scholarly journals From EHR to PHR: let’s get the record straight

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e029582
Author(s):  
Joshua D Symons ◽  
Hutan Ashrafian ◽  
Rachel Dunscombe ◽  
Ara Darzi
Keyword(s):  
Digital Health ◽  
National Level ◽  
Information Access ◽  
Record System ◽  
Health Records ◽  
Governance Challenges ◽  
Patient Health ◽  
Universal Interface ◽  
The Uk ◽  
And Control

This article reflects on the changing nature of health information access and the transition of focus from electronic health records (EHRs) to personal health records (PHRs) along with the challenges and need for alignment of national initiatives for EHR and PHR in the National Health Service (NHS) of the UK. The importance of implementing integrated EHRs as a route to enhance the quality of health delivery has been increasingly understood. EHRs, however, carry several limitations that include major fragmentation through multiple providers and protocols throughout the NHS. Questions over ownership and control of data further complicate the potential for fully utilising records. Analysing the previous initiatives and the current landscape, we identify that adopting a patient health record system can empower patients and allow better harmonisation of clinical data at a national level. We propose regional PHR ‘hubs’ to provide a universal interface that integrates digital health data at a regional level with further integration at a national level. We propose that these PHR hubs will reduce the complexity of connections, decrease governance challenges and interoperability issues while also providing a safe platform for high-quality scalable and sustainable digital solutions, including artificial intelligence across the UK NHS, serving as an exemplar for other countries which wish to realise the full value of healthcare records.

scholarly journals How Members of Parliament understand and respond to climate change

2017 ◽  
Vol 66 (3) ◽  
pp. 475-491 ◽  
Author(s):  
Rebecca Willis
Keyword(s):  
Climate Change ◽  
Science And Technology Studies ◽  
Political Action ◽  
Qualitative Interviews ◽  
National Level ◽  
Political Support ◽  
The Political ◽  
Members Of Parliament ◽  
Governance Challenges ◽  
The Uk

Action on climate change, to meet the targets set in the 2015 Paris Agreement, requires strong political support at the national level. Whilst the political and governance challenges of climate change have been discussed at length, there is little understanding of how politicians, as influential individuals within the political system, understand or respond to climate change. This article presents findings from 14 qualitative interviews with Members of the UK Parliament, to discuss how politicians conceptualise climate change, and their deliberations on whether or how to act on the issue. First, it reviews an interdisciplinary literature from sociology, political theory and science and technology studies, to investigate how politicians navigate their work and life. Second, it presents ‘composite narratives’ to provide four different MPs’ stories. Last, it draws conclusions and implications for practice. It highlights three crucial factors: identity, or how politicians consider the climate issue in the context of their professional identity and the cultural norms of their workplace; representation, how politicians assess their role as a representative, and whether proposed political action on climate is seen as compatible with this representative function; and working practices, how day-to-day work rituals and pressures influence the aims, ambitions and engagement of politicians with climate change.

scholarly journals The Milieu and the MESSAGE: Talking to Researchers about Data Curation Issues in a Large and Diverse e-Science Project

2011 ◽  
Vol 6 (1) ◽  
pp. 32-44 ◽  
Author(s):  
Martin Donnelly ◽  
Robin North
Keyword(s):  
Low Cost ◽  
National Level ◽  
Science Research ◽  
Heterogeneous Data ◽  
Project Team ◽  
Physical Sciences ◽  
Digital Curation ◽  
The Uk ◽  
Key Aspects ◽  
And Control

MESSAGE (Mobile Environmental Sensing System Across Grid Environments) was an ambitious, multi-partner, interdisciplinary e-Science research project, jointly funded by the Engineering and Physical Sciences Research Council (EPSRC) and the UK Department for Transport (DfT) between 2006 and 2009. It aimed to develop and demonstrate the potential of diverse, low cost sensors to provide heterogeneous data for the planning, management and control of the environmental impacts of transport activity at urban, regional and national level. During the last year of the project, the Digital Curation Centre (DCC) interviewed and observed members of the project team in order to identify and analyse key aspects of their data-related activities, recording attitudes towards the data that they create and/or re-use. This paper describes the major issues identified over the course of the case study, which are presented in parallel with the perspectives of the project team in order to demonstrate the multiplicity of views that may be projected onto a single dataset. It concludes with a contextualisation of the case study's themes with those of a number of contemporary reports.

