The reliability of the Internet for patient-centred education for surgical procedures

2020 ◽  
Vol 15 (4) ◽  
pp. 197-203
Author(s):  
Ca Slinger ◽  
I Smillie

Background There is increasing use of the Internet by patients as an educational tool prior to a surgical procedure. However, the quality of information is highly variable, and it is imperative that as clinicians, we are aware of the information available to ensure that consent is valid and avoid unrealistic expectations. Our aim is to assess the quality of medical information available on the Internet related to common surgical procedures. Methods Analysis of the quality of patient information on 10 websites for six common surgical conditions ( n = 54 following exclusions) was assessed using the DISCERN questionnaire and, for readability, using the Flesch reading ease test. Results There was high variation in the DISCERN score from 1.34 to 4.4 (mean 2.75). Overall, poor quality of patient information is available. Consistent scoring below 55 on Flesch reading ease score suggests a reading level beyond the majority of the patient population. Conclusion The majority of patient-centred health education on the Internet is poor. Therefore, improved verbal and written information during consultation combined with local, national and international websites is important to meet patient’s expectations and avoid issues regarding consent.

2019 ◽  
Vol 49 (6) ◽  
pp. 1142-1152 ◽  
Author(s):  
Olivia Genevieve El Jassar ◽  
Isobel Nadia El Jassar ◽  
Evangelos I. Kritsotakis

Purpose This paper aims to assess the quality of health information available to patients seeking online advice about the vegan diet. Design/methodology/approach A cross-sectional sample of patient-oriented websites was selected by searching for “Vegan diet” in the three most popular search engines. The first 50 websites from each search were examined. Quality of information was assessed using the DISCERN instrument, a questionnaire tool designed to judge the quality of written information on treatment choices. Readability was determined with the Flesch Reading Ease score (FRES) and Flesch–Kincaid Grade Level (FKGL). Relevance to health and disease was assessed by counting the appearances of ten related keywords, generated by searching the query term “Vegan diet” into PubMed and recording the top ten health-related words. Findings Of 150 websites retrieved, 67 (44.7 per cent) met inclusion criteria. Of these, 42 (62.7 per cent) were non-pharmaceutical commercial, 7 (10.4 per cent) institutional, 6 (9.0 per cent) magazines or newspapers, 4 (6.0 per cent) support websites, 4 (6.0 per cent) charitable websites, 2 (3.0 per cent) encyclopedias and 2 (3.0 per cent) personal blogs. The overall DISCERN rating of the websites was fair (mean 41.6 ± 15.4 on an 80-point scale), but nearly half (31/67) of the websites were assessed as having “poor” or “very poor” quality of information. FRES and FKGL readability indices met the recommended standards on average (means 63.3 ± 9.6 and 6.6 ± 1.7, respectively), but did not correlate with high DISCERN ratings. Analysis of variance on DISCERN scores (F(6,60) = 6.536, p < 0.001) and FRES (F(6,60) = 2.733, p = 0.021) yielded significant variation according to website source type. Originality/value Quality standards of health information available on the internet about the vegan diet vary greatly. Patients are at risk of exposure to low quality and potentially misleading information over the internet and should be consulting dietitians or physicians to avoid being misled.


Author(s):  
A Habeeb

Abstract Objective This study aimed to assess the quality and readability of websites on chronic rhinosinusitis. Methods A total of 180 results from 3 different search engines regarding ‘chronic rhinosinusitis’, ‘sinusitis’ and ‘sinus infections’ were analysed for readability using the Flesch–Kincaid Grade Level, Flesch Reading Ease Score and Gunning Fog Index. The Discern tool was used to approximate information quality. Results From 180 total searches, 69 unique websites were identified. These had an average Flesch–Kincaid Grade Level of 9.75 (95 per cent confidence interval = 9.12–10.4), a Flesch Reading Ease Score of 45.0 (41.0–49.0) and a Gunning Fog Index of 13.7 (12.9–14.4), which equates to the average reading level of a college or university student. Discern scores were variable but consistently showed good-quality information. Conclusion Chronic rhinosinusitis information is of a high quality but is for a reading level higher than that of the average adult. Standardising patient information should ensure adequate comprehension and improve patient compliance.


