Siblings’ Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation: A Phenomenological Hermeneutical Study

2019 ◽  
Vol 25 (3) ◽  
pp. 469-492 ◽  
Author(s):  
Åsa Israelsson-Skogsberg ◽  
Agneta Markström ◽  
Katja Laakso ◽  
Lena Hedén ◽  
Berit Lindahl

Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider’s perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.

Psichologija ◽  
2012 ◽  
Vol 46 ◽  
pp. 80-104
Author(s):  
Ilona Makauskienė

Straipsnyje pristatomi 73 asmenų prieš ortognatinę operaciją penkių kategorijų – fizinio Aš (išvaizdos, sveikatos, grožio, atvaizdo), santykių, žinių ir supratimo, profesijos, laisvalaikio – pasitikėjimo / nepasitikėjimo savimi, lyginimosi ir perfekcionistinių siekių Aš reprezentacijų duomenys, gauti pusiau struktūruoto interviu metodu. Aš reprezentacijų kategorijos išskirtos atlikus kokybinę empirinės medžiagos analizę. Lygintos tiriamųjų grupės suskirstytos remiantis objektyvia (amžius, išsilavinimas) ir subjektyvia (pagal santykių su tėvais ir patyčių patyrimą) informacija. Prieš operaciją visi tiriamieji yra susirūpinę santykiais – nepasitiki ir neigiamai lygina save su bendraamžiais, o po operacijos labiausiai tikisi atitikti dabarties patrauklios išvaizdos ir geros sveikatos standartus.Pagrindiniai žodžiai: sąkandžio anomalijos, veido patrauklumas, pasitikėjimas savimi, savęs lyginimas, ortognatinė chirurgija.MANIFESTATIONS OF SELF-CONFIDENCE, COMPARISONS AND PERFECTIONISTIC ASPIRATIONS BEFORE ORTHOGNATIC SURGERYIlona MakauskienėSummaryAn interest to psychological factors involved in malocclusion appeared thirty years ago. The most frequent aspect of research is self-evaluation. However, up to date, there is no empiric half-structured interview investigations with subjects of this group, in which manifestations of confidence, comparison and perfectionistic aspirations would be explored wider and in more detail. No studies with orthognatic subjects were conducted in Lithuania, so we hope the data of our research will help to fill this gap.Seventy-three subjects with some kind of malocclusion were involved. The research lasted from 2006 to 2010. Self-representations were investigated by means of a half-structured interview based on self-in-relation theory. Self-representations of the past, presents and future were explored, three significant others (mother, father, and best friend) were distinguished.A qualitative analysis of self-representations was conducted, and six categories were singled out. Self- representations of comparison were estimated considering the ideal and standards of the self, peer, father, mother or partner. The assessments were divided into positive and negative. The subjects were grouped and compared according to parents’ relationship experience, age group, education, taunting experience.The data suggest that in subjects just before the surgery statistically significant changes occurred according to taunting experience; positive comparison representations diminished, more of statistically significant differences between the standpoints of mother and father self-representations showed up, unconfident representations increased. Based on the research results, we can predicate that the biggest risk pre-operative group comprised subjects with taunting experience and subjects with the experience of violence in the family, as these subjects expressed most negative self-representations of distrust and comparison. These subjects expressed statistically significantly more adolescent and actual distrust in mother representations. Comparison of data according to subjects’ age has revealed that subjects of the oldest group most of all seek to meet health, appearance, and profession perfectionist standards. Subjects of the youngest group most often compare themselves with standards of peers and father. Subjects aged 26–30 years after the surgery statistically significantly expect to be more satisfies with one’s own appearance. While comparing subjects according to education, appearance, self-representations of knowledge and comprehension diverged. Self- representations of confidence / distrust and perfectionistic aspirations were most expressed in adolescent and actual time spans, while manifestations of comparison were expressed in all life time spans.Key words: malocclusion, face attractiveness, self-confidence, self-comparison, orthognatic surgery.


