scholarly journals POS1316 VISUAL FUNCTION AND QUALITY OF LIFE: PRELIMINARY RESULTS FROM A PIVOTAL CROSS-SECTIONAL STUDY ON ONE HUNDRED PATIENTS WITH JUVENILE IDIOPATHIC ARTHRITIS-ASSOCIATED AND IDIOPATHIC UVEITIS

2021 ◽  
Vol 80 (Suppl 1) ◽  
pp. 940.2-941
Author(s):  
G. B. Beretta ◽  
F. Minoia ◽  
L. Marelli ◽  
C. Mapelli ◽  
G. Leone ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Juvenile Idiopathic Arthritis ◽  
Visual Function ◽  
Clinical Care ◽  
Cross Sectional Study ◽  
Cross Cultural ◽  
P Value ◽  
Sectional Study ◽  
Cross Sectional

Background:Juvenile idiopathic arthritis (JIA) is the main cause of chronic uveitis in childhood and JIA associated uveitis (JIA-U) is the most common extraarticular complication of JIA. Despite continuous improvement in its management, pediatric uveitis still represents a serious condition with potential sight-threatening complications and a significant impact on quality of life (QoL).Objectives:To evaluate visual function (VF) and QoL in children with JIA-U and idiopathic uveitisMethods:A cross-sectional study was conducted in two tertiary Pediatric Rheumatology Centres, enrolling all patients seen with JIA-U, JIA without uveitis and idiopathic uveitis. VF was assessed by a translated form of the available EYE-Q, adapted for cross-cultural feasibility into a 10-question tool, while QoL was evaluated by the Italian version of the Pediatric Rheumatology Quality of Life scale part of the Juvenile Arthritis Multidimensional Report (JAMAR), shortened for feasibility to a 8-question tool. JAMAR section on treatment compliance and school attendance was also included. Parents, and patients when appropriate, were asked to complete each patient/parent-reporting outcome measure, answering on a 4-point Likert scale, with a total score ranging from 0 to 72 (worst condition). Medical charts were reviewed regarding JIA and uveitis features and outcome. Quantitative and qualitative variables were compared by means of Mann-Whitney U test or chi-square/Fisher exact test, as appropriate; correlations among quantitative non-parametric variables were evaluated by Spearman’s test.Results:We herein describe results from the first 100 patients enrolled (76% female), with a median age at study time of 12.8 (9.0-17.6) years. Forty-nine had JIA-U, 37 JIA without uveitis and 14 idiopathic uveitis. Uveitis was active in 14/63 patients (22.2%), with a median of uveitis duration of 9.0 years (3.6-14.8). Almost all children with uveitis were on systemic treatment (58/63, 92%) at the time of interview; 54.0% of patients presented an ocular damage, with 8.0% having a best corrected visual acuity (BCVA) < 4/10. Total score, VF and QoL scores resulted significantly higher in JIA-U patients compared to JIA without uveitis, while no differences were noticed among children with uveitis with or without JIA (Table 1). School absence was reported more frequently in JIA-U compared to JIA only (32.7% vs 10.8%, p 0.0211). VF was significantly worse in patients with ocular damage and BCVA < 4/10 (p 0.0351 and 0.0123, respectively). In patients with uveitis, VF and QoL showed a significant correlation (r 0.50, p <0.0001) especially in patients with idiopathic uveitis (r 0.74, p <0.0001).Conclusion:Visual function is a crucial component of QoL in children with uveitis and it correlates with ocular damage. Since eye involvement significantly affect QoL in patients with JIA, a specific tool widely validated and cross-cultural adapted is highly demanded in the clinical care of JIA-U patients.References:[1]Angeles-Han ST et al. The importance of visual function in the quality of life of children with uveitis. J AAPOS, 2010. Filocamo et al. A New Approach to Clinical Care of Juvenile Idiopathic Arthritis: The Juvenile Arthritis Multidimensional Assessment Report. J Rheumatol, 2011.Table 1.JIA-Un = 49Idiopathic uveitisn = 14JIAn = 37p-value*p-value#Total score5.0 (3.0-11.0)4.5(2-9.8)2.0(0-4.0)0.5739<0.0001VF score2.0 (0-3.0)1.0(0-3.0)0(0-0)0.9098<0.0001QoL score3.0(2.0-6.0)3.5(2.0-4.8)2.0(0-4.0)0.56110.0005Numbers are medians (IQR). * JIA-U vs idiopathic uveitis; #JIA-U vs JIADisclosure of Interests:None declared