2019 ◽  
Vol 32 (Supplement_1) ◽  
Author(s):  
B R O’Connor ◽  
E Doherty ◽  
F Friedmacher ◽  
L Vernon ◽  
T S Paran

Abstract Introduction Increasingly in pediatric surgical practice, patients, their parents, and surgeons alike use the Internet as an easily and quickly accessible source of information about conditions and their treatment. The quality and reliability of this information may often be unregulated. We aim to objectively assess the online information available relating to esophageal atresia and its management. Methods We performed searches for ‘oesophageal atresia’ and ‘esophageal atresia’ using the Google, Yahoo, and Bing engines to encompass both European and American spellings. We assessed the first 20 results of each search and excluded duplicates or unrelated pages. The DISCERN score and the Health on the Net Foundation Code (HONcode) toolbar were utilized to assess the quality of information on each website. We evaluated readability with the Flesch reading ease (FRE) and the Flesch–Kincaid grade (FKG). Results Of the original 120 hits, 61 were excluded (51 duplicates, 10 unrelated). Out of 59 individual sites reviewed, only 13 sites were HONcode approved. The mean overall DISCERN score was 52.55 (range: 22–78). The mean DISCERN score for the search term ‘oesphageal atresia’ was 57 (range: 22–78) in comparison to 59.03 for ‘esophageal atresia’ (range: 27–78). Google search had the lowest overall mean DISCERN score at 54.83 (range: 35–78), followed by Yahoo at 58.03 (range: 22–78), and Bing with the highest overall mean score of 61.2 (range: 27–78). The majority of websites were graded excellent (≥63) or good (51–62), 43% and 27%, respectively; 20% were scored as fair (39–50), with 10% being either poor (27–38) or very poor (≤26). In terms of readability, the overall Flesch Reading Ease score was 33.02, and the overall Flesch–Kincaid grade level was 10.3. Conclusions The quality of freely available online information relating to esophageal atresia is generally good but may not be accessible to everyone due to being relatively difficult to read. We should direct parents towards comprehensive, high-quality, and easily readable information sources should they wish to supplement their knowledge about esophageal atresia and its management.


2011 ◽  
Vol 126 (2) ◽  
pp. 116-119 ◽  
Author(s):  
S Muthukumarasamy ◽  
Z Osmani ◽  
A Sharpe ◽  
R J A England

AbstractIntroduction:This study aimed to assess the quality of information available on the World Wide Web for patients undergoing thyroidectomy.Methods:The first 50 web-links generated by internet searches using the five most popular search engines and the key word ‘thyroidectomy’ were evaluated using the Lida website validation instrument (assessing accessibility, usability and reliability) and the Flesch Reading Ease Score.Results:We evaluated 103 of a possible 250 websites. Mean scores (ranges) were: Lida accessibility, 48/63 (27–59); Lida usability, 36/54 (21–50); Lida reliability, 21/51 (4–38); and Flesch Reading Ease, 43.9 (2.6–77.6).Conclusion:The quality of internet health information regarding thyroidectomy is variable. High ranking and popularity are not good indicators of website quality. Overall, none of the websites assessed achieved high Lida scores. In order to prevent the dissemination of inaccurate or commercially motivated information, we recommend independent labelling of medical information available on the World Wide Web.


2002 ◽  
Vol 36 (12) ◽  
pp. 1856-1861 ◽  
Author(s):  
David R Foster ◽  
Denise H Rhoney

BACKGROUND: Written information can be a valuable tool in patient education. Studies evaluating written information for various disease states have frequently demonstrated that the majority of literature is written at a readability level that exceeds that of the average patient, and it has been recommended that written communications for adult patients should be provided at a fifth-grade level or lower. OBJECTIVE: To assess the readability of printed patient information available to patients with epilepsy. METHODS: Samples of written patient information (n = 101) were obtained from various sources. The information was classified based on source, content, and intended audience, and readability was assessed using the Flesch Reading Ease Score (FRES) and Flesch—Kincaid Grade Level (FKGL) score. RESULTS: The mean FRES and FKGL score for all samples were 50.2 and 9.4, respectively. Significant differences were observed in both the FRES and FKGL score of material obtained from different sources; however, no differences were observed when material was analyzed according to content. The mean FRES and FKGL score for materials intended for adults were 49.6 and 9.5, respectively. In comparison, mean FRES and FKGL scores for materials intended for children/adolescents were 78.9 and 5.3, respectively. CONCLUSIONS: The majority of information tested was written at a level that exceeds the reading ability of many patients. The information intended for children is actually written at the appropriate level for an adult. Efforts should be taken to develop written teaching tools that target low-level readers, especially for a disease state that affects many children.


