scholarly journals ‘Not just a piece of skin in front of you’—a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e041108
Author(s):  
Isabella Joy de Vere Hunt ◽  
Abigail McNiven ◽  
Amanda Roberts ◽  
Himesh Parmar ◽  
Tess McPherson
Keyword(s):  
Young People ◽  
Skin Disease ◽  
Healthcare Professionals ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
Secondary Analysis ◽  
Emotional Impact ◽  
Skin Conditions ◽  
The Uk ◽  
Qualitative Exploration

BackgroundThere is little qualitative research in the UK focussing on adolescents’ experience of their healthcare providers, and inflammatory skin conditions are a common heath problem in adolescence.AimTo explore the experiences of adolescents with eczema and psoriasis with healthcare professionals, and to distil the participants’ key messages for their healthcare providers.DesignThis is a secondary thematic analysis of interviews with adolescents with eczema or psoriasis.ParticipantsThere were a total of 41 text transcripts of interviews with young people with eczema or psoriasis who had given permission for secondary analysis; 23 of the participants had eczema, and 18 psoriasis. Participants were living in the UK at time of interview, and aged 15–24 years old.ResultsWe have distilled the following key messages from young people with eczema and psoriasis for healthcare providers: (1) address the emotional impact; (2) give more information, with the subtheme and (3) appreciate patient research. We identified the following eczema-specific themes: (ECZ-4) ‘It’s not taken seriously’; (ECZ-5) offer choice in treatment and (ECZ-6) lack of structure/conflicting advice. Two psoriasis-specific themes were identified: (PSO-4) feeling dehumanised/treat me as a person; and (PSO-5) think about how treatments will affect daily life.ConclusionThis qualitative data analysis highlights the need for greater recognition of the emotional impact of skin disease in adolescence, and for more comprehensive provision of information about the conditions. We call for greater sensitivity and flexibility in our approach to adolescents with skin disease, with important implications for healthcare delivery to this group.

A systematic review into healthcare professionals’ attitudes towards self-harm in children and young people and its impact on care provision

2021 ◽  
pp. 136749352110144
Author(s):  
Lea Raquel Ribeiro Coimbra ◽  
Amy Noakes
Keyword(s):  
Young People ◽  
Healthcare Professionals ◽  
Educational Opportunities ◽  
Emotional Impact ◽  
Valuable Insight ◽  
Care Provision ◽  
Children And Young People ◽  
Positive Attitudes ◽  
Self Harm ◽  
Impact Patient Care

Self-harming behaviours in children and young people are an alarming reality, with provision of effective treatment historically compromised. The present systematic literature review highlights attitudes displayed by healthcare professionals towards this health problem, providing valuable insight by analysing how these attitudes can impact patient care. Ten studies were included, allowing creation of a narrative synthesis of qualitative, quantitative and mixed-methods evidence. Six themes emerged: negativity, positivity, worry or fear, the emotional impact of working with these patients, professional roles and ward-dependent concerns. Overall, professional negativity towards this patient group, in the form of apprehensiveness, was accentuated by fear of worsening their symptoms. The attitude aforementioned impacts on treatment by hindering creation of meaningful therapeutic relationships. Educational opportunities that increase healthcare professionals’ knowledge of self-harm have the potential to provide invaluable power by promoting positive attitudes.

scholarly journals How to increase chlamydia testing in primary care: a qualitative exploration with young people and application of a meta-theoretical model

2020 ◽  
Vol 96 (8) ◽  
pp. 571-581
Author(s):  
Lorraine K McDonagh ◽  
Hannah Harwood ◽  
John M Saunders ◽  
Jackie A Cassell ◽  
Greta Rait
Keyword(s):  
Primary Care ◽  
Young People ◽  
Sampling Methods ◽  
Healthcare Providers ◽  
Implementation Strategies ◽  
Potential Intervention ◽  
Individual Interviews ◽  
Chlamydia Testing ◽  
Wide Range ◽  
The Uk

