Development and Psychometric Testing of the Peer-Mentor Support Scale for Parents of Children With Type 1 Diabetes and for Youths With Type 1 Diabetes

2020 ◽  
Vol 46 (2) ◽  
pp. 191-196
Author(s):  
Susan Sullivan-Bolyai ◽  
Carol Bova ◽  
Kimberly Johnson
Keyword(s):  
Social Support ◽  
Type 1 Diabetes ◽  
Intraclass Correlation ◽  
Psychometric Testing ◽  
Psychometric Evaluation ◽  
Varimax Rotation ◽  
Peer Mentor ◽  
Validity Assessment ◽  
Mentor Support

Purpose The purpose of this study was to develop and evaluate the psychometric properties of the Peer-Mentor Support Scale (PMSS), a measure of peer-mentor support provided to parents of children with type 1 diabetes (T1D) and to youths with T1D. Methods A multistage process was undertaken to include the following: item construction based on qualitive data from those who have experienced peer-mentor support, cognitive interviewing with parents and youths, content validity assessment, pilot testing of the scale, and psychometric evaluation of the PMSS with 165 participants. Results The final version of the PMSS included 17 items, scored on a 4-point Likert scale, with higher scores corresponding with greater peer-mentor support. The Cronbach’s alpha was .85 (n = 165), and the intraclass correlation coefficient was .78 (n = 38). No significant relationship was found between the PMSS score and general social support, suggesting that peer-mentor support is distinct from general social support. Principal components factor analysis with varimax rotation was performed, indicating that the scale was unidimensional and explained 59.3% of the variance in peer-mentor support. Conclusion The PMSS is a reliable and valid 17-item instrument that can be used to measure the unique contributions of peer mentorship for parents of children with T1DM and for youths with T1DM.

scholarly journals Psychometric testing of the Norwegian Diabetes Health Profile (DHP-18) in patients with type 1 diabetes

2018 ◽  
Vol 6 (1) ◽  
pp. e000541
Author(s):  
Lars-Petter Jelsness-Jørgensen ◽  
Øystein Jensen ◽  
Charlotte Gibbs ◽  
Ragnar Bekkhus Moe ◽  
Dag Hofsø ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Internal Consistency ◽  
Convergent Validity ◽  
Short Form ◽  
Descriptive Analysis ◽  
Intraclass Correlation ◽  
Psychometric Testing ◽  
Health Profile ◽  
Sf 36

ObjectiveThe Diabetes Health Profile-18 (DHP-18) was developed to measure disease-specific health-related quality of life. It has been translated into Norwegian but remains invalidated. The purpose of this paper was to examine the psychometric properties of the Norwegian DHP-18.Research design and methodsParticipants with type 1 diabetes were recruited from three outpatient clinics in Norway. Clinical and sociodemographic data were collected, and participants completed the DHP-18 and the Short-Form 36 (SF-36). Descriptive analysis, frequencies, t-tests and the chi-squared tests were used. Principal axis factoring (PAF) and confirmatory factor analysis (CFA) were used. Convergent validity was tested using Spearman’s correlation between the DHP-18 and SF-36. Reliability was tested using Cronbach’s alpha and intraclass correlation coefficient.ResultsIn total, 288 patients were included. No floor and ceiling effects were found. A forced PAF analysis revealed that three questions had an eigenvalue below 0.40. In the unforced PAF analysis, one question loaded below 0.40, while three questions loaded into a fourth factor. The correlation between the DHP-18 and SF-36 dimensions was low to moderate. Problematic internal consistency was observed for the disinhibited eating dimension in the forced PAF and in the suggested fourth dimension in the unforced PAF. CFA revealed poor fit. The test–retest reliability displayed good to excellent values, but responsiveness was limited.ConclusionsProblematic issues were identified regarding factor structure, item loadings, internal consistency and responsiveness. Further evaluation of responsiveness is particularly recommended, and using a revised 14-item DHP version is suggested.

scholarly journals Erratum: Disparities in Social Support for Youths With Type 1 Diabetes. Clinical Diabetes 2015;33:62–69: FIGURE 2.

2015 ◽  
Vol 33 (3) ◽  
pp. 159-159
Author(s):  
Ashby F. Walker ◽  
Desmond A. Schatz ◽  
Cathryn Johnson ◽  
Janet H. Silverstein ◽  
Henry J. Rohrs
Keyword(s):  
Social Support ◽  
Type 1 Diabetes ◽  
Clinical Diabetes

Development and psychometric evaluation of the Thirst Distress Scale for patients with heart failure

2017 ◽  
Vol 17 (3) ◽  
pp. 226-234 ◽  
Author(s):  
Nana Waldréus ◽  
Tiny Jaarsma ◽  
Martje HL van der Wal ◽  
Naoko P Kato
Keyword(s):  
Heart Failure ◽  
Psychometric Properties ◽  
Intraclass Correlation ◽  
Psychometric Testing ◽  
Psychometric Evaluation ◽  
Weighted Kappa ◽  
Patients With Heart Failure ◽  
Using Data ◽  
Test Retest Reliability ◽  
Distress Scale

