The relationship between caregiver burden and caregiver pulse rate measured by using a wristwatch-type pulsimeter with accelerometer in home-based family caregivers for persons with dementia: Pilot study

2018 ◽  
Vol 19 (1) ◽  
pp. 83-84 ◽  
Author(s):  
Kohei Kajiwara ◽  
Akio Mantani ◽  
Hiroko Noto ◽  
Mika Miyashita
Keyword(s):  
Pilot Study ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Pulse Rate ◽  
Home Based ◽  
The Relationship

scholarly journals The Relationship between Family Attitude and Family Caregiver Burden of Patients with Schizophrenia in Tangerang

2020 ◽  
Vol 3 (1) ◽  
pp. 67
Author(s):  
Nurul Fitri ◽  
Karina Megasari Winahyu ◽  
Yudhia Frathidina
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Positive Attitude ◽  
Family Burden ◽  
Psychiatric Clinic ◽  
Care Providers ◽  
Family Attitudes ◽  
The Family ◽  
The Relationship ◽  
Family Attitude

Introduction: Schizophrenia is a mental disorder that occurs in the long term and affects the thought process which demanding for the required care. Negative attitudes can be one of the factors that influence the family burden that is getting heavier. This study aimed to determine the relationship of family attitudes to the family burden of caring for schizophrenic patients at the psychiatric hospital in Kota Tangerang. Methods: The study was a descriptive correlation with Cross-Sectional design. The population of this study was the family caregivers of patients with schizophrenia who visited the psychiatric clinic at Kota Tangerang Hospital. This study used the accidental sampling method, recruited as many as 64 people. The instrument of this study was the Burden Assessment Schedule (BAS) questionnaire and the Family Attitude Scale (FAS) had been examined the validity and reliability test. The Chi-square test was used for the statistical analysis to identify the relationship between family attitude and caregiver burden. Results: The results of this study were 23 respondents who had a positive attitude with a light burden of 52.2% while those with a negative attitude had 41 respondents with a heavy burden of 80.5. The p-value was 0.007 showed that there was a significant relationship between family attitudes and the burden of the family caring for patients with schizophrenia in psychiatric hospitals in Kota Tangerang Hospital. Conclusion: It suggests that health care providers need to consider the burden perceived by the caregivers so they are more likely to show a positive attitude in providing care for the beloved-one.Keywords: Caregiver Burden, Family Attitudes, Family Caregivers, Patients with Schizophrenia

Impact of the caregiver burden on the effectiveness of a home-based palliative care program: A mediation analysis

2019 ◽  
Vol 18 (3) ◽  
pp. 332-338 ◽  
Author(s):  
Angela J. Pereira-Morales ◽  
Luis Enrique Valencia ◽  
Luis Rojas
Keyword(s):  
Palliative Care ◽  
Caregiver Burden ◽  
Psychological Symptoms ◽  
Care Program ◽  
Palliative Care Program ◽  
Home Based ◽  
High Prevalence ◽  
The Relationship ◽  
Significant Mediator

AbstractObjectiveThe growing aging population and the high prevalence of several concomitant chronic diseases have contributed to the elevated rates of caregiver burden and suffering in patients. In turn, intending to relieve unnecessary pain in patients, there has been a rapid growth of outpatient palliative care programs. However, little has been studied about caregiver burden as a relevant factor potentially affecting the effectiveness of these programs. This study aimed to determine the extent of caregiver burden as a possible mediator on the effectiveness of a home-based palliative care program.MethodSixty-six palliative patients (56% women; mean age + SD = 71, 6 ± 17.7) and their caregivers were assessed with measures for physical, emotional, and psychological symptoms before and 1 month after the start of a home-based palliative care program.ResultsThe association between caregiver burden and palliative outcomes was corroborated with a categorical regression model (p < 0.01). Caregiver burden was found to be a significant mediator in the relationship between outcome measures for palliative care at baseline and after 1 month of enrollment in the program.Significance of resultsTo our knowledge, this is the first study to assess the role of caregiver burden in the effectiveness of a home-based palliative care program. Although further work is required, the results indicate that a patient-focused intervention does not have the same beneficial effect if the caregiver burden is not addressed. Future home-based palliative care programs should focus on caregivers as well as patients, with particular attention to psychosocial intervention on caregivers.