ObjectiveThe objective of this study was to explore young people’s perspectives barriers to chlamydia testing in general practice and potential intervention functions and implementation strategies to overcome identified barriers, using a meta-theoretical framework (the Behaviour Change Wheel (BCW)).MethodsTwenty-eight semistructured individual interviews were conducted with 16–24 year olds from across the UK. Purposive and convenience sampling methods were used (eg, youth organisations, charities, online platforms and chain-referrals). An inductive thematic analysis was first conducted, followed by thematic categorisation using the BCW.ResultsParticipants identified several barriers to testing: conducting self-sampling inaccurately (physical capability); lack of information and awareness (psychological capability); testing not seen as a priority and perceived low risk (reflective motivation); embarrassment, fear and guilt (automatic motivation); the UK primary care context and location of toilets (physical opportunity) and stigma (social opportunity). Potential intervention functions raised by participants included education (eg, increase awareness of chlamydia); persuasion (eg, use of imagery/data to alter beliefs); environmental restructuring (eg, alternative sampling methods) and modelling (eg, credible sources such as celebrities). Potential implementation strategies and policy categories discussed were communication and marketing (eg, social media); service provision (eg, introduction of a young person’s health-check) and guidelines (eg, standard questions for healthcare providers).ConclusionsThe BCW provided a useful framework for conceptually exploring the wide range of barriers to testing identified and possible intervention functions and policy categories to overcome said barriers. While greater education and awareness and expanded opportunities for testing were considered important, this alone will not bring about dramatic increases in testing. A societal and structural shift towards the normalisation of chlamydia testing is needed, alongside approaches which recognise the heterogeneity of this population. To ensure optimal and inclusive healthcare, researchers, clinicians and policy makers alike must consider patient diversity and the wider health issues affecting all young people.

scholarly journals P09 A survey of the NPPG group concerning medication administration problems among children and young people aged 0 to 18 years old

2020 ◽  
Vol 105 (9) ◽  
pp. e10.2-e11
Author(s):  
Dania Dahmash ◽  
Chi Huynh ◽  
Daniel Kirby ◽  
David Terry
Keyword(s):  
Young People ◽  
Healthcare Professionals ◽  
Medication Use ◽  
Medication Administration ◽  
Main Concern ◽  
Age Group ◽  
Further Training ◽  
Children And Young People ◽  
Paediatric Patients ◽  
The Uk

AimTo identify issues encountered by pharmacy healthcare professionals with regards to problems that they have experienced, complaints received, queries and feedback by the patients or parents or caregivers in terms of medication administration for children and young people aged 0 to18 years old.MethodAn online survey using the Online Surveys tool was devised to obtain healthcare professionals’ perspective regarding medication administration problems encountered by parents, caregivers or paediatric patients when administering or taking their medication at home. The survey was sent to the members of the Neonatal and Paediatric Pharmacists Group (NPPG), who represent different geographical areas within the UK and further afield. Informed consent was obtained from participants. This study was reviewed and approved by the Life and Health Sciences Ethics Committee, Aston University.Results37 pharmacists and 1 technician completed the survey. The majority of the respondents 23/38 were currently practicing in England, with 6/38 respondents being registered pharmacists outside the UK, 1/38 was practicing in Northern Ireland, 3/38 within Scotland and 4/38 were practicing in Wales. 71.1% of the respondents strongly agreed that parents or caregivers require further training when it comes to medication delivery to their children. In addition, when asked about their concerns regarding prescribed medication to children aged between 0 to18 years old, respondents expressed a different level of concern regarding each age group. Regarding neonates, the main concern was the suitability of the prescribed formulation and the ability of the parents to accurately measure and administered a low dose volume. In contrast, for children aged between 28 days to 12 years, the common concerns were associated with palatability, which will further reflect upon child compliance and the parent or caregiver’s ability to understand medication instructions and administration. Finally, for older aged children, adherence was a common concern. Furthermore, liquid formulations (suspensions (60.5%), solutions (55.3%) and injections (44.7%)) were predominantly used among children aged 0 to 18 years old within both in and outpatients setting. Overall, the majority of the respondents expressed that counselling time between the patient and pharmacists and the need to provide further training and educational material to parents and young people is an important issue to improve understating in regards medication use.ConclusionThe findings suggest that medication administration problems occur frequently among paediatric patients, and the nature of these problems varies among each age group. Medication training for both parents and young people could be a key factor to help reduce this problem. Future research is needed to investigate and gain insight into personal experiences with medication use and administration from a parent and/or young person’s perspective. This will help to highlight the current problem in the UK and further develop potential interventions to reduce medication administration errors by parents of children aged 0 to 16 years old and by young people up to the age of 18 years.

