scholarly journals Cómo implementar el modelo centrado en la familia en atención temprana.

2017 ◽  
Vol 33 (3) ◽  
pp. 641 ◽  
Author(s):  
Mariona Dalmau-Montala ◽  
Anna Balcells-Balcells ◽  
Climent Giné Giné ◽  
Margarita Cañadas Pérez ◽  
Olga Casas Masjoan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Early Childhood Intervention ◽  
Font Size ◽  
Black Line ◽  
The Family ◽  
Childhood Intervention ◽  
Family Centered ◽  
Qualitative Analyses

<p style="margin: 0cm 0cm 0pt; text-align: justify; line-height: 150%; -ms-text-justify: inter-ideograph;"><span style="color: black; line-height: 150%; font-family: 'Times New Roman',serif; font-size: 12pt; mso-ansi-language: EN-US;" lang="EN-US">From the results of a research aimed at improving the quality of life of families with a child with intellectual disability, the purpose of this paper is to provide a methodology for the implementation of the family-centered model in early childhood intervention centers in our country. Quantitative and qualitative analyses of the collected data allow us to systematize the steps or stages that would be necessary to provide professionals and families in early intervention centers with useful tools to empower the families and to enhance the children’s development. This article represents another step further from the proposals made by other researchers in other countries with different traditions and culture in the field of early intervention, and intends to reflect the characteristics of our country in terms of the history and the path of early intervention in recent decades.</span></p>

Child, Family, and Early Intervention Characteristics Related to Family Quality of Life in Spain

2018 ◽  
Vol 41 (1) ◽  
pp. 44-61 ◽  
Author(s):  
Pau García-Grau ◽  
R. A. McWilliam ◽  
Gabriel Martínez-Rico ◽  
Catalina P. Morales-Murillo
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Implementation Process ◽  
Family Quality Of Life ◽  
Child Functioning ◽  
Individual Family ◽  
Family Centeredness ◽  
Families With Children ◽  
Family Centered

Family quality of life (FQoL) is considered one of the aims of early intervention (EI) services and a good indicator of service quality. Families were recruited from EI centers in 12 of 17 communities (states) in Spain. This study describes the FQoL of 250 Spanish families with children aged 0 to 6 years in EI services during a family-centered implementation process. We used an EI-specific FQoL scale that includes families’ perception of their child’s functioning as one factor. We also describe the relationships among individual, family, and service variables as well as FQoL. Type of disability, socioeconomic status, and family-centered practices impacted Child Functioning, Overall Life Situation, and Access to Information and Services factors, respectively. Fewer number of professionals involved was related with greater perception of child’s functionality. Family-centeredness, type of family, and type of disability were the most influencing variables for the Total score. Implications for practice are discussed.

scholarly journals Menores y SAAC. Visión comprensiva de las familias y del papel de los profesionales

2017 ◽  
Vol 33 (2) ◽  
pp. 334 ◽  
Author(s):  
M. Pilar García ◽  
Dolores Madrid ◽  
Rafael Galante
Keyword(s):  
Quality Of Life ◽  
Data Collection ◽  
Intervention Program ◽  
Font Size ◽  
Alternative Communication ◽  
Early Intervention Program ◽  
Whole Process ◽  
Communication Problems ◽  
The Family

<span style="font-family: 'Garamond',serif; font-size: 8pt; mso-bidi-font-size: 10.0pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: ES-TRAD; mso-fareast-language: AR-SA; mso-bidi-language: AR-SA;" lang="ES-TRAD">The present study accounts for the experience conducted with eight children, their families and the professionals in charge of the Early Intervention Program (EI) working with them during the whole process of learning, training and generalizing of an Augmentative or Alternative Communication System (AACs) used to try and </span><span style="font-family: 'Garamond',serif; font-size: 8pt; mso-bidi-font-size: 10.0pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: EN-SG; mso-fareast-language: AR-SA; mso-bidi-language: AR-SA;" lang="EN-SG">find</span><span style="font-family: 'Garamond',serif; font-size: 8pt; mso-bidi-font-size: 10.0pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-ansi-language: ES-TRAD; mso-fareast-language: AR-SA; mso-bidi-language: AR-SA;" lang="ES-TRAD"> resources that will improve the quality of life of these participants. A qualitative paradigm has been applied and the data collection has been performed using focal groups during five one-hour-and-a-halves to two-hour sessions. Results obtained show the emotions and feelings arising within the family circles when other communication problems between the different environments where these children interact are added up to the functional diversity; professional experts in many contexts need to provide resources to respond to these necessities and requests originated by these children and their families. The resulting data underline the importance of the intervention used to enhance the attribution of competencies that capacitates families and neutralizes the attributions generating stress situations to finally find the most autonomous solutions to these issues. Reflections provided by professionals show the importance of knowing better the necessities of these children and their families for them to provide an efficient collaboration during the resource-finding process.</span>

