scholarly journals Currents in Contemporary Ethics

2008 ◽  
Vol 36 (1) ◽  
pp. 174-178 ◽  
Author(s):  
Mark A. Rothstein
Keyword(s):  
Civil Rights ◽  
National Institutes Of Health ◽  
Health It ◽  
Advocacy Groups ◽  
Legislative History ◽  
Civil Rights Organizations ◽  
Medical Centers ◽  
Academic Medical ◽  
Disease Advocacy ◽  
The Subject

It has been pending in Congress for twelve years, despite the support of the last two presidential Administrations and the National Institutes of Health. It has been the subject of extensive affirmative lobbying by academic medical centers, pharmaceutical and biotech companies, genetic disease advocacy groups, and civil rights organizations. It has overcome vehement objections by employers and insurers. Its final passage, however, has been thwarted by a few Congressional leaders, who have prevented enactment despite overwhelming bipartisan support in both houses of Congress.Based on this legislative history, one could not help but assume that the Genetic Information Nondiscrimination Act (GINA) is a revolutionary piece of legislation that, if finally enacted, would provide extensive, effective, and comprehensive protection against genetic discrimination in health insurance and employment Unfortunately, such an assessment would be incorrect. Indeed, GINA may be a case of too much ado about too little.

CTSA Institution Responses to Proposed Common Rule Changes: Did They Get What They Wanted?

2017 ◽  
Vol 12 (2) ◽  
pp. 79-86 ◽  
Author(s):  
Suzanne M. Rivera ◽  
Lisa Nichols ◽  
Lois Brako ◽  
Genevieve Croft ◽  
Toni Russo ◽  
...  
Keyword(s):  
Human Services ◽  
Human Subjects ◽  
National Institutes Of Health ◽  
Academic Medical Centers ◽  
Department Of Health ◽  
Medical Centers ◽  
Academic Medical ◽  
Rule Changes ◽  
Final Rule ◽  
Protection Of Human Subjects

In 2015, the U.S. Department of Health and Human Services (HHS) and 15 other federal departments and agencies proposed revisions to the Federal Policy for the Protection of Human Subjects. In this Notice of Proposed Rulemaking (NPRM), the departments sought to strengthen, modernize, and make more effective human subjects regulations while reducing administrative burden, delay, and ambiguity. We reviewed public comments from National Institutes of Health (NIH)-funded Clinical and Translational Science Awards (CTSA) institutions on key provisions of the NPRM to understand how the proposed changed were received at research-intensive institutions. CTSA institutions responding to the proposed rule were predominantly opposed to the major proposals, including proposed changes to the treatment of de-identified biospecimens, demonstrating a lack of support from academic medical centers. In January 2017, a Final Rule was issued. We compare the Final Rule to what was proposed.

Biocitizenship on the Ground

2018 ◽  
pp. 178-203 ◽  
Author(s):  
Merlin Chowkwanyun
Keyword(s):  
Medical Student ◽  
Civil Rights ◽  
Student Activism ◽  
War On Poverty ◽  
Research Subjects ◽  
Bodily Integrity ◽  
Medical Centers ◽  
Academic Medical ◽  
Unifying Principles ◽  
Short Time

This chapter examines medical student activism during the civil rights and War on Poverty era, the momentum it sustained for a short time, and the reasons for its sudden implosion and dissipation. This chapter examines specific internal currents within academic medical centers themselves: debates over the narrowness of the curriculum; a growing sense of obligation to surrounding environs (especially campuses located in urban ghettoes); the entry of women, Jews, and non-whites into student bodies; and incipient recognition of bodily integrity, particularly of research subjects and patients used in teaching. The confluence of these trends and debates, together with the political moment, produced the new socially conscious medical student and the organizations through which they agitated. Within, a number of unforeseen conflicts emerged, and what were once unifying principles became sources of fracture, sending these students off on distinct trajectories after they graduated.

