When More IS Too Much: Compound Caregiving, Barriers to Services, and Service Support for Older Families of People With Disabilities

2021 ◽  
pp. 104438942110484
Author(s):  
Preethy S. Samuel ◽  
Kathryn Wright ◽  
Christina Marscak-Topolewski ◽  
Rosanne DiZazzo-Miller
Keyword(s):  
Quality Of Life ◽  
Support Programs ◽  
Family Quality Of Life ◽  
Cross Sectional ◽  
Service Support ◽  
Family Level ◽  
Older Families ◽  
The Individual ◽  
Barriers To Services

Using the theoretical lens of Family Quality of Life, this study evaluated perceptions of older compound caregivers (i.e., caring for more than one family member) regarding their need for services. Quantitative analysis of cross-sectional data collected from 112 caregivers (50 years and older) demonstrated that compound caregivers faced more barriers in accessing services for their families than noncompound caregivers. Although all caregivers shared similar perceptions on the importance, opportunities, initiative, and attainment of service support for their families, compound caregivers had lower stability and satisfaction than noncompound caregivers. Findings highlight the need to develop support programs to equip older caregivers in managing their daily challenges at the individual and family level.

scholarly journals Health of Aging Families: Comparing Compound and Noncompound Caregivers

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 105-105
Author(s):  
Fei Wang ◽  
Christina Marsack-Topolewski ◽  
Rosanne DiZazzo-Miller ◽  
Preethy Samuel
Keyword(s):  
Family Health ◽  
Family Quality Of Life ◽  
Chi Square ◽  
Cross Sectional ◽  
Web Based ◽  
Individual Level ◽  
The Family ◽  
Family Level ◽  
The Individual

Abstract Providing care to a family member with disabilities takes a toll on the caregiver and the whole family's health. Among aging caregivers, compound caregiving (i.e., caring for additional family members) has become an increasingly common scenario. However, few research studies have focused on compound caregivers. Extant literature describes individual-level outcomes, with sparse knowledge on family-level outcomes. The present study examines the differences in the individual and family health of aging compound and noncompound caregivers, using the family quality of life framework. Web-based cross-sectional data collected from 112 aging caregivers (i.e., over 50 years) was analyzed using chi-square and independent sample t-tests to examine differences between caregivers. Compound caregivers had worse perceptions of personal health (t = -2.96, p = .004, d = -.61) than noncompound caregivers. In terms of family health, although all caregivers shared similar perceptions on the importance, opportunities, initiative, and stability, compound caregivers had lower attainment (t = -2.64, p = .009, d = -.44) and satisfaction (t = -3.90, p < .001, d = -.73) than noncompound caregivers. Findings have practice implications for identifying caregivers' multiple responsibilities. It is necessary to develop individual and family level programs focused on health promotion and caregiving training.

MARITAL SATISFACTION AND QUALITY OF LIFE IN PATIENTS WITH ALCOHOL AND OPIOID DEPENDENCE SYNDROME: A HOSPITAL BASED STUDY

2021 ◽  
pp. 28-29
Author(s):  
Vinay Kumar ◽  
Sunila Rathee ◽  
Sidharth Arya ◽  
Priti Singh ◽  
Rajiv Gupta
Keyword(s):  
Quality Of Life ◽  
Marital Satisfaction ◽  
Alcohol Dependence ◽  
Marital Quality ◽  
Opioid Dependence ◽  
Marital Adjustment ◽  
Satisfaction Scale ◽  
Cross Sectional ◽  
The Individual

Background: Opioid and alcohol consumption is considered as an on-going stressor, not only for the individual, but for family members as well. Spouses are particularly affected given the intimate nature of their relationship and constant exposure to the behaviour of the dependent persons. Quality of life has emerged as an important treatment outcome measure for alcohol and opioid dependence whose natural course comprises of remission and relapse. Objective: To assess the quality of life, marital adjustment and among the patients of alcohol and opioid dependence syndrome. Materials and Methods: This was a cross sectional hospital based study and included 100 treatment seeking population 50 each with alcohol dependence and opioid dependence as per ICD-10 criteria. The participants were purposively selected and informed consent were taken. Research tools were Hindi version of Kansas Marital Satisfaction scale and WHOQOL-BREF. Results: The mean age of the participants were 34.87 +12.48 years. The study did not observe a signicant difference in the overall domains of quality of life. Except the overall health domain, quality of life was more in alcohol subjects as compared to opioid subjects (p < 0.05). There was a signicant difference in the marital quality of life which was lower in opioid dependence than alcohol dependence subjects. Conclusion: Improved marital adjustment are most important part of improved quality of life and its sustainability plays key role in preventing relapse and reaching to the recuperation. Effective management for the alcohol and opioid patients must include the marital intervention to improve the recovery and rehabilitation of the patients.

