Admiral Nurses delivering workplace clinics for family carers: Innovative practice

Dementia ◽  
2017 ◽  
Vol 19 (2) ◽  
pp. 472-478
Author(s):  
Ian Weatherhead ◽  
Linda Eades ◽  
Karen Harrison Dening ◽  
Wendy Weidner
Keyword(s):  
Working Hours ◽  
Civil Servants ◽  
Innovative Approach ◽  
Family Carers ◽  
Innovative Practice ◽  
Support Family

Dementia UK and The Charity for Civil Servants teamed up to test the acceptability and feasibility of delivering a work-based Admiral Nurse clinic to support family carers during their employed working hours. This paper presents some of the learning from this innovative approach.

scholarly journals A decision aid to support family carers of people living with dementia towards the end‐of‐life: Coproduction process, outcome and reflections

2021 ◽  
Author(s):  
Nathan Davies ◽  
Elizabeth L. Sampson ◽  
Emily West ◽  
Tanisha DeSouza ◽  
Jill Manthorpe ◽  
...  
Keyword(s):  
End Of Life ◽  
Decision Aid ◽  
Family Carers ◽  
Support Family

scholarly journals Supporting family carers in home-based end-of-life care: using participatory action research to develop a training programme for support workers and volunteers

2017 ◽  
Vol 9 (1) ◽  
pp. e4-e4 ◽  
Author(s):  
Glenys Caswell ◽  
Beth Hardy ◽  
Gail Ewing ◽  
Sheila Kennedy ◽  
Jane Seymour
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
End Of Life ◽  
Third Sector ◽  
Training Programme ◽  
Family Carers ◽  
Participatory Action ◽  
Health And Social Care ◽  
Carer Support ◽  
Support Family

BackgroundFamily carers are crucial in enabling dying people to stay at home, but are often not prepared for their caring role, receiving little support from formal health and social care services. It is increasingly likely that any help or support family carers receive will be provided by a third sector organisation on either a voluntary basis or by untrained carer support workers.ObjectivesTo produce a training programme designed to equip carer support workers and volunteers with the basic skills and knowledge needed to support family carers.Process of developmentParticipatory action research, a collaborative form of working in which those who are affected by an issue take a lead role in the research, was used. Bereaved carers acting as research partners, support workers and representatives of third sector organisations took an active part in designing, developing, piloting and refining the programme in a number of interlinked stages. During development, the programme was piloted on four occasions and evaluated by 36 trainees and 3 trainers.Final training programmeThe outcome of the project is an innovative, 1-day training programme, offering an introduction to supporting family carers who are looking after someone approaching the end of life. The use of participatory action research methods enabled the development of a programme that addresses support needs identified by bereaved carers and training needs identified by carer support workers.The finished programme includes all the materials necessary to run a training day for support workers and volunteers: facilitator’s notes, trainee workbook, slides, promotional poster and pre-course reading for trainees. Knowledge of issues involved in end-of-life and palliative care is not required, although some experience in delivering training is advisable.ConclusionThe programme evaluated well during development, but further research is required to examine the transfer of learning into the workplace.

scholarly journals Challenges faced during the COVID-19 pandemic by family carers of people living with dementia towards the end of life

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Narin Aker ◽  
Emily West ◽  
Nathan Davies ◽  
Kirsten J. Moore ◽  
Elizabeth L. Sampson ◽  
...  
Keyword(s):  
End Of Life ◽  
Care Home ◽  
Care Transitions ◽  
Support Line ◽  
Telephone Support ◽  
Family Carers ◽  
Structured Interviews ◽  
Line Staff ◽  
Home Placement ◽  
Support Family