scholarly journals EVALUATE-AD and Tele-STAR: Novel Methodologies for Assessment of Caregiver Burden in a Telehealth Caregiver Intervention – A Case Study

2019 ◽  
Vol 47 (3) ◽  
pp. 176-184 ◽  
Author(s):  
Neil W.D.  Thomas ◽  
Allison Lindauer ◽  
Jeffrey  Kaye
Keyword(s):  
Caregiver Burden ◽  
Intervention Programs ◽  
Daily Activities ◽  
Objective Measures ◽  
Objective Method ◽  
Subjective Measures ◽  
Caregiver Education ◽  
Home Based ◽  
The Relationship

Aims: We explored the relationship between objective and subjective measures of burden prior to and after a telehealth-based caregiver intervention. One caregiver participated in two studies, one to assess the feasibility of objective, home-based monitoring (EVALUATE-AD), the second to assess the feasibility of a caregiver education telehealth-based intervention, Tele-STAR. Methods: Subjective measures of burden and depression in Tele-STAR and objective measures related to daily activities of the caregiver in EVALUATE-AD were compared to examine trends between the different outcome measures. Results: While the caregiver reported an increase in distressing behaviors by her partner, burden levels did not significantly change during or after the Tele-STAR intervention, while objective measures of activity and sleep showed a slight decline. Conclusion: Unobtrusive home-based monitoring may provide a novel, objective method to assess the effectiveness of caregiver intervention programs.

scholarly journals Caregiver Burden and Sleep Quality in Dependent People’s Family Caregivers

2019 ◽  
Vol 8 (7) ◽  
pp. 1072 ◽  
Author(s):  
Miguel A. Simón ◽  
Ana M. Bueno ◽  
Patricia Otero ◽  
Vanessa Blanco ◽  
Fernando L. Vázquez
Keyword(s):  
Sleep Quality ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Sleep Disturbances ◽  
Ad Hoc ◽  
Cross Sectional Study ◽  
Subjective Sleep Quality ◽  
Cross Sectional ◽  
Perceived Burden ◽  
The Relationship

This study examined the relationship between caregiver burden and sleep quality in dependent people’s family caregivers. A cross-sectional study was carried out with 201 dependent people’s family caregivers and 92 non-caregivers controls. Participants completed the Pittsburgh Sleep Quality Index (PSQI), the Caregiver Burden Inventory (CBI), and an ad-hoc questionnaire to collect sociodemographic data. Based on CBI scores, subjects were categorized into three groups: family caregivers with high levels of perceived burden, family caregivers with low and medium levels of perceived burden and non-caregiver controls. There were significant differences among the groups in the PSQI total (F = 40.39; p < 0.001), subjective sleep quality (F = 25.55; p < 0.001), sleep latency (F = 16.99; p < 0.001), sleep disturbances (F = 14.90; p < 0.001), use of sleep medications (F = 6.94; p < 0.01) and daytime dysfunction (F = 20.12; p < 0.001). These differences were found only between the caregivers with high levels of perceived burden and the other two groups (p < 0.05). There were also significant differences between the groups in sleep duration (F = 18.34; p < 0.001) and habitual sleep efficiency (F = 24.24; p < 0.001). In these dependent measures, the differences were found in all the pairs examined (p < 0.05). These results suggest that caregiver burden is related to sleep quality, so that caregivers with greater perceived burden have a worse sleep quality.

scholarly journals Predictors of Depressive Symptoms among Family Caregivers of Patients with Dementia in Java, Indonesia

2021 ◽  
Vol 73 (8) ◽  
pp. 549-558
Author(s):  
Yossie Susanti Eka Putri ◽  
Yajai Sitthimongkol ◽  
Virapun Wirojratana ◽  
Natkamol Chansatitporn
Keyword(s):  
Social Support ◽  
Depressive Symptoms ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Mental Health Problems ◽  
Psychological Symptoms ◽  
Healthcare Services ◽  
Cross Sectional ◽  
The Family ◽  
The Relationship

