiment Analysis of Patients' Opinions in Healthcare using Lexicon-based Method

International Journal of Engineering and Advanced Technology - Regular Issue ◽

10.35940/ijeat.a2141.109119 ◽

2019 ◽

Vol 9 (1) ◽

pp. 6977-6981

Keyword(s):

Social Networking ◽

Sentiment Analysis ◽

Social Networking Sites ◽

Healthcare Service ◽

Opinion Mining ◽

Research Area ◽

Service Needs ◽

Health Organizations ◽

The World ◽

New Research

The rapid increase in technology made people across the world use social networking sites to express their opinions on a topic, product or service. The success of a healthcare service directly depends on its users. If a majority of users like the service then it is a success otherwise, the service needs to be improvised. For improvising the service, the users' opinions need to be analyzed. Manually extracting and analyzing the content present on the web is a tedious task. This gave rise to a new research area called Sentiment Analysis. It is otherwise known as opinion mining. It is being used by many health organizations to make effective decisions on their service. This paper presents the sentiment analysis of patients' opinions on hospitals which is mainly used to improve healthcare service. This is implemented using a lexicon-based methodology to analyze the sentiment.

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End of life care for long-term neurological conditions: A meta-ethnographic review of the experiences of informal carers

Palliative Medicine ◽

10.1177/0269216320974262 ◽

2020 ◽

pp. 026921632097426

Author(s):

Michael Toze ◽

Mo Ray ◽

Thomas George ◽

Kelly Sisson ◽

David Nelson

Keyword(s):

End Of Life ◽

End Of Life Care ◽

Premature Death ◽

Qualitative Studies ◽

Future Research ◽

Neurological Conditions ◽

Informal Carers ◽

The Right ◽

Models Of Service Delivery

Background: Family and friends are key providers of care for people living with a long-term neurological condition. Neurological conditions are a significant global contributor to disability and premature death. However, previous research suggests carers often struggle to access appropriate support at end of life. Aims: This review sought to synthesise qualitative studies discussing end-of-life and palliative issues for informal carers supporting people living with neurological conditions. Design: This was a meta-ethnographic synthesis of 38 qualitative studies discussing end-of-life and palliative issues for informal carers supporting people living with long-term neurological conditions. Data Sources: Qualitative articles published after January 2010 in English, addressing carers of people with long-term neurological conditions with regard to palliative care, end of life and/or bereavement. Papers were excluded if it was not possible to separately assess the views of carers. Quality appraisal was not undertaken, but consideration was given to research context. Results: Across the papers, five key themes were identified: the future (un)certainties in the progression of life-limiting neurological conditions; an information paradox of not receiving the right information at the right time; access to support; carers’ roles in decision making around end of life; and maintaining continuity while facing change and disruption in day-to-day living. Conclusions: Given the broad agreement on the challenges faced by carers of people living with long-term neurological conditions, future research should consider opportunities to improve information and support for this group, and the development and evaluation of practical models of service delivery.

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Exploring the palliative and end-of-life care needs of those affected by progressive long-term neurological conditions

Journal of Care Services Management ◽

10.1179/csm.2007.2.1.92 ◽

2007 ◽

Vol 2 (1) ◽

pp. 92-102 ◽

Cited By ~ 3

Author(s):

Eleanor Wilson ◽

Jane Seymour

Keyword(s):

End Of Life ◽

End Of Life Care ◽

Life Care ◽

Care Needs ◽

Neurological Conditions

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Palliative Care for Neurologically Injured Patients: Why and How?

Journal of Neuroanaesthesiology and Critical Care ◽

10.1055/s-0038-1675891 ◽

2019 ◽

Vol 06 (01) ◽

pp. 005-012

Author(s):

Barkha Bindu ◽

Girija P. Rath

Keyword(s):

Palliative Care ◽

End Of Life ◽

Life Support ◽

Life Stage ◽

Do Not Resuscitate ◽

Care Services ◽

Oncological Patients ◽

Neurological Patients ◽

Advance Care ◽

Neurological Conditions

AbstractThe role of palliative care in patients with cancer is widely acknowledged and practiced. Though its role in chronic, progressive, and incurable neurological conditions is being recognized now, it is not widely practiced. Lack of awareness and training are important factors contributing to this. Neurological patients differ from oncological patients with respect to their symptoms, fluctuating disease course, varied prognoses, and difficulty in identifying end-of-life stage. Knowledge of different neurological conditions is important to practice neuropalliative care appropriately. Growth of neuropalliative care services must begin with the neurologist at the center of the multidisciplinary team. Neurologists need to be trained in communication skills and advance care planning, and must be aware of end-of-life care, do-not-resuscitate policies, and withdrawal of life support measures. This article elaborates on these aspects of neuropalliative care and discusses its role in various neurological conditions.