2021 ◽  
Vol 11 (3) ◽  
pp. 323-328
Author(s):  
Matthew Clark ◽  
Ian Colin Baxter ◽  
Matthew Hampton ◽  
Robert D Sandler ◽  
Andrew Legg

Background: High tibial osteotomy (HTO) is a common procedure performed for unicompartmental knee osteoarthritis (OA). Patients are increasingly using the internet to research surgical procedures to help aid decision making. Our aim was to assess the readability and quality of information available to patients online relating to HTO. Methods: A systematic review of three search engines Google, Bing, and Yahoo using the search terms "high tibial osteotomy" and "tibial osteotomy" separately was performed. The first three pages of results for each search engine were analyzed. Readability was assessed using the Flesch Reading Ease Scale (FRES), Flesch-Kincaid Grade level (FKGL) and the Simple Measure of Gobbledygook formula (SMOG). Quality was assessed with the DISCERN questionnaire, JAMAbenchmarks and the presence of Health on the Net Foundation Code of Conduct (HONCode). Results: Twenty-four webpages were included after duplicates (n=42) and exclusions (n=24).The overall readability was low, with a mean FRES of 53.2 (SD: 9.1), FKGL 10.7 (SD: 1.8),SMOG 10.4 (SD: 1.5). Quality was also low with a mean DISCERN score of 42 (SD: 12.3).None of the webpages fulfilled all of the JAMA benchmarking criteria and only 2/24 (8.3%)webpages possessed HONCode certification. Conclusion: The overall online information available to patient’s considering HTO is of lowreadability and quality. Improving the quality and readability of patient information online willbenefit informed patient decision making before HTO surgery.


Blood ◽  
2015 ◽  
Vol 126 (23) ◽  
pp. 4462-4462
Author(s):  
Vicky R. Breakey ◽  
Lauren Harris ◽  
G Omar Davis ◽  
Arnav Agarwal ◽  
Carley Ouellette ◽  
...  

Abstract Objective: A comprehensive website review was conducted to assess the quality, content and readability of online information for teens with sickle cell anemia (SCA). Methods. Key words relevant to SCA were searched across the five most commonly used search engine domains. Websites that contained information about the diagnosis and management of SCA were reviewed. Quality of the information was appraised using the validated DISCERN tool. Two physicians rated website content completeness and accuracy independently. Readability of the sites was documented using SMOG scores and the Flesch Reading ease scoring system. Results. Search results yielded more than 600 sites of which 25 websites met the criteria for DISCERN quality review. The majority of sites targeted parents and only 5/25 (20%) were specific to teens with SCA. The overall quality of the website information was "fair", with the average DISCERN quality rating score being 50.1 (± 9.3, range 31.0-67.5). Only 12/25(48%)of the websites had DISCERN scores above 50 (mean 57.37 + 4.93, range 52.17-67.50). The average completeness score of the sites was 20 out of 29 (±5; range 12-27) and accuracy was consistently rated 4/4, indicating high accuracy with moderate completeness. The average SMOG score was 12.44 (±2.01; range 10.21-16.08), and the mean Flesch Reading Ease score was 46.45 (±13.22; range 17.50-66.10) indicating that the material was written well above the acceptable level for patient education materials. Conclusion. Given the paucity of high quality Internet health information at an appropriate reading level for teens with SCA, there is a critical need for the development of Internet programs to meet their unique self-management needs. Disclosures No relevant conflicts of interest to declare.


