Preparing for Implementation Within Therapy Services for People With Dementia: Exploring Expectations and Experiences Among Service Providers

2021 ◽  
pp. 073346482098628
Author(s):  
Jennifer Culph ◽  
Lindy Clemson ◽  
Yun-Hee Jeon ◽  
Justin Scanlan ◽  
Kate Laver

Background: This study examined how occupational therapists, nurses, and their managers within different organizational contexts in the Australian health and aged care system prepare for implementation. The program being implemented was the Care of People with dementia in their Environment (COPE) program, a community reablement program for people with dementia and their carers. Methods: Qualitative data from 29 in-depth interviews were collected from occupational therapists, nurses, and their managers. Recruitment ensured a variety of organizational contexts were included. Thematic analysis was used to capture key themes. Results: Themes include innovation in a time of instability and uncertainty, values that align with the innovation, shifting the day-to-day practice, and confidence in new specialized skills. Conclusion: Organizations need to carefully consider internal and external contexts when planning implementation efforts. Study findings have informed plans for embedding delivery of the program within the health and aged care sector.

2020 ◽  
Vol 101 (4) ◽  
pp. 456-468
Author(s):  
Violette E. McGaw ◽  
Andrea E. Reupert ◽  
Darryl Maybery

Partners raising children are significantly impacted by living with a veteran who has posttraumatic stress disorder (PTSD). This qualitative study explored the parenting and family experiences of partners to veterans with military-PTSD. In-depth interviews were conducted with eight female partners, caring for at least one child below the age of 18 years. Thematic analysis produced four primary themes around parenting, (dis)connection, family identity, and unpredictability. A number of contrasting concepts such as feeling unsupported, yet reluctance to access support, highlighted the complexity of partner experiences. Clear recommendations arose from the study including greater in inclusion in health care, the need for upskilling of service providers and educators in area of family and parenting issues, and clearer pathways for spouses and families to access information.


2020 ◽  
Vol 37 (8-9) ◽  
pp. 2674-2690
Author(s):  
Szu-Chia Chang ◽  
Jenny Hsiu-Ying Chang ◽  
Meng-Yeow Low ◽  
Tzu-Chin Chen ◽  
Shih-Hsien Kuo

The aim of this study is to explore the goals and strategies of self-regulation of the newlyweds in Taiwan. Through in-depth interviews with eight newlywed couples ( N = 16), qualitative data were gathered and analyzed using thematic analysis. The findings revealed that, under the influence of their cultural values, the newlywed participants pursue the goals of genuine harmony and superficial harmony in their self-regulation for marital adjustment. Genuine harmony can be attained through people’s fulfillment of their role norms in in-law relationships and establishment of affiliations with spouses in marital relationships. On the other hand, superficial harmony can be maintained by people through keeping sketchy relationships with their in-laws and inhibiting anger to prevent open conflicts with their spouses. To achieve relational harmony, various strategies of self-regulation were used depending on the situations involved. Such strategies direct to the principle of zhong-yong (the Doctrine of Mean) involving holistic information processing and avoidance of extremities in implementation. Gender differences in self-regulation were found in both goals and strategies.


2021 ◽  
pp. 000841742110666
Author(s):  
Laura Irvine-Brown ◽  
Vicki-Ann Ware ◽  
Ana Paula Serrata Malfitano

Background. A growing body of occupational therapy knowledge and practice focuses not on health but on social transformation, and couples occupational therapy with community development. A tension in both these fields is the disconnect between what practitioners espouse and what they do, limiting the potential of practice. To address this, practitioners are encouraged to engage in praxis—the critical synthesis of theory and practice. Purpose. To explore whether and how Australian occupational therapy-community development practitioners engage in critical praxis. Method. A critical dialogical method was employed to complete multiple in-depth interviews with four occupational therapy-community development practitioners. Interviews were transcribed and analyzed using thematic analysis. Findings. Practitioners appeared capable of praxis but were not consistently employing it. Findings were grouped into themes: disjointed praxis, authentic praxis, supporting praxis, and praxis challenges and solutions. Implications. Occupational therapists need to be supported to develop, use, and maintain skills in critical praxis.


2021 ◽  
Vol 23 (2) ◽  
pp. 88-106
Author(s):  
Farzad Rostami ◽  
Mohammad Hosein Yousefi ◽  
Davoud Amini

The purpose of this study was to explore multiple facets of the professional identities of Iranian in-service teachers in exceptional schools. The study adopted a qualitative design. The data were collected through in-depth interviews with 14 in-service teachers. The participants were selected through purposeful sampling. Each interview lasted up to 40 minutes. The whole procedure of the data collection was audio-recorded, and verbatim transcriptions were made. Thematic analysis was utilized to analyze the qualitative data. Three themes emerged: relationships, lower identity, and professional identity. The study has some implications for policymakers, curriculum designers, educational psychology, and teacher educators.