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Older LGBTQ Women Matter: An Examination of Distinctive Histories, End-of-Life Needs, and Support

Innovation in Aging ◽

10.1093/geroni/igaa057.2066 ◽

2020 ◽

Vol 4 (Supplement_1) ◽

pp. 610-610

Author(s):

Korijna Valenti

Keyword(s):

Identity Development ◽

End Of Life ◽

Social Life ◽

Theory Development ◽

Later Life ◽

Service Needs ◽

Lesbian Women ◽

Aging Research ◽

Health Related ◽

Personal Reflections

Abstract LGBTQ (lesbian, gay, bisexual, transgender, and queer) aging research has reached a point at which in depth examination of the heterogenous experiences of identity, social life, and health is needed in order to better understand the distinct life courses and service needs of diverse subgroups. Older LGBTQ women have diverse life experiences and areas of need in terms of professional, social, and health-related supports and systems. As emerging literature addresses the depth of these distinctions, issues of identity development, social isolation, social networks, and end of life (EOL) planning and expectations require further study as well as the use of varied methods of data collection and analysis to enhance empirical understanding. This symposium includes findings from three studies. In a qualitative study, Valenti and colleagues examined experiences of LGB women over60 who had recently lost a spouse or partner and explored issues related to preparation and expectations at the EOL. In a discourse analysis of personal aging narratives published in the Bi Women’s Quarterly newsletter (including poetry, personal reflections, and short stories), Jen and colleagues examined how bisexuality is experienced and constructed through language use in context. Rowan and colleagues provide insights from interprofessional research with a specific focus on lesbian women in later life. All three presentations in this symposium illustrate how language, individual preferences and needs, and social support issues meet to inform the needs of LGBTQ older women as well as providing implications for future aging research, theory development, and interventions in practice.

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Cancer prevalence by phase of care: an indicator for assessing health service needs

Tumori Journal ◽

10.1177/0300891620961839 ◽

2020 ◽

pp. 030089162096183

Author(s):

Anna Gigli ◽

Silvia Francisci ◽

Stefano Guzzinati ◽

Aaron Hall ◽

Mark Hachey ◽

...

Keyword(s):

United States ◽

Health Care ◽

End Of Life ◽

Population Aging ◽

The United States ◽

Similar Distribution ◽

Service Needs ◽

Cancer Type ◽

Health Care Planning ◽

Cancer Prevalence

Introduction: Cancer prevalence (people alive on a certain date in a population who previously had a cancer diagnosis) is expected to increase in the United States and Europe due to improvements in survival and population aging. Examination of prevalence by phase of care allows us to identify subgroups of patients according to their care trajectories, thus allowing us to improve health care planning, resource allocation, and calculation of costs. Methods: A new method to estimate prevalence by phase of care using grouped data is illustrated. Prevalence is divided into 3 mutually exclusive phases: initial, continuing, and end-of-life. An application to US and Italian data is applied to prevalent cases diagnosed with colon–rectum, stomach, lung, or breast cancer. Results: The distribution of phase of care prevalence estimated by cancer type and sex and results from the two datasets are very similar. Most survivors are in the continuing phase; the end-of-life phase is larger for cancers with worse prognosis. All phases prevalence is generally higher in the Italian than in the US dataset, except for lung cancer in women, where prevalence proportion in the Italian dataset is 30% lower than in the United States. Discussion: Incidence, survival, and population age structure are the main determinants of prevalence and they can affect differences in all phases of prevalence, as well as in discrete phases. Incidence is the most influential determinant. Ours is the first study that compares prevalence by phase of care between two populations in Italy and the United States. Despite great differences in health care management in the two countries, we found extremely similar distribution of survivors by phase of care for most cancer sites under study.

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Perspectives of staff providing care at the end of life for people with progressive long-term neurological conditions

Palliative & Supportive Care ◽

10.1017/s1478951511000393 ◽

2011 ◽

Vol 9 (4) ◽

pp. 377-385 ◽

Cited By ~ 13

Author(s):

Eleanor Wilson ◽

Jane Seymour ◽

Aimee Aubeeluck

Keyword(s):

End Of Life ◽

End Of Life Care ◽

Small Body ◽

Outpatient Service ◽

Inpatient Service ◽

Life Care ◽

Care Needs ◽

Long Term Conditions ◽

Neurological Conditions

AbstractObjective:This article examines the views and opinions of staff from a larger study exploring the palliative and end-of-life care needs of patients with progressive long-term neurological conditions (PLTNC).Method:Eighty staff, in a range of professions from three types of care services provided to people with PLTNC in England, took part in 14 focus groups and 3 individual interviews. Sites included six long-term residential neurological care centers, an inpatient service at an urban hospice, and a multi-disciplinary outpatient service for people with Huntington's disease.Results:Findings show a concordance between the views of staff from across the three types of participating services. Staff placed particular emphasis on teamwork, support from community-based resources, and developing rapport with patients in order to provide high quality palliative and end-of-life care. All staff perceived that identifying the dying phase was a particular challenge, sometimes resulting in patients being admitted to hospital at the end of life in contravention of their expressed advance wishes for place of death.Significance of results:This article adds to a small body of literature that seeks staff views and opinions about the rewards and challenges of providing palliative and end-of-life care to people with complex needs arising from long-term conditions. Although this article focuses primarily on the challenges of caring for people with neurological conditions, many issues reported are of wider relevance for the delivery of palliative and end-of-life care in other conditions.

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