‘People like me don’t get support’: Autistic adults’ experiences of support and treatment for mental health difficulties, self-injury and suicidality

Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples’ experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals’ experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18–67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people’s well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services.

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Is social camouflaging associated with anxiety and depression in autistic adults?

Molecular Autism ◽

10.1186/s13229-021-00421-1 ◽

2021 ◽

Vol 12 (1) ◽

Author(s):

Laura Hull ◽

Lily Levy ◽

Meng-Chuan Lai ◽

K. V. Petrides ◽

Simon Baron-Cohen ◽

...

Keyword(s):

Mental Health ◽

Intellectual Disability ◽

Social Anxiety ◽

Online Survey ◽

Mental Health Problems ◽

Autistic Traits ◽

Health Problems ◽

Autistic People ◽

Autistic Adults ◽

Anxiety Depression

Abstract Background There is inconsistent evidence for a clear pattern of association between ‘camouflaging’ (strategies used to mask and/or compensate for autism characteristics during social interactions) and mental health. Methods This study explored the relationship between self-reported camouflaging and generalised anxiety, depression, and social anxiety in a large sample of autistic adults and, for the first time, explored the moderating effect of gender, in an online survey. Results Overall, camouflaging was associated with greater symptoms of generalised anxiety, depression, and social anxiety, although only to a small extent beyond the contribution of autistic traits and age. Camouflaging more strongly predicted generalised and social anxiety than depression. No interaction between camouflaging and gender was found. Limitations These results cannot be generalised to autistic people with intellectual disability, or autistic children and young people. The sample did not include sufficient numbers of non-binary people to run separate analyses; therefore, it is possible that camouflaging impacts mental health differently in this population. Conclusions The findings suggest that camouflaging is a risk factor for mental health problems in autistic adults without intellectual disability, regardless of gender. We also identified levels of camouflaging at which risk of mental health problems is highest, suggesting clinicians should be particularly aware of mental health problems in those who score at or above these levels.

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‘Something needs to change’: Mental health experiences of young autistic adults in England

Autism ◽

10.1177/1362361318757048 ◽

2018 ◽

Vol 23 (2) ◽

pp. 477-493 ◽

Cited By ~ 33

Author(s):

Laura Crane ◽

Fern Adams ◽

Georgia Harper ◽

Jack Welch ◽

Elizabeth Pellicano

Keyword(s):

Mental Health ◽

Help Seeking ◽

Online Survey ◽

Mental Health Problems ◽

Health Problems ◽

Autism Spectrum ◽

Health Needs ◽

Mental Health Needs ◽

Autistic People ◽

Autistic Adults

There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16–25 years). Adopting a community-based participatory research (CBPR) approach – in which academic researchers and young autistic adults collaborated in an equitable research partnership – we explored young autistic people’s experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to – and learning from – young autistic people is crucial in ensuring that their mental health needs are met.

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Embitterment as a Specific Mental Health Reaction during the Coronavirus Pandemic

Psychopathology ◽

10.1159/000517447 ◽

2021 ◽

pp. 1-10

Author(s):

Beate Muschalla ◽

Clio Vollborn ◽

Anke Sondhof

Keyword(s):

Mental Health ◽

Mental Illness ◽

Online Survey ◽

Mental Health Problems ◽

Affective State ◽

Well Being ◽

Health Problems ◽

Social Consequences ◽

High Rate ◽

Perceived Injustice

Introduction: Embitterment can occur as a reaction to perceived injustice. During the pandemic and restrictions in daily living due to infection risk management, a range of many smaller or severe injustices have occurred. Objective: The aim of this study is to investigate what characterizes persons with high embitterment, mental illness, embitterment and mental illness, and those without embitterment or mental health problems. Methods: We conducted an online survey including persons from the general population in November 2020 and December 2020, the phase during which a second lockdown took place, with closed shops, restaurants, cultural and activity sites. 3,208 participants (mean age 47 years) gave self-ratings on their present well-being, burdens experienced during the pandemic, embitterment, wisdom, and resilience. Results: Embitterment occurred among 16% of the sample, which is a high rate in comparison with 4% during pre-pandemic times. Embitterment was weakly correlated with unspecific mental well-being. There were more persons with embitterment than those with embitterment and a mental health problem. Persons with embitterment reported less coronavirus-related anxiety than persons without embitterment. However, embittered persons reported more social and economic burdens and more frequent experiences of losses (job loss and canceling of medical treatments). Embittered persons perceive their own wisdom competencies on a similar level as persons with mental health problems or persons without mental health problems. Conclusion: Embitterment is a specific potentially alone-standing affective state, which is distinguishable from general mental health and coping capacities (here: wisdom). The economic and social consequences of pandemic management should be carefully recognized and prevented by policy.

