scholarly journals Using Photo-Elicitation to Explore Families’ Experiences of Burn Camp

2018 ◽  
Vol 25 (1) ◽  
pp. 81-108 ◽  
Author(s):  
Laura Armstrong-James ◽  
Julia Cadogan ◽  
Heidi Williamson ◽  
Nichola Rumsey ◽  
Diana Harcourt
Keyword(s):  
Qualitative Study ◽  
Thematic Analysis ◽  
Family Members ◽  
Photo Elicitation ◽  
The Family ◽  
Carer Support

A qualitative study using photo-elicitation was conducted to investigate the experiences of family members attending a residential burn camp. Six families were provided with cameras and asked to take photographs of their time at camp. They were subsequently interviewed about their experiences of camp, using their photographs as prompts. Thematic analysis of interview transcripts identified three main themes: benefits for the family as a whole (new activities and experiences and lasting impacts), benefits for the child (having fun without feeling different), and benefits for the parent/carer (support from those who understand). This is the first study to specifically investigate the experience of the whole family at a burn camp and suggests that attendance may offer a number of benefits for parents/carers and children. Photo-elicitation was an effective method for encouraging participants to recall and discuss their time at camp, and should be considered in future burns research.

scholarly journals Experiences of family members of drivers who violate the law against rinking and driving and its repercussions

2021 ◽  
Vol 74 (1) ◽  
Author(s):  
Indianathan de Kassia Santana Elvira ◽  
Sonia Silvia Marcon ◽  
Eleine Aparecida Penha Martins ◽  
Magda Lúcia Félix de Oliveira
Keyword(s):  
Qualitative Study ◽  
Thematic Analysis ◽  
Turning Point ◽  
Family Members ◽  
Family Context ◽  
Drinking And Driving ◽  
Structured Interviews ◽  
The Family ◽  
The Law ◽  
Alcohol And Other Drugs

ABSTRACT Objectives: to understand the experiences of family members of drivers who violate the law against drinking and driving and the post-penal repercussions. Methods: a qualitative study, with family members of drivers who violated the law against drinking and driving who participated in the Projeto Justiça e Sobriedade no Trânsito de Maringá - PR (Traffic Justice and Sobriety Project in Maringá - PR). Data collection was carried through semi-structured interviews, analyzed through thematic analysis. Results: it was observed in the family members' reports: the suffering of families due to the consumption of alcohol and other drugs; the violation of the law against drinking and driving meaning turning point, with positive and negative changes in the family context; and the meanings of the Traffic Justice and Sobriety Project. Final Considerations: the law against drinking and driving penalties triggered unemployment and financial expenses, but the positive aspects were quitting alcohol use and/or not drinking and driving anymore. The Traffic Justice and Sobriety Project was informed as solidarity and a trigger for changing the offenders' behavior.

Treatment decision-making for older adults with cancer: A qualitative study

2020 ◽  
pp. 096973302094575
Author(s):  
Ni Gong ◽  
Qianqian Du ◽  
Hongyu Lou ◽  
Yiheng Zhang ◽  
Hengying Fang ◽  
...  
Keyword(s):  
Decision Making ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Family Members ◽  
Treatment Decision ◽  
Chinese Society ◽  
Decision Making Process ◽  
Treatment Decision Making ◽  
The Family ◽  
Older Cancer Patients

Background: Independent decision-making is one of the basic rights of patients. However, in clinical practice, most older cancer patients’ treatment decisions are made by family members. Objective: This study attempted to analyze the treatment decision-making process and formation mechanism for older cancer patients within the special cultural context of Chinese medical practice. Method: A qualitative study was conducted. With the sample saturation principle, data collected by in-depth interviews with 17 family members and 12 patients were subjected to thematic analysis. Ethical considerations: The study was approved by the ethics committees of Sun Yat-sen University. All participants provided verbal informed consent after being told their rights of confidentiality, anonymity, and voluntary participation. They had the right to refuse to answer questions and could withdraw at any time. Results: Three themes emerged: (1) complex process; (2) transformation of family decision-making power; and (3) individual compromise. Family members inevitably had different opinions during the long process of treatment decision-making for older cancer patients. The direction of this process could be regarded as an extension of the family power relationship. The patient usually compromised the decision to survive, which was made by family members. Conclusion: This study describes the treatment decision-making process of older cancer patients in the context of Chinese culture. The reasons underlying this process are related to the views on life and death and family values. An individual is a part of the family, which is often seen as the minimal interpersonal unit in Chinese society. It is significant that while emphasizing patient autonomy in the decision-making process, health professionals should also pay attention to the important roles of culture and family.

