scholarly journals Qualitative exploration of emotional and social changes from diagnosis to bereavement for spousal caregivers of persons with dementia

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e031423 ◽  
Author(s):  
Kirstian Gibson ◽  
Shelley Peacock ◽  
Melanie Bayly
Keyword(s):  
Social Inclusion ◽  
Social Connectedness ◽  
Good Health ◽  
Emotional Reactions ◽  
Spousal Caregivers ◽  
Social Changes ◽  
Canadian Prairie ◽  
Qualitative Interview Study ◽  
Reactions To Change ◽  
Qualitative Exploration

ObjectivesTo understand how bereaved spousal caregivers of persons with dementia perceive and respond to changes over the course of their spouse’s disease, from diagnosis into bereavement.DesignQualitative interview study with convenience sampling and thematic analysis approach.ParticipantsParticipants included eight women and two men (n=10) who had been spousal caregivers for a person with dementia prior to his/her death. Participants were older adults who self-reported good health and were bereaved longer than a year.SettingData collected in a small Canadian prairie city between fall 2014 and winter 2015.FindingsTwo overarching themes were developed as important components of participants’ caregiving journey: emotional reactions to change and variation in social connectedness throughout the caregiving and bereavement journey. Four key sub-themes developed through the analysis of emotional reactions to events: memorable grief overshadows persistent grief, a progressive feeling of hopelessness and overwhelmed, relief is common but hidden and gratitude is a milestone in a constructive bereavement. Three key variations of social connectedness throughout the caregiving and bereavement journey were developed: the importance of social inclusion throughout a caregiving and bereavement journey, the repeated loss of companionship and withdrawing from social interactions is contingent on needs.ConclusionsThe findings suggest that emotional changes throughout caregiving and bereavement are not linear. The need for support from family, friends and new social supports is influential in enabling the caregiver to move forward during caregiving and bereavement.

An exploratory study of the extent of social inclusion among people with psychosis and psychotic-related conditions

2017 ◽  
Vol 63 (3) ◽  
pp. 195-202 ◽  
Author(s):  
Niall Turner ◽  
Lisa Ferguson ◽  
Michele Hill ◽  
Tara Nesbitt ◽  
Eadbhard O’Callaghan ◽  
...  
Keyword(s):  
Living Arrangements ◽  
Social Inclusion ◽  
Social Connectedness ◽  
Community Integration ◽  
Perceived Stigma ◽  
Interview Schedule ◽  
Duration Of Illness ◽  
The Social ◽  
At Risk Populations ◽  
Areas Of Concern

Background: Understanding social inclusion among at-risk populations will deepen our understanding of their specific needs. Aim: This study explored the level of social inclusion among people with psychotic-related conditions using a standardised interview. Method: The Social Inclusion Interview Schedule was used in two research projects. People with psychosis participated in both studies and had been recruited as part of an Irish programme of research on psychotic conditions. Descriptive statistics were used to quantify participants’ level of social exclusion. Results: Data from 71 participants were available, 38 in one cohort and 33 in the other. The smaller cohort had a shorter mean duration of illness. Participants’ mean age was 40. The majority lived in the community and were satisfied with their living arrangements. In each cohort, the same two areas of community integration emerged as problematic – having something productive to do and being close to someone in the community. There was a higher level of perceived stigma among the cohort with the longer duration of illness. Discussion/Conclusion: While evidence of social inclusion was found among participants, there were areas of concern particularly with regard to integration into work and social connectedness.

scholarly journals Experiences of living with mental health problems during the COVID-19 pandemic in the UK: a coproduced, participatory qualitative interview study

2020 ◽  
Author(s):  
Steven Gillard ◽  
Ceri Dare ◽  
Jackie Hardy ◽  
Patrick Nyikavaranda ◽  
Rachel Rowan Olive ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Care ◽  
Social Connectedness ◽  
Mental Health Problems ◽  
Qualitative Interviews ◽  
Health Conditions ◽  
Mental Health Conditions ◽  
Qualitative Interview Study ◽  
The Impact

