Quality of Life in Patients With Velopharyngeal Insufficiency in West China

2021 ◽  
pp. 105566562110341
Author(s):  
Lidan Lu ◽  
Aipiziguli Yakupu ◽  
Yanhui Wu ◽  
Xiangnan Li ◽  
Pengxin Zhang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Mixed Model ◽  
Linear Mixed Model ◽  
Cleft Lip And Palate ◽  
Generalized Linear Mixed Model ◽  
Velopharyngeal Insufficiency ◽  
Caregiver Report

Objective This study aimed to investigate the quality of life (QOL) of patients with cleft lip and palate and velopharyngeal insufficiency (VPI) in relation to sex, age, age at initial cleft lip surgery, and age at initial cleft palate surgery. Design This is a cross-sectional study. Setting The study was conducted in a tertiary medical center. Participants The participants were caregivers of 72 patients with cleft lip and palate and VPI aged 4 to 20 years. Main Outcome Measure(s) Participants completed the Chinese version of the caregiver report of the VPI Effects on Life Outcomes (VELO) questionnaire. The Mann–Whitney U test was used to evaluate the patients’ sex, age, age at initial cleft lip repair, and age at initial cleft palate repair in relation to VELO total score and domains. Spearman correlation analysis was completed including all study variables. Associations between the study variables and the VELO total score were tested using a generalized linear mixed model. Results In the univariate analysis, patients’ age and age at initial cleft palate surgery influenced the QOL of patients with VPI. There were no differences in the VELO total score or domains based on sex or age at first cleft lip surgery. In the generalized linear mixed model, patients older than 8 years had higher VELO total scores. Conclusions By caregiver report, the QOL of patients under age 8 years with VPI was lower than older patients. In addition, the caregiver impact domain was higher for parents of children who had their initial cleft palate surgery at age 2 years or younger.

scholarly journals Influence of Sleep Characteristic Changes on Nurses’ Quality of Life during Their Transition to Practice: A Prospective Cohort Study

2022 ◽  
Vol 19 (1) ◽  
pp. 573
Author(s):  
Kyoungja Kim ◽  
Youngjin Lee
Keyword(s):  
Quality Of Life ◽  
Mixed Model ◽  
Linear Mixed Model ◽  
Generalized Linear Mixed Model ◽  
Transition To Practice ◽  
Quality Of Sleep ◽  
Graduate Nurses ◽  
New Graduate Nurses ◽  
New Graduate

Aim: To explore the effect of changes in sleep characteristics on changes in quality of life during the transition period of new graduate nurses. Background: Sleep problems among nurses are associated with negative physical and psychological consequences. Methods: This prospective cohort study was conducted at a tertiary hospital in South Korea. Participants included 88 newly graduated nurses. Data were collected twice, prior to shift work and after 4 months of working as a nurse, via online structured self-report questionnaires created using Survey Monkey from March 2018 to February 2020. A generalized linear mixed model was used to analyze the influence of changes in sleep characteristics on quality of life. Results: A generalized linear mixed model showed that changes in the subjective quality of sleep, subjective health perception, and daytime dysfunction influenced quality of life changes during the transition. This implies that deterioration already existed. From their undergraduate period to four months after they began working as nurses, a significant decrease was observed in the quality of sleep. Participants’ quality of life significantly decreased. Conclusions: Changes in the quality of life of new graduate nurses may show deterioration with a significant drop in subjective sleep quality. Institutions should improve existing work adaptation programs provided during new graduate nurses’ transition to practice by including information on changes in nurses’ health caused by changes in sleep characteristics and sleep quality.

scholarly journals Periodontal Findings in Children with Cleft Lip and Palate: A Systematic Review

2021 ◽  
pp. 525-535
Author(s):  
Dalal Jumah Alturaif ◽  
Laila Mohammed Alanazi ◽  
Norah Ali Al-Yousef ◽  
Hadeel Ali Aleiydi ◽  
Afnan Ahmed Altowyrqi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cleft Palate ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Periodontal Pathogens ◽  
Oral Clefts ◽  
Pubmed Central ◽  
Search Terms ◽  
Long Time

