scholarly journals The impact of parent advocacy groups, the Internet, and social networking on rare diseases: The IDEA League and IDEA League United Kingdom example

Epilepsia ◽  
2011 ◽  
Vol 52 ◽  
pp. 102-104 ◽  
Author(s):  
Angela P. Black ◽  
Marie Baker
2013 ◽  
pp. 84-102
Author(s):  
Edward Chen

This chapter discusses the Internet phenomenon known as Web 2.0. It explores Internet use, Internet users, and the continuous improvements being made to the Internet. The purpose of this chapter is to explain the impact that social networking has on the modern enterprise; particularly, when it comes to collaboration and knowledge sharing. The growth trajectory of Web 2.0 software such as social networking, blogs, tags, RSS feeds, wikis, YouTube videos, and widgets are presented, and each component is outlined in detail. Each application is also applied to a practical business setting. The benefits and challenges of each application are discussed, and examples of organizations that are implementing Web 2.0 strategies are presented. Some limitations and concerns of Web 2.0 are discussed. The chapter concludes with an examination of the implications of Web 2.0 on companies and their business and marketing strategies.


2012 ◽  
Vol 78 (5) ◽  
pp. 555-558 ◽  
Author(s):  
Michelle C. Azu ◽  
Elizabeth J. Lilley ◽  
Aparna H. Kolli

According to the National Research Corporation, 1 in 5 Americans use social media sites to obtain healthcare information. Patients can easily access information on medical conditions and medical professionals; however physicians may not be aware of the nature and impact of this information. All physicians must learn to use the Internet to their advantage and be acutely aware of the disadvantages. Surgeons are in a unique position because, unlike in the primary care setting, less time is spent developing a long-term relationship with the patient. In this literature review, we discuss the impact of the Internet, social networking websites, and physician rating websites and make recommendations for surgeons about managing digital identity and maintaining professionalism.


The study has been used to explore the impact of social networking sites amongst the undergraduate women students. In the framework of existing digital media, social networking sites have been known as individuals, by means of the Internet and web application to converse in previously unfeasible ways. It can be predominantly effect of a culture-wide impression shift in the uses and potential of the internet itself. The objectives of the study are to ascertain the different type of social networking sites used by women undergraduate students to scrutinize the level of usage, reason of using social networking sites, to settle on the advantages of using social networking sites and to make out the dangers associated with social networking and to submit strategies to restructure such dangers. The descriptive design has been in use to get responses from a sample size of 115 women undergraduate students who were selected via random sampling techniques. The 115 respondents completed and returned the questionnaire precisely indicating 100% response rate. The outcome of the study discloses that all the women undergraduate students uses social networking sites to expand information, interaction with friends, connecting to their classmates for online study, discussing serious national issues and watching movies etc. There are many advantages of using social networking sites and their menaces combined with social networking and such dangers can be restructured using the strategies available in the work. From the findings, it was recommended that women undergraduate students should attend various awareness program to update on the negative aspects of social networking sites etc. Based on the findings suitable suggestions were also made


The Internet has resulted in many developments that have profoundly changed our culture. One of the most recent and most transformative is the rise of social networking. This chapter explores the benefits of social networking in the business world. Compared to traditional knowledge management approaches, social networking offers many benefits both for individual businesses, which may use it to gain competitive advantage, and for the advancement of whole fields of knowledge. The impact of social networking on medicine, law, accounting, journalism, radio and video, and publishing is discussed. Social media is having such a broad impact because it offers new paradigms of knowledge workflow that are changing the way work is done on an individual level, leading to an overall increase in efficiency.


First Monday ◽  
2015 ◽  
Author(s):  
Isidoropaolo Casteltrione

Over the last decade there has been a proliferation of academic studies addressing the relationship between the Internet and politics, with an increasing number of publications focusing on the impact of such a medium on political participation. Within this specific sub-field research has produced contrasting evidence and generated an intense academic debate. Some scholars stressed the positive impact of the Internet on political participation (i.e., optimists), while others minimised its mobilising power, emphasising its tendency to reinforce existing participatory trends (i.e., normalisers) or highlighting its limited or even negative influence on political participation (i.e., pessimists). Similar findings also emerged in relation to social networking Web sites (SNSs), digital platforms that have been the subject of much research in recent years. This paper discusses how two assumptions characterising many studies focusing on the Internet, SNSs and political participation have contributed to the contradictory findings produced by optimists, pessimists and normalisers. The first assumption is the consideration of political participation as an activity aimed exclusively at affecting governments’ actions, either directly or indirectly. This conceptualisation has arguably prevented scholars from grasping the multidimensional nature of political participation and from assessing how the influence of the Internet on this phenomenon can vary according to the different types of political activity. The second assumption is the perception of the Internet as a homogeneous platform and an over-generalised notion of Internet usage. This, in turn, has led researchers to concentrate on the online/off-line distinction and to overlook the impact of different digital tools and various usage practices. This paper argues for a shift in the ways political participation, Internet and SNSs usage are conceptualised and operationalised in academia. It suggests moving away from the polarised debate between optimists, pessimists and normalisers, and adopting a more differential approach through which examining the effects of digital technologies on political participation.


Crisis ◽  
2017 ◽  
Vol 38 (3) ◽  
pp. 207-209 ◽  
Author(s):  
Florian Arendt ◽  
Sebastian Scherr

Abstract. Background: Research has already acknowledged the importance of the Internet in suicide prevention as search engines such as Google are increasingly used in seeking both helpful and harmful suicide-related information. Aims: We aimed to assess the impact of a highly publicized suicide by a Hollywood actor on suicide-related online information seeking. Method: We tested the impact of the highly publicized suicide of Robin Williams on volumes of suicide-related search queries. Results: Both harmful and helpful search terms increased immediately after the actor's suicide, with a substantial jump of harmful queries. Limitations: The study has limitations (e.g., possible validity threats of the query share measure, use of ambiguous search terms). Conclusion: Online suicide prevention efforts should try to increase online users' awareness of and motivation to seek help, for which Google's own helpline box could play an even more crucial role in the future.


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