scholarly journals ‘It’s a hard conversation to have’. Healthcare professionals’ views concerning advance care discussions with young people affected by life-limiting neuromuscular diseases: an interview study

2017 ◽  
Vol 9 (1) ◽  
pp. e9-e9
Author(s):  
Andy Hiscock ◽  
Stephen Barclay
Keyword(s):  
Young People ◽  
End Of Life ◽  
End Of Life Care ◽  
Healthcare Professionals ◽  
Neuromuscular Diseases ◽  
Individual Case ◽  
Life Care ◽  
Care Plans ◽  
Advance Care ◽  
The Uk

ObjectiveLife-limiting neuromuscular disease, such as some of the muscular dystrophies, are often diagnosed in early childhood: when death comes, commonly in the second or third decade of life, patients rarely have advance care plans in place or documented end-of-life care preferences. There is very limited literature concerning the discussions about end-of-life plans healthcare professionals have with young people affected by life-limiting neuromuscular diseases. The aim of this study was to investigate the views and experiences of healthcare professionals concerning having discussions about advance care plans and end-of-life care with teenagers and young adult patients affected by life-limiting neuromuscular diseases.MethodsSemistructured interviews with a maximum variety sample of nine professionals involved in the care of young people with life-limiting neuromuscular diseases in one region of the UK.ResultsWhile recognising the inevitable progression of the conditions, there was no consensus among interviewees concerning best approaches to discuss end-of-life care plans. Several environmental and personal barriers were identified that lead to avoidance of the emotionally challenging and difficult conversations.ConclusionsCommunity-based professionals with well-established relationships with patients and families may be best placed to take the lead and coordinate discussions, but individual case-by-case preferences need to be carefully considered.

scholarly journals “Will my Young Adult Years be Spent Socially Distancing?”: A Qualitative Exploration of UK Adolescents’ Lockdown Experiences during the COVID-19 Pandemic

2021 ◽  
Author(s):  
Ola Demkowicz ◽  
Emma Ashworth ◽  
Alisha O'Neill ◽  
Terry Hanley ◽  
Kirsty Pert
Keyword(s):  
Transition To Adulthood ◽  
Emotional Impact ◽  
Subjective Experiences ◽  
Quantitative Evidence ◽  
Online Portal ◽  
Older Adolescents ◽  
The Uk ◽  
And Coping ◽  
Qualitative Exploration ◽  
Insight Into

Abstract BackgroundFor older adolescents, the COVID-19 pandemic and associated UK restrictions have arrived during a critical period in the transition to adulthood, and early research exploring impact of the pandemic paints a picture of worsened adolescent wellbeing and mental health. We set out to explore the subjective experiences of 16- to 19-year-olds during the first UK lockdown, with a particular emphasis on wellbeing and coping, in order to complement emergent quantitative evidence and inform strategies and provision for support.MethodsIn May 2020, we invited 16- to 19-year-olds based in the UK to share their experiences of the initial lockdown as part of ‘The TELL Study’. A total of 109 participants took part, submitting anonymous written accounts of their experiences via an online portal. We used reflexive thematic analysis to explore these accounts and develop rich experiential themes.Findings: We constructed seven main themes: heightened emotionality; feelings of loss, change, and uncertainty; recognising the value of self-care; efforts to think positively; opportunities for growth and development; the importance of togetherness; and frustration with government and media.ConclusionsFindings shed light on the emotional impact of lockdown and the concerns it has raised for older adolescents and offers insight into ways that they have been coping and working to stay connected. The study highlights directions for support and provision for adolescents in facilitating positive wellbeing and resilience as the consequences of the pandemic continue.

scholarly journals Distance learning training in genetics and genomics practices for Italian healthcare professionals

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
G E Calabrò ◽  
A Mazzaccara ◽  
P Carbone ◽  
D Barbina ◽  
D Guerrera ◽  
...  
Keyword(s):  
Distance Learning ◽  
Healthcare Professionals ◽  
Healthcare Delivery ◽  
Healthcare Providers ◽  
Cost Effective ◽  
Training Problem ◽  
Genetics Research ◽  
Italian Experience ◽  
Case Based Learning ◽  
Set Up