A cleft lip occurs when the tissues that compose the lip fail to fuse together before delivery. There is a gap in the upper lip in the case of a cleft lip. An affected child may also have a cleft palate if they have a cleft lip. The condition is also sometimes diagnosed after birth. A cleft palate sometimes takes a long time to be diagnosed (such as sub mucous cleft palates and bifid uvulas). The surgical repair of a child's face can improve their breathing, hearing, and even their speech and language skills. Using the Medline and PubMed Central databases, this study examined periodontal findings in children with clefted lip and palate using a systematic literature search in English. All search terms were in English and were applicable to the articles related to periodontal findings in children with cleft lip and palate. To electronically extract data from Medline and PubMed Central, an electronic form is designed by the principal investigator. Upon screening using filters, inclusion and exclusion criteria, around 6 articles were selected related in this study. These articles were systematically reviewed and analyzed using PRISMA.  When a child has a cleft lip or palate, it affects oral hygiene and the amount of periodontal pathogens in the oral biofilm. In the literature, there is a lack of studies which utilize validated, reliable measures to determine how individuals with oral clefts perceive their quality of life. It will be important to perform additional studies that utilize specific tools for assessing Quality of Life in patients with oral clefts with larger samples in hopes of better understanding their Quality of Life.

scholarly journals STIGMATIZATION AND QUALITY OF LIFE OF MALE-TO-FEMALE- TRANSGENDER UNIVERSITY STUDENTS IN THE NORTHEAST OF THAILAND

2021 ◽  
Vol 56 (5) ◽  
pp. 476-484
Author(s):  
Phattarapon Ponprisan ◽  
Wongsa Loahasiriwong ◽  
Thitima Nutrawong ◽  
Nopparat Senahad
Keyword(s):  
Quality Of Life ◽  
University Students ◽  
Mixed Model ◽  
Linear Mixed Model ◽  
Generalized Linear Mixed Model ◽  
Cross Sectional ◽  
Factors Associated ◽  
Transgender Students ◽  
Male To Female

Transgender students are vulnerable to mental and physical health problems, impacting their quality of life (QOL). This research aims to study the stigma influence on the QOL of male-to-female transgender university students in Northeastern Thailand. This cross-sectional study was conducted among 765 male-to-female transgender students selected from 17 universities of the Northeast of Thailand using a multistage random sampling to respond to a self-administered structured questionnaire. The generalized linear mixed model (GLMM) was performed to identify factors associated with quality of life when controlling the effects of covariates, presenting adjusted OR and 95% confidence intervals. Among 765 male-to-female transgender students, more than half of them had good QOL (52.81%; 95%CI = 49.25-56.33). The generalized linear mixed model (GLMM) observed that factors associated with good QOL including moderate-low stigmatization (adj.OR=6.39; 95%CI = 2.72-15.02), good health behaviors (adj.OR=1.88; 95%1.47-2.86), no stress problem (adj.OR=1.81; 95%CI = 1.30-2.51), good self-acceptance (adj.OR=1.67; 95%CI = 1.37-2.03) and good social environment (adj.OR=1.41; 95%CI = 1.13-1.76). These findings could provide data to support evidence for family, community, societal and relevant sectors under the Ministry of Public Health and Ministry of Education and local administration organizations to promote the quality of life in transgender people effectively.

Oral Health-Related Quality of Life Among Sudanese Children Treated for Cleft Lip and Palate

2021 ◽  
pp. 105566562098769
Author(s):  
Mecheala Abbas Ali ◽  
Alwaleed Fadul Nasir ◽  
Shaza K. Abass
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Control Group ◽  
Arabic Version ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Objective: This study compared the oral health-related quality of life (OHRQoL) among children with a cleft lip with or without a cleft palate (CL±P) and a group of their peers. The reliability of the Arabic version of the Child Oral Health Impact Profile Questionnaire (COHIP) was also assessed. Design: A cross-sectional study. Settings: Cleft clinic in a private dental college in Omdurman City, Sudan. Patients: In all, 75 children (mean age 11.3 ± 2.5 years) with a history of CL±P and a group of 150 school children without CL±P (mean age 11.4 ± 2.6 years). Main Outcome Measures: Overall and subscale scores on the Arabic version of the COHIP. Results: Test–retest reliability of COHIP in Arabic was high with an interclass correlation coefficient >0.8. Cronbach α value internal consistency was 0.8 for the total scale and between 0.7 and 0.8 for the subscales. The COHIP score was 89.41 ± 19.97 in children with CL±P and 122.82 ± 9.45 for the control group. Children with CL±P had significantly lower scores on the overall and all subscales when compared to children without CL±P ( P ≤ .001). Among the children with CL±P, there were no statistically significant differences on the COHIP based on age and/or gender ( P ≥ .05). Conclusions: Children with CL±P had a relatively high OHRQoL, which was lower than that of their peers without CL±P in both the overall scale and all subscales. Gender and age differences had no significant impact on the OHRQoL. The COHIP Arabic version showed appropriate reliability.