Pedagogika twórczości w kontekście inkontrologii

2018 ◽  
Vol 63 (1 (247)) ◽  
pp. 141-162
Author(s):  
Małgorzata Franc
Keyword(s):  
Quality Of Life ◽  
Human Being ◽  
Cross Sectional ◽  
Creative Pedagogy ◽  
Cross Sectional Studies ◽  
The Individual ◽  
Creative Tasks

It is a conceptual article. It can, however, contribute to the development of research within the creative influences (the creative impact of interactions) on the shape and quality of life of a pupil/student – cross-sectional studies, stretched in time, the research of a phenomenological nature and for the establishment of a category of reciprocity and its verification. Incontrology concepts seem to coincide with the idea of pedagogy of creativity, which emphasises the balanced, interdisciplinary progress of the pupil. The pedagogy of creative output is particularly focused on the possibilities of the development and education of the creative dispositions of the pupil, as well as forming the creative posture, creative lifestyle, a transgressive, innovative man, who is willing to undertake creative tasks within the individual, social and global dimensions. Incontrology as a theory of meeting, for example, of a human being with another human being, a tutor with a pupil, seems to have a precise view on the creative pedagogy vision, including the creativity education and relations functioning within it. It also allows identification of some shortcomings within the pedagogy of creativity and its practice. The value of this article is the analysis of selected coinciding ideas of incontrology and pedagogy of creativity and showing the shortcomings of creativity education.

scholarly journals Family perceptions of intellectual disability: Understanding and support in Dar es Salaam

2012 ◽  
Vol 1 (1) ◽  
Author(s):  
Heather M. Aldersey
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Family Support ◽  
Family Members ◽  
Dar Es Salaam ◽  
Family Quality Of Life ◽  
Adults With Intellectual Disabilities ◽  
Family Perceptions ◽  
The Individual

When attempting to understand the construct of intellectual disability in different contexts, speaking to family members in addition to the individual with the disability may provide new insight about understandings of and responses to intellectual disability in society and may help to identify the forms of support that are available or needed to ensure the quality of life of people with disabilities. This article outlines and discusses interviews that were conducted in Dar es Salaam, Tanzania, with family members of children and adults with intellectual disabilities. These interviews explore how families came to understand that their child had an intellectual disability; the availability of family support; and family hopes and dreams for the future, and were a part of a wider exploratory study that gathered insight from individuals with disabilities, families, and other providers of support to explore understandings and perceptions of disability in Dar es Salaam. Understanding family experiences will help researchers, policy makers, non-governmental organisations, and others to identify family strengths and family support needs which can ultimately improve family quality of life and the quality of life of the member with a disability.

scholarly journals Probable Bruxism and Oral Health-Related Quality of Life

2021 ◽  
pp. 416-427
Author(s):  
Celia Elena del Perpetuo Socorro Mendiburu-Zavala ◽  
Aourumy Alessandra Naal-Canto ◽  
Ricardo Peñaloza-Cuevas ◽  
Josué Carrillo Mendiburu
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
The Individual ◽  
The University ◽  
The Relationship

Bruxism is the habit of squeezing and grinding the dental organs (ODs), with dental contacts that have no purpose. The Oral Health-Related Quality of Life (OHRQoL) is defined as a multidimensional aspect that reflects the comfort of the individual in relation to their physiological and psychological functions, of the state of oral health. To determine the relationship between probable bruxism and OHRQoL in patients who came for care at the University Unit of Social Insertion (UUIS) of the Autonomous University of Yucatán (UADY), México from September 2019 to January 2020. Observational, analytical of case controls and cross-sectional. Two instruments were applied to 70 patients: the OHIP-EE-14 (validated by Castrejón-Pérez R.C., Borges-Yañez S.A.) and a questionnaire prepared by Mendiburu-Zavala C., based on Ordoñez Plaza et al., González-Emsoto et al., and De La Hoz-Aizpurua et al for the diagnosis of probable bruxism. Descriptive and inferential statistics were used. 47.1% (n=33) did present probable bruxism (CPB) and 52.9% (n=37) did not (SPB). The most frequent age group was 18-35 years old, with 67.2% (n=47), 34.3% (n=24) CPB. The most frequent circadian manifestation was waking with 49% (n=16). Those of CPB, a mean of 20.45±7.95 was obtained in the OHIP-EE-14 for the OHRQoL and SPB score, the mean was 7.81±4.84.  There are statistically significant differences between CPB and SPB patients (p<.001). The probable bruxism does affect the OHRQoL  level.