2021 ◽  
Vol 33 (S1) ◽  
pp. 26-26
Author(s):  
Katarzyna M Lion ◽  
Clarissa Giebel ◽  
Ilaria Chirico ◽  
Monica Cations ◽  
Rabih Chattat ◽  
...  

Background:The number of research projects into residential aged care (RAC) during the COVID-19 pandemic is increasing, however there are limited data on the cross-country comparison of experiences residents living with dementia and their families. Our study aimed to 1) give an overview of the RAC restrictions and changes (visiting policy, governmental & health authorities’ advice, service delivery) implemented during the pandemic in Australia, Italy and the UK and 2) and their impact on people with dementia in RAC facilities and their families.Methods:A total of 56 informal family carers of people with dementia residing in RAC took part in semi- structured interviews over the telephone or via Skype in Australia (n=6), Italy (n=25) and the UK (n=26) between July 2020 and March 2021. The interviews were recorded and translated verbatim. Transcripts were analysed by researchers in each country using thematic analysis, then combined across sites.Results:Inductive thematic analysis identified four overarching themes: 1) Adaptations implemented in RAC facilities due to the COVID-19 pandemic in Australia, Italy and the UK; 2) means of communication between RAC facility personnel, people with dementia living in RAC and family members; 3) impact of the implemented restrictions and changes in care provision due to the COVID-19 pandemic on people with dementia in RAC facilities and 4) impact of the implemented restrictions and changes in care provision due to the COVID-19 pandemic on families of people with dementia in RAC facilities. While differences between countries and facilities were identified, the restrictions and changes within the residential care system impacted families’ well-being, increased their worries about care quality and safety of people with dementia. The consequences of a lack or modified services for people with dementia included noticeable physical and mental health changes. Although the majority of the facilities implemented some form of video-communication between families and residents, those solutions were unable to replace face-to-face contact.Conclusions:These findings demonstrate the need for implementing safe solutions which might facilitate more frequent in-person contact between families and residents with dementia preventing consequences in mental and physical health in both groups.


Dementia ◽  
2020 ◽  
pp. 147130122095467 ◽  
Author(s):  
Lily D Xiao ◽  
Sue McKechnie ◽  
Lesley Jeffers ◽  
Anita De Bellis ◽  
Elizabeth Beattie ◽  
...  

Background In Australia, informal caregivers (family, friends and neighbours) play a crucial role in supporting people with dementia to remain at home. Within the community aged care policy, informal caregivers are acknowledged as assisting with managing care. However, they usually receive very limited dementia care education and training to support them in their role. The World Health Organization (WHO) developed iSupport for Dementia, a comprehensive online dementia education and skill training programme, to address the gap in supporting informal caregivers. Aim The aim of the study was to identify stakeholders’ perspectives regarding adapting the WHO iSupport for use by informal caregivers of people with dementia in Australia. Methods An interpretive description study design was used. Data were collected in focus groups with informal caregivers and care staff of dementia and aged care service providers conducted in May–July 2018. A thematic analysis was utilised to analyse data and identify findings. Results In total, 16 informal caregivers and 20 care staff participated in the study. Five themes were identified. First, informal caregivers perceived iSupport as an opportunity to provide an online one-stop shop to meet their education needs and their needs to manage care services. Second, both informal caregivers and care staff believed that an integrated caregiver network moderated by a health professional was much needed to enable informal caregivers to share learning experiences and enhance social support. Third, both informal caregivers and care staff strongly suggested that dementia and aged care service providers had a role to play in promoting the iSupport. Fourth, informal caregivers were concerned about the time commitment to participate in the iSupport programme. Finally, informal caregivers expected the iSupport to be user-friendly. Conclusion Stakeholders perceived the adaptation of the WHO iSupport in Australia would strengthen informal caregiver education and optimise support for informal caregivers.