scholarly journals Effect of Family-centered Empowerment Model on Quality of Life of Patients with Hypertension

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Mahsa Asadollahi Hamedani ◽  
Alireza Salar ◽  
Fatihe Kermansaravi
Keyword(s):  
Quality Of Life ◽  
Chronic Diseases ◽  
Repeated Measures ◽  
Hypertensive Patients ◽  
Repeated Measures Analysis ◽  
Significant Difference ◽  
The Family ◽  
Empowerment Model ◽  
Family Centered

Background: Nowadays, the high prevalence of hypertension and its serious complications for affected patients have made this disease a major health issue worldwide. Hypertension, like other chronic diseases, reduces the patients’ quality of life. Maintaining and improving their lifestyles requires the serious support of families. Objectives: This study aimed to explore the effect of the family-centered empowerment model on the quality of life of patients with hypertension. Methods: This clinical trial was performed on 70 hypertensive patients who were referred to two comprehensive health centers in Zahedan University of Medical Sciences in Zahedan, southeastern Iran, in 2020. The participants were selected and randomly allocated based on the inclusion criteria to the intervention (n = 35) and control (n = 35) groups using the consort. The participants in the intervention group received training in four 60-min sessions individually based on the family empowerment model. To collect data, a personal information form and the Quality of Life Questionnaire for hypertensive patients were used. The questionnaire was completed before the intervention and one and three months after the intervention by a self-report method. The collected data were analyzed by SPSS-22 using the independent samples t test, chi-square test, and repeated-measures analysis of variance. Results: The results of repeated-measures analysis of variance regarding the effect of time and group on the quality of life showed a statistically significant difference in the second and third phases between the two groups. In other words, the two variables of intervention and time affected the mean score of quality of life, and a statistically significant difference was observed in the measured time intervals (P < 0.001). Conclusions: This study showed that implementing the family-centered empowerment model improves the quality of life of patients with hypertension. Therefore, we recommend employing this method by nurses to engage the patients with chronic diseases and their families in the process of treatment.

scholarly journals The Effect of Education with a Family-Centered and Client-Centered Approach on the Quality of Life in Patients with Stoma

2019 ◽  
Vol 9 (4) ◽  
pp. 225-230
Author(s):  
Fariba NasiriZiba ◽  
Shadie Kanani
Keyword(s):  
Quality Of Life ◽  
Cause Of Death ◽  
Life Quality ◽  
Family Care ◽  
T Test ◽  
Training Procedure ◽  
Significant Difference ◽  
The Family ◽  
Family Centered

Introduction:Colorectal cancer is known as the third leading cause of death from cancer in the world and the second cause of death in developing countries. Family care can positively affect the patient's general health system. The present study was conducted to determine and compare the effect of family-centered and client-centered training approaches on the life quality of individuals with digestive ostomy. Methods: This is a semi-experimental study conducted on 60 individuals. The individuals participating in the present study were chosen from either those with digestive ostomy or their attendants. The participants fulfilled the requirements (criteria) for entering the present study. For conducting the training procedure, both groups received family-centered or client-centered training. Two months later, the quality of life of the individuals with digestive ostomy was measured once more. The data were then analyzed in SPSS ver.21 by using chi-squared test, paired t-test, and independent t-test. Results: According to the findings of the present study, there is no significant difference between the family-centered and the client-centered groups in terms of demographic features. By investigating the mean changes of both groups, There was a significant difference between quality of life score and spiritual-psychological aspect of scores before and after the intervention in the family-centered group. Conclusion: The findings of the present study showed that family-centered education can increase the quality of life for people with gastrointestinal ostomy. This study concluded that family-centered education can be considered an effective intervention in people with gastrointestinal ostomy.

