How frequent is burnout among informal caregivers of disabled children? Findings from a cross‐sectional study in Karachi, Pakistan

2021 ◽  
Author(s):  
Mehwish Zeeshan ◽  
Shiraz Shaikh ◽  
Zaeema Ahmer
Keyword(s):  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Disabled Children ◽  
Sectional Study ◽  
Cross Sectional

scholarly journals Exploration of COVID-19-Based Changes to Caregiver Burden and Caregiving Intensity among Informal Caregivers

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 945-945
Author(s):  
Steven Cohen ◽  
Zachary Kunicki ◽  
Megan Drohan ◽  
Mary Greaney
Keyword(s):  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Multinomial Regression ◽  
Chi Square ◽  
Cross Sectional ◽  
Unpaid Care ◽  
Factors Associated ◽  
Amazon's Mechanical Turk

Abstract Individuals providing unpaid care of assistance to family members and friends (e.g. informal caregivers), may have been uniquely impacted by the COVID-19 pandemic. Research is needed to examine the pandemic’s effect on informal caregivers’ caregiving intensity and burden. Therefore, this cross-sectional study was conducted to explore self-reported changes in caregiver intensity (CI) and caregiver burden (CB) due to the pandemic to identify factors associated with changes in responsibilities and burdens. In June 2020, informal caregivers providing care to someone aged 50+ (n=835) reported their current and pre-pandemic caregiving intensity and burden. Data were collected via Amazon’s Mechanical Turk. Chi-square tests were used to examine bivariate associations between pandemic time (pre vs. post) differences in CI and CB. Multinomial regression was used to assess multivariate predictors of changes to CI and CB due to COVID-19. Results showed a significant U-shaped association between initial CB and CB change due to COVID-19. Higher levels of initial CB were associated with both a significant decrease in CB during COVID-19 (OR 1.33, 95%CI 1.06-1.67), and a significant increase in CB during COVID-19 (OR 1.22, 95%CI 1.05-1.43). There were no significant associations between initial CB and changes in CI due to COVID-19, although older caregivers were more likely to experience a decrease in CB due to caregiving (OR 1.02, 95%CI 1.00-1.05). These mixed results suggest that caregivers with high initial CB experienced the most extreme changes to CB due to COVID-19. Future planned analyses will focus on understanding the potential drivers behind these unexpected results.

The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study

2014 ◽  
Vol 71 (6) ◽  
pp. 1417-1434 ◽  
Author(s):  
M. Carme Alvira ◽  
Ester Risco ◽  
Esther Cabrera ◽  
Marta Farré ◽  
Ingalill Rahm Hallberg ◽  
...  
Keyword(s):  
Health Outcomes ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
European Countries ◽  
Sectional Study ◽  
Cross Sectional ◽  
People With Dementia

scholarly journals Intention to Adopt mHealth Apps Among Informal Caregivers: Cross-Sectional Study (Preprint)

2020 ◽  
Author(s):  
Fereshteh Ghahramani ◽  
Jingguo Wang
Keyword(s):  
Mobile Apps ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Mobile App ◽  
Sectional Study ◽  
Cross Sectional ◽  
Policy Makers ◽  
Intention To Adopt ◽  
Potential Benefits ◽  
Amazon's Mechanical Turk

BACKGROUND Caregiving responsibility can change caregivers’ lives; modify their emotions; and make them feel frustrated, fearful, and nervous, thereby imposing physical and mental stress. Caregiving-related mobile apps provide a platform for obtaining valuable and trusted information, connecting more easily with other caregivers, monitoring medications, and managing appointments, and assessing health requirements and conditions of care receivers. Such apps also incorporate valuable resources that address care for the caregivers. Despite the potential benefits of caregiving-related apps, only a limited number of caregivers have adopted and used them. OBJECTIVE The aim of this study is to explore the important factors that affect caregivers’ intentions to integrate related mobile apps into their routine caregiving responsibilities. METHODS Using the protection motivation theory, we conducted a cross-sectional study among 249 participants. Purposive sampling was used to target participants who met 4 inclusion criteria: US residents, owning and using a smartphone, informal caregivers (individuals who give care to a friend or family member without payment) who provided at least 8 hours of care per week in the past year, and those currently not using any mobile app for caregiving purposes. We created a survey using Qualtrics and posted it on Amazon’s Mechanical Turk website. Participants received monetary compensation after successful completion of the survey. RESULTS We found that capabilities and skills of caregivers to use mobile apps, the app’s effectiveness in responding to the needs of caregivers, the degree of control of caregivers over their responsibilities, and the decisions they make for their care receivers can predict their willingness to adopt caregiving-related apps. In addition, the severity of health status and vulnerability of care receivers to unexpected health changes indirectly shape their caregivers’ decisions to adopt and use mobile apps for caregiving purposes. CONCLUSIONS This study explores the important factors that affect informal caregivers’ intentions to adopt related mobile apps into their routine caregiving responsibilities. The results contribute to both mobile health adoption and the caregiving literature, and they offer significant implications for developers, health care practitioners, and policy makers. CLINICALTRIAL

scholarly journals Prevalence of depression in mothers of intellectually disabled children: A cross-sectional study

2017 ◽  
Vol 10 (2) ◽  
pp. 156 ◽  
Author(s):  
Gourav Chandravanshi ◽  
KrishanKumar Sharma ◽  
CharanSingh Jilowa ◽  
ParthSingh Meena ◽  
Mahendra Jain ◽  
...  
Keyword(s):  
Cross Sectional Study ◽  
Disabled Children ◽  
Sectional Study ◽  
Intellectually Disabled ◽  
Cross Sectional ◽  
Prevalence Of Depression

scholarly journals Effects of factors of informal care on the utilization of social care insurance benefits: A cross-sectional study