AbstractPurposeResearch is beginning to quantify the impact of COVID-19 on people with pre-existing mental health conditions. Our paper addresses a lack of in-depth qualitative research exploring their experiences and perceptions of how life has changed at this time.MethodsWe used qualitative interviews (N=49) to explore experiences of the pandemic for people with pre-existing mental health conditions. In a participatory, coproduced approach, researchers with lived experiences of mental health conditions conducted interviews and analysed data as part of a multi-disciplinary research team.ResultsExisting mental health difficulties were exacerbated for many people. People experienced specific psychological impacts of the pandemic, struggles with social connectedness, and inadequate access to mental health services, while some found new ways to cope and connect to community. New remote ways to access mental health care, including digital solutions, provided continuity of care for some but presented substantial barriers for others. People from black and ethnic minority (BAME) communities experienced heightened anxiety, stigma and racism associated with the pandemic, further impacting their mental health.ConclusionThere is a need for evidence-based solutions to achieve accessible and effective mental health care in response to the pandemic, especially remote approaches to care. Further research should explore the long-term impacts of COVID-19 on people with pre-existing mental health conditions. Particular attention should be paid to understanding inequalities of impact on mental health, especially for people from BAME communities.

Embracing and Harnessing Uncertainty

2021 ◽  
pp. 21-40
Author(s):  
Camilla Ellehave ◽  
Erin Wilson Burns ◽  
Dave Ulrich
Keyword(s):  
Leadership Practices ◽  
Effective Leadership ◽  
Emotional Reactions ◽  
Positive Outcomes ◽  
Customer Needs ◽  
Effective Leaders ◽  
The Future ◽  
Effective Leadership Practices ◽  
Reactions To Change ◽  
Insight Into

This chapter offers insight into how change and uncertainty challenges effective leadership practices and offers guidance on how leaders can successfully lead in uncertain times. It adds to the existing field of studies by offering leaders a framework and specific ways to understand and consequently embrace and harness uncertainty. With the turmoil of 2020 as backdrop, effective leaders will need to master 3 tasks: 1) to pace the changes to which their teams are exposed, 2) to shape how changes are perceived by their team, and 3) to manage the team's emotional reactions to change. As leaders envision the future, guide choices, tame apprehension, regulate expectations, experiment nimbly, and collaborate frequently, they will be able to channel the pressures of change to create positive outcomes for their teams and organizations. More importantly, organizations that create routines and processes that encourage, develop, and enable these behaviors internally will lead in a world where customer needs, employee demands, and shareholder expectations are continuously evolving.

Impact of Urbanization on Health and Education

2020 ◽  
pp. 206-248
Author(s):  
Rita Afsar ◽  
Mahabub Hossain
Keyword(s):  
Adult Literacy ◽  
Social Inclusion ◽  
Good Health ◽  
Capita Expenditure ◽  
Disease Patterns ◽  
And Gender ◽  
Impact Of Urbanization ◽  
Assess Quality ◽  
Over Time

This chapter focuses on the qualitative changes in the lives of the city dwellers, particularly the poorer ones, regarding the scope for them to benefit from the city’s growing prosperity like their non-poor counterparts. It does so by examining the state of health and education of all. It estimates morbidity rates and highlights disease patterns to assess changes and identify the affected groups. To assess quality of health, it analyses their treatment-seeking behaviour, immunization of children, and whether the determinants of good health are changing over time. It examines changes in enrolment rates of children, adolescents and youth group, and gender parity at the primary, secondary and tertiary levels. Whether the quality of human capital has improved over time is also assessed by analysing the trends in adult literacy, educational attainment, and per capita expenditure in health and education in order to attain the main outcomes—equity and social inclusion.

scholarly journals AGE-FRIENDLY COMMUNITIES: ENHANCING COMMUNITY CONNECTIONS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S254-S254
Author(s):  
Patricia A Oh
Keyword(s):  
Rural Communities ◽  
Social Inclusion ◽  
Social Connectedness ◽  
Community Support ◽  
Mission Statements ◽  
Well Being ◽  
Social Connections ◽  
Outdoor Spaces ◽  
Community Volunteers ◽  
Health And Well Being