Abstract Background Genomics and related fields are becoming increasingly relevant in healthcare practice. Italy is the first European country with a structured policy of Public Health Genomics and dedicated guidelines that focus on three pillars: Health Technology Assessment of omic applications, promotion of citizens' literacy, and promotion of extensive training for all healthcare stakeholders. In January 2019 we initiated a project funded by the Italian Ministry of Health and entitled 'Capacity building and Citizens-Omics'. Objectives The project is coordinated by the National Institute of Health and is aimed at implementing the “Italian National Plan for innovation of the healthcare system based on omics sciences” published in 2017. Results The project had set-up two distance-learning courses on genetic/genomics: an advanced course for physicians and biologists, and a basic one for the remaining healthcare professionals. The courses focused on genetic/genomic testing in clinical practice, pharmacogenomics and oncogenomic and they were developed according to the main models of andragogical training (Problem-based Learning and Case-based Learning). The courses include audio-video lectures and interactive clinical cases and they will be accessible free of charge for a year (from February 17th 2020). In three weeks, we had 2129 participants (1101 physicians, 1028 biologists) for the advanced course and 10.000 for the basic one. Conclusions Genomic literacy among healthcare professionals is essential to ensure optimal translation to healthcare delivery of research. The distance-learning training in genetic/genomic practices represents an effective method to improve healthcare professionals' knowledge in the immediate and mid-term time scale. Our courses represent the third Italian experience in distance training in omic field. The educational effects related with online courses could potentially be relevant internationally and across a wider range of potential audiences. Key messages In view of the ongoing rapid developments in genetics research it is important that omic literacy among healthcare providers be enhanced to ensure translation to healthcare delivery of research. E-learning training appears to offer a cost-effective and time-efficient method of improving omic knowledge and it could be relevant across a wider range of potential audiences.

scholarly journals ‘Surely you’re not still breastfeeding’: a qualitative exploration of women’s experiences of breastfeeding beyond infancy in the UK

BMJ Open ◽  
2020 ◽  
Vol 10 (5) ◽  
pp. e035199
Author(s):  
Amy J Thompson ◽  
Annie E Topping ◽  
Laura L Jones
Keyword(s):  
Support Groups ◽  
Healthcare Professionals ◽  
Cultural Barriers ◽  
Breastfeeding Duration ◽  
Older Children ◽  
Breastfeeding Support ◽  
Women’S Experiences ◽  
Women's Experiences ◽  
The Uk ◽  
Qualitative Exploration

ObjectivesTo explore women’s experiences of breastfeeding beyond infancy (>1 year). Understanding these experiences, including the motivators, enablers and barriers faced, may help inform future strategies to support and facilitate mothers to breastfeed for an optimal duration.DesignAn exploratory qualitative study using an interpretive approach. Nineteen semistructured interviews were conducted (in person, via phone or Skype), transcribed and thematically analysed using the framework method.SettingParticipants drawn from across the UK through online breastfeeding support groups.ParticipantsMaximum variation sample of women currently breastfeeding a child older than 1 year, or who had done so in the previous 5 years. Participants were included if over 18, able to speak English at conversational level and resident in the UK.ResultsThe findings offer insights into the challenges faced by women breastfeeding older children, including perceived social and cultural barriers. Three core themes were interpreted: (1) parenting philosophy; (2) breastfeeding beliefs; (3) transition from babyhood to toddlerhood. Women had not intended to breastfeed beyond infancy prior to delivery, but developed a ‘child-led’ approach to parenting and internalised strong beliefs that breastfeeding is the biological norm. Women perceived a negative shift in approval for continued breastfeeding as their child transitioned from ‘baby’ to ‘toddler’. This compelled woman to conceal breastfeeding and fostered a reluctance to seek advice from healthcare professionals. Mothers reported feeling pressured to breastfeed when their babies were young, but discouraged as children grew. They identified best with the term ‘natural-term breastfeeding’.ConclusionsThis study suggests that providing antenatal education regarding biological weaning ages and promotion of guidelines for optimum breastfeeding duration may encourage more women to breastfeed for longer. Promoting the concept of natural-term breastfeeding to mothers, and healthcare professionals, employers and the public is necessary to normalise and encourage acceptance of breastfeeding beyond infancy.

