Prevalence and characteristics of ocular pain in non-infectious uveitis: a quality of life study

2018 ◽  
Vol 102 (8) ◽  
pp. 1160-1166 ◽  
Author(s):  
Fleurieke H Verhagen ◽  
Ralph Wijnhoven ◽  
Jeannette Ossewaarde-van Norel ◽  
Ninette H ten Dam-van Loon ◽  
Jonas J W Kuiper ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Visual Function ◽  
Reference Group ◽  
Mcgill Pain Questionnaire ◽  
Ocular Pain ◽  
Sf 36 ◽  
Pain Subscale ◽  
Infectious Uveitis ◽  
Visual Function Questionnaire

Background/aimTo survey the frequency, character, severity and impact of ocular pain on quality of life in adult patients with non-infectious uveitis (NIU).MethodsThis patient-requested cross-sectional survey study describes the results of three self-administered questionnaires (the National Eye Institute Visual Function Questionnaire, the 36-Item Short Form Health Survey (SF-36) and the McGill Pain Questionnaire Dutch Language Version) from 147 patients with NIUs from a university-based tertiary referral centre in Utrecht.ResultsThe mean Visual Function Questionnaire (VFQ) Ocular Pain Score of all patients with NIU was 72 (±24), which is significantly lower than an ocular disease-free reference group (90±15, P<0.0001), indicating more ocular pain. This was true for all types of NIU, regardless of the localisation: although Ocular Pain Scores were lower in patients with anterior uveitis (AU) compared with patients with non-AU (mean 62 (±24) vs 74 (±24), P=0.04), patients with non-AU still scored substantially lower than the reference group that had no ocular history (P<0.0001). Patients with NIU also scored significantly lower on all other VFQ subscales as well as on the SF-36 subscales ‘Role Limitations due to physical problems’, ‘Vitality’, ‘General health’ and ‘Bodily Pain’ compared with controls. The VFQ Ocular Pain subscale correlated with other quality of life subscales (both VFQ-25 and SF-36), indicating a relationship between pain and quality of life.ConclusionThis study shows that ocular pain is highly prevalent in patients with NIU, regardless of the localisation. Furthermore, ocular pain has an impact on quality of life.

scholarly journals Psychometric Properties of the Croatian Version of the 25-item National Eye Institute Visual Function Questionnaire (NEI VFQ-25)

2021 ◽  
Author(s):  
Dina Lešin Gaćina ◽  
Bernarda Škegro ◽  
Sonja Jandroković ◽  
Ivan Škegro ◽  
Iva Bešlić ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Visual Impairment ◽  
Psychometric Properties ◽  
Visual Function ◽  
Discriminant Validity ◽  
Ophthalmological Examination ◽  
Sf 36 ◽  
Related Quality ◽  
Visual Function Questionnaire

Abstract Purpose: The purpose of study was to translate, adapt and validate the Croatian version of the 25-item National Eye Institute Visual Function Questionnaire (NEI VFQ-25) in participants with visual impairment. This study also aims at evaluating the relationship between visual impairment and health-related quality of life (HRQoL).Methods: The prospective observational study was conducted at the University Hospital Centre Zagreb, Department of Ophthalmology. The sample consisted of 175 patients with four chronic ocular diseases: cataract, glaucoma, diabetic retinopathy and age-related macular degeneration (ARMD). The translation of the NEI VFQ-25 to Croatian was conducted following the standardized procedure. All participants underwent an ophthalmological examination and completed the NEI VFQ-25 and the Medical Outcomes Study Short Form-36 Questionnaire (SF-36). In order to assess the psychometric properties of the NEI VFQ-25 we calculated Cronbach's α coefficient, intraclass correlation coefficient (ICC), convergent and discriminant validity, as well as criterion and concurrent validity.Results: Results show high internal consistency (Cronbach α range 0.739-0.932) and high test-retest reliability (ICC 0.876-0.975) for all subscales. None of the items had failed either convergent or discriminant validity. Moderate to high Spearman's rho coefficients of correlations were found between best corrected visual acuity and 8 subscales in the NEI VFQ-25 (0.430<ρ<0.631). Moderate correlations were found between comparable domains in the NEI VFQ-25 and in the SF-36 questionnaire (p<0.01).Conclusion: The Croatian version of the NEI VFQ-25 has very good psychometric properties and can be a useful instrument for assessing vision-related quality of life in Croatian population with chronic ophthalmic diseases. The trial registration number: DRKS-ID DRKS00016751Date of registration in DRKS: 2019/02/15

scholarly journals The sensitivity to change of the cluster headache quality of life scale assessed before and after deep brain stimulation of the ventral tegmental area

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Davide Cappon ◽  
Agata Ryterska ◽  
Harith Akram ◽  
Susie Lagrata ◽  
Sanjay Cheema ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cluster Headache ◽  
Mcgill Pain Questionnaire ◽  
Sensitivity To Change ◽  
Sf 36 ◽  
Quality Of Life Scale ◽  
Before And After ◽  
Life Scale ◽  
Generic Measures