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Comparing the social networks of service users with long term mental health needs living in community with those in a general adult in-patient unit

International Journal of Social Psychiatry ◽

10.1177/00207640211017590 ◽

2021 ◽

pp. 002076402110175

Author(s):

Roberto Rusca ◽

Ike-Foster Onwuchekwa ◽

Catherine Kinane ◽

Douglas MacInnes

Keyword(s):

Mental Health ◽

Social Networks ◽

Social Network ◽

Patient Group ◽

Mental Health Problems ◽

Well Being ◽

Health Problems ◽

Practical Support ◽

The Social

Background: Relationships are vital to recovery however, there is uncertainty whether users have different types of social networks in different mental health settings and how these networks may impact on users’ wellbeing. Aims: To compare the social networks of people with long-term mental illness in the community with those of people in a general adult in-patient unit. Method: A sample of general adult in-patients with enduring mental health problems, aged between 18 and 65, was compared with a similar sample attending a general adult psychiatric clinic. A cross-sectional survey collected demographic data and information about participants’ social networks. Participants also completed the Short Warwick Edinburgh Mental Well-Being Scale to examine well-being and the Significant Others Scale to explore their social network support. Results: The study recruited 53 participants (25 living in the community and 28 current in-patients) with 339 named as important members of their social networks. Both groups recorded low numbers in their social networks though the community sample had a significantly greater number of social contacts (7.4 vs. 5.4), more monthly contacts with members of their network and significantly higher levels of social media use. The in-patient group reported greater levels of emotional and practical support from their network. Conclusions: People with serious and enduring mental health problems living in the community had a significantly greater number of people in their social network than those who were in-patients while the in-patient group reported greater levels of emotional and practical support from their network. Recommendations for future work have been made.

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Child maltreatment, cognitive functions and the mediating role of mental health problems among maltreated children and adolescents in Uganda

Child and Adolescent Psychiatry and Mental Health ◽

10.1186/s13034-021-00373-7 ◽

2021 ◽

Vol 15 (1) ◽

Author(s):

Herbert E. Ainamani ◽

Godfrey Z. Rukundo ◽

Timothy Nduhukire ◽

Eunice Ndyareba ◽

Tobias Hecker

Keyword(s):

Mental Health ◽

Working Memory ◽

Child Maltreatment ◽

Executive Functions ◽

Cognitive Functioning ◽

Children And Adolescents ◽

Mental Health Problems ◽

Depression Scale ◽

Well Being ◽

Health Problems

Abstract Background Child maltreatment poses high risks to the mental health and cognitive functioning of children not only in childhood but also in later life. However, it remains unclear whether child maltreatment is directly associated with impaired cognitive functioning or whether this link is mediated by mental health problems. Our study aimed at examining this research question among children and adolescents in Uganda. Methods A sample of 232 school-going children and adolescents with a mean age of 14.03 (SD = 3.25) was assessed on multiple forms of maltreatment using the Maltreatment and Abuse Chronology Exposure—Pediatric Version (pediMACE). Executive functions were assessed by the Tower of London task and working memory by the Corsi Block Tapping task, while mental health problems were assessed using the Child PTSD Symptom Scale for PTSD and the Center for Epidemiological Studies Depression Scale for Children (CES-DC). Results In total, 232 (100%) of the participant reported to have experienced at least one type of maltreatment in their lifetime including emotional, physical, and sexual violence as well as neglect. We found a negative association between child maltreatment and executive functions (β = − 0.487, p < 0.001) and working memory (β = − 0.242, p = 0.001). Mental health problems did not mediate this relationship. Conclusions Child maltreatment seems to be related to lower working memory and executive functioning of affected children and adolescents even after controlling for potential cofounders. Our study indicates that child maltreatment the affects children’s cognitive functionality beyond health and well-being.

