Patient perspective of hand osteoarthritis in relation to concepts covered by instruments measuring functioning: a qualitative European multicentre study

2008 ◽  
Vol 68 (9) ◽  
pp. 1453-1460 ◽  
Author(s):  
T Stamm ◽  
F van der Giesen ◽  
C Thorstensson ◽  
E Steen ◽  
F Birrell ◽  
...  
Keyword(s):  
Multicentre Study ◽  
Qualitative Analysis ◽  
Focus Groups ◽  
Qualitative Data ◽  
Leisure Activities ◽  
International Classification Of Functioning ◽  
Hand Osteoarthritis ◽  
Psychological Consequences ◽  
The United Kingdom

Objective:To explore whether the concepts important to patients with hand osteoarthritis (OA) are covered by the most commonly used instruments measuring functioning.Method:A qualitative multicentre study using a focus group technique was performed in five European countries: Austria, The Netherlands, Norway, Sweden and the United Kingdom. The qualitative data analysis followed a modified form of “meaning condensation” and used the International Classification of Functioning, Disability and Health (ICF) as a theoretical framework. Finally, the concepts from the focus groups were compared with the content of the most commonly used instruments which had been identified in an earlier theoretical analysis.Results:Fifty-six people (51 women, mean (SD) age 62.7 (7.9) years) with hand OA participated in this study in two focus groups per centre. 63 concepts were extracted from the focus groups. Twenty-one (33%) of the 63 concepts were covered by at least one instrument. Psychological consequences, different qualities of pain, aesthetic changes and leisure activities are important concepts from the focus groups which were not covered by the instruments. The qualitative analysis revealed detailed descriptions of pain-concerning sensations, levels and a certain relation to activity, none of which were fully represented in the instruments routinely used.Conclusion:It was possible to combine the concepts of the focus groups from each centre into a common qualitative analysis. The concepts important to people with hand OA are not fully represented in the most commonly used instruments.

Do the commonly used standard questionnaires measure what is of concern to patients with low back pain?

2020 ◽  
Vol 34 (10) ◽  
pp. 1313-1324
Author(s):  
Verena Calmon Almeida ◽  
Walderi Monteiro da Silva Junior ◽  
Olaf Kraus de Camargo ◽  
Valter Joviniano de Santana Filho ◽  
Géssica Uruga Oliveira ◽  
...  
Keyword(s):  
Low Back Pain ◽  
Back Pain ◽  
Focus Groups ◽  
Mixed Methods Research ◽  
The Body ◽  
International Classification ◽  
International Classification Of Functioning ◽  
Similar Process ◽  
Low Back

Objective: Evaluate whether questionnaires identified all the self-reported patient outcomes raised in focus groups. Design: Mixed methods research combined with qualitative analysis of focus groups. Settings: Physical therapy clinic in a teaching hospital in Brazil. Subjects: A total of 27 patients (aged >18 years, mean age 55.2 years) with chronic non-specific low back pain. Interventions: Three focus groups were conducted by the same investigator and analyzed by meaning unit condensation. The results obtained from the focus groups were codified according to the International Classification of Functioning. A similar process was adopted to codify the Roland-Morris Disability Questionnaire, the Quebec Back Pain Disability Scale and the Oswestry Disability Index according to the International Classification of Functioning. The results of both coding processes were compared. Results: In the analysis, seven main concepts were identified, comprising 77 meaning units. Only three meaning units were not linked to the International Classification of Functioning. Most of the codes present in the questionnaires and focus groups represent limitations to activities. Some codes were identified in the questionnaires that were not mentioned by the focus group participants. No questionnaire assessed environmental factors or problems related to specific parts of the body, and very few assessed body function, all of which were issues raised in the focus groups. Conclusion: This study shows that not all fields considered important by patients to their function are being evaluated, and emotional and contextual factors should be included in clinical assessments in order to fully understand patient need.

The use of the International Classification of Functioning, Disability and Health to classify the factors influencing mobility reported by persons with an amputation: An international study

2016 ◽  
Vol 41 (4) ◽  
pp. 412-419 ◽  
Author(s):  
Seema Radhakrishnan ◽  
Friedbert Kohler ◽  
Christoph Gutenbrunner ◽  
Arun Jayaraman ◽  
Jianin Li ◽  
...  
Keyword(s):  
Focus Groups ◽  
Lower Limb ◽  
International Classification ◽  
Lower Limb Amputation ◽  
International Classification Of Functioning ◽  
Limb Amputation ◽  
Common Language ◽  
Disability And Health ◽  
Individual Interviews