Author(s):  
Alison Gregory ◽  
Emma Williamson

AbstractThe COVID-19 pandemic, and associated social restrictions, have amplified women’s experiences of domestic abuse (DA). In usual times, female DA survivors reach out to those around them (friends, family members, neighbors, and colleagues) for support. Accessing of both professional and informal support by survivors has increased during the pandemic. Informal supporters are often deeply invested and immersed in situations of DA because of the closeness of relationships. The accounts of informal supporters are rarely sought, yet these are people who may have a considerable awareness of what is happening. The aim of this study was to explore how the pandemic had impacted people’s assessment of abusive situations and their ability to provide informal support. This paper reports a secondary analysis of qualitative data collected in 2020 in England. The data were gathered in 18 in-depth interviews with people who knew a female friend, relative, neighbor, or colleague who had experienced DA. The age range of participants was 25–69 years, three were men and fifteen were women. A reflexive thematic analysis was carried out. Findings indicated: (i) the pandemic had changed people’s ability to read situations and assess risk (ii) perpetrators were exploiting the pandemic to further abuse (iii) within the context of the pandemic there was additional challenge to offering support (iv) informal supporters found creative ways to remain in-touch and to continue offering support. Further research with informal supporters is needed to ascertain how best to support and equip people, without imposing an impossible burden.


Author(s):  
Bianca Brijnath ◽  
Andrew Simon Gilbert ◽  
Josefine Antoniades ◽  
Samantha Croy ◽  
Mike Kent ◽  
...  

Abstract Background Providers who work closely with ethnic minority people with dementia and their families are pivotal in helping them access services. However, few studies have examined how these providers actually do this work. Using the concept of ‘boundary crossers,’ this article investigates the strategies applied by these providers to facilitate access to dementia services for ethnic minority people with dementia and their families. Methods Between 2017 and 2020, in-depth video-recorded interviews were conducted with 27 health, aged care, and community service providers working with ethnic minority people living with dementia across Australia. Interviews were conducted in language and in English, then translated and transcribed verbatim. The data were analyzed thematically. Results Family and community stigma associated with dementia and extra-familial care were significant barriers to families engaging with services. To overcome these barriers, participants worked at the boundaries of culture and dementia, community and systems, strategically using English and other vernaculars, clinical and cultural terminology, building trust and rapport, and assisting with service navigation to improve access. Concurrently, they were cognizant of familial boundaries and were careful to provide services that were culturally appropriate without supplanting the families’ role. Conclusions In negotiating cultural, social, and professional boundaries, providers undertake multidimensional and complex work that involves education, advocacy, negotiation, navigation, creativity, and emotional engagement. This work is largely under-valued but offers a model of care that facilitates social and community development as well as service integration across health, aged care, and social services.


Author(s):  
Suzanne Huot ◽  
Jaqueline Brower ◽  
Alex Tham ◽  
Atieh Razavi Yekta

Abstract Introduction Immigrants may experience many barriers to social participation within host societies. Immigrants’ integration into Canadian society is supported through government-funded services. Objective In the present study, we explored the perspectives of service providers working in community organizations regarding their role in enabling immigrants’ social participation through occupations in British Columbia, Canada. Method Representatives from twenty different organizations providing services to the community participated in a constructivist qualitative study aiming to uncover aspects shaping opportunities for occupational participation provided for immigrants. Results Drawing on semi-structured interviews and using thematic analysis, we identified three main themes relating to cultivating social occupations, spaces, and networks. Findings illustrate that service providers’ cultivation of these opportunities can support immigrants’ desired social roles and social identities, further enabling their participation in receiving societies. Conclusion Emphasis upon supporting socio-economic integration into society appears to limit a client-centred approach to developing opportunities for social participation through occupation. Implications for occupational therapists and scientists are discussed.


2020 ◽  
Vol 21 (3) ◽  
pp. 286-298 ◽  
Author(s):  
Jennifer Culph ◽  
Lindy Clemson ◽  
Justin Scanlan ◽  
Luke Craven ◽  
Yun-Hee Jeon ◽  
...  

AbstractAims:Implementation of novel interventions occurs within broad organisational contexts, which contain many relationships and moving parts. Efforts need to be made to understand these relationships as they are an important predictor of successful implementation. This study examines the relationships between health professionals involved in the implementation of an evidence-based community program for people with dementia and their carers in Australia, The Care of People with dementia in their Environments program.Methods:This study utilised mixed methods including in-depth interviews and organisational diagrams. Qualitative data from 28 interviews were collected from occupational therapists, nurses and their managers. Recruitment ensured a variety of different organisational contexts were represented. Thematic analysis was used to capture key emergent themes.Findings:The strongest relationships were usually between the occupational therapist and their manager. Strong trusting relationships with managers were instrumental in advocating for the need for reablement programs and the occupational therapy professional role in dementia care. Large teams of occupational therapists were seen to be beneficial in supporting each other in case complexities. Relationships between occupational therapists and nurses were often missing or perceived as weak relationships. A conducive physical environment contributed to stronger more collaborative relationships, where individuals were visible and therefore felt to be more approachable.Conclusion:Our study highlights the additional preparation work that is required of organisations to consider relationships in their strategies for implementation.


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