scholarly journals LONG OF HEMODIALYSIS THERAPY WITH QUALITY LIFE PATIENT FAILS OF KIDNEY CHRONIC IN RS GATOEL MOJOKERTO: STUDY CROSS-SECTIONAL

2017 ◽  
Vol 1 (1) ◽  
pp. 56-64
Author(s):  
Arif Wicaksono ◽  
Muhammad Sajidin
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Cross Sectional ◽  
Quality Life ◽  
Cross Sectional Design ◽  
The Individual ◽  
The Relationship

Hemodialysis therapy of patients with chronic kidney disease can changes the patients physically, psychological, social and economics because they have to deal with it for the rest of their life. This can affect the quality of life of the patients because of the long-term of hemodialysis therapy, this is one of the factors that affect the quality of life of the patients with chronic kidney disease. Quality of life is focused on the assessment of the individual against conditions acceptance. Each individual takes different phases to accept the condition. The purposes of the study were to determine if the relationship between the duration of hemodialysis and quality of life of the patients with chronic kidney disease at Gatoel Hospital Mojokerto. This research used cross-sectional design. The patient's population with chronic kidney disease undergoing hemodialysis is 150 people. The research sample is drawn using sampling techniques with the type of nonprobability purposive sampling with 130 people as a sample. Data obtained from questionnaires KDQoL 36. The result using Spearman rho test using SPSS V.16 shows p < α (0,006 < 0,05). H0 rejected, this means that there is a relationship between the duration of hemodialysis and quality of life with chronic kidney disease at Gatoel Hospital Mojokerto. The quality of life of the patients fluctuated based on the stage adaptation of the hemodialysis and disease. However, most patients with the duration of hemodialysis for more than 12 months had a sufficient quality of life and their therapy are already familiar with the symptoms and complications, but there are other factors that affect the quality of life such as gender, marital status, and education level. Patients are also expected to cooperate in what to do and not to do to improve the quality of life of the patients.

scholarly journals LONG OF HEMODIALYSIS THERAPY WITH QUALITY LIFE PATIENT FAILS OF KIDNEY CHRONIC IN RS GATOEL MOJOKERTO: STUDY CROSS-SECTIONAL

2017 ◽  
Vol 1 (1) ◽  
pp. 56-64
Author(s):  
Arif Wicaksono ◽  
Muhammad Sajidin
Keyword(s):  
Quality Of Life ◽  
Chronic Kidney Disease ◽  
Kidney Disease ◽  
Cross Sectional ◽  
Quality Life ◽  
Cross Sectional Design ◽  
The Individual ◽  
The Relationship

Hemodialysis therapy of patients with chronic kidney disease can changes the patients physically, psychological, social and economics because they have to deal with it for the rest of their life. This can affect the quality of life of the patients because of the long-term of hemodialysis therapy, this is one of the factors that affect the quality of life of the patients with chronic kidney disease. Quality of life is focused on the assessment of the individual against conditions acceptance. Each individual takes different phases to accept the condition. The purposes of the study were to determine if the relationship between the duration of hemodialysis and quality of life of the patients with chronic kidney disease at Gatoel Hospital Mojokerto. This research used cross-sectional design. The patient's population with chronic kidney disease undergoing hemodialysis is 150 people. The research sample is drawn using sampling techniques with the type of nonprobability purposive sampling with 130 people as a sample. Data obtained from questionnaires KDQoL 36. The result using Spearman rho test using SPSS V.16 shows p < α (0,006 < 0,05). H0 rejected, this means that there is a relationship between the duration of hemodialysis and quality of life with chronic kidney disease at Gatoel Hospital Mojokerto. The quality of life of the patients fluctuated based on the stage adaptation of the hemodialysis and disease. However, most patients with the duration of hemodialysis for more than 12 months had a sufficient quality of life and their therapy are already familiar with the symptoms and complications, but there are other factors that affect the quality of life such as gender, marital status, and education level. Patients are also expected to cooperate in what to do and not to do to improve the quality of life of the patients.

scholarly journals Comparing the Quality of Life of Patients Requesting Dental Implants Before and After Implant

2017 ◽  
Vol 11 (1) ◽  
pp. 485-491 ◽  
Author(s):  
Naser Sargolzaie ◽  
Amir Moeintaghavi ◽  
Hamid Shojaie
Keyword(s):  
Quality Of Life ◽  
Dental Implants ◽  
Daily Practice ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Working At Home ◽  
Before And After ◽  
And Gender ◽  
The Individual