Developing a Patient Charter for People Living With Conditions, Diseases, or Traumas Involving the Skin

2019 ◽  
Vol 24 (2) ◽  
pp. 149-153
Author(s):  
Arunima Sivanand ◽  
Kathryn Andrews-Clay ◽  
Harvey Lui
Keyword(s):  
Healthcare Delivery ◽  
Healthcare Setting ◽  
Skin Condition ◽  
Hippocratic Oath ◽  
Professional Services ◽  
Emotional Impact ◽  
Media Campaigns ◽  
Social Settings ◽  
Print Materials ◽  
Skin Conditions

Background Studies have shown disparities in the perception of skin disease burden between patients and physicians, with patients often feeling that the severity, emotional impact, and social repercussions of their skin condition are underestimated. Although physician’s professional behavior is guided by documents such as the Hippocratic Oath, there are no patient-driven principles to guide healthcare interactions involving skin concerns. Objective To develop a concise and practical charter for patients based on their perceptions of unmet needs with the goals of helping patients express their needs and exercise their rights to accessing and utilizing the healthcare system for conditions, diseases, or traumas involving the skin. Methods An initial literature review examined healthcare delivery concerns of patients with skin conditions. Results were used to draft a charter that was reviewed by a Canadian patient focus group representing various skin condition advocacy groups. A revised charter was reviewed by Canadian dermatologists before being formally approved by the Canadian Skin Patient Alliance Board and endorsed by the Canadian Dermatology Association. Results The Patient Charter comprises 8 principles for providing and receiving professional services for the skin in the healthcare setting. Conclusions This Patient Charter provides direct insights into patient priorities and will be used as an educational and advocacy tool in healthcare, occupational, and social settings. The intended goal is for the Patient Charter to empower patients and to educate health professions, government, industry, and society at large. Accordingly, the charter will be disseminated through print materials, informational videos, and social media campaigns.

The role of responsibility in oncological emergency telephone calls

2019 ◽  
Vol 26 (7-8) ◽  
pp. 2071-2084 ◽  
Author(s):  
Birgith Pedersen ◽  
Lisbeth Uhrenfeldt ◽  
Heidi Ramlov Jacobsen ◽  
Lone Jørgensen
Keyword(s):  
Healthcare Professionals ◽  
Qualitative Content Analysis ◽  
Healthcare Providers ◽  
Secondary Analysis ◽  
Qualitative Description ◽  
University Hospital ◽  
Outpatient Basis ◽  
Cancer Disease ◽  
Oncological Emergency ◽  
Capacity To Act

Background: Patients and their caregivers are expected to take joint responsibility for reporting symptoms and seeking medical assistance, for example, by calling oncology emergency telephones or other helplines during a cancer trajectory. Research objective: The aim was to explore the meaning of responsibility as it appeared in patients’ or caregivers’ experiences of calling an oncological emergency telephone. Design, participants and context: Inspired by qualitative description and qualitative content analysis, a secondary analysis of data from interviews with 12 participants calling the oncological emergency telephone at a Danish university hospital was performed. Ethical considerations: The project observes demands for safekeeping data and all regulations concerning research ethics in agreement with the Nordic Nurses Federation and the Danish Health Act. Findings: Two main themes emerged: (1) to act responsibly as a patient or caregiver was to ‘be watchful and alert’, ‘report symptoms the right way’ and ‘do crosschecking’ and (2) to deal with the burden of responsibility was to ‘feel safe when dealing with the burden of responsibility’ and ‘be relieved from the burden of responsibility’. Discussion: Too much responsibility and a potential imbalance between healthcare professionals’ expectations and callers’ knowledge and capacity to act may place additional burdens on the callers, which may be eased by person-centred care. Conclusion: The meaning of responsibility appeared in the participants’ capacity to act, where they observed, assessed and reported symptoms and controlled prescribed treatments as well as shared or handed over the responsibility to the healthcare providers. Thus, the analysis provided essential knowledge for healthcare professionals on how patients and caregivers handle this responsibility when faced with a cancer disease that is treated on an outpatient basis.

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