scholarly journals “Her Illness Is a Project We Can Work on Together”

2013 ◽  
Vol 15 (3) ◽  
pp. 130-136 ◽  
Author(s):  
David Rintell ◽  
Richard Melito
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Crisis Intervention ◽  
Family Members ◽  
The Family ◽  
New Diagnosis ◽  
The Impact ◽  
Family Centered

This article presents a model for intervening with families that are addressing a new diagnosis of multiple sclerosis (MS) in one member. The model is collaborative, integrative, and family-centered. It involves both working with the family collaboratively and providing strategies to promote greater collaboration within the family. The model integrates elements of crisis intervention theory, psycho-education, and family-centered approaches. The model was developed with families addressing MS, and was piloted with three families. The intervention was found to improve family members' ability to collaborate with each other. Such increased collaboration may enhance the family's ability to manage long-term illness more effectively, help the family address the impact of the illness on all family members, and generally improve the family's quality of life.

scholarly journals Deaf and Hard of Hearing Early Intervention: Perceptions of Family-Centered Practice

2020 ◽  
pp. 105381512096254
Author(s):  
Victoria Stewart ◽  
Maddy Slattery ◽  
Jen McKee
Keyword(s):  
Early Intervention ◽  
Hard Of Hearing ◽  
General Information ◽  
Evidence Based ◽  
Cross Sectional ◽  
Intervention Service ◽  
The Family ◽  
Family Centered

This cross-sectional quantitative study investigated parents’ perceptions of the quality of family-centered practice in an early intervention service for young children who are deaf or hard of hearing through the use of the Measures of Processes of Care (MPOC-56). The results indicated that the majority of families accessing the service were satisfied with the family-centered practices they were receiving. Consistent with previous studies in different disability settings, families were least satisfied with the provision of general information regarding the child’s disability, identifying further access to unbiased information and resources is needed. This highlighted a tension in the role of organizations operating within individualized funding models in regard to who is responsible for the dissemination of reliable and evidence-based general information. As the MPOC-56 has not been used in deaf or hard of hearing populations previously, this study found it was an appropriate measure for caregiver perceptions of family-centered practice within this population.

HUBUNGAN PERAN FAMILY CAREGIVER TERHADAP QUALITAS HIDUP LANSIA

2019 ◽  
Vol 11 (1) ◽  
pp. 51-56
Author(s):  
RIANI PRADARA JATI ◽  
Sekar Farah Nabila
Keyword(s):  
Quality Of Life ◽  
Family Caregiver ◽  
Random Sampling ◽  
Simple Random Sampling ◽  
The Elderly ◽  
Chi Square ◽  
The Poor ◽  
The Family