Evaluation of Quality of Life among Kidney Transplant Patients- A Cross Sectional Study

2021 ◽  
Vol 15 (11) ◽  
pp. 3087-3089
Author(s):  
Rashida Jabeen ◽  
Kousar Perveen ◽  
Muhammad Afzal ◽  
Sadia Khan
Keyword(s):  
Quality Of Life ◽  
Kidney Transplantation ◽  
Kidney Transplant ◽  
Cross Sectional Study ◽  
P Value ◽  
Sectional Study ◽  
Cross Sectional ◽  
Transplant Patients ◽  
Kidney Transplant Patients

Kidney transplantation is the famous and most important choice of treatment of renal replacement therapies (RRTs) because of its positive impact on morbidity, survival and cost. The health related quality of life is becoming important outcome. Quality of life is usually impaired in patients who have renal transplant because of renal transplant patients have anxiety, lack of social, physical and emotional support and diminished ability to take care of themselves. The basic purpose of renal transplantation is to achieve maximum quality of life with minimum side effects. Methods: A cross sectional study was conducted at Rukhsana Akhtar Bahria International Orchard Hospital Lahore after approval from institution board of university of Lahore. 36 patients were enrolled in study by using purposive sampling technique. After taking informed consent all Kidney transplant patients aged between 18 years to 60 years, visited the post-transplantation OPD and continuously in follow-up sessions were included in study. A validated and standard WHO questionnaire of “Kidney Disease and Quality of Life (KDQOL-36™)” was used for data collection. Data was entered and analyzed in SPSS version.21.Chi-square test was applied to find out significant association between qualitative variables. P -Value < 0.05will be considered as statistically significant. Results: Majority of patients were from 40-49 years 10(27.0%). Females were more as compared to men (20(55.6) vs 16(44.4%)). 10(27.8) patients can read and write and 8(22.2%) have done matriculation. More patients live in Urban area as compared to rural area(19(52.8%) vs 17(47.2%)).8(22.2%) patients have less than 1 year of post kidney transplantation time and 19(52.8%) have 1 to 3 years. All the seven domains of KDQOL show poor QOL. General Health, Physical function and physical and emotional function shows average QOL and Emotional, social, daily activities and overall KDQOL shows poor QOL. There was insignificant association with age, gender, education; residential area and Post kidney transplantation length of time (years)(p-value > 0.05). Conclusions: After renal transplantation HRQOL becomes very important factor. After kidney transplantation HRQOL depends on many factors. It was concluded from current study that the HRQOL was not as good as it should be. Over the period of transplantation time patient’s quality of life remain same. The society, government, family, and medical staff need to support patients so they can also improve their QOL. Key word: Renal Diseases, Kidney transplant, Quality of life, KDQOL-36

scholarly journals Hubungan Perawatan Paliatif dengan Kualitas Hidup Pasien Kanker Payudara

2020 ◽  
pp. 15-21
Author(s):  
Safruddin Safruddin ◽  
Maryunis ◽  
Suhermi ◽  
Sunarti Papalia
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
P Value ◽  
Sectional Study ◽  
Chi Square ◽  
Cross Sectional ◽  
Purposive Sampling