Background and Objectives: Tooth loss is a serious life event that impairs two important functions, namely, eating and speaking, and has significant side effects on different aspects of quality of life. These effects are internalized by the individual. The present study aimed to compare the quality of life (QOL) of patients requesting dental implants before and after implant. Materials and Methods: This analytical cross-sectional study was conducted on patients referred to the Mashhad faculty of Dentistry and private clinics with dental implants in 2015. Patient Quality Of Life (QOL) was assessed using the Oral Impact on Daily Practice (OIDP) questionnaire. Data were analyzed using SPSS software. Results: In this study, the most common problems reported by patients were eating (78%), smiling, laughing, and embarrassment (53%) before surgery. The quality of life associated with eating; speaking clearly; clean teeth or dentures; light physical activities, such as working at home, going out to work or meeting others; smiling; laughing; showing teeth without discomfort and embarrassment; emotional conditions, such as becoming upset quicker than usual, enjoying communication with others (i.e., friends, relatives and neighbors); and job-related activities significantly increased after surgery, but QOL associated with the amount of sleep and resting did not improve. No significant association was noted between quality of life after implantation and place of residence, education and gender. Conclusion: In this study, implants had a favorable impact on a patient’s quality of life.

Association between olfactory function and quality of life in patients with olfactory disorders: a multicenter study in over 760 participants

2021 ◽  
Vol 0 (0) ◽  
pp. 0-0
Author(s):  
L-q. Zou ◽  
T. Hummel ◽  
M.S. Otte ◽  
T. Bitter ◽  
G. Besser ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Disease Duration ◽  
Olfactory Dysfunction ◽  
Olfactory Function ◽  
Self Assessment ◽  
Cross Sectional ◽  
Visual Analog Scales ◽  
Related Quality ◽  
The Individual

BACKGROUND: This cross-sectional, multi-centric study aimed to investigate the differences in quality of life among patients with olfactory dysfunction (OD) of different origin, and to identify factors associated with olfactory-related quality of life (QOL). METHODS: Seven hundred sixty-three adults were recruited from 8 Smell & Taste clinics in Germany, Switzerland, and Austria. Olfactory-related QOL was assessed by the Questionnaire of Olfactory Disorders (QOD). Olfactory function was assessed with the “Sniffin’ Sticks” test; self-assessment was performed with visual analog scales. RESULTS: Patients with post-infectious and post-traumatic OD showed poorer olfactory-related QOL than patients with sinonasal and idiopathic OD. The olfactory-related QOL was positively associated with the Sniffin’ Sticks test score, self-assessed olfactory function, disease duration, and age, with younger olfactory dysfunction patients showing lower QOL. Female patients presented with poorer olfactory-related QOL. In addition, the results showed that self-assessment of olfactory function explained more of the variance in olfactory-related QOL than olfactory function evaluated by the Sniffin’ Sticks test. CONCLUSIONS: In addition to the psychophysical testing results, several factors such as disease cause, disease duration, sex, or self- assessed olfactory dysfunction should be taken into account when assessing the individual severity of the smell loss.

scholarly journals Quality of life of women from families of martyred individuals in the Kurdistan region of Iraq as a conflict area in the Middle East

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Hamdia Mirkhan Ahmed
Keyword(s):  
Quality Of Life ◽  
Psychological Health ◽  
Medical Center ◽  
Cross Sectional Study ◽  
Kurdistan Region ◽  
Chi Square ◽  
Cross Sectional ◽  
Kurdish Women ◽  
The Individual

Abstract Background Quality of life (QOL) research develops data and insight into issues that pertain not only to the individual, but that can also apply to the population as a whole. This study aimed to analyze the QOL of Kurdish women from families of martyred individuals in the Kurdistan region of Iraq. Methods A cross-sectional study of 380 women from families of martyred individuals was conducted. All women were patients at the Medical Center of Martyr Families in Erbil City from January 2018 to April 2019. Data were collected through interviews and the WHOQOL-BREF scale was used to measure QOL. The women’s QOL scores were divided into four categories (i.e., quartiles): 1st, 2nd, 3rd and 4th quartile. Kruskal-Wallis and Chi-Square tests were used for data Analysis. Results The women’s QOL scores fell into the following quartiles: Overall QOL and General Health (n = 66.6%) in the 1st quartile, Physical and Psychological Health (n = 56.9%) in the 2nd quartile, Social Relationships (n = 47.9%) in the 3rd quartile, Environmental health (n = 85.6%) in the 2nd and 3rd quartile. The total QOL of more than half (n = 52.1%) of the women studied were in 1st and 2nd quartiles. Conclusion Women from families of martyred individuals were not satisfied with their QOL, especially in terms of Physical and Psychological Domains. International political and humanitarian actions are needed to reduce the destructive consequences of war and conflict on these suffering women.

Sign in / Sign up

Export Citation Format

Share Document