2020 ◽  
pp. 17
Author(s):  
Keyword(s):  
Online Survey ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Postal Survey ◽  
Sectional Study ◽  
Cross Sectional ◽  
Substitute Care ◽  
Care Services ◽  
Bivariate Logistic Regression ◽  
Medium Utilization

Background: Presently in Germany, as there is a shortage of nursing staff, informal caregivers have become highly relevant. Because they often deal with care related burden, legislation was passed to improve caregivers’ situations by offering more supports. Nonetheless, a considerable percentage of caregivers do not utilize it. Methods: Data was collected in Saxony (Germany) from November 2019 to December 2019 by using an online survey and a postal survey (cross-sectional study design; n= 1,716). For analysis bivariate logistic regression (forward method LR, α≤0.05) was performed. Results: The average age of the sample was 61.9 years, 52.9% were female and 45.7% male. Results indicate a medium utilization of care insurance services. Considerable associations were time spent on care and utilization of care allowance (OR: 1.77), such as duration of care degree and utilization of residential care services (OR: 1.88) and substitute care (OR: 1.81). Conclusions: Informal caregivers putting intensive effort into care do tend to utilize services. The resulting questions of why newer informal caregivers do not tend to utilize services and why there is a medium utilization among all caregivers implies that people need to gain better access to services independently of care factors.

scholarly journals Needs and skills of informal caregivers to care for a dependent person: a cross-sectional study

2019 ◽  
Author(s):  
Maria Dixe ◽  
Liliana Teixeira ◽  
Timoteo Areosa ◽  
Roberta Frontini ◽  
Teresa Peralta ◽  
...  
Keyword(s):  
Informal Caregiver ◽  
Medication Management ◽  
Hospital Readmissions ◽  
Informal Caregivers ◽  
Self Care ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Average Life Expectancy ◽  
Cross Sectional ◽  
Face To Face

Abstract Background: The world is facing many socio-demographic changes, such as an increased average life expectancy and the presence of chronic and non-communicable diseases, which in turn, leads to an enhanced dependency on others. Consequently, the demand for informal caregivers has significantly increased during the past few years. Caring for a dependent person is linked to a series of burdens that often leads to physical, psychological and emotional difficulties. Taking into consideration the difficulties faced by informal caregivers, knowing in which areas of functioning they need more guidance may help to relieve their burden. Therefore, the main goal of this study is to better understand the needs and competencies of the informal caregiver when caring for a dependent person in the different self-care domains. Methods: cross-sectional study using face-to-face interviews. Descriptive and inferential statistics alongside non-parametric statistical techniques such as the Mann-Whitney test and Spearman’s correlation were used. Results: The average age of the informal caregivers is 58 years old, with the youngest in our sample being 21 years of age. Most of them are female, and 50% of them are children taking care of one of their parents. Most of the dependent people are completely dependent in the areas of comfort and hygiene (53.8%) and medication management (55.9%). The female informal caregivers see themselves as having more competencies in sanitary hygiene than the male ones, with no significant differences in their competencies’ perception in the other areas of self-care. Older caregivers see themselves as less competent in certain areas of self-care such as feeding, mobility, transfers, medication and symptoms management and communication. Most part of the information given to the informal caregiver is about the disease (82.3%) and about the medication management (80.4%). There are still a lot of areas of self-care, where no information, or almost none, is given to the informal caregivers. Conclusions: Prior to home discharge of a dependent person, it is important to acknowledge the needs and competencies of the informal caregiver, to capacitate them in looking after their relatives, in order to help decrease their burden and consequently, decrease the number of hospital readmissions.

scholarly journals Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Zati Sabrina Ahmad Zubaidi ◽  
Farnaza Ariffin ◽  
Cindy Teoh Cy Oun ◽  
Diana Katiman
Keyword(s):  
Palliative Care ◽  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Palliative Care Unit ◽  
Depression And Anxiety ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptoms Of Depression ◽  
Specialized Palliative Care

Abstract Background Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden among IC in the largest specialized Palliative Care Unit (PCU) in Malaysia. Methods This was a cross-sectional study involving IC attending a PCU. Caregiver burden and psychological manifestations were measured using previously translated and validated Zarit Burden Interview and DASS-21 questionnaires respectively. Two hundred forty-nine samples were selected for analysis. Result The mean ZBI score was 23.33 ± 13.7. About half of the population 118(47.4%) was found to experienced caregiver burden whereby majority have mild to moderate burden 90(36.1%). The most common psychological manifestation among IC is anxiety 74(29.7%) followed by depression 51(20.4%) and stress 46(18.5%). Multiple logistic regression demonstrated that women who are IC to patients with non-malignancy were less likely to experience caregiver burden. IC who were highly educated and spent more than 14 h per day caregiving were at least twice likely to experience caregiver burden. Finally, those with symptoms of depression and anxiety were three times more likely to suffer from caregiver burden. Conclusion Caregiver burden among IC to palliative patients is prevalent in this population. IC who are men, educated, caregiving for patients with malignancy, long hours of caregiving and have symptoms of depression and anxiety are at risk of developing caregiver burden. Targeted screening should be implemented and IC well-being should be given more emphasis in local policies.

scholarly journals A validation of the Croatian version of Zarit Burden Interview and clinical predictors of caregiver burden in informal caregivers of patients with dementia: a cross-sectional study

2020 ◽  
Vol 61 (6) ◽  
pp. 527-537
Author(s):  
Jelena Lucijanić ◽  
Ksenija Baždarić ◽  
Dina Librenjak ◽  
Marko Lucijanić ◽  
Miroslav Hanževački ◽  
...  
Keyword(s):  
Caregiver Burden ◽  
Informal Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Clinical Predictors ◽  
Cross Sectional ◽  
Zarit Burden Interview
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