Evaluation of Esthetic, Functional, and Quality-of-Life Outcome in Adult Cleft Lip and Palate Patients

2005 ◽  
Vol 42 (4) ◽  
pp. 355-361 ◽  
Author(s):  
Klaus Sinko ◽  
Reinhold Jagsch ◽  
Verena Prechtl ◽  
Franz Watzinger ◽  
Karl Hollmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
Adult Patients ◽  
Clinical Psychologist ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Objective Evaluation of esthetic, functional, and health-related quality-of-life (HRQoL) outcomes in adult patients with a repaired cleft lip and palate. The treatment for all patients was based on the so-called Vienna concept. Patients/Design Seventy adult patients with a repaired complete cleft lip and palate, ranging in age from 18 to 30 years, were included in the study. Esthetic and functional outcomes were assessed by the patients themselves and by five experts using a visual analog scale. Patients also completed the MOS Short-Form 36 questionnaire to evaluate health-related quality of life. Results Patients rated their esthetic outcome significantly worse than the experts did. No significant differences were observed in the ratings for function. Female patients, especially, were dissatisfied with their esthetic outcomes. In a personal interview, nearly 63% of them asked for further treatment, particularly for upper-lip and nose corrections. The health-related quality-of-life questionnaire revealed low scores for only two subscales, namely social functioning and emotional role. In most subscales of health-related quality of life, patients who desired further treatment had significantly lower scores than did patients who desired no further treatment. Conclusion Surgery of the lip and nose appears to be of prime importance for patients with a cleft lip and palate. Cleft patients who do not request secondary treatment are not always satisfied with the treatment. Patients with realistic expectations in regard to further treatment should be treated by specialists, whereas those with unrealistic expectations should be referred to a clinical psychologist.

scholarly journals Atuação Fonoaudiológica e Fisioterápica nas Fissuras Orofaciais não Sindrômicas

UNICIÊNCIAS ◽  
2021 ◽  
Vol 24 (2) ◽  
pp. 205-210
Author(s):  
Carla Meliso Rodrigues Silvestre ◽  
Ana Clara Giraldeli ◽  
Luana Borges Estevão ◽  
Eliane Gomes Fernandes de Oliveira ◽  
Cristhiane Almeida Leite da Silva ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cleft Lip ◽  
Speech Therapy ◽  
Cleft Lip And Palate ◽  
Functional Independence ◽  
Oral Feeding ◽  
Orofacial Clefts ◽  
Long Term Treatment ◽  
Speech Therapist