Pasien pendertita kanker payudara akan mengalami perubahan fisik, psikologis (seperti tingkat depresi dan kecemasan), fungsi sosial, seksual serta aktifitas sehari-hari. sehingga akan berpengaruh terhadap kualitas hidup atau quality of life (QOL)  penderita. Akan tetapi dengan adanya Perawatan paliatif yang baik diharapkan mampu merubah kualitas hidup pasien kanker menjadi lebih baik. penelitian ini bertujuan untuk mengetahui hubungan  perawatan paliatif dengan kualitas hidup pada pasien kanker payudara di Rumah Sakit Ibnu Sina YW-UMI Makassar. Penelitian ini menggunakan desain penelitian survei analitik dengan pendekatan cross sectional study. pengambilan sampel dalam penelitain ini adalah  purposive sampling dengan besar sampel sebanyak 43 responden. Hasil penelitian ini  menunjukkan bahwa perawatan paliatif dengan kualitas hidup baik yaitu 26 pasien (83,9%) dan yang memiliki  perawatan paliatif dengan kualitas hidup kurang baik 5 pasien (16,1%) sedangkan yang memiliki perawatan palitif dengan kualitas hidup cukup baik 3 pasien (30,0%) dan yang memiliki perawatan paliatif dengan kualitas hidup kurang baik 7 pasien (70,0%) sedangkan perawatan paliatif dengan kualitas hidup Baik 0 pasien (0,0%)  dan yang memiliki perawatan paliatif dengan kualitas hidup kurang baik 2  pasien (4,7%). Hasil uji statistik Chi Square diperoleh nilai probabilitas (p value =0,001. Sehigga dapat disimpulkan bahwa ini adalah terdapat hubungan antara perawatan paliatif dengan kualitas hidup pada kualitas hidup pada pasien kanker payudara di Rumah Sakit Ibnu Sina YW-UMI Makassar.

scholarly journals Survey of the Impact of Myocardial Infarction on Patients’ Quality of Life: A Single-Centre Cross-Sectional Study

2020 ◽  
Author(s):  
Habib Jalilian ◽  
Ali Imani ◽  
Habibeh Mir ◽  
Elnaz Javanshir ◽  
Mehdi Mamene ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Myocardial Infarction ◽  
Heart Attack ◽  
Cross Sectional Study ◽  
P Value ◽  
Sectional Study ◽  
Cross Sectional ◽  
The Mean ◽  
The Impact

Background: A heart attack is one of the most common cardiovascular diseases, affecting different dimensions of the patients’ quality of life due to the disease’s disabling and limiting nature. Therefore, this study aimed to examine the impact of myocardial infarction on patients’ quality of life referring to the Shahid Madani Medical & Training Hospital, in East Azerbaijan Province in 2017, in Iran. Methods: This was a cross-sectional study. A total of 220 patients with a heart attack were selected in this study. Sampling was conducted using the systematic random method. Data were collected using the Minnesota Living with Heart Failure Questionnaire (MLHFQ). Descriptive statistics (frequency, mean) and statistical analyses (Mann-Whitney test, Spearman correlation, and Generalized Linear Models Regression) were performed at a significance level of P-value < 0.05 using SPSS22. Results: In this study, the mean score of the total effect of a heart attack on the patients’ quality of life was 30.09 ± 17.73. The mean score of the effect of a heart attack on the patient’s quality of life in the physical, emotional, and general subscales was 34.85 ± 24.24, 26.63 ± 27.73, and 27.51 ± 17.83, respectively. There was a statistically significant association between education status (P-value = 0.006), income status (P- value = 0.000), and the mean score of the effect of a heart attack on the patient’s quality of life; also a positive and significant correlation was found between age (CC = 0.135, P-value = 0.046), the number of hospitalization (CC = 0.187, P-value = 0.006) and the mean score of the effect of a heart attack on the patient’s quality of life. Conclusion: A heart attack has a considerable impact on the patients’ quality of life, particularly on the physical dimension. Hence, health professionals should pay more attention to these vulnerable groups and offer rehabilitation services suitable to these groups to reduce the impact of the disease.

Health-Related Quality of Life of Patients and Families with Primary Immunodeficiency in Malaysia: A Cross-Sectional Study