Multicenter assessment of morbidity associated with cerebral arteriovenous malformation hemorrhages

2016 ◽  
Vol 9 (7) ◽  
pp. 664-668 ◽  
Author(s):  
Keiko Fukuda ◽  
Monica Majumdar ◽  
Hesham Masoud ◽  
Thanh Nguyen ◽  
Amir Honarmand ◽  
...  
Keyword(s):  
Treatment Strategy ◽  
Venous Drainage ◽  
National Institutes Of Health ◽  
Study Patient ◽  
Patient Specific ◽  
Medical Centers ◽  
Imaging Characteristics ◽  
Academic Medical ◽  
Brain Avms

BackgroundThe optimal management strategy for unruptured cerebral arteriovenous malformations (AVMs) is controversial since the ARUBA trial (A Randomized trial of Unruptured Brain AVMs). An accurate understanding of the morbidity associated with AVM hemorrhages may help clinicians to formulate the best treatment strategy for unruptured AVMs.ObjectiveTo determine the morbidity associated with initial cerebral AVM rupture in patients presenting to tertiary medical centers.MethodsRetrospective chart reviews from three tertiary academic medical centers were performed for the period between 2008 and 2014. All patients admitted with intracranial hemorrhage due to untreated AVMs were included in this study. Patient-specific variables, including demographics, imaging characteristics, neurologic examination results, and clinical outcome, were analyzed and recorded.Results101 Patients met the inclusion criteria. Admission National Institutes of Health Stroke Scale (NIHSS) scores were 0, 1–9, and ≥10 in 26%, 29%, and 45% of patients, respectively. Hematoma locations were subarachnoid, intraventricular, intraparenchymal, and combined in 5%, 11%, 32%, and 52% of patients, respectively. Deep venous drainage was present in 43% of AVMs; AVM-associated aneurysms were present in 44% of patients. Emergent hematoma evacuations were performed in 37% of patients and 8% of patients died while in hospital. At discharge, of those who survived, NIHSS scores of ≥1 and ≥10 were found in 69% and 23%, respectively. At the 90-day follow-up, 34% had a modified Rankin Scale (mRS) score >2. Patients with admission NIHSS score ≥10 had significantly higher rates of midline shift, surgical hematoma evacuation, and follow-up mRS ≥3 (p<0.05).ConclusionsThe morbidity associated with cerebral AVM rupture appeared to be higher in our study than previously reported. Morbidity from AVM rupture should be considered as an important factor, together with variables such as risk of AVM rupture and procedural risk, in determining the optimal treatment strategy for unruptured cerebral AVMs.

To All Store and Office Workers … Negro and White!

2019 ◽  
pp. 83-115
Author(s):  
Traci Parker
Keyword(s):  
New York ◽  
Civil Rights ◽  
York City ◽  
Black Labor ◽  
Black Freedom Struggle ◽  
Freedom Struggle ◽  
Civil Rights Organizations ◽  
Fair Employment ◽  
Black Freedom ◽  
The Subject

The exceptionality of retail unions governing Macy’s Herald Square in New York City and South Center Department Store in Chicago in advancing black labor and civil rights is the subject of chapter three. New York and Chicago locals successfully linked worker and consumer rights and improved African Americans’ social and economic conditions, even propelling some of them into the middle class. Also, in acting as both labor and civil rights organizations, these unions expanded views on fair employment in this industry beyond bread-and-butter issues and promoted equal employment and promotion. These unions point to the nature and direction of the black freedom struggle, albeit without the presence of strong unionism.