scholarly journals Photovoice in a Vietnamese Immigrant Family: Untold Partial Stories behind the Pictures

Genealogy ◽  
2020 ◽  
Vol 4 (3) ◽  
pp. 67 ◽  
Author(s):  
Ethan Tinh Trinh
Keyword(s):  
United States ◽  
Cultural Context ◽  
Past History ◽  
Family Members ◽  
Academic Research ◽  
The United States ◽  
Photo Elicitation ◽  
Immigrant Family ◽  
Immigrant Child ◽  
The Family

This paper, in the form of walking meditation, sitting, drinking, eating, and traveling among spaces and times, witnesses how the author as a Vietnamese immigrant child living in the United States (U.S.) traces untold stories of their family through family photos. Further, this paper attempts to find, understand and connect the relation between personal and political, between individual and collective, for a Vietnamese re-education camp detainee and his family, situated in political, historical, and cultural context. The use of photo elicitation comes from the desire that the reader can engage with the voices of the family members as they describe events in their past history. In addition, this paper refuses the forms of “category” and “fixed results” in writing up academic research. Rather, it will appear in the form of daily conversation, collected from multiple settings. Simply speaking, this paper is a form of storytelling that invites the readers to oscillate, communicate and think with the author’s family members on this historical journey.

scholarly journals Experiences of adult siblings of those with developmental coordination disorder (DCD): a qualitative study

2021 ◽  
Author(s):  
Brendan Morris ◽  
Jane Ogden ◽  
Judith Gentle
Keyword(s):  
Qualitative Study ◽  
Posttraumatic Growth ◽  
Thematic Analysis ◽  
Role Model ◽  
Developmental Coordination Disorder ◽  
Growing Up ◽  
Childhood Experiences ◽  
The Family ◽  
Coordination Disorder ◽  
The Impact

AbstractThis qualitative study explored the childhood experiences of growing up with a sibling with Developmental Coordination Disorder (DCD) to offer an ‘outsider’s’ view of this condition. Ten individuals who had grown up with a sibling with DCD were interviewed about their experiences. Data were analysed using Thematic Analysis. Analysis described three main themes: i)‘witnessing the challenges for their sibling with DCD’ ii) ‘experiencing the impact on the family’; iii) ‘a vacuum of knowledge’. Not all experiences were negative and transcending these themes was the notion ‘resolution and finding benefit’ highlighting access to support, being more empathic and resilient, becoming a role model for others and finding success. Participants play witness to their sibling’s experiences which can often be negative sometimes impacted by a vacuum of knowledge but they also describe how a diagnosis of DCD comes with some benefits which are discussed in the context of ‘posttraumatic growth’.

scholarly journals Kerukunan Antar Umat BeragamaKeluarga Suku Dayak Ngaju di Palangka Raya

2018 ◽  
Vol 3 (1) ◽  
pp. 66-89
Author(s):  
Normuslim Normuslim
Keyword(s):  
Qualitative Study ◽  
Ethnic Group ◽  
Family Members ◽  
Religious Tolerance ◽  
Depth Interview ◽  
The Family ◽  
Family Connection ◽  
Religious Differences

In the family of Dayak Ngaju ethnic group, their family members consist of the different religious adherent. Nevertheless, they live in harmony and peace to one another when in one roof without religious-based conflict. This research explores the dynamics of factors that facilitated the harmonious religious tolerance in this ethnic group. This research employs qualitative study with in-depth interview and observation to collecting data. In-depth interview and observation was conducted to families belong to Dayak Ngaju ethnic. The result of the research shows that three classifications attached to the characteristic of religious differences among their family members. 1) religious harmony is accommodate after serious conflict that leads to 'tolerant' attitude; 2) religious harmony is facilitated after medium conflict that leads to 'acceptance' attitude; 3) religious harmony is possible and maintained by all members of the family for they respect each other that leads to 'cooperation' attitude. This religious tolerance in the Dayak Ngaju family is possible because of three factors namely: the philosophy of huma betang, blood and family connection and the Kaharingan tradition as local wisdom.

scholarly journals Coping with Drug Abuser in the Family: A Qualitative Study in Penang, Malaysia

2019 ◽  
Vol 4 (2) ◽  
pp. 22-27
Author(s):  
Paramjit Singh Jamir Singh ◽  
Azlinda Azman ◽  
Syazwani Drani
Keyword(s):  
Social Support ◽  
Drug Abuse ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Drug Addiction ◽  
Support Groups ◽  
Family Members ◽  
Self Help ◽  
The Family ◽  
Social Support Systems