  Penempatan peran yang baik bagi Family Caregiver sangatlah membantu lansia dalam meningkatkah qualitas hidupnya, meningkatkan motivasi dalam menjalankan hidup Penelitian ini bertujuan Mengetahui hubungan peran Family Caregiver dalam pemenuhan qualitas hidup bagi lansia di Kelurahan Langenharjo Kabupaten Kendal. DesainPenelitianDeskriptifKorelasional menggunakan pendekatan Krosectional,tehnikSamplingStratified Simple Random Sampling dengan karakteristik heterogen, dari populasi mempunyai hak yang sama untuk diseleksi sebagai sampel teknik undianPengambilan data dengan menggunakan kuesioner yang telah diuji validitas dan reliabilitasnya. Uji statistik Chi-square, dengan taraf signifikasi 5%jumlah sampel pada penelitian ini 70 sampel pada Family Caregiver dari 213 populasi yang ada. Hasil penelitian dari 70 responden didapatkan Peran Family Caregiver tidak baik dengan qualitas hidup tidak baik 33 (47,1%), sedangkan Peran Family Caregiver kurang baik dengan qualitas hidup lansia baik 3 (4,3%). Untuk distribusi Peran Family Caregiver kurang baik dengan qualitas hidup lansia tidak baik sebanyak 6 responden (8,6%) sedangkan untuk distribusi Peran Family Caregiver kurang baik dengan qualitas hidup lansia baik sebanyak 23 responden (32,9%). Terakhir, untuk distribusi Peran Family Caregiver baik dengan qualitas hidup lansia tidak baik didapatkan hasil 2 responden (2, 9%) sedangkan untuk distribusi Peran Family Caregiver baik dengan qualitas hidup lansia baik didapatkan hasil 3 responden (4,3%)Menunjukkan nilai ρ value 0,001 (ρ < 0,05) berarti ada hubungan antara dukungan keluarga dengan kepatuhan lansia dalam keikutsertaan posyandu lansia. Disarankan kepada semua Family Cregiver lansia untuk mampu memahami pentingnya perhatian, dukungan bagi lansia dalammeningkatkan qualitas hidup yang lebih baik bagi lansia.   Kata kunci : Peran family caregiver, qualitas hidup, lansia.   ABSTRACT Placement of a good role for Family Caregiver is very helpful for the elderly to improve their quality of life, increase motivation in living life Research Objective: To know the relationship between the role of Family Caregiver in fulfilling quality of life for the elderly in Langenharjo Village, Kendal Regency. Descriptive Correlational Research Design uses a cross sectional approach, Sampling Stratified Simple Random Sampling technique with heterogeneous characteristics, from the population has the same right to be selected as a sample lottery technique Retrieving data using a questionnaire that has been tested for validity and reliability. Test Chi-square statistics, with a significance level of 5% the number of samples in this study 70 samples on the Family Caregiver from 213 populations. Results of the Study Of 70 respondents found the role of Family Caregiver was not good with poor quality of life 33 (47.1%) , while the role of the Family Caregiver is not good with the quality of life of a good elderly 3 (4.3%). For the distribution of the role of Family Caregiver is not good with the quality of life of the poor family as many as 6 respondents (8.6%) while for the distribution of the Role of Family Caregiver is not good with the quality of life of good elderly as many as 23 respondents (32.9%). Finally, the distribution of the Role of Family Caregiver with good quality of life for the poor is obtained by 2 respondents (2, 9%), while the distribution of the Role of Family Caregiver with good quality of life for the elderly is obtained by 3 respondents (4.3%). 0.001 (ρ <0.05) means that there is a relationship between family support and the compliance of the elderly in the participation of the elderly posyandu. It is recommended to all elderly Cregiver families to be able to understand the importance of attention, support for the elderly in improving the quality of life better for the elderly   Keywords: Role of Family Caregiver, Quality of Life, Elderly

Child Diagnosis of Autism - How It Can Change the Family Life

2017 ◽  
Vol 5 (1) ◽  
pp. 498
Author(s):  
Maria Stănescu
Keyword(s):  
Early Intervention ◽  
Family Life ◽  
Social Life ◽  
Decisive Role ◽  
Autistic Children ◽  
Child Behaviors ◽  
High Quality ◽  
Child Diagnosis ◽  
The Family

The article is about the role of the family in the education and formation of children and, especially, in the life and development of autistic children. It describes the problems their family is facing and the need for counseling to parents with autistic children. The reaction to finding the diagnosis of autism varies from one family to another and may encounter a large variety: from disbelief, anger, guilt, helplessness, devastation, surprise, or even rejection of the child, to understanding and relief when finally the parents have an explanation for their child behaviors. Early intervention is important in psychological sustaining of the parent, as parent involvement in the recovery of the child with autism has a determinant role in his development and in ensuring a high quality of life of the child and the life of the hole family. The response to a child's autism diagnosis varies from one family to another. The family goes through a variety of disbelief, anger, guilt, helplessness, devastation, surprise, or even rejection of the child, to understanding and relief. Early intervention is very important in the psychological support of the parent. Because any change disturbs the family equilibrium. A diagnosis of autism changes not only the life of the diagnosed child, but also the life of family members. All the resources are focused on the need of the child. Although each parent is different, after diagnosing the child with autism, all parents are overwhelmed by confusion, shock and denial. Parents' feelings can be influenced by how their children's situation affects different aspects of life - it has an impact on service, on social life and all their personal life. If we look at the family as a system and when a disturbing factor appears, all parts of the system are affected. The involvement of parents in the recovery of the child with autism has a decisive role in its development and in ensuring a high quality of child's life and family life.

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