Oversight

2011 ◽  
Author(s):  
Michael D. Minta
Keyword(s):  
Civil Rights ◽  
Affordable Housing ◽  
Federal Agencies ◽  
Negative Stereotypes ◽  
Linked Fate ◽  
Congressional Oversight ◽  
Policy Debates ◽  
The Subject ◽  
Minority Interests ◽  
Black And Latino

This book answers the question of whether black and Latino legislators better represent minority interests in Congress than white legislators, and it is the first book on the subject to focus on congressional oversight rather than roll-call voting. The book demonstrates that minority lawmakers provide qualitatively better representation of black and Latino interests than their white counterparts. They are more likely to intervene in decision making by federal agencies by testifying in support of minority interests at congressional oversight hearings. Minority legislators write more letters urging agency officials to enforce civil rights policies, and spend significant time and effort advocating for solutions to problems that affect all racial and ethnic groups, such as poverty, inadequate health care, fair housing, and community development. This book argues that minority members of Congress act on behalf of broad minority interests—inside and outside their districts—because of a shared bond of experience and a sense of linked fate. It shows how the presence of black and Latino legislators in the committee room increases the chances that minority perspectives and concerns will be addressed in committee deliberations, and also how minority lawmakers are effective at countering negative stereotypes about minorities in policy debates on issues like affirmative action and affordable housing.

The Legal Status of Cryptocurrencies in the Russian Federation

2018 ◽  
Vol 11 (2) ◽  
pp. 129-137 ◽  
Author(s):  
E. L. Sidorenko
Keyword(s):  
Civil Rights ◽  
Russian Federation ◽  
Legal Status ◽  
Virtual Currency ◽  
Content Analysis Method ◽  
Crypto Currency ◽  
The Subject ◽  
The Russian Federation ◽  
Historical Comparative ◽  
Definition Of

The paper focuses on the definition of the legal status of the cryptocurrency in the framework of the current Russian legislation. The subject of the research is the principal scientific and practical approaches to determining the object of civil rights and the object of acquisitive crimes in terms of their adaptability to cryptocurrencies. The purposes of the work were the search for a universal algorithm for resolving civil disputes related to the turnover of the crypto currency, and the qualification of the virtual currency theft (fraud). By using historical, comparative legal and dialectical methods as well as the content analysis method parallels between cryptocurrencies and individual objects of civil rights (a thing, property rights, other property) were drawn, and a number of options for qualifying the actions related to the non-repayable withdrawal of the cryptocurrency were proposed. Finally, the paper analyzes the draft laws prepared by the RF Ministry of Finance and the Central Bank of the Russian Federation and presents the author’s vision of the prospects for legalizing the cryptocurrency as an object of civil rights.

Human Rights Activities as a Function of the Prosecutor’s Office

2020 ◽  
Vol 3 ◽  
pp. 88-93
Author(s):  
K.N. Golikov ◽  
Keyword(s):  
Human Rights ◽  
Civil Rights ◽  
Russian Federation ◽  
The State ◽  
Main Function ◽  
Federal Law ◽  
The Subject ◽  
The Russian Federation ◽  
The Law

The subject of this article is the problems of the nature, essence and purpose of prosecutorial activity. The purpose of the article is to study and justify the role of the human rights function in prosecutorial activities in the concept of a modern legal state. At the heart of prosecutorial activity is the implementation of the main function of the Prosecutor’s office – its rights and freedoms, their protection. This means that any type (branch) of Prosecutor's supervision is permeated with human rights content in relation to a citizen, society, or the state. This is confirmed by the fact that the Federal law “On the Prosecutor's office of the Russian Federation” establishes an independent type of Prosecutor's supervision-supervision over the observance of human and civil rights and freedoms. It is argued that the legislation enshrines the human rights activities of the Prosecutor's office as its most important function. It is proposed to add this to the Law “On the Prosecutor's office of the Russian Federation”.

scholarly journals Integrative and Complementary Health Practices Building a New Health Paradigm

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
T Gemeli ◽  
H Silva ◽  
M Kato
Keyword(s):  
Cognitive Abilities ◽  
Universal Access ◽  
Well Being ◽  
The Elderly ◽  
Professional Service ◽  
Health It ◽  
Self Confidence ◽  
The Social ◽  
The Subject ◽  
New Perspective