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Iraq: children's and adolescents' mental health under conditions of continuous turmoil

International Psychiatry ◽

10.1192/s1749367600006135 ◽

2011 ◽

Vol 8 (1) ◽

pp. 4-5 ◽

Cited By ~ 1

Author(s):

AbdulKareem AlObaidi

Keyword(s):

Mental Health ◽

Children And Adolescents ◽

Health Systems ◽

Mental Health Problems ◽

Family Members ◽

Well Being ◽

Health Problems ◽

Civil Unrest ◽

Education And Health

Children and adolescents constitute half of Iraq's population of over 30 million. Mental health problems experienced by Iraqi children and adolescents are a hidden problem. Many factors contribute to the mental health problems of young Iraqis, including being victims and witnesses to violence, seeing family members become victims, being displaced from their homes, and experiencing the instability that still plagues their nation. Iraqis have experienced severe deprivation caused by many years of war, economic embargoes and civil unrest. Violence, poverty and the failure of the education and health systems have severely undermined the well-being of Iraqis, especially children (AlObaidi et al, 2009).

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Child maltreatment, cognitive functions and the mediating role of mental health problems among maltreated children and adolescents in Uganda

10.21203/rs.3.rs-75462/v1 ◽

2020 ◽

Author(s):

Herbert E Ainamani ◽

Godfrey Z Rukundo ◽

Timothy Nduhukire ◽

Eunice Ndyareba ◽

Tobias Hecker

Keyword(s):

Mental Health ◽

Working Memory ◽

Child Maltreatment ◽

Executive Functions ◽

Cognitive Functioning ◽

Children And Adolescents ◽

Mental Health Problems ◽

Depression Scale ◽

Well Being ◽

Health Problems

Abstract Background: Child maltreatment poses high risks to the mental health and cognitive functioning of children not only in childhood but also in later life. However, it remains unclear whether child maltreatment is directly associated with impaired cognitive functioning or whether this link is mediated by mental health problems. Our study aimed at examining this research question among children and adolescents in Uganda. Methods: A sample of 232 school-going children and adolescents with a mean age of 14.03 (SD = 3.25) was assessed on multiple forms of maltreatment using the Maltreatment and Abuse Chronology Exposure – Pediatric Version (pediMACE). Executive functions were assessed by the Tower of London task and working memory by the Corsi Block Tapping task, while mental health problems were assessed using the Child PTSD Symptom Scale for PTSD and the Center for Epidemiological Studies Depression Scale for Children (CES-DC).Results: In total, 232(100%) of the participant reported to have experienced at least one type of maltreatment in their lifetime ranging from having been intentionally pushed by an authority figure (89.7%, n = 208) to entering an object in the participant’s body (2.6%, n =6). We found a negative association between child maltreatment and executive functions (β = -0.487, p < .001) and working memory (β = -0.242, p = .001). Mental health problems did not mediate this relationship.Conclusions: Child maltreatment seems to be related to lower working memory and executive functioning of affected children and adolescents even after controlling for potential cofounders. Our study indicates that child maltreatment affects children’s cognitive functionality beyond health and well-being.

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Mediating Effect of Personal Meaning in the Prediction of Life Satisfaction and Mental Health Problems Based on Coronavirus Suffering

Frontiers in Psychology ◽

10.3389/fpsyg.2021.638379 ◽

2021 ◽

Vol 12 ◽

Author(s):

Gökmen Arslan ◽

Murat Yıldırım ◽

Mega M. Leung

Keyword(s):

Mental Health ◽

Life Satisfaction ◽

Mental Health Problems ◽

Well Being ◽

Health Problems ◽

Mediating Effect ◽

Personal Meaning ◽

Health Crisis ◽

Negative Effect ◽

Health And Well Being

Research Problem: The onset of the COVID-19 pandemic has triggered a multi-faceted crisis worldwide. Researchers and health authorities in various parts of the world echoed the dire condition of the public's mental health. This study sought to examine the mediating effect of personal meaning on the association between coronavirus (COVID-19)-related suffering, mental health problems, and life satisfaction. Participants included 231 adults (mean age = 46.65 ± 13.98; 68% female) and completed measures of suffering related to COVID-19, meaning, life satisfaction, and mental health problems online.Results: Findings from mediation analysis showed that suffering had significant associations with personal meaning, mental health, and well-being. Furthermore, personal meaning was significantly associated with adults' mental health and well-being and mediated the negative effect of suffering on mental health and well-being.Discussion: Overall, results from this study indicate that personal meaning is an important promotive factor that may help to understand the negative effect of coronavirus-related suffering on mental health and well-being amid the public health crisis.