Background: Amputation of lower limb results in limitations in mobility which are amenable to multiple rehabilitation interventions. The challenges faced by the persons with lower limb amputation vary internationally. The International Classification of Functioning, Disability and Health provides a common language to describe the function of persons with lower limb amputation across various countries. Objectives: This article reports the concepts in mobility important to persons with lower limb amputation across six countries using the International Classification of Functioning, Disability and Health. Study design: Qualitative study using focus groups and individual interviews. Methods: Focus groups and individual interviews of persons with lower limb amputation were organised across six countries to identify the issues faced by patients with an amputation during and after their amputation, subsequent rehabilitation and on an ongoing basis in their daily life. Meaningful concepts were extracted from the responses and linked to suitable second-level and where applicable third-level International Classification of Functioning, Disability and Health categories. International Classification of Functioning, Disability and Health categorical frequencies were analysed to represent the prevalence and spread of International Classification of Functioning, Disability and Health categories by location. Results: A total of 133 patients were interviewed. A large percentage (93%) of the identified concepts could be matched to International Classification of Functioning, Disability and Health categories for quantitative analysis. Conclusion: The important concepts in mobility were similar across different countries. The comprehensiveness of International Classification of Functioning, Disability and Health as a classification system for human function and its universality across the globe is demonstrated by the large proportion of the concepts contained in the interviews from across the study centres that could be matched to International Classification of Functioning, Disability and Health categories. Clinical relevance The activity and participation restrictions faced by a person with lower limb amputation vary internationally and are amenable to multiple rehabilitation interventions. The International Classification of Functioning, Disability and Health may provide a common language to report and quantify the various concepts important to the patient in their rehabilitation journey.

Making the tea or making it to the top? How gender stereotypes impact women fundraisers’ careers

2021 ◽  
Author(s):  
Elizabeth J. Dale ◽  
Beth Breeze
Keyword(s):  
United Kingdom ◽  
Qualitative Analysis ◽  
Focus Groups ◽  
Gender Stereotypes ◽  
Full Potential ◽  
Non Profit ◽  
Feminist Analysis ◽  
The United Kingdom ◽  
Gender Based ◽  
Voluntary Organisations

This article explores gender stereotypes, discrimination and harassment in the fundraising profession and their impact on women’s fundraising careers. Using a feminist analysis, we investigate the types of gender-based stereotyping and harassment experienced by women who are members of the United Kingdom professional fundraising membership body, where 75% of female survey respondents reported experiencing stereotyping. Qualitative analysis of 366 respondents’ examples of gender-based stereotyping and data from three focus groups demonstrate how the fundraising profession is gendered, its impact on women and what actions need to be taken to tackle visible and unseen barriers that affect women’s careers. We conclude by emphasising the necessity for researchers to investigate non-profit and voluntary organisations with a critical orientation that accounts for the ways in which power is reinforced along categories of gender, age, race, class, disability and sexuality in order to realise the full potential of individual employees and the sector.

scholarly journals Participation in advanced age: enacting values, an adaptive process

2016 ◽  
Vol 37 (8) ◽  
pp. 1654-1680 ◽  
Author(s):  
PAUL SUGARHOOD ◽  
PAMELA EAKIN ◽  
LYNN SUMMERFIELD-MANN
Keyword(s):  
Social Care ◽  
Advanced Age ◽  
International Classification Of Functioning ◽  
Policy And Practice ◽  
Self Identity ◽  
The United Kingdom ◽  
National Health Service Trust ◽  
Health And Social Care ◽  
Rehabilitation Needs

ABSTRACTThe concept of participation, introduced through models such as the International Classification of Functioning, Disability and Health, has become increasingly important in health and social care. However, it has not been consistently defined or operationalised, and there is very limited research into participation in the context of advanced age and disability. This article reports a study which explored participation from the perspectives of community-living people aged over 80 years with physical rehabilitation needs. Using a grounded theory methodology, 11 participants aged 81–96 years were recruited from a National Health Service Trust in the United Kingdom. The main finding was that participation was experienced as the enacting of values. Values provided the motivation for specific ways of participating in life, guided actions and behaviours, and were the means through which participation was interpreted. Commonly enacted values were: connecting with others; maintaining autonomy; affirming abilities; doing the best you can; being useful; maintaining self-identity; and pursuing interests. A process was evident whereby participation was challenged by deteriorating health and losses and the participants adapted (or not) to overcome these challenges. To promote participation in advanced age, health and social care policy and practice must consider the values important to older people. Interventions should be congruent with these values and promote strategies through which they can be enacted.

scholarly journals Self-scored impairments in functioning and disability in post-COVID syndrome following mild COVID-19 infection

2021 ◽  
Author(s):  
Jan-Rickard Norrefalk ◽  
Kristian Borg ◽  
Indre Bileviciute-Ljungar
Keyword(s):  
Cognitive Functions ◽  
Leisure Activities ◽  
International Classification Of Functioning ◽  
Cross Sectional ◽  
Sociodemographic Data ◽  
Part Time ◽  
Heart Functions ◽  
Higher Cognitive Functions ◽  
Recreation And Leisure