2021 ◽  
Author(s):  
Ruwaydah Ahmed Meelad ◽  
Intan Juliana Abd Hamid ◽  
Zarina Thasneem Zainudeen ◽  
Ilie Fadzilah Hashim ◽  
Muhd Nur Akmal Azizuddin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Study ◽  
P Value ◽  
Healthy Children ◽  
Health Related Quality ◽  
Sectional Study ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Abstract Purpose: Primary immunodeficiency disease (PID) affects various aspects of a patient’s life. However, the health-related quality of life (HRQOL) of PID patients in Malaysia patients is poorly described. This study aimed to determine the quality of life of Malaysian PID patients and parents. Method: This cross-sectional study was performed from August 2020 to November 2020. Patients with PID and their families were invited to answer the PedsQL Malay version (4.0) questionnaire, the tool used to assess the HRQOL. A total of 41 families and 33 patients with PID answered the questionnaire. A comparison was performed with the previously published value of healthy Malaysian children. Result: Parent of respondents recorded a lower mean of total score than the parents of normal healthy children (67.26±16.73 vs. 79.51±11.90, p-value = 0.001, respectively). PID patients reported lower mean total score to normal healthy children (73.68 ± 16.38 vs. 79.51 ± 11.90, p-value = 0.04), including psychosocial domain (71.67±16.82 vs. 77.58±12.63, p-value = 0.05), and school functioning, (63.94±20.87 vs. 80.00 ± 14.40, p-value = 0.007). No significant difference of reported HRQOL when comparing between subgroup of PID on immunoglobulin replacement therapy and those without immunoglobulin replacement (56.96±23.58 vs. 65.83±23.82, p-value 0.28). Socioeconomic status was found to be predictive of the lower total score of PedsQL in both parent and children reports. Conclusion: Parents and children with PID, especially those from middle socioeconomic status, have lower HRQOL and school function impairment than healthy children.

scholarly journals Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

2018 ◽  
Vol 77 (7) ◽  
pp. 1032-1038 ◽  
Author(s):  
Mwidimi Ndosi ◽  
Begonya Alcacer-Pitarch ◽  
Yannick Allanore ◽  
Francesco del Galdo ◽  
Marc Frerix ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systemic Sclerosis ◽  
Cultural Adjustment ◽  
Cross Sectional Study ◽  
Cross Cultural ◽  
Life Questionnaire ◽  
Sectional Study ◽  
Cross Sectional ◽  
Local Dependency

ObjectivesThe aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cultures and validate it as a common measure of quality of life in systemic sclerosis (SSc).MethodsThis was a seven-country (Germany, France, Italy, Poland, Spain, Sweden and UK) cross-sectional study. A forward–backward translation process was used to adapt the English SScQoL into target languages. SScQoL was completed by patients with SSc, then data were validated against the Rasch model. To correct local response dependency, items were grouped into the following subscales: function, emotion, sleep, social and pain and reanalysed for fit to the model, unidimensionality and cross-cultural equivalence.ResultsThe adaptation of the SScQoL was seamless in all countries except Germany. Cross-cultural validation included 1080 patients with a mean age 58.0 years (SD 13.9) and 87% were women. Local dependency was evident in individual country data. Grouping items into testlets corrected the local dependency in most country specific data. Fit to the model, reliability and unidimensionality was achieved in six-country data after cross-cultural adjustment for Italy in the social subscale. The SScQoL was then calibrated into an interval level scale.ConclusionThe individual SScQoL items have translated well into five languages and overall, the scale maintained its construct validity, working well as a five-subscale questionnaire. Measures of quality of life in SSc can be directly compared across five countries (France, Poland Spain, Sweden and UK). Data from Italy are also comparable with the other five countries although require an adjustment.

scholarly journals PEMENUHAN KEBUTUHAN DASAR PADA LANSIA MENINGKATKAN KUALITAS HIDUP DI JAKARTA SELATAN

2018 ◽  
Vol 1 (1) ◽  
pp. 24
Author(s):  
Yusriana Yusriana ◽  
Etty Rekawati ◽  
Dwi Nurviyandari
Keyword(s):  
Quality Of Life ◽  
Basic Needs ◽  
Cross Sectional Study ◽  
P Value ◽  
Sectional Study ◽  
Sample Collection ◽  
Cross Sectional ◽  
Study Approach ◽  
Perception Of Health

The decrease function and ability of the older people’s body make the fulfillment of basic needs in adequate. It causes decrease in quality of life. When the older people’s feels perceived physical weakness as limitation, so the perception of health will decrease too. This study aimed to identify the correlation fulfillment of bacic need with older people’s quality of life in Srengseng Sawah South Jakarta. Analytic correlation was used as design of this research with cross sectional study approach. This study used 111 samples, where as purposive sampling is applied in sample collection. In multivariate, paired linear regression is used to know characteristics confounding. The result were age (median=67,00), sex is women 84 person (75,7%) and buttom income 79 person (71,2%) as confounding with p value 0.00 for age, sex with p value 0.057 and p value for income 0.130. There is correlation with fulfillment of basic needs and quality of life in older people’s. This study suggest to increase quality of life in weakness or physical decrease in older people’s by over whelming the symptoms and positive improvement of older people’s perception.

