scholarly journals EVALUATE-AD and Tele-STAR: Novel Methodologies for Assessment of Caregiver Burden in a Telehealth Caregiver Intervention – A Case Study

2019 ◽  
Vol 47 (3) ◽  
pp. 176-184 ◽  
Author(s):  
Neil W.D.  Thomas ◽  
Allison Lindauer ◽  
Jeffrey  Kaye

Aims: We explored the relationship between objective and subjective measures of burden prior to and after a telehealth-based caregiver intervention. One caregiver participated in two studies, one to assess the feasibility of objective, home-based monitoring (EVALUATE-AD), the second to assess the feasibility of a caregiver education telehealth-based intervention, Tele-STAR. Methods: Subjective measures of burden and depression in Tele-STAR and objective measures related to daily activities of the caregiver in EVALUATE-AD were compared to examine trends between the different outcome measures. Results: While the caregiver reported an increase in distressing behaviors by her partner, burden levels did not significantly change during or after the Tele-STAR intervention, while objective measures of activity and sleep showed a slight decline. Conclusion: Unobtrusive home-based monitoring may provide a novel, objective method to assess the effectiveness of caregiver intervention programs.

2019 ◽  
Vol 18 (3) ◽  
pp. 332-338 ◽  
Author(s):  
Angela J. Pereira-Morales ◽  
Luis Enrique Valencia ◽  
Luis Rojas

AbstractObjectiveThe growing aging population and the high prevalence of several concomitant chronic diseases have contributed to the elevated rates of caregiver burden and suffering in patients. In turn, intending to relieve unnecessary pain in patients, there has been a rapid growth of outpatient palliative care programs. However, little has been studied about caregiver burden as a relevant factor potentially affecting the effectiveness of these programs. This study aimed to determine the extent of caregiver burden as a possible mediator on the effectiveness of a home-based palliative care program.MethodSixty-six palliative patients (56% women; mean age + SD = 71, 6 ± 17.7) and their caregivers were assessed with measures for physical, emotional, and psychological symptoms before and 1 month after the start of a home-based palliative care program.ResultsThe association between caregiver burden and palliative outcomes was corroborated with a categorical regression model (p < 0.01). Caregiver burden was found to be a significant mediator in the relationship between outcome measures for palliative care at baseline and after 1 month of enrollment in the program.Significance of resultsTo our knowledge, this is the first study to assess the role of caregiver burden in the effectiveness of a home-based palliative care program. Although further work is required, the results indicate that a patient-focused intervention does not have the same beneficial effect if the caregiver burden is not addressed. Future home-based palliative care programs should focus on caregivers as well as patients, with particular attention to psychosocial intervention on caregivers.


2016 ◽  
Vol 28 (10) ◽  
pp. 1681-1685 ◽  
Author(s):  
Junhong Yu ◽  
Charlene L. M. Lam ◽  
Tatia M. C. Lee

ABSTRACTBackground:The high prevalence of mild cognitive impairment (MCI) in Hong Kong, as previously reported, requires verification. Furthermore, the relationship between loneliness, depression, and cognitive impairment with regards to MCI are unclear. The present study aims to establish the prevalence of MCI in a community sample in Hong Kong and determine if participants with MCI feel significantly lonelier, even after depression has been taken into consideration.Methods:Participants from a community sample (N = 376) were assessed with subjective and objective measures of cognitive impairments to determine whether the criteria had been met for MCI. The MCI cases are then compared with age, sex, and education-matched controls on subjective measures of loneliness and depression.Results:A total of 66 (17.6%) participants were diagnosed with MCI. These participants reported significantly higher levels of perceived loneliness and depression compared to the matched controls. Differences between groups in loneliness remained significant, even after depression levels have been controlled.Conclusions:Loneliness is implicated in MCI. The relationship between loneliness and MCI is, at least, partially independent of depression. The implications of these finding are discussed.