Abstract Age-friendly communities promote active, healthy, socially connected aging. Opportunities for social connections are key for older residents to enjoy the best possible health and well-being. Communities that join the AARP Network of Age-Friendly States and Communities (AARP NAFSC) include an aging lens in eight areas of community life—social participation, respect and social inclusion, civic participation and employment, communication and information, housing, transportation, community support and health services, and outdoor spaces and buildings. By addressing factors in these eight areas, communities encourage residents to enjoy formal participation in activities and groups and informal contacts with friends, neighbors and other residents. The purpose of this exploratory study was to find out if communities that join the AARP NAFSC plan and implement changes to enhance social connectedness. A review of 62 AARP-approved action plans nationwide, showed that social connectedness was included in 74% of the mission statements and was a goal in 92% of the plans. The lack of resources in rural communities creates special challenges; many age-friendly initiatives depend on community volunteers to implement changes on a shoe-string budget. To learn how rural age-friendly communities promote social connections, an email survey was distributed to 46 AARP NAFSC communities in rural Maine. All the communities responded. Fostering social connectedness was an explicit goal for 88% of the communities. Areas of implementation included services and activities (83%), communication (61%), transportation (30%), programming to include isolated residents (26%), accessible public spaces (22%), and intergenerational volunteering (17%). Implications will be discussed.

scholarly journals CAREGIVERS OF OLDER VIETNAMESE REFUGEES: FINDINGS FROM THE VIETNAMESE AGING AND CARE SURVEY (VACS)

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S187-S187
Author(s):  
Christina E Miyawaki ◽  
Nai-Wei Chen ◽  
Oanh L Meyer ◽  
Mindy T Tran ◽  
Kyriakos S Markides
Keyword(s):  
Social Services ◽  
Healthcare Professionals ◽  
Financial Burden ◽  
Adult Child ◽  
Good Health ◽  
Spousal Caregivers ◽  
Vulnerable Group ◽  
Vietnamese Refugees ◽  
Excellent Health ◽  
Care Survey

Abstract Since the fall of Saigon, over 1.3 million Vietnamese immigrated to the U.S. making Vietnamese the 4th largest Asian ethnic but most vulnerable group to disparities. There is a paucity of knowledge on the health of elders and their caregivers. The Vietnamese Aging and Care Survey (VACS) was developed, and health data on 67 caregivers were collected in Houston, Texas. Adult-child caregivers (n=44) were on average, 45.3 years old, married (64%), working (91%), female (61%) in good/excellent health (90%). Spousal caregivers (n=23) were 70.6 years-old, retired (57%), female (78%) in fair/good health (73%). Adult-child received more help (43%) than spousal caregivers (29%), however, felt more caregiver burden (p=0.01) and perceived stress (p=0.05). Living in a multi-generation household, sharing caregiving, and working may alleviate their financial burden and provide psychological support. Findings suggest healthcare professionals to encourage caregivers to utilize available culturally-relevant social services to further ease their caregiving experiences.

scholarly journals SEARCHING FOR MECHANISMS OF SOCIAL CHANGES IN CONTEMPORARY UKRAINE

2017 ◽  
Vol 8 ◽  
pp. 89-91
Author(s):  
A. Rezaev ◽  
V. Starikov ◽  
N. Tregubova
Keyword(s):  
Social Development ◽  
Social Inclusion ◽  
Social Changes ◽  
The University

Book Review: Savelyev Y. Multidimensional modernity: social inclusion in assessment of social development: monograph / Yuriy Savelyev. – K. : VPC "The University of Kyiv", 2017. – 447 p. [in Ukrainian]

scholarly journals Inclusive development as an imperative to realizing the human right to water and sanitation

1970 ◽  
Vol 8 (2) ◽  
pp. 67-86
Author(s):  
Pedi Obani ◽  
Joyeeta Gupta
Keyword(s):  
Human Rights ◽  
Social Inclusion ◽  
Inclusive Development ◽  
Extensive Literature ◽  
Social Changes ◽  
Human Right ◽  
Water And Sanitation ◽  
Governance Process ◽  
The Right ◽  
Governance Instruments

