Patient, Family Caregiver, and Nurse Involvement in End-of-Life Discussions During Palliative Chemotherapy: A Phenomenological Hermeneutic Study

2021 ◽  
pp. 107484072110463
Author(s):  
Tine Ikander ◽  
Karin B. Dieperink ◽  
Olfred Hansen ◽  
Mette Raunkiær

The aim of this study was to investigate current nursing practice related to end-of-life discussions with incurable lung cancer patients and their family caregivers from the perspectives of patients, family caregivers, and nurses in an oncology outpatient clinic. This phenomenological hermeneutic study included nine patients, eight family caregivers, and 11 nurses. Data were collected using participant observation, informal and semi-structured individual or joint interviews with patients and family caregivers, and focus group interviews with nurses. A Ricoeur-inspired approach was used to analyze the data. Three themes were identified: (a) content of end-of-life discussions, (b) timing of end-of-life discussions, and (c) challenges in end-of-life discussions. End-of-life discussions were seldom initiated; when they were, it was often too late. Discussions addressed treatment, place of care, practical/economic concerns, and existential matters. The physical environment at the outpatient clinic, lack of continuity, and nurses’ instrumental task workloads and time pressure posed challenges to initiating end-of-life discussions.

Author(s):  
Mirinae Kim ◽  
Minju Kim

We qualitatively investigated end-of-life care needs. Data were collected via focus-group interviews with three groups: young adults, middle-aged adults, and older adults. The key question was, “What kind of care would you like to receive at the end of life?” Interview data were transcribed and analyzed using content analysis. End-of-life care needs were classified into six categories: life-sustaining treatment needs, physical care needs, emotional care needs, environmental needs, needs for respect, and needs for preparation for death. Because the Korean culture is family-oriented and talking about death is taboo, Korean patients at the end of their life do not make decisions about life-sustaining treatment or actively prepare for death. Therefore, to provide proper end-of-life care, conversations and shared decision-making among patients and their families are crucial. Further, we must respect patients’ dignity and help them achieve a good death by understanding patients’ basic care preferences. Future research should continue examining end-of-life care needs that reflect the social and cultural context of Korea to inform instrument development.


Dementia ◽  
2015 ◽  
Vol 16 (7) ◽  
pp. 930-947 ◽  
Author(s):  
Daniela Lillekroken ◽  
Solveig Hauge ◽  
Åshild Slettebø

Research literature in the dementia field lacks examples of ‘best-practices’ demonstrating concretely how it is possible to support the sense of coherence in people with dementia. The purpose of this study was to elucidate the nurses’ views concerning a caring approach that may support the sense of coherence in people with dementia. The data were collected through participant observation and focus group interviews during a four-month period in 2011. Sixteen registered nurses recruited from two Norwegian nursing homes participated in this study. The data were interpreted using a phenomenological-hermeneutical method. Three themes were identified: ‘being in the moment’, ‘doing one thing at a time’, and ‘creating joy and contentment’. An overall interpretation of these themes is described by the metaphor ‘slow nursing’, a caring approach that may lead to supporting the sense of coherence in people with dementia.


2010 ◽  
Vol 15 (1) ◽  
Author(s):  
Sonya Beukes ◽  
Anna G.W. Nolte ◽  
Ebin Arries