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Relationships Among the Internal Health Locus of Control, Mental Health Problems, and Subjective Well-Being of Adults in South Korea

Healthcare ◽

10.3390/healthcare9111588 ◽

2021 ◽

Vol 9 (11) ◽

pp. 1588

Author(s):

Sunhwa Shin ◽

Eunhye Lee

Keyword(s):

Mental Health ◽

Locus Of Control ◽

South Korea ◽

Mental Health Problems ◽

Health Locus Of Control ◽

Well Being ◽

Health Problems ◽

Mediating Effect ◽

Subjective Well Being ◽

The Relationship

The purpose of this study was to confirm the relationship between internal health locus of control, mental health problems, and subjective well-being in adults during the prolonged COVID-19 pandemic. In particular, the mediating effect of mental health problems on the relationship between internal health locus of control and subjective well-being was examined. A cross-sectional descriptive design was conducted via online survey. The participants were 600 adults over 20 years of age living in South Korea. The collected data were analyzed using hierarchical regression analysis and SPSS Process Macro (Model 4). As a result of the study, the internal health locus of control had a significant negative effect on mental health problems. In addition, in the process of the internal health locus of control affecting subjective well-being, the mediating effect of mental health problems was significantly shown. In the period of an infectious disease pandemic such as COVID-19, it is necessary to establish a strong internal health locus of control of individuals and to promote monitoring and treatment introduction for those with a low internal health locus of control. In addition, it was discussed that controlling mental health problems can improve subjective well-being, which is life satisfaction and happiness.

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Cohort Profile: Biological Pathways of Risk and Resilience in Syrian Refugee Children (BIOPATH)

10.31234/osf.io/gt9fw ◽

2021 ◽

Author(s):

Fiona McEwen ◽

Cassandra Popham ◽

Patricia Moghames ◽

Demelza Smeeth ◽

Bernadette de Villiers ◽

...

Keyword(s):

Mental Health ◽

Mental Health Problems ◽

Demographic Data ◽

Well Being ◽

Health Problems ◽

Refugee Children ◽

Cluster Sampling ◽

Child Gender ◽

Syrian Refugee ◽

Hair Samples

The BIOPATH cohort was established to explore the interplay of psychosocial and biological factors in the development of resilience and mental health problems in Syrian refugee children. Based in Lebanon, a middle-income country significantly impacted by the refugee crisis, it is the first such cohort of refugees in the Middle East. Families were recruited from informal tented settlements in the Beqaa region using purposive cluster sampling. At baseline (October 2017–January 2018), N=3,190 individuals participated (n=1,595 child-caregiver dyads; child gender, 52.7% female; mean [SD] age=11.44 [2.44] years, range=6-19]). Re-participation rate at one year follow up was 63%. Individual interviews were conducted with children and primary caregivers and biological samples collected from children. Measures include: (i) children’s well-being and mental health problems (using tools validated against clinical interviews in a subsample of the cohort); (ii) psychosocial risk and protective factors at the level of the individual (e.g., coping strategies), family (e.g., parent-child relationship), community (e.g., collective efficacy), and wider context (e.g., services); (iv) saliva samples for genetic and epigenetic (methylation) analyses; (v) hair samples to measure cortisol, dehydroepiandrosterone [DHEA] and testosterone. This cohort profile provides details about sampling and recruitment, data collection and measures, demographic data, attrition and potential bias, key findings on resilience and mental health problems in children, and strengths and limitations of the cohort. Researchers interested in accessing data should contact Professor Michael Pluess at Queen Mary University of London, UK (e-mail: [email protected]).

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