scholarly journals IoT based Patient Health Care for COVID 19 Centre

2020 ◽  
Vol 9 (3) ◽  
pp. 258-263
Keyword(s):  
Data Collection ◽  
Internet Of Things ◽  
Patient Monitoring ◽  
Health Management ◽  
Digital Health ◽  
Smart Phone ◽  
Processing Unit ◽  
Patient Health ◽  
Regular Value ◽  
And Control

In this paper, COVID 19 centre monitoring and management system has been proposed and integration of different sensor network with Internet of Things (IoT). The sensors implemented can communicate with data collection and processing unit. The data collection done by that unit can directly transferred to cloud using internet connectivity at COVID 19 centre. Therefore work aimed to propose COVID 19 centre management with IoT based approach to handle medical services and patient monitoring and treatment work flow. In the experimented model, Node MCU ESP8266 controller and temperature sensor (DHT11) are integrated. A system has capability to monitor and control COVID 19 centre services and patient monitoring via remote connection. It is evaluated with three temperature sensors connected to measure temperature of patients. Mobile based blynk has been utilized for the cloud based IoT implementation. Sensor sends data over blynk server and then can be seen anywhere using smart phone application. In addition, when patient get fever more than regular value, an alert was sent to authority in a quick time. After results, it is indicated that the developed system has effective potential to work in pandemic situation and has technological feasibility. The benefits of implemented research methods are useful in digital health management in pandemic scenario. Even hospitals, COVID centers, intensive care unit (ICU) can be operated effectively and patient diagnosis application based on online database has wide scope in the area of internet of things and patient health management.

Standardization in Health and Medical Informatics

2011 ◽  
pp. 2059-2065 ◽  
Author(s):  
Josipa Kern
Keyword(s):  
Medical Informatics ◽  
National Level ◽  
Healthcare Providers ◽  
International Organization ◽  
International Level ◽  
Health Records ◽  
European Committee ◽  
International Organization For Standardization ◽  
Patient Health ◽  
Taking Care

Standard is a thing or quality or specification by which something may be tested or measured. The development of standards is organized on a global, international level, existing also on a national level, well harmonized with an international one. International developers are organizations working on this matter, like the International Organization for Standardization (ISO) or the European Committee for Standardisation (Comité Européen de Normalisation—CEN). Standards in health and medical informatics enable access to patient health records to read or to add some new data relevant to other healthcare providers taking care of a patient. Bad medical informatics can lead to patient deaths, and standardization in the field can prevent this from happening.

Standardization in Health and Medical Informatics

2011 ◽  
pp. 44-50 ◽  
Author(s):  
Josipa Kern
Keyword(s):  
Medical Informatics ◽  
National Level ◽  
Healthcare Providers ◽  
International Organization ◽  
International Level ◽  
Health Records ◽  
European Committee ◽  
International Organization For Standardization ◽  
Patient Health ◽  
Taking Care

Standard is a thing or quality or specification by which something may be tested or measured. The development of standards is organized on a global, international level, existing also on a national level, well harmonized with an international one. International developers are organizations working on this matter, like the International Organization for Standardization (ISO) or the European Committee for Standardisation (Comité Européen de Normalisation—CEN). Standards in health and medical informatics enable access to patient health records to read or to add some new data relevant to other healthcare providers taking care of a patient. Bad medical informatics can lead to patient deaths, and standardization in the field can prevent this from happening.

A positive psychology study and intervention on the well-being of French PhD students in biology

2017 ◽  
Author(s):  
Gabriel Marais ◽  
Rebecca Shankland ◽  
Pascale Haag ◽  
Robin Fiault ◽  
Bridget Juniper
Keyword(s):  
Mental Health ◽  
Positive Psychology ◽  
Large Fraction ◽  
Reference Sample ◽  
Well Being ◽  
Attrition Rates ◽  
Human Costs ◽  
The Uk ◽  
And Control ◽  
Health And Well Being