Clinical community health facilities where undergraduate students are placed for their practical work in community nursing science are dynamic and have undergone major transformation over the past few years. In the clinical field, community nurses and undergraduate students are representative of the different races and language and ethnic groups in the South African population, with each group espousing different value systems. Both parties – students and community nurses – report that, due to these differences, value conflicts are experienced during clinical accompaniment and that this has negative effects on clinical learning in community nursing science.The goal of this study was to explore and describe the experiences of students with regard to value-sensitive clinical accompaniment in the community nursing environment. An exploratory, descriptive and contextual design was used. Interactions between community nurses and students during clinical accompaniment were explored for value sensitivity by means of video recordings,participant observation and focus group interviews. Data were collected by means of video recordings, participant observation and focus group interviews. The data were analysed and coded by the researcher and the external coder, using an inductive descriptive method to identify important segments of the regularity of behaviour. The focus group interviews were transcribed, analysed and coded by the researcher and the external coder, using Tesch’s steps of analysis (Creswell 1994:155–156).Lincoln and Guba’s criteria (1985:290) for trustworthiness were applied to the study.The general findings indicate that clinical accompaniment in community nursing is not value sensitive and, as a result, guidelines for value-sensitive clinical accompaniment need to be developed for undergraduate students in the community nursing environment. The following values (values for which guidelines need to be developed) were identified: respect during clinical accompaniment,value-sensitive communication and sensitivity to the quality of clinical accompaniment.OpsommingKliniese gemeenskapsgesondheidsfasiliteite waar voorgraadse studente geplaas word vir gemeenskapsverpleegkundepraktika is dinamies en het groot veranderinge oor die laaste paar jare ondergaan. In die kliniese veld verteenwoordig gemeenskapsverpleegkundiges en voorgraadse studente verskillende rasse en taal- en etniese groepe in die Suid-Afrikaanse bevolking, elkeen met verskillende waardes. Albei partye – studente en gemeenskapsverpleegkundiges – het gerapporteer dat waardekonflik weens verskillende kulture en waardes tydens kliniese begeleiding ervaar word,wat kliniese leer op sy beurt in gemeenskapsverpleegkunde negatief beïnvloed.Die doel van die studie was om die belewenis van studente met betrekking tot waardesensitiewe kliniese begeleiding in gemeenskapsverpleegkunde te verken en te beskryf. ’n Verkennende, beskrywende en kontekstuele ontwerp is gebruik. Die interaksie wat tussen die gemeenskapsverpleegkundiges en studente tydens kliniese begeleiding plaasgevind het, is vir waardesensitiwiteit deur middel van video opnames, deelnemerobservasie en fokusgroeponderhoude verken. Die data wat deur middel van video-opnames en deelnemerobservasie ingesamel is, is deur die navorser en ’n eksterne kodeerder ontleed en gekodeer.’n Induktiewe beskrywende metode is gebruik om belangrike segmente van die gereeldheid van gedrag te identifiseer en beskryf. Fokusgroeponderhoude is deur die navorsers en ’n eksterne kodeerder getranskribeer, ontleed en gekodeer deur gebruik te maak van Tesch se stappe van analise (Creswell 1994:155–156). Lincoln en Guba (1985:290) se kriteria vir geloofwaardigheid is in die studie gebruik.Die algemene bevindinge dui daarop dat kliniese begeleiding in gemeenskapsverpleegkunde nie waarde-sensitief is nie. Gevolglik moet riglyne vir waarde-sensitiewe kliniese begeleiding vir voorgraadse studente in gemeenskapsverpleegkunde ontwikkel word. Die volgende waardes(waardes waarvoor riglyne ontwikkel moet word) is geïdentifiseer, naamlik respek tydens kliniese begeleiding, waarde-sensitiewe kommunikasie en sensitiwiteit vir gehalte van kliniese begeleiding.


Author(s):  
Marilson Kienteka ◽  
Edina Maria de Camargo ◽  
Rogério César Fermino ◽  
Rodrigo Siqueira Reis

The implementation of bicycling promotion programs should consider the barriers to this behavior. The aim of this study was to quantitative and qualitatively characterize barriers to leisure and commuting bicycle use for adults from Curitiba, Brazil. The first phase comprised a cross-sectional household survey involving 677 adults (53% women). Of these, 16.7% and 11.2% reported leisure and commuting bicycle use, respectively. Then, 24 bicycle users (50% women) were recruited and participated in focus group interviews. The content of answers was analyzed with a conceptual matrix. The most reported barriers to leisure bicycle use were “bad weather” (65.5%), “heavy traffic” (53.1%), “lack of bike lanes” (48.7%) and “lack of security “(44.2%). In commuting, the most reported were “bad weather” (69.7%), “heavy traffic”, “lack of safety” and “fear of accidents” (51.3% each). The comparative analysis between barriers reported in the survey and those reported in the focus groups showed a combination of seven of the 11 barriers reported in questionnaires. Some of the barriers identified in the survey were not mentioned in the focus groups (“poor street quality”, “pollution”, “not having a bicycle”, “lack of parking”, “distance to destinations”). The main barriers to bicycle use are related to physical environment and safety aspects, regardless of approach adopted and purpose of use.