There are a plethora of governance instruments for operationalizing human rights obligations on water and sanitation at multiple levels of governance. The realization that the human right to water and sanitation depends on the discourses and approaches used in a country to implement it implies that it is not self-evident that implementing the right will lead to inclusive development. The inclusive development aims at not only social inclusion but also ecological and relational inclusion, where the latter aims at ensuring that the structural causes of inequality are also addressed. Relying on an extensive literature review and jurisprudence on the human right to water and sanitation, we develop an ideal-typical conceptual framework for assessing the human right to water and sanitation with inclusive development as an imperative. Our framework is based on the premise that governance instruments are valueladen tools which can steer social changes depending on the contextual political paradigm which can be garnered from the goals, ownership models, accountability mechanisms and incentives of actors involved in the governance process. We, therefore, propose a simple model for assessing whether the governance instruments for operationalizing the human right to water and sanitation will, in fact, lead to inclusive development.Keywords: Human Rights, Governance, Water and Sanitation

scholarly journals “The Graying Minority”: Lived Experiences and Psychosocial Challenges of Older Transgender Adults During the COVID-19 Pandemic in India, A Qualitative Exploration

2021 ◽  
Vol 11 ◽  
Author(s):  
Debanjan Banerjee ◽  
T. S. Sathyanarayana Rao
Keyword(s):  
Lived Experiences ◽  
Social Inclusion ◽  
Well Being ◽  
The Elderly ◽  
Social Risks ◽  
Gender Minorities ◽  
Psychosocial Challenges ◽  
Immunocompromised State ◽  
And Gender ◽  
Qualitative Exploration

Background: The Coronavirus disease 2019 (COVID-19) has emerged as a global health threat. Certain factors like age, an immunocompromised state, and social impoverishment, etc. can add to health vulnerabilities during this pandemic. One such group is older transgender adults, who often bear a combination of these risks. As the world is aging fast, their numbers have also been increasing. With this in mind, this study explores the lived experiences and psychosocial challenges of older transgender adults during the COVID-19 pandemic in India.Methods: A qualitative approach was used. Ten individuals with “transgender” identity above the age of 60 were recruited with consent through purposive sampling. In-depth interviews were conducted on the telephone using a pre-designed interview schedule. They were recorded, translated, and transcribed verbatim. Hasse's adaptation of Colaizzi's phenomenological method was used for analysis. Independent coding and respondent validation were used to ensure the rigor of data.Results: The super-arching categories (with themes) were marginalization (“second” priority, stigma, social disconnection), the dual burden of “age” and “gender” (ageism, othering, and psychosexual difficulties), and multi-faceted survival threats (physical, emotional, financial) during the pandemic. Social rituals, spirituality, hope, and acceptance of “gender dissonance” emerged as the main coping factors, whereas their unmet needs were social inclusion, awareness related to COVID-19, mental health care, and audience to their distress.Conclusion: The elderly gender minorities are at increased emotional and social risks during the ongoing pandemic, and their voices are mostly unheard. The need for policy implementation and community awareness about their social welfare is vital to improving their health and well-being.

Exploring Older Adults’ Experiences and Perceptions with a Peer-Led Wheelchair Training Program

2020 ◽  
Vol 87 (3) ◽  
pp. 192-199
Author(s):  
Alice Pellichero ◽  
Krista L. Best ◽  
François Routhier ◽  
William C. Miller
Keyword(s):  
Older Adults ◽  
Training Program ◽  
Self Efficacy ◽  
Social Inclusion ◽  
Social Connectedness ◽  
Qualitative Interviews ◽  
Community Based ◽  
Wheelchair Users ◽  
Perceived Impact

Background. Manual wheelchair (MWC) training is important, but less than 50% of new wheelchair users receive any training. The Wheelchair training Self-efficacy Enhanced for Use (WheelSeeU), a community-based peer-led MWC training program, is feasible and effective for improving wheelchair skills. However, implementing effective programs requires an understanding of stakeholders’ experiences. Purpose. Explore older adults’ perceptions about their participation in the WheelSeeU program. Method. Qualitative interviews were conducted with participants who completed the WheelSeeU program. Thematic analysis was conducted. Findings. Three themes emerged. 1. Getting my life back described participants’ perceived impact of the WheelSeeU program on their lives. 2. I can do it too, implied critical facilitators for success. 3. Social gains, revealed participants’ feelings of social inclusion through participation in the program. Implications. Older adults expressed satisfaction and quality of participation with the WheelSeeU program that increased autonomy, improved MWC mobility and self-efficacy, and enhanced social connectedness.

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