Objectives: To investigate functioning, activity and disability in people with post-COVID syndrome. Design: Cross-sectional. Subjects/patients: Participants were recruited online via Facebook and a stakeholders’ organization for post-COVID syndrome in Sweden. Methods: Sociodemographic data and International Classification of Functioning, Disability and Health (ICF)-based questionnaires were collected via an online platform and analysed. Results: A total of 100 participants were included (mean age 44.5 years, 82% women, 61% with higher education, and 56% working full- or part-time). For the ICF component Body Functions, the most impaired functions were: fatigability and energy drive (98–99%); higher cognitive functions (74–94%); sleep functions (98%); muscle functions (93%); respiratory functions (92%); heart functions (82%); emotional functions (80%); sexual functions (77%); pain problems (56–90%); and thermoregulatory functions (68%). For the component Activity, the most frequent limitations were: handling stressful situations (98%); remunerative employment (95%); recreation and leisure (94%); climbing the stairs (94%); doing housework (84%); and informal socializing (64%). The most frequent degrees of impairment/limitations were light and moderate, except for severe-complete for fatigue, higher cognitive functions, multitasking, handling stressful situations; and recreation and leisure activities. Conclusion: Post-COVID syndrome following a mild COVID-19 infection can result in impaired body functions and activities. These results support the importance of a multidisciplinary rehabilitation approach for these patients.

Mapping the Effect of Psoriatic Arthritis Using the International Classification of Functioning, Disability and Health

2016 ◽  
Vol 44 (2) ◽  
pp. 193-200 ◽  
Author(s):  
Tania Gudu ◽  
Uta Kiltz ◽  
Maarten de Wit ◽  
Tore Kristian Kvien ◽  
Laure Gossec
Keyword(s):  
Psoriatic Arthritis ◽  
Social Participation ◽  
Leisure Activities ◽  
International Classification ◽  
International Classification Of Functioning ◽  
Personal Factors ◽  
Disability And Health ◽  
Ability To Work ◽  
Disease Effect

Objective.The effect of a disease can be categorized by a standardized reference system: the International Classification of Functioning, Disability and Health (ICF). The objective was to map the effect of psoriatic arthritis (PsA) from the patient’s perspective to the ICF.Methods.A systematic literature review was performed. Qualitative publications reporting domains of impact important for patients with PsA were identified using the following terms: (“psoriatic arthritis”) AND (“quality of life” OR “impact”). Meaningful concepts were extracted from the publications, grouped into domains and linked to the ICF categories. The number of concepts linked to each ICF category and to each ICF level was calculated. The number of concepts not linkable was also calculated.Results.Eleven studies (13 articles) were included in the analysis. Twenty-five domains of impact were cited, of which the ability to work/volunteer and social participation were the most cited (both by 10 studies). In total, 258 concepts were identified, of which 217 could be linked to 136 different ICF categories; 41 concepts, mostly personal factors, could not be precisely linked. The most represented ICF component was activities and participation (42.6%) rather than body structures (10.3%) or body functions (29.4%). Ten studies (90.9%) reported impairments in the ability to work/volunteer and social participation, and 7 (63.6%) reported leisure activities, family and intimacy, pain, skin problems, and body image.Conclusion.PsA widely affects all aspects of patients’ lives, in particular aspects related to activities and participation. The ICF is a useful approach for the classification of disease effect.

Holistic Communication Assessment for Young Children With Cleft Palate Using the International Classification of Functioning, Disability and Health:Children and Youth

2020 ◽  
Vol 51 (4) ◽  
pp. 914-938
Author(s):  
Anna Cronin ◽  
Sharynne McLeod ◽  
Sarah Verdon
Keyword(s):  
Young Children ◽  
Cleft Palate ◽  
Case History ◽  
Significant Others ◽  
International Classification ◽  
Assessment Tools ◽  
International Classification Of Functioning ◽  
Speech Language Pathologists ◽  
Holistic Assessment

Purpose Children with a cleft palate (± cleft lip; CP±L) can have difficulties communicating and participating in daily life, yet speech-language pathologists typically focus on speech production during routine assessments. The International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY; World Health Organization, 2007 ) provides a framework for holistic assessment. This tutorial describes holistic assessment of children with CP±L illustrated by data collected from a nonclinical sample of seven 2- to 3-year-old children, 13 parents, and 12 significant others (e.g., educators and grandparents). Method Data were collected during visits to participants' homes and early childhood education and care centers. Assessment tools applicable to domains of the ICF-CY were used to collect and analyze data. Child participants' Body Functions including speech, language, and cognitive development were assessed using screening and standardized assessments. Participants' Body Structures were assessed via oral motor examination, case history questionnaires, and observation. Participants' Activities and Participation as well as Environmental and Personal Factors were examined through case history questionnaires, interviews with significant others, parent report measures, and observations. Results Valuable insights can be gained from undertaking holistic speech-language pathology assessments with children with CP±L. Using multiple tools allowed for triangulation of data and privileging different viewpoints, to better understand the children and their contexts. Several children demonstrated speech error patterns outside of what are considered cleft speech characteristics, which underscores the importance of a broader assessment. Conclusion Speech-language pathologists can consider incorporating evaluation of all components and contextual factors of the ICF-CY when assessing and working with young children with CP±L to inform intervention and management practices.

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