Objective: Depressive symptoms are common mental health problems among the family caregivers of patients with dementia. However, little is known about the prevalence of depressive symptoms among the family caregivers of patients with dementia in Indonesia. This study aimed to examine: 1) the factors predicting depressive symptoms, 2) the mediating role of social support in the relationship between burden and depressive symptoms, and 3) the association between depressive symptoms and healthcare utilization among family caregivers.Materials and Methods: This was a cross-sectional study involving 250 family caregivers of patients with dementia recruited from four hospitals in Java, Indonesia. Data were collected by Zarit Burden Interview (ZBI); the Neuropsychiatric Inventory Questionnaire (NPI-Q), the Mastery scale, the Multidimensional Scale of Perceived Social Support, and the Center for Epidemiologic Studies Depression (CES-D) Scale. Descriptive statistics, chi-square test, hierarchical multiple linear regression, and Baron and Kenny's regression method were used to analyze the data.Results: The results revealed that about a quarter of the participants (24.8%) experienced depressive symptoms. Caregiver burden, mastery, behavioral and psychological symptoms of dementia, and social support explained 45.5% of the variance in the prevalence of depressive symptoms among family caregivers (R2=0.455). Social support also partially mediated the association between caregiver burden and depressive symptoms. There was no association between depressive symptoms and the use of healthcare services among the family caregivers.Conclusion: The findings revealed that social support is a mediating factor affecting the relationship between caregiver burden and depressive symptoms. Interventions targeting social support to help alleviate caregiver burden would be effective in helping reduce depressive symptoms in the family caregivers of patients with dementia.

Relationship between expression of gratitude by home-based care receivers and caregiver burden among family caregivers

2021 ◽  
Vol 97 ◽  
pp. 104507
Author(s):  
Yuhei Otobe ◽  
Mizue Suzuki ◽  
Yosuke Kimura ◽  
Shingo Koyama ◽  
Iwao Kojima ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Caregiver Burden ◽  
Home Based ◽  
Home Based Care

A feasibility study of a two-session home-based cognitive behavioral therapy–insomnia intervention for bereaved family caregivers

2009 ◽  
Vol 7 (2) ◽  
pp. 197-206 ◽  
Author(s):  
Patricia A. Carter ◽  
Sabrina Q. Mikan ◽  
Cherie Simpson
Keyword(s):  
Depressive Symptoms ◽  
Pilot Study ◽  
Cognitive Behavioral Therapy ◽  
Family Caregivers ◽  
Behavioral Therapy ◽  
Cognitive Behavioral ◽  
Home Based ◽  
Increased Risk ◽  
Therapy Interventions ◽  
Bereaved Family

ABSTRACTObjective:In 2008 over two million family caregivers will become bereaved. The vast majority of these caregivers have provided ‘round-the-clock care for a period ranging from months to years. Bereaved family caregivers report insomnia symptoms that persist beyond 1 year, longer than what is seen in bereaved noncaregivers, placing them at increased risk of depression and complicated grief. Despite some rewarding elements, caregiving is a stressful and exhausting role that often requires the caregiver to restructure his or her life around the needs of the patient. Once the patient dies, the structure is lost. Cognitive behavioral therapy interventions are effective in providing structure. This pilot study explored the feasibility of a two-session home-based cognitive behavioral therapy–insomnia (CBT-I) intervention for bereaved family caregivers.Method:A 5-week longitudinal descriptive study design was used with 11 adult primary family caregivers of patients who died from cancer. A master's prepared nurse delivered two CBT-I intervention sessions in participant homes. Data collection sessions occurred at baseline, 3, and 5 weeks. A debriefing session was held at Week 6.Results:Participant evaluations of the intervention indicated that it was feasible and acceptable (e.g., 100% would recommend it to others); objective data further supported its feasibility (e.g., 100% completed the trial). In addition, when comparing baseline with Weeks 3 and 5, participants demonstrated improvement in insomnia and depressive symptoms.Significance of results:The results of this pilot study suggest that the intervention is feasible and acceptable and produces promising effects on insomnia and depressive symptoms in bereaved family caregivers.

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