Background: Patients with heart failure can experience thirst distress. However, there is no instrument to measure this in patients with heart failure. The aim of the present study was to develop the Thirst Distress Scale for patients with Heart Failure (TDS-HF) and to evaluate psychometric properties of the scale. Methods and results: The TDS-HF was developed to measure thirst distress in patients with heart failure. Face and content validity was confirmed using expert panels including patients and healthcare professionals. Data on the TDS-HF was collected from patients with heart failure at outpatient heart failure clinics and hospitals in Sweden, the Netherlands and Japan. Psychometric properties were evaluated using data from 256 heart failure patients (age 72±11 years). Concurrent validity of the scale was assessed using a thirst intensity visual analogue scale. Patients did not have any difficulties answering the questions, and time taken to answer the questions was about five minutes. Factor analysis of the scale showed one factor. After psychometric testing, one item was deleted. For the eight item TDS-HF, a single factor explained 61% of the variance and Cronbach’s alpha was 0.90. The eight item TDS-HF was significantly associated with the thirst intensity score ( r=0.55, p<0.001). Regarding test-retest reliability, the intraclass correlation coefficient was 0.88, and the weighted kappa values ranged from 0.29–0.60. Conclusion: The eight-item TDS-HF is valid and reliable for measuring thirst distress in patients with heart failure.

Analyzing Online Social Support Within the Type 1 Diabetes Community

2018 ◽  
pp. 59-84 ◽  
Author(s):  
Kristin G. Maki ◽  
Aisha K. O'Mally
Keyword(s):  
Social Support ◽  
Social Media ◽  
Type 1 Diabetes ◽  
Heart Disease ◽  
Health Outcomes ◽  
Chronic Illnesses ◽  
Informational Support ◽  
Online Social Support ◽  
Social Media Platforms

Social support has been linked with many health outcomes, ranging from heart disease to depression. Although its importance has been recognized, less is known about how individuals with chronic illnesses may use social media to provide and seek social support. This chapter's focus is on the way in which people with Type 1 diabetes (T1D) use social media to provide and solicit social support. A mixed-methods approach is utilized. First, posts from two social media platforms were qualitatively content analyzed. Second, the data were quantitatively analyzed to provide a finer-grained understanding of the messages. The results show informational support as the most prevalent on both sites, although there are some differences in content and use. This chapter's implications highlight the importance of social media as a conduit for social support among caregivers and individuals affected by T1D.

scholarly journals O4-05-05: SOCIAL SUPPORT AND COGNITIVE FUNCTION IN TYPE 1 DIABETES: FINDINGS FROM THE STUDY OF LONGEVITY IN DIABETES (SOLID) STUDY

2019 ◽  
Vol 15 ◽  
pp. P1244-P1244
Author(s):  
Laura Kate Farnsworth ◽  
Paola Gilsanz ◽  
Mary E. Lacy ◽  
Andrew J. Karter ◽  
Chloe W. Eng ◽  
...  
Keyword(s):  
Social Support ◽  
Type 1 Diabetes ◽  
Cognitive Function

Quality of Life in Adolescents With Type 1 Diabetes Who Participate in Diabetes Camp

2006 ◽  
Vol 22 (1) ◽  
pp. 53-58 ◽  
Author(s):  
Ruth Cheung ◽  
Virginia Young Cureton ◽  
Daryl L. Canham
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Type 1 Diabetes ◽  
Well Being ◽  
Area Of Interest ◽  
Related Quality ◽  
Complex Diabetes ◽  
Diabetes Camp

Quality of life in adolescents with Type 1 diabetes is a growing area of interest in pediatric research. The complex diabetes regimen imposes challenges for an adolescent. Adolescents diagnosed with diabetes are a group that appears to be at risk for having a poor health-related quality of life. Although research supports the positive relationship of social support and well-being in adolescents, there are few studies discussing quality of life in adolescents that are based on the factor of social support. This study compared the quality of life in adolescents with Type 1 diabetes who have attended at least one diabetes camp to the quality of life of those who have never attended diabetes camp. Results provided evidence of the value of social support.

Types of Social Support Offered Through a Virtual Peer Support Network in Youth With Type 1 Diabetes

2021 ◽  
Vol 45 (7) ◽  
pp. S3
Author(s):  
Nancy Wu ◽  
Susan Wang ◽  
Anne-Sophie Brazeau ◽  
Elham Rahme ◽  
Meranda Nakhla ◽  
...  
Keyword(s):  
Social Support ◽  
Type 1 Diabetes ◽  
Peer Support ◽  
Support Network
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