2018 ◽  
Vol 11 (02) ◽  
pp. 094-099
Author(s):  
Daniel Bakker ◽  
Janna S. E. Ottenhoff ◽  
David Ring

Abstract Background The Internet is increasingly used by patients to seek health information about their medical conditions. The online information is of variable quality, often difficult to read, and sometimes inaccurate or misleading. This study assessed factors associated with the quality, readability, and dominant tones of online information about scapholunate interosseous ligament (SLIL) insufficiency. Materials and Methods Using the three most used search engines, we entered the terms “wrist sprain,” “scapholunate ligament injury,” and “SL dissociation” and assessed the quality of the 45 Web sites identified using the DISCERN tool, readability by the Flesch Reading Ease Score, the Flesch–Kincaid Grade Level, the Gunning Fog Index, and the Simple Measure Of Gobbledygook, and dominant tones using the IBM Watson Tone Analyzer and the Linguistic Inquiry and Word Count. Results Online information about SLIL injuries had a mean DISCERN score of 39 ± 8.2. A dominant Web site tone of “sadness” correlated with lower DISCERN scores. A dominant tentative tone in text was associated with easier to comprehend texts. Conclusion The online information regarding SLIL insufficiency is of generally low quality, limited readability, and the underlying tones may be misleading. Professional societies might consider efforts to provide appealing, readable, information about SLIL insufficiency and other less common diagnoses on the Internet.


2008 ◽  
Vol 90 (7) ◽  
pp. 601-605 ◽  
Author(s):  
A Roshan ◽  
S Agarwal ◽  
RJA England

INTRODUCTION The aim of this study was to assess the quality of information available on the world wide web to parents of children undergoing tonsillectomy. MATERIALS AND METHODS The main data source was from internet searches using the five most popular search engines and the keyword ‘tonsillectomy’ with default settings. The first 50 web links in each search were evaluated with the LIDA Instrument (assessing accessibility, usability and reliability criteria). We also assessed the readability of the sites using the Flesch reading ease score (FRES). RESULTS Of the 250 possible links, 113 new links were included the remaining being repetitions, inactive links or restricted access sites. The websites had an average accessibility score of 42/63 (66.7%; range, 26–57), a usability score of 29/54 (53.7%; range, 7–49), and are liability score of 17/51 (33.3%; range, 0–49). The Flesch reading ease score was 43.8 (range, 3–84.4). CONCLUSIONS Health information available on the internet varies greatly. Highly ranked websites on popular search engines may not be the most reliable. Overall, the websites had low scores for reliability, with poor engagability, content production and conflict of interest declaration. Patients should be given previously assessed references on the internet to prevent them being misled by in accurate or commercially motivated information.


2020 ◽  
Author(s):  
Shahi Ghani ◽  
Ka Siu Fan ◽  
Ka Hay Fan ◽  
Lorenzo Lenti ◽  
Dimitri Raptis

BACKGROUND Appendicitis is a common surgical problem amongst the young adult population, who are likely to use the Internet to obtain medical information. This information may determine the health-seeking behaviour of an individual and may delay medical attention. Little is known regarding the quality of patient information on appendicitis on the Internet as this has not been previously studied. OBJECTIVE Our objective for this study was to evaluate the quality the quality of information found on the top searched websites that aim to provide patient information regarding appendicitis. METHODS We conducted a systematic review of information on appendicitis available online using 4 search terms in google ‘appendicitis’ ‘appendix’, ‘appendectomy’ and ‘appendicectomy’. The top 100 websites of every search term were assessed using the validated ’Ensuring Quality Information for Patients’ (EQIP) tool (Score 0-36). RESULTS A total of 119 websites met the eligibility criteria for evaluation. The overall median EQIP score for all websites was 20 (Interquartile range 18-22). More than half the websites originated from the USA (53%). 45% of all websites originated from hospitals, though 43% of these did not mention qualitative risks from surgery. Incidence rates were only provided for complications and mortality in 13% and 3% of all websites respectively. CONCLUSIONS The assessment of the quality and readability of websites concerning appendicitis by the EQIP tool indicates that most sites online were of poor credibility, with minimal information regarding complication rates and mortality. To improve education and awareness of appendicitis, there is an immediate need for more informative and patient-centred websites that are more compatible with international quality standards.


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