Abstract This work arose from the need to broaden the therapeutic approach and offer a differentiated health intervention proposal based on the understanding that the illness process has repercussions on all integrated systems of Being. Since 2019, the Health Center for the Elderly in Blumenau (SC-Brasil), specialized multi-professional service, offering support for biopsychoenergetic transformation with the practice of Yoga and Meditation, through a holistic and comprehensive view of health. It begins with the Multidimensional Assessment of the Elderly, with a guideline in welcoming and qualified listening, which considers the subject and all subjectivity. From there, the expanded diagnosis and the Singular Therapeutic Project are built and the consultations with the team and the 'Re-Conhecer group' begin. The activity is weekly, aimed at the elderly and their family, takes place in an appropriate place and lasts two hours. Welcoming, pranayama, mantras, kriyas and meditation are made, as well as reflections on free themes. The professionals who conduct the practice are the dentist, trained in yoga, and the social worker, the welcoming process continues individually after the activity. Due to subjectivity, results are routinely collected in a qualitative way from the participants' report. There is a perception on the part of the participants, therapists and members of the multidisciplinary team that this work provides improvement in cognitive abilities, self-care, well-being, self-confidence, creativity, improved sleep, autonomy, balance, strengthening bonds, joy, vitality. Key messages This initiative builds new models of health care, transcending the traditional biomedical model, according to the operational guideline for comprehensiveness, universal access and equity. Provokes reflections and builds a new perspective of life with quality and participation of the elderly as subjects of their health.

scholarly journals Multicenter point prevalence evaluation of the utilization and safety of drug therapies for COVID-19 at the onset of the pandemic timeline in the United States

2021 ◽  
Author(s):  
Nathaniel J Rhodes ◽  
Atheer Dairem ◽  
William J Moore ◽  
Anooj Shah ◽  
Michael J Postelnick ◽  
...  
Keyword(s):  
Clinical Trials ◽  
Drug Therapy ◽  
Supportive Care ◽  
The United States ◽  
Primary Objective ◽  
Point Prevalence ◽  
Medical Centers ◽  
Academic Medical ◽  
History Of ◽  
Secondary Objective

Abstract Disclaimer In an effort to expedite the publication of articles related to the COVID-19 pandemic, AJHP is posting these manuscripts online as soon as possible after acceptance. Accepted manuscripts have been peer-reviewed and copyedited, but are posted online before technical formatting and author proofing. These manuscripts are not the final version of record and will be replaced with the final article (formatted per AJHP style and proofed by the authors) at a later time. Purpose There are currently no FDA-approved medications for the treatment of coronavirus disease 2019 (COVID-19). At the onset of the pandemic, off-label medication use was supported by limited or no clinical data. We sought to characterize experimental COVID-19 therapies and identify safety signals during this period. Methods We conducted a non-interventional, multicenter, point prevalence study of patients hospitalized with suspected/confirmed COVID-19. Clinical and treatment characteristics within a 24-hour window were evaluated in a random sample of up to 30 patients per site. The primary objective was to describe COVID-19–targeted therapies. The secondary objective was to describe adverse drug reactions (ADRs). Results A total of 352 patients treated for COVID-19 at 15 US hospitals From April 18 to May 8, 2020, were included in the study. Most patients were treated at academic medical centers (53.4%) or community hospitals (42.6%). Sixty-seven patients (19%) were receiving drug therapy in addition to supportive care. Drug therapies used included hydroxychloroquine (69%), remdesivir (10%), and interleukin-6 antagonists (9%). Five patients (7.5%) were receiving combination therapy. The rate of use of COVID-19–directed drug therapy was higher in patients with vs patients without a history of asthma (14.9% vs 7%, P = 0.037) and in patients enrolled in clinical trials (26.9% vs 3.2%, P &lt; 0.001). Among those receiving drug therapy, 8 patients (12%) experienced an ADR, and ADRs were recognized at a higher rate in patients enrolled in clinical trials (62.5% vs 22%; odds ratio, 5.9; P = 0.028). Conclusion While we observed high rates of supportive care for patients with COVID-19, we also found that ADRs were common among patients receiving drug therapy, including those enrolled in clinical trials. Comprehensive systems are needed to identify and mitigate ADRs associated with experimental COVID-19 treatments.

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