Abstract Background People living with dementia account for a large proportion of deaths due to COVID-19. Family carers are faced with making significant and emotive decisions during the pandemic, including decisions about end of life. We aimed to explore the challenges faced by family carers of people living with dementia during the first wave of the COVID-19 pandemic in England, as reported by charity telephone support line staff, who were able to objectively discuss a range of different experiences of many different carers who call the helpline. In particular, we focussed on key concerns and areas of decision making at the end of life. Methods We conducted a qualitative study using semi-structured interviews with eight telephone support line staff from two UK based charities who support carers of people living with dementia and those at the end of life. Interviews were conducted in the first wave of the pandemic in England in May–June 2020. Results An overarching theme of uncertainty and reactivity during a crisis was identified, and within this, five main themes were identified: concerns about care transitions, uncertainty in engaging support and help, pandemic-motivated care planning, maintaining the wellbeing of the person living with dementia, and trust, loss of agency and confusion. Conclusions Family carers may be reluctant to seek support because of fear of what may happen to their relative, which may include hospitalisation and becoming ill with COVID-19, care home placement, or not being able to be with a relative at the end of life. In some cases, a lack of trust has developed, and instead carers are seeking support from alternative services they trust such as nationally known charities.This study was used to inform the development of a decision aid to support family carers making decisions about care for their relative with dementia during the pandemic, who the lack the capacity to make their own decisions.

scholarly journals Peran Manajemen Waktu dan Leader-Member Exchange terhadap Kinerja Pegawai Negeri Sipil

2019 ◽  
Vol 9 (2) ◽  
pp. 135
Author(s):  
Ilma Iftahul Ula ◽  
Fendy Suhariadi
Keyword(s):  
Performance Appraisal ◽  
Time Management ◽  
Working Hours ◽  
Analysis Data ◽  
Civil Servants ◽  
Leader Member Exchange ◽  
Regional Government ◽  
Member Exchange ◽  
Positive Time ◽  
Performance System

The performance of civil servants is important to be measured by each regional government in Indonesia. Thus, the Regional Government in District X in East Java has been renewing the performance appraisal method for civil servants in its educational unit by using the e-performance application. The e-performance is used to monitor the suitability of the working hours of each civil servant. The successful use of e-performance will be determined by the role of supervisors. Based on this fact, this study examined the influence of time management and leader-member exchange on the performance of civil servants in District X through the implementation of e-performance system. Hypothesizes of this study were tested using multiple regression analysis. Data were collected using time management and leader-member exchange scales. A total of 285 civil servants in District X which consist of 38.6% men and 61.4% women were involved in this study. The results show that there is positive effect of time management and leader-member exchange on the performance of participants. This study concludes that a positive time management and leader-member exchange among participants will lead to their better performances.  

Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

2018 ◽  
Vol 33 (2) ◽  
pp. 250-256 ◽  
Author(s):  
Anita Chung ◽  
Aileen Collier ◽  
Merryn Gott
Keyword(s):  
Palliative Care ◽  
Grey Literature ◽  
Well Being ◽  
Research Literature ◽  
Integrative Review ◽  
Empirical Literature ◽  
Family Carers ◽  
Care Needs ◽  
Palliative Care Needs ◽  
Support Family

Background: Public health approaches to palliative care prioritise community-focused initiatives to support people with palliative care needs and their families. The nature and extent of these initiatives have not previously been reported. Aim: To identify community-led and/or focused initiatives that have been developed to support family carers of people with palliative care needs and for which evaluation information is reported in the empirical literature. Design: An integrative study design was undertaken using systematic methods. Data sources: CINAHL, Medline, PsycINFO, Embase, Cochrane, Sociological Abstracts, Proquest Social Science Database, and grey literature were searched using standardised search terms. Results: Two quantitative, two qualitative and two mixed method studies were identified ( n = 6). All community initiatives identified were professionally led, although three had consumer input. Most aimed to improve carer psychosocial well-being and all were reported to have been beneficial. Conclusions: This integrative review identified only six community-focused and evaluated initiatives supporting family carers in the international palliative care research literature. Further evaluation is needed. However, appropriate evaluation methods and reporting require further discussion and debate between all stakeholders. Service users and communities themselves must be central to this process.

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