2016 ◽  
Vol 15 (2) ◽  
pp. 158-167 ◽  
Author(s):  
Margareta Karlsson ◽  
Anne Kasén ◽  
Carola Wärnå-Furu

AbstractObjective:When registered nurses care for patients at the end of life, they are often confronted with different issues related to suffering, dying, and death whether working in hospital or community care. Serious existential questions that challenge nurses’ identities as human beings can arise as a result of these situations. The aim of our study was to describe and gain a deeper understanding of nurses’ existential questions when caring for dying patients.Method:Focus-group interviews with registered nurses who shared similar experiences and backgrounds about experiences in end-of-life care were employed to gain a deeper understanding about this sensitive subject. Focus-group interviews were performed in hospice care, in community care, and in a palliative care unit in western Sweden. A qualitative hermeneutic approach was employed to interpret the data.Results:Nurses’ existential questions balanced between responsibility and guilt in relation to their patients, between fear and courage in relation to being professional caregivers and fellow human beings, and between hope and despair in relation to the other's and their own death.Significance of results:Nurses in end-of-life care experience various emotions from patients related to things physical, spatial, and temporal. When nurses encounter these emotions as expressing a patient's suffering, they lead to challenges of balancing between different feelings in relation to patients, as both professional caregivers and fellow human beings. Nurses can experience growth both professionally and as human beings when caring for patients at the end of life.


2015 ◽  
Vol 2015 ◽  
pp. 1-10 ◽  
Author(s):  
Dorthe Boe Danbjørg ◽  
Lis Wagner ◽  
Bjarne Rønde Kristensen ◽  
Jane Clemensen

Background.A development towards earlier postnatal discharge presents a challenge to find new ways to provide information and support to families. A possibility is the use of telemedicine.Objective.To explore how using an app in nursing practice affects the nurses’ ability to offer support and information to postnatal mothers who are discharged early and their families.Design.Participatory design. An app with a chat, a knowledgebase, and automated messages was tried out between hospital and parents at home.Settings.The intervention took place on a postnatal ward with approximately 1,000 births a year.Participants.At the onset of the intervention, 17 nurses, all women, were working on the ward. At the end of the intervention, 16 nurses were employed, all women.Methods.Participant observation and two focus group interviews. The data analysis was inspired by systematic text condensation.Results.The nurses on the postnatal ward consider that the use of the app gives families easier access to timely information and support.Conclusions.The app gives the nurses the possibility to offer support and information to the parents being early discharged. The app is experienced as a lifeline that connects the homes of the new parents with the hospital.


2019 ◽  
Vol 3 (8) ◽  
pp. 113
Author(s):  
Leonara Lacerda Delfino

O artigo tem por objetivo problematizar as potencialidades do Programa Institucional de Bolsa de Iniciação à Docência (PIBID) do curso de licenciatura em História quanto às suas possibilidades de elaborar espaços de ensino-aprendizagem significativos à experiência dos sujeitos profissionais em formação. Nesse sentido, compreendo o programa como lugar estratégico para a construção e mobilização de saberes múltiplos e diversos em sala de aula, além de permitir o intercâmbio entre universidade e espaço escolar e viabilizar práticas metodológicas com o uso de linguagens plurais e não convencionais enquanto recursos didáticos. Para averiguar os saberes docentes em formação e acionados durante as intervenções, analisei o conjunto de subprojetos e relatórios confeccionados pelos pibidianos, além de desenvolver o método da observação participante e da realização de entrevistas em grupo focal. A pesquisa de campo se discorreu durante as reuniões e trabalhos coletivos com os acadêmicos, professores coordenadores e supervisores, realizados tanto na escola escolhida para a intervenção, como nos encontros periódicos feitos na universidade.***The purpose of this article is to analyze the potential of the Institutional Program of the Initiation to Teaching Grant of the degree course in History regarding its possibilities of elaborating teaching-learning spaces that are significant to the experience of the professional subjects in training. In this sense, I understand the program as a strategic place for the construction and mobilization of multiple and diverse knowledge in the classroom, besides allowing the interchange between university and school space and to make feasible methodological practices with the use of plural and non-conventional languages as didactic resources. In order to ascertain the teaching knowledge in training and during the interventions, I analyzed the set of subprojects and reports made by the pibidianos, as well as developing the method of participant observation and the conduction of focus group interviews. Field research was discussed during meetings and collective work with academics, coordinating teachers and supervisors, both at the school chosen for the intervention, as well as at the periodic meetings held at the university.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 950-950
Author(s):  
Tina Kilaberia ◽  
Janice Bell ◽  
Kristen Bettega ◽  
Jennifer Mongoven ◽  
Kathleen Kelly ◽  
...  