In France, little data are available on mental health and well-being in academia, and nothing has been published about PhD students. From studies abroad, we know that doing a PhD is a difficult experience resulting in high attrition rates with significant financial and human costs. Here we focused on PhD students in biology at university Lyon 1. A first study aimed at measuring the mental health and well-being of PhD students using several generalist and PhD-specific tools. Our results on 136 participants showed that a large fraction of the PhD students experience abnormal levels of stress, depression and anxiety, and their mean well-being score is significantly lower than that of a British reference sample. French PhD student well-being is specifically affected by career uncertainty, perceived lack of progress in the PhD and perceived lack of competence, which points towards possible cultural differences of experiencing a PhD in France and the UK. In a second study, we carried out a positive psychology intervention. Comparing the scores of the test and control groups showed a clear effect of the intervention on reducing anxiety. We discuss our results and the possible future steps to improve French PhD students’ well-being.

scholarly journals Joint Action on cancer iPAAC - building on experience and streamlining recommendations for the future

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
M Jelenc ◽  
T Albreht
Keyword(s):  
Cancer Care ◽  
National Level ◽  
Cancer Control ◽  
Professional Community ◽  
The Other ◽  
Consensus Building ◽  
Good Practices ◽  
Policy Initiatives ◽  
European Code ◽  
And Control

Abstract Background Policy initiatives, proposals and projects often end up proposing solutions and/or measures that are eventually either not or only partially implemented or they are lacking a system, which would consistently evaluate their implementation and/or impact. Good solutions are often not visible enough to the broader professional community and it is important to identify certain outstanding challenges in cancer control and policy. Driven by the need to better use the outputs from projects on cancer policy, European Commission was trying to address two challenges - one was in solving the problems with the implementation and use of the solutions that have already been proposed and the other one in identifying the outstanding challenges in cancer policy. Results We have decided to follow the structure to develop a series of recommendations and examples of good practices at the national level by selected areas. These would be streamlined into a roadmap to support policymakers at the national and EU level in formulating their cancer policies. Three pairs of targeted recommendations have been identified: Cancer prevention, including health promotion, implementation of the European Code Against Cancer and the reshaping and extension of cancer registriesGenomics and immunotherapy in cancerChallenges in cancer care and governance of cancer control Conclusions Multinational collaboration can bring about important consensual solutions, which build on the existing good practices in the countries. This can be combined well with the existing work on specific areas, carried out both internationally and nationally. Consensus building on jointly defined challenges represents a task that appears to be resolved rather pragmatically. Key message It is important that advance in cancer care and control are quickly analysed and that policymakers receive up-to-date recommendations to improve their policies on cancer control.

scholarly journals Population (Antibody) Testing for COVID-19—Technical Challenges, Application and Relevance, an English Perspective

Vaccines ◽  
2021 ◽  
Vol 9 (6) ◽  
pp. 550
Author(s):  
Peter A. C. Maple
Keyword(s):  
National Level ◽  
Herd Immunity ◽  
Population Based ◽  
Biological Properties ◽  
Limited Extent ◽  
Antibody Testing ◽  
Serum Samples ◽  
Oral Fluids ◽  
Antibody Assays ◽  
The Uk

In the UK, population virus or antibody testing using virus swabs, serum samples, blood spots or oral fluids has been performed to a limited extent for several diseases including measles, mumps, rubella and hepatitis and HIV. The collection of population-based infection and immunity data is key to the monitoring of disease prevalence and assessing the effectiveness of interventions such as behavioural modifications and vaccination. In particular, the biological properties of severe acute respiratory syndrome coronavirus-2 (SARS-CoV-2) and its interaction with the human host have presented several challenges towards the development of population-based immunity testing. Measuring SARS-CoV-2 immunity requires the development of antibody assays of acceptable sensitivity and specificity which are capable of accurately detecting seroprevalence and differentiating protection from non-protective responses. Now that anti-COVID-19 vaccines are becoming available there is a pressing need to measure vaccine efficacy and the development of herd immunity. The unprecedented impact of the SARS-CoV-2 pandemic in the UK in terms of morbidity, mortality, and economic and social disruption has mobilized a national scientific effort to learn more about this virus. In this article, the challenges of testing for SARS-CoV-2 infection, particularly in relation to population-based immunity testing, will be considered and examples given of relevant national level studies.

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