2018 ◽  
Vol 22 (1) ◽  
pp. 6-18 ◽  
Author(s):  
Åsa Israelsson-Skogsberg ◽  
Lena Hedén ◽  
Berit Lindahl ◽  
Katja Laakso

Developments in medical technology and treatment have increased the survival rates of children with serious illnesses or injuries, including those receiving home mechanical ventilation, which is a small but growing group. The aim of this study was to explore everyday life experiences of children and young people living with home mechanical ventilation (HMV). Data were obtained through interviews with nine participants. The interviews were supported by photovoice methodology: photographs taken by the participants before or during the interviews were used to facilitate conversation. Interview data were analyzed using qualitative content analysis. The findings revealed that everyday life on a ventilator can be described as including power but simultaneously as characterized by vulnerability to the outside world, comparable to balancing on a tightrope. Various types of technology, both information and communication technology (ICT) and vital medical technology, enabled the participants to engage with the world around them. This study contributes knowledge about the experiences of children and young people with HMV, who depict their lives as good and valuable. The study also underscores, when designing plans and home support, it is necessary to take a sensible approach to personal experiences of what a good life is and what resources are needed to attain and maintain health.


2011 ◽  
Vol 19 (2) ◽  
pp. 233-244 ◽  
Author(s):  
Knut Dybwik ◽  
Erik Waage Nielsen ◽  
Berit Støre Brinchmann

The aim of this study was to explore the ethical challenges in home mechanical ventilation based on a secondary analysis of qualitative empirical data. The data included perceptions of healthcare professionals in hospitals and community health services and family members of children and adults using home mechanical ventilation. The findings show that a number of ethical challenges, or dilemmas, arise at all levels in the course of treatment: deciding who should be offered home mechanical ventilation, respect for patient and family wishes, quality of life, dignity and equal access to home mechanical ventilation. Other challenges were the impacts home mechanical ventilation had on the patient, the family, the healthcare services and the allocation of resources. A better and broader understanding of these issues is crucial in order to improve the quality of care for both patient and family and assist healthcare professionals involved in home mechanical ventilation to make decisions for the good of the patient and his or her family.


2018 ◽  
Vol 5 (2) ◽  
pp. 163-174
Author(s):  
Amel Alić ◽  
Haris Cerić ◽  
Sedin Habibović

Abstract The aim of this research was to determine to what extent different variables describe the style and way of life present within the student population in Bosnia and Herzegovina. In this sense, in addition to general data on examinees, gender differences were identified, the assessment of parental dimensions of control and emotion, overall family circumstances, level of empathy, intercultural sensitivity, role models, preferences of lifestyles, everyday habits and resistance and (or) tendencies to depressive, anxiety states and stress. The survey included a sample of 457 examinees, students of undergraduate studies at the University of Zenica and the University of Sarajevo, with a total of 9 faculties and 10 departments covering technical, natural, social sciences and humanities. The obtained data give a broad picture of the everyday life of youth and confirm some previously theoretically and empirically justified theses about the connection of the family background of students, everyday habits, with the level of empathy, intercultural sensitivity and preferences of the role models and lifestyles of the examinees.


2020 ◽  
Vol 13 (2) ◽  
pp. 123-130
Author(s):  
Péter HIDVÉGI ◽  
◽  
Andrea Puskás LENTÉNÉ ◽  
József Márton PUCSOK ◽  
Melinda BÍRÓ ◽  
...  

In the past decades, the harmony of body and soul was getting more and more important,the balance, the self-confidence, and the positive-being, which is supported mostly by health tourism,so this section is improving with huge steps to serve the increasing needs fluently. For the effect of the consecutive social changes, the rules of genders have also changed. At the same time changes could be realized in the consumption habits of different genders. The resource took place from September to December 2018. It happened with a questionnaire survey; we asked the customers of hotels in the Northern Great Plain Region, and the answering was optional – they do it on their own choice. We investigated the participants' data through different dimensions and look for the answer to the question along these dimensions that which specifies had the service customers.


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