Abstract Background Cluster headache (CH) is a trigeminal autonomic cephalalgia (TAC) characterized by a highly disabling headache that negatively impacts quality of life and causes limitations in daily functioning as well as social functioning and family life. Since specific measures to assess the quality of life (QoL) in TACs are lacking, we recently developed and validated the cluster headache quality of life scale (CH-QoL). The sensitivity of CH-QoL to change after a medical intervention has not been evaluated yet. Methods This study aimed to test the sensitivity to change of the CH-QoL in CH. Specifically we aimed to (i) assess the sensitivity of CH-QoL to change before and following deep brain stimulation of the ventral tegmental area (VTA-DBS), (ii) evaluate the relationship of changes on CH-QoL with changes in other generic measures of quality of life, as well as indices of mood and pain. Ten consecutive CH patients completed the CH-QoL and underwent neuropsychological assessment before and after VTA-DBS. The patients were evaluated on headache frequency, severity, and load (HAL) as well as on tests of generic quality of life (Short Form-36 (SF-36)), mood (Beck Depression Inventory, Hospital Anxiety and Depression Rating Scale), and pain (McGill Pain Questionnaire, Headache Impact Test, Pain Behaviour Checklist). Results The CH-QoL total score was significantly reduced after compared to before VTA-DBS. Changes in the CH-QoL total score correlated significantly and negatively with changes in HAL, the SF-36, and positively and significantly with depression and the evaluative domain on the McGill Pain Questionnaire. Conclusions Our findings demonstrate that changes after VTA-DBS in CH-QoL total scores are associated with the reduction of frequency, duration, and severity of headache attacks after surgery. Moreover, post VTA-DBS improvement in CH-QoL scores is associated with an amelioration in quality of life assessed with generic measures, a reduction of depressive symptoms, and evaluative pain experience after VTA-DBS. These results support the sensitivity to change of the CH-QoL and further demonstrate the validity and applicability of CH-QoL as a disease specific measure of quality of life for CH.

scholarly journals Assessment of quality of life in patients with visual impairments using a new visual function questionnaire: the VFQ-J11

2016 ◽  
Vol Volume 10 ◽  
pp. 1939-1944
Author(s):  
Tadashi Nakano ◽  
Motoko Kawashima ◽  
Yoshimune Hiratsuka ◽  
Tamura Hiroshi ◽  
Koichi Ono ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Visual Function ◽  
Visual Impairments ◽  
Visual Function Questionnaire

scholarly journals Sensory profile and its impact on quality of life in patients with painful diabetic polyneuropathy

2013 ◽  
Vol 04 (03) ◽  
pp. 267-270 ◽  
Author(s):  
Kongkiat Kulkantrakorn ◽  
Chakraphong Lorsuwansiri
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Diabetic Polyneuropathy ◽  
Sensory Profile ◽  
Mcgill Pain Questionnaire ◽  
Sharp Pain ◽  
Sf 36 ◽  
Sensory Score ◽  
Almost All

ABSTRACT Context: Painful diabetic polyneuropathy (PDN) is common and causes significant disability. The sensory profile in each patient is different and affects quality of life. Aim: To describe the demographic, details of sensory profile and its impact on quality of life in patients with PDN. Settings and Design: A cross-sectional survey in patients with PDN who were treated in a University Hospital. Materials and Methods: They were interviewed with standard questionnaires, which included neuropathic pain scale (NPS), a short-form McGill Pain Questionnaire (SF-MPQ) and a short form-36 quality of life survey (SF-36). Statistical Analysis Used: Descriptive statistics were used in demographic data. Student′s t test was used to analyze continuous data. Multiple comparisons for proportions and correlations were made using Fisher Exact test and Pearson′s coefficient of correlation, respectively. Results: Thirty three patients were included in this study. In NPS, sharp pain was the most common symptom and itching was the least common. Almost all patients had more than one type of pain. The mean VAS was 53 mm. In SFMPQ, the sensory score, affective score and the present pain score fell in the moderate range. In SF-36, physical functioning was the most affected and social function was the least affected. Conclusions: PDN significantly affects patients′ quality of life, especially physical function and role limitation due to a physical problem. Almost all patients have many types of pain and sharp pain is the most common.

scholarly journals Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

2021 ◽  
pp. 112067212110346
Author(s):  
Luca Cimino ◽  
Piergiorgio Neri ◽  
Elisabetta Miserocchi ◽  
Maria Pia Paroli ◽  
Lorenzo Vannozzi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Short Form ◽  
Activity Impairment ◽  
Good Reliability ◽  
Work Impairment ◽  
Validated Questionnaires ◽  
Infectious Uveitis ◽  
Visual Function Questionnaire ◽  
Assess Quality