Drug use in Malaysia has steadily increased over the past decade. Drug addiction does not only affect the addict, but it also impacts the lives of their family members. This qualitative study seeks to explore how the drug user’s family members cope with the drug abuse problems in the family. A total of 20 respondents, acting as heads of their families, from the state of Penang, were interviewed. The findings indicated that the respondents utilized both problem-focused and emotion-focused coping strategies to cope with the drug addiction problems in the family. The respondents in this study also used both formal and informal social support systems to cope with the drug abuse problems caused by drug abuse within the family. This study suggests that the drug user’s family members should engage themselves in self-help and support groups to find and learn about constructive coping strategies used by other families who have a similar experience in dealing with drug abuse problems in the family. In addition, by engaging themselves in self-help and support groups, it will help the drug user’s family members gain emotional and social support from other drug user’s family members.

scholarly journals Stratification of Happiness in Urban Areas in Mexico: A Qualitative Examination by Level of Marginalization

2021 ◽  
Author(s):  
Oscar A. Martínez-Martínez ◽  
Javier Reyes ◽  
Eder Noda
Keyword(s):  
Latin America ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Urban Areas ◽  
Family Health ◽  
Economic Conditions ◽  
Structured Interviews ◽  
Social Stratum ◽  
The Family ◽  
Research Findings

Although Mexico presents high levels of poverty and marginalization, it is the second happiest nation in Latin America. This raises several questions about what factors are associated with happiness at each level of marginalization and how these factors vary according to marginalization levels. We conducted a qualitative study in urban municipalities in four Mexican states, using 184 semi-structured interviews and employing a thematic analysis approach. Results suggest that happiness is a multifactorial phenomenon. Factors such as the family, health, religion, friendships, economic conditions, and fulfillment of basic needs contribute to happiness, but each of these aspects has different importance and meaning based on the level of marginalization. Evidence also shows that unhappiness is more homogeneous, regardless of the level of marginalization; thus, we can find people in both low marginalized and high-marginalized contexts that are unhappy. The research findings are relevant for the design of public policies, because they show various unsatisfied needs by level of marginalization and how not having them may affect happiness in each social stratum.

scholarly journals Experiences of families involving a parent with progressive deafblindness

2022 ◽  
pp. 026461962110597
Author(s):  
Saskia Damen ◽  
Ilse van Zadelhoff ◽  
Corrie Tijsseling
Keyword(s):  
Peer Support ◽  
Usher Syndrome ◽  
Family Members ◽  
Well Being ◽  
Structured Interview ◽  
Photo Elicitation ◽  
Psychological Consequences ◽  
Entire Family ◽  
The Family ◽  
Open Coding

Usher syndrome is a progressive form of deafblindness, which can have significant psychological consequences. This study aimed to get insight in the perceived impact of Usher syndrome type 2 (USH2) on families with a parent affected by this syndrome, and in the experiences of these families with social, professional, and peer support. Participants were 10 parents with USH2 living in the Netherlands, 10 of their co-parents, and 10 of their children. The parents filled in questionnaires and participated in a semi-structured interview. A photo-elicitation interview and a semi-structured interview were administered to the children. Interviews were transcribed and systematically coded, using thematic and open coding. Parents rated the family’s quality of life in general as satisfactory. Both negative and positive consequences were described of USH2 for the family. Parents without USH2 and their children stated to provide support to the parent with USH2, which was often described as self-evident. Some parents without USH2, however, described their family tasks as a burden. Some parents also reported that psychological problems of the parent with USH2 affected the well-being of other family members. Several parents and some children expressed that the syndrome was hardly discussed within the family. Unfulfilled family support needs were mentioned, a lack of involvement of family members in the professional support, as well as a lack of professional and peer support for children and partners. This study revealed that USH2 in a parent has impact on the entire family. Family-centred approaches are recommended for professionals who support parents with Usher syndrome.

Proposal for Pervasive Elderly Care

2020 ◽  
pp. 54-66
Author(s):  
Hanna-Leena Huttunen ◽  
Raija Halonen ◽  
Simon Klakegg
Keyword(s):  
Internet Of Things ◽  
Qualitative Study ◽  
Elderly Care ◽  
Family Members ◽  
Context Aware ◽  
The Family ◽  
Sheltered Accommodation

This chapter reports how interaction between family members and caregivers as perceived by family members could be improved via context-aware, imperceptible internet of things (IoT)-based solutions. The qualitative study focused on investigating experiences of the family members and the communication between caretakers in sheltered accommodation. Interviews including both open and closed questions revealed that there is high need for improving the communication, adding to the sparse earlier knowledge. The study revealed that the family members were willing to adopt an application to improve the communication that currently was experienced as too limited and vague. The results provide a fruitful base for further actions to improve communication between family members and professional caretakers.

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