2003 ◽  
Vol 12 (1) ◽  
pp. 40-50 ◽  
Author(s):  
Heather M. Clark ◽  
Pamela A. Henson ◽  
William D. Barber ◽  
Julie A. G. Stierwalt ◽  
Michael Sherrill

A growing literature documents the relationship between tongue strength and oral phase swallowing function. Objective measures of strength have been recommended as more valid and reliable than subjective measures for the assessment of tongue function, yet subjective measures remain the more commonly used clinical method for assessing tongue strength. This study assessed the relationships among subjective and objective measures of tongue strength and oral phase swallowing impairments. Both subjective and objective measures of tongue strength were observed to be good predictors of the presence of oral phase swallowing impairments. The specific oral phase swallowing functions of bolus manipulation, mastication, and clearance were moderately correlated with subjective ratings of tongue strength. Experienced and inexperienced raters appeared to judge tongue strength differently, with the ratings of experienced raters being more predictive of swallowing function.


1986 ◽  
Vol 11 (1) ◽  
pp. 19-26 ◽  
Author(s):  
Richard B. Robinson ◽  
Moragea Y. Salem ◽  
John E. Logan ◽  
John A. Pearce

This study examined the relationship between company performance and 50 specific planning activities in a small, independent retail firm setting. Performance was measured using one set of objective measures and one set of subjective measures. Six specific planning activities emerged as having significant relationships with both sets of performance measures.


1978 ◽  
Vol 21 (1) ◽  
pp. 69-75
Author(s):  
Wayne M. Clarke

The aim of this study was to determine the relationship between subjective and objective measure of nasality in male and female subjects who were considered to have normal speech. The findings indicated that although there was very little correlation between judged nasality ratings and measures of the oral and nasal sound pressure levels, there were a number of factors, such as the sex of the subject and the degree of nasality, which should be considered in all objective measures of this type.


Religions ◽  
2021 ◽  
Vol 12 (9) ◽  
pp. 747
Author(s):  
Lea Taragin-Zeller ◽  
Edward Kessler

Drawing on thirty in-depth interviews with faith leaders in the UK (including Islam, Christianity, Judaism, Hinduism, and Sikhism), we examine the diverse ways religious groups reorient religious life during COVID-19. Analysing the shift to virtual and home-based worship, we show the creative ways religious communities altered their customs, rituals, and practices to fit a new virtual reality amidst rigid social distancing guidelines. This study offers a distinctive comparative perspective into religious creativity amidst acute social change, allowing us to showcase notable differences, especially in terms of the possibility to fully perform worship online. We found that whilst all faith communities faced the same challenge of ministering and supporting their communities online, some were able to deliver services and perform worship online but others, for theological reasons, could not offer communal prayer. These differences existed within each religion rather than across religious boundaries, representing intra-faith divergence at the same time as cross-faith convergence. This analysis allows us to go beyond common socio-religious categories of religion, while showcasing the diverse forms of religious life amidst COVID-19. This study also offers a diverse case study of the relationship between religions as well as between religion, state, and society amidst COVID-19.


2020 ◽  
Vol 19 (5) ◽  
pp. 355-369
Author(s):  
Ladda Thiamwong ◽  
Veronica B. Decker

Irrational fear of falling is defined by the high degree of psychological fear a person has of falling when in reality, that person is at low physiological risk of falling. It is a significant problem in older people and may manifest from previous falls or fall-related depression and/or anxiety. If untreated, it may lead to increased falling, decreased mobility, social isolation, and decreased participation in daily activities. A mixed-methods, home-based, 8-week, physio-feedback/exercise program was developed for an older adult to help mitigate her irrational fear of falling. In this pilot case study, the quantitative independent variables of fear of falling, static balance, dynamic balance, fall risk factors, and fall risk appraisal were assessed pre- and post-intervention. A qualitative semi-structured interview was also conducted to help assess the participant’s reaction to the intervention. Data from quantitative, qualitative, and integrated viewpoints converged to indicate the intervention improved fear of falling, shifted the participant’s perception from irrational to rational fall risk appraisal and increased participation in daily activities.


2000 ◽  
Author(s):  
Edna R. Fiedler ◽  
Pam Della Rocco ◽  
David J. Schroeder ◽  
Kiet T. Nguyen

Sign in / Sign up

Export Citation Format

Share Document