Abstract The COVID-19 pandemic has affected human life in unprecedented ways. Lives of older persons and their families have been especially adversely affected. Eleven Caregiver Resource Centers (CRCs) support family caregivers across the state of California, providing services such as assessment, counseling and respite. This presentation is part of a larger evaluation study and addresses the impact of the COVID-19 pandemic on family caregivers and systems supporting them. We interviewed directors, clinical staff and family consultants (n=35) from CRCs across diverse communities and geography in California, conducting semi-structured focus group interviews by Zoom. Questions explored perceptions of staff about effects on caregivers and implications for systems of support for caregivers. Interviews were transcribed and analyzed using the Dedoose software. Caregiver effects included increased isolation, higher stress, loss of support, neglected health needs, and accelerated technology adoption. Caregivers at particular risk were those facing multiple demands and experiencing compromised resources under the pandemic, such as closure of adult day care. System effects included challenges with hastened virtual delivery, disruption in services, and new opportunities to serve clients virtually. Community resources, such as internet connectivity, exacerbated disparities for family caregivers. We make recommendations to mitigate these challenges including technology platforms to support service delivery and education, training and preparedness for both caregivers and providers. These recommendations are relevant to the ongoing COVID-19 pandemic and adaptable to other crisis situations such as natural disasters.


Author(s):  
Martina Norling ◽  
Anette Sandberg

Language environment is highlighted as an important area in the early childhood education sector. The term language environment refers to language-promoting aspects of education, such as preschool staff’s use of verbal language in interacting with the children. There is a lack of research about language learning in outdoor environments; thus children’s language learning is mostly based on the indoor physical environment. The aim of this study is therefore to explore, analyse, and describe how preschool staff perceive language learning in outdoor environments. The data consists of focus-group interviews with 165 preschool staff members, conducted in three cities in Sweden. The study is meaningful, thus results contribute knowledge regarding preschool staffs’ understandings of language learning in outdoor environments and develop insights to help preschool staff stimulate children’s language learning in outdoor environments.


2018 ◽  
Vol 39 (2) ◽  
pp. 98-106
Author(s):  
Jill Flo ◽  
Bjørg Landmark ◽  
Siri Tønnessen ◽  
Lisbeth Fagerström

This study was a part of a municipal research and development programme in home healthcare (HHC). The Oulu Patient Classification instrument (OPCq), part of the RAFAELA Nursing Intensity and Staffing system, was used to measure nursing intensity (NI) for the first time in HHC in Norway. The aim was to describe nurses’ work experiences and perceptions of the usability of the OPCq instrument when classifying NI in HHC. Twenty-two members of staff participated in four focus-group interviews. Content analyses were used to analyze and interpret the data. Three themes emerged: 1) Classifying the modified OPCq levels correctly; 2) Technological problems hinder use of the instrument; 3) Classifying NI when time pressure dominates. The OPCq instrument is useful in classifying NI, although some minor adjustments might be needed for its use in HHC. The nurses considered the OPCq instrument useful in illuminating the actual work situation in HHC and the time pressure they experience.


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