scholarly journals Multicomponent Informed Consent with Marshallese Participants

2021 ◽  
pp. 155626462110056
Author(s):  
Rachel S. Purvis ◽  
Britni L. Ayers ◽  
Cari A. Bogulski ◽  
Kyle F. Kaminicki ◽  
Lauren K. Haggard-Duff ◽  
...  
Keyword(s):  
Community Based Participatory Research ◽  
The United States ◽  
Academic Community ◽  
Pacific Islanders ◽  
Personal Health Information ◽  
Indigenous Populations ◽  
Community Research ◽  
Plain Language ◽  
Community Based ◽  
Study Participants

Pacific Islanders are the second fastest-growing population in the United States; however, Pacific Islanders, and Marshallese specifically, are underrepresented in health research. A community-based participatory research (CBPR) approach was used to engage Marshallese stakeholders and build an academic-community research collaborative to conduct health disparities research. Our CBPR partnership pilot tested a multicomponent consent process that provides participants the option to control the use of their data. Consent forms used concise plain language to describe study information, including participant requirements, risks, and personal health information protections, and were available in both English and Marshallese. This study demonstrates that when provided a multicomponent consent, the vast majority of consenting study participants (89.6%) agreed to all additional options, and only five (10.4%) provided consent for some but not all options. Our description of the development and implementation of a multicomponent consent using a CBPR approach adds a specific example of community engagement and may be informative for other indigenous populations.

scholarly journals Using community-based participatory research in improving the management of hypertension in communities: A scoping review

2020 ◽  
Vol 62 (1) ◽  
Author(s):  
Pugie T. Chimberengwa ◽  
Mergan Naidoo
Keyword(s):  
Primary Care ◽  
Participatory Research ◽  
Scoping Review ◽  
Community Based Participatory Research ◽  
The United States ◽  
Academic Community ◽  
Community Based ◽  
Primary Care Settings ◽  
A Priority ◽  
The Impact

Background: Hypertension (HT) is a key contributor to cardiovascular diseases (CVDs). The improved management of HT in the community and primary care settings should be a priority for low- and middle-income countries (LMICs). Improving the prevention and management of HT in primary care settings should also be a priority for developing countries. There is a need for more studies using community-based approaches that show the impact of these programmes on HT outcomes, which may motivate policymakers to invest in such approaches. The ward-based outreach team or village healthcare worker models were meant to provide such approaches, but many of these have become lower levels of curative care. We conducted a scoping review to examine how community-based participatory research (CBPR) was being used to improve HT management.Methods: Several electronic databases were searched, namely PubMed, MEDLINE, Google Scholar and Web of Science, generating 798 references. The publications were screened through several rounds. Data were extracted and imported into a Microsoft Excel spreadsheet, numerically summarised and qualitatively analysed.Results: Nine articles were included. These publications originated from the United States, Colombia, Canada, China, South Africa and Zimbabwe. Mixed methods, qualitative, randomised control trials and quasi-experimental studies were used to implement CBPR in the studies included. All the studies addressed complex health problems and inequities among the minorities utilising multiple stakeholder participation. Academic–community coalitions were formed, which enabled engagement and sharing of power equitably. As a result, there was acceptability and sustainability of interventions.Conclusion: A CBPR framework can be used to define the context, group dynamics, implementation and outcomes of HT. It is possible to apply CBPR in HT management to appropriately address health disparities while emphasising a community-driven approach. To achieve this, tailored health education platforms should be developed and implemented.

Institutional Review Board Basics for Pedagogy Research

2018 ◽  
Vol 4 (3) ◽  
pp. 172-177
Author(s):  
Whitney Boling ◽  
Kathryn Berlin ◽  
Rhonda N. Rahn ◽  
Jody L. Vogelzang ◽  
Gayle Walter
Keyword(s):  
United States ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
The United States ◽  
Institutional Review Board ◽  
Community Based ◽  
Institutional Review ◽  
History Of ◽  
Conducting Research ◽  
Human Participants

The institutional review board (IRB) process is often protracted and can be a source of frustration, especially when you want your research and publications to move apace. However, because of historical events, the IRB is an important requirement for conducting research with human participants and is regulated by federal oversite. When conducting research as part of a pedagogical study, it is important to identify which level of IRB review (exempt, expedited, or full board) is required. The purpose of this article is to highlight IRB basics within the United States for pedagogy research. Although there are guidelines internationally, this article specifically focuses on U.S. IRBs, including a brief history of the IRB, pedagogical and community-based participatory research, IRB review, tips for IRB submissions, and example case studies.