scholarly journals Attitudes towards menopause and its relationship with sociodemographic factors among postmenopausal women living in a rural area of Jammu: a cross-sectional study

2019 ◽  
Vol 7 (1) ◽  
pp. 177
Author(s):  
Najma Akhtar ◽  
Kiran Bala ◽  
Rajiv K. Gupta
Keyword(s):  
Quality Of Life ◽  
Postmenopausal Women ◽  
Cross Sectional Study ◽  
Rural Setting ◽  
P Value ◽  
Attitude Score ◽  
Sectional Study ◽  
Cross Sectional ◽  
Positive Item

Background: Positive attitude towards menopause is believed to be associated with positive menopausal experience and vice versa. In order to improve women’s menopausal experience, thereby improving quality of life, it is important to understand their attitude towards menopause. The objectives of the research were to explore the attitude towards menopause and its relationship with various socio-demographic and life style factors among postmenopausal woman in the rural setting.Methods: This community-based cross sectional study was conducted using non probability sampling and house-to-house visit in randomly selected villages falling under rural health block Kot-Bhalwal, Jammu. 245 postmenopausal women were interviewed using modified attitude towards menopause checklist. The data so collected was analyzed using Open Epi version 3.1. For finding statistical significance, unpaired t-test and analysis of variance were used wherever needed. A p value of less than 0.05 was considered statistically significant.Results: The highest percentage of agreement with the positive item was for “a woman gets more confidence in herself after menopause” (77%). The lowest percentage of agreement with the positive item was for “going through menopause really does not change a woman in any important way,” (42.5%). There was a statistically significant mean difference between mean attitude score and religion, and no. of living children (F value=3.14, p value=0.002). No significant association was found between other sociodemographic variables and attitude towards menopause scores.Conclusions: There is a large scope of counseling and health education for improving and enhancing quality of life of postmenopausal women in rural setting of our country.

scholarly journals Quality of life in HIV patients and coping strategies adopted by them: a cross sectional study done in an anti-retroviral therapy centre, Mysore

2019 ◽  
Vol 6 (8) ◽  
pp. 3326
Author(s):  
Tanisha Negi ◽  
Syed Yunus Zama ◽  
Dushyanth P.
Keyword(s):  
Quality Of Life ◽  
Coping Strategies ◽  
Cross Sectional Study ◽  
Active Coping ◽  
P Value ◽  
Sectional Study ◽  
Hiv Patients ◽  
Cross Sectional ◽  
Social Domain

Background: HIV today is one of the worst pandemic diseases. Unlike terminal illnesses, HIV patients have to live for decades with the disease, which now shifts the interest to the quality of their life. The present study was planned, considering a necessity to inquire about the quality of life of patients taking Antiretroviral therapy in Mysore, various coping strategies prevalent among them and correlation between the two.Methods: This cross sectional study was done on 150 adults coming for anti retroviral therapy (ART), diagnosed with HIV at least 6 months back. ART centre was approached with required permissions. After explaining the study purpose, data was collected on paper with due consent from patients. Standard WHO QOL BREF and COPE carver Bref were used as questionnaire instruments. Analysis was done using SPSS software and Pearson’s correlation was used.Results: Analysis revealed that the most affected domain in quality of life was social domain with mean=11.75±2.12 (4-20 scale) and least affected was environmental with mean14.49±0.849. Self distraction was coping strategy of the highest prevalence (mean=4.98) having no correlation with QOL. Active coping showed positive correlation under all domains while behavioural disengagement and substance abuse had significant negative correlation overall (p value<0.001).Conclusions: Our study underlined a gap in Social domain of selected HIV affected population. Self distraction was the most preferred style of coping and humour was found to be least adopted method. Active coping had linear relationship all the 4 domains whereas behavioural disengagement showed significant lowering in QOL as a whole. 

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