A fissura de lábio e ou de palato não sindrômicas são anomalias congênitas craniofaciais mais frequentes. Elas ocasionam problemas estéticos e funcionais que requerem tratamento em longo prazo, envolvendo reabilitação multidisciplinar incluindo a fonoaudiologia e fisioterapia. Este estudo propõem apresentar alguns dos princípios de atuação do fonoaudiólogo e do fisioterapeuta nas fissuras orofaciais não sindrômicas. Realizou-se uma revisão de literatura narrativa com busca na Bireme e Scielo e nas bases Lilacs, Pedro e  PubMed em outubro de 2020, envolvendo a atuação do  fonoaudiólogo e do fisioterapeuta nas fissuras orofaciais não sindrômica, no idioma inglês e português, sem recorte temporal. Os estudos encontrados observaram que a intervenção fonoaudiológica e fisioterapêutica deve ser mais precoce e de acordo com a disfunção apresentada. De modo geral, a atuação do fonoaudiólogo favorece a alimentação oral  e o desenvolvimento global referente à linguagem, a fala, audição e neuropsicomotor, para evitar atrasos e favorecer o melhor desenvolvimento infantil. A atuação fisioterapêutica visa diminuir a hospitalização prolongada, melhorar a qualidade de vida e funcionalidade, bem como assistir as crianças que cursarem com problemas motores, posturais e respiratórios. Conclui-se que a atuação fonoaudiológica nas diferentes fases da reabilitação de indivíduos com fissuras labiopalatinas contribui para alimentação e inteligibilidade da fala, beneficiando assim a comunicação verbal e consequentemente a interação com o meio social; e a assistência fisioterapêutica ajuda e melhorar a sintomatologia e as disfunções respiratórias apresentadas, prevenindo e tratando complicações de forma a melhorar a qualidade de vida e restabelecer a independência funcional.   Palavras-chave: Fissura Palatina. Fenda Labial. Aleitamento Materno. Fala. Fisioterapia.   Abstract Non-syndromic cleft lip and or palate are the most frequent congenital craniofacial anomalies. They cause aesthetic and functional problems that require long-term treatment, involving rehabilitation including speech therapy and physiotherapy. This study proposes to present some of the principles of performance of the speech therapist and physiotherapist in non-syndromic orofacial clefts. A narrative literature review was carried out with searches in Bireme and Scielo and in the Lilacs, Pedro and PubMed databases in October 2020, involving the performance of the speech therapist and physiotherapist in non-syndromic orofacial clefts, in English and Portuguese, with no time frame. The studies observed that speech therapy and physiotherapy intervention should be as earlier and in accordance with the presented dysfunction. In general, the performance of the speech therapist favors oral feeding and the global development related to language, speech, hearing and neuropsychomotor, to avoid delays and favor best child development. Physiotherapeutic action aims to reduce the prolonged hospitalization, improve quality of life and functionality, as well as assist children who are experiencing motor, postural and respiratory problems. It is concluded that the speech therapy performance in the different phases of rehabilitation of individuals with cleft lip and palate contributes to feeding and speech intelligibility, thus benefiting verbal communication and consequently the interaction with the social environment; and physiotherapeutic assistance helps and improves the symptoms and respiratory disorders presented, preventing and treating complications in order to improve the quality of life and restore functional independence.   Keywords: Cleft Palate. Cleft Lip. Breast Feeding. Speech. Physiotherapy.

Greater Palatal Cleft Width Predicts an Increased Risk for Unfavorable Outcomes in Cleft Palate Repair

2021 ◽  
pp. 105566562110295
Author(s):  
Åsa C. Okhiria ◽  
Fatemeh Jabbari ◽  
Malin M. Hakelius ◽  
Monica M. Blom Johansson ◽  
Daniel J. Nowinski
Keyword(s):  
Cleft Palate ◽  
Cleft Lip ◽  
Cleft Lip And Palate ◽  
University Hospital ◽  
Velopharyngeal Insufficiency ◽  
Secondary Surgery ◽  
Increased Risk ◽  
Cleft Palate Repair ◽  
The Impact ◽  
Nasal Emission

Objective: To investigate the impact of cleft width and cleft type on the need for secondary surgery and velopharyngeal competence from a longitudinal perspective. Design: Retrospective, longitudinal study. Setting: A single multidisciplinary craniofacial team at a university hospital. Patients: Consecutive patients with unilateral or bilateral cleft lip and palate and cleft palate only (n = 313) born from 1984 to 2002, treated with 2-stage palatal surgery, were reviewed. A total of 213 patients were included. Main Outcome Measures: The impact of initial cleft width and cleft type on secondary surgery. Assessment of hypernasality, audible nasal emission, and glottal articulation from routine follow-ups from 3 to 16 years of age. The assessments were compared with reassessments of 10% of the recordings. Results: Cleft width, but not cleft type, predicted the need for secondary surgery, either due to palatal dehiscence or velopharyngeal insufficiency. The distribution of cleft width between the scale steps on a 4-point scale for hypernasality and audible nasal emission differed significantly at 5 years of age but not at any other age. Presence of glottal articulation differed significantly at 3 and 5 years of age. No differences between cleft types were seen at any age for any speech variable. Conclusions: Cleft width emerged as a predictor of the need for secondary surgery as well as more deviance in speech variables related to velopharyngeal competence during the preschool years. Cleft type was not related to the need for secondary surgery nor speech outcome at any age.

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