Background: The purpose of this study was to evaluate the association between a novel psychometric 12-item questionnaire (U-qest) and other validated questionnaires to assess quality of life and work impairment in patients with non-infectious uveitis. Methods: Data were collected at baseline and 3 months postbaseline using U-qest and two other validated questionnaires: The National Eye Institute 25-Item Visual Function Questionnaire (VFQ-25) and the 12-Item Short-Form Health Survey (SF-12). Results: A total of 136 patients (52.2% female) aged 47.9 ± 14.8 years (mean ± SD) were enrolled in 14 uveitis referral centres. U-qest correlated moderately with VFQ-25 and SF-12 at baseline and at 3 months. Both U-qest and VFQ-25 scores improved as disease improved; however, U-qest also detected improvement in patients for whom VFQ-25 scores did not improve. Disease activity was shown to significantly affect activity impairment. Patients and physicians expressed positive perceptions regarding the use and benefit of this instrument. U-qest showed very good reliability in terms of internal consistency (Cronbach’s alpha = 0.91). Conclusions: U-qest can be considered a useful tool to assess the burden of uveitis on quality of life.

scholarly journals Physical Activity and Quality of Life in Retinitis Pigmentosa

2017 ◽  
Vol 2017 ◽  
pp. 1-6 ◽  
Author(s):  
Joshua D. Levinson ◽  
Ethan Joseph ◽  
Laura A. Ward ◽  
Joe R. Nocera ◽  
Machelle T. Pardue ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Visual Function ◽  
Peripheral Vision ◽  
Statistical Significance ◽  
Activity Levels ◽  
Sf 36 ◽  
Physical Activity Levels ◽  
Active Patients

Purpose. Aerobic exercise has been found to be neuroprotective in animal models of retinal degeneration. This study aims to report physical activity levels in patients with RP and investigate the relationship between physical activity and vision-related quality-of-life (QOL). Materials and Methods. A retrospective study of adult patients with RP examined in 2005–2014. Physical activity levels were assessed using the Godin Exercise Questionnaire. The NEI-Visual Function Questionaire-25 (VFQ-25), SF-36 General Health survey, and Pepper Assessment Tool for Disability (PAT-D) were administered. Results. 143 patients participated. 81 (56.6%) patients were classified as “active” and 62 (43.4%) as “insufficiently active” by Godin score. VFQ-25 revealed statistically significant differences between the active and insufficiently active patients, including overall visual function (53.3 versus 45.1, p=0.010), color vision (73.8 versus 52.9, p<0.001), and peripheral vision (34.3 versus 23.8, p=0.021). The physical component of the SF-36 and the PAT-D survey also demonstrated statistically significant differences (47.2 versus 52.9, p=0.002; 24.3 versus 30.0, p=0.010). Active patients had a higher initial Goldmann visual field (GVF) score (74.8 versus 60.1 degrees, p=0.255) and final GVF score (78.7 versus 47.1 degrees, p=0.069) but did not reach statistical significance. Conclusions. In RP, increased physical activity is associated with greater self-reported visual function and QOL.

scholarly journals A Retrospective Study of Postmastectomy Pain Syndrome: Incidence, Characteristics, Risk Factors, and Influence on Quality of Life

2013 ◽  
Vol 2013 ◽  
pp. 1-6 ◽  
Author(s):  
Yang Meijuan ◽  
Peng Zhiyou ◽  
Tang Yuwen ◽  
Feng Ying ◽  
Chen Xinzhong
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Perceived Control ◽  
Short Form ◽  
Pain Syndrome ◽  
Mcgill Pain Questionnaire ◽  
Physical Problems ◽  
Younger Age ◽  
Sf 36

Objective. The underlying cause for postmastectomy pain syndrome (PMPS) and its impact on quality of life remain unclear. The objective of this study aims to determine retrospectively the prevalence of PMPS, its predicting risk factors, and its impact on quality of life.Method. In this survey, 225 women completed a battery of questionnaires. The questionnaires comprised the short form of the McGill Pain Questionnaire (SF-MPQ) exploring the characteristics and the description of the pain, and a Short Form-36 (SF-36) Health Survey evaluating quality of life. Logistic regression analyses were subsequently performed to identify risk factors for PMPS.Results. 62 women (27.6%) reported PMPS as a consequence of surgery, and the pain was generally mild, mostly localized in breast area and intermittent. The pain was mainly described as aching (62.9%). 144 women reported sensory disturbance. We found that only the younger age is the predictive factor for PMPS (P<0.05). Compared to the patients who did not experience PMPS, those who suffered from PMPS had significantly worse scores in role limitations due to physical problems (role physical, RP), body pain (BP), general health (GH), vitality (VT), role limitations due to emotional problems (role emotional, RE), and mental health (MH) (P<0.05).Conclusion. PMPS is a significant problem, and the possible risk factors should be further explored. Patients with PMPS have significant worse quality of life, suggesting that patients should be well informed about the likelihood of experiencing the pain, and they may be afforded greater predictability and higher perceived control to enhance their quality of life.

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