scholarly journals Lessons learned from developing and sustaining a community-research collaborative through translational research

2018 ◽  
Vol 2 (2) ◽  
pp. 79-85 ◽  
Author(s):  
Amy LeClair ◽  
Jean J. Lim ◽  
Carolyn Rubin
Keyword(s):  
Translational Research ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Lessons Learned ◽  
Community Research ◽  
Structured Interviews ◽  
Community Based ◽  
Spheres Of Influence ◽  
Asian Populations ◽  
Current State

IntroductionThe goal of this project was to document the current state of a community-academic partnership, identifying early successes and lessons learned.MethodsWe employed qualitative methods, semi-structured interviews and document analysis, from 2 data sources to (1) show how the principles of community-based participatory research are enacted through the activities of Addressing Disparities in Asian Populations through Translational Research (ADAPT) and (2) elucidate the barriers and facilitators to adhering to those principles from the perspectives of the members themselves.ResultsIn addition to established community-based participatory research values, understanding individuals’ motivations for participation, the challenges aligning the priorities of community organizations and academic partners, and definitions of success are themes that emerged as key to the process of maintaining this partnership.ConclusionAs the emphasis on community-academic partnerships grows, there is potential for clinical and translational science awards to use community engagement to facilitate translational research beyond the traditional medical spheres of influence and to forge relationships with affected communities.

scholarly journals Developing a Community-Based Research Project Proposal to Build Public Health Educator Capacity: A Graduate Student Perspective

2019 ◽  
Vol 20 (6) ◽  
pp. 801-804
Author(s):  
Alexander Joseph Baukus
Keyword(s):  
Public Health ◽  
Public Health Practice ◽  
Community Based Participatory Research ◽  
Public Health Education ◽  
The United States ◽  
Student Perspective ◽  
Project Proposal ◽  
Community Based ◽  
Community Based Research ◽  
Person Perspective

This article is the author’s first-person perspective of completing an Applied Practice Experience (APE) at an accredited public health program. Graduate-level public health students in the United States are mandated by the Council on Education for Public Health to complete this supervised field experience to apply knowledge and concepts to real-world public health practice. For his APE, the author worked with a faculty advisor and two community groups to facilitate and submit a community-based participatory research grant proposal. This article discusses the author’s experiences before, during, and after the APE. The author outlines challenges and success of working on this applied project. The article concludes with implications for public health education specialists regarding experiential learning and applied practice experiences for graduate students.

A Community-Based Participatory Research Model and Web Application for Studying Health Professional Shortage Areas in the United States

2013 ◽  
Vol 8 (3) ◽  
pp. 23-37
Author(s):  
Sonya Zhang ◽  
Bradley Dorn
Keyword(s):  
United States ◽  
Health Professional ◽  
Participatory Research ◽  
Web Application ◽  
Public Awareness ◽  
Community Based Participatory Research ◽  
The United States ◽  
Limited Data ◽  
Community Based ◽  
Related Data

Health Professional Shortage Areas (HPSA) are still associated with “worse general health status and poor physical health” (Jiexin, 2007) in the United States today. Meanwhile, limitations still exist in HPSA studies for multiple reasons, including limited data resources and availability, lack of efficient way to share and collaborate, and lack of community participation and public awareness. To overcome these limitations, we proposed a Community-Based Participatory Research (CBPR) approach for HPSA studies that allows researchers to share and collaborate on HPSA related data, and allows the general public to learn about HPSA and participate in survey and discussions that help supplement researchers’ data. Through CBPR, effective and location-appropriate research, planning, and awareness can be achieved (O'Fallon & Dearry, 2002). We then described a Web application, which was designed based on our CBPR model, through the use of Google Fusion Table and Geocoding.

Application of Community-Based Participatory Research Methods to a Study of Complementary Medicine Interventions at End of Life

2005 ◽  
Vol 10 (2) ◽  
pp. 91-104 ◽  
Author(s):  
Anna-leila Williams ◽  
Peter A. Selwyn ◽  
Ruth McCorkle ◽  
Susan Molde ◽  
Lauren Liberti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Complementary Medicine ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Academic Community ◽  
Open Communication ◽  
Community Based ◽  
End Stage

Community-based participatory research (CBPR) principles can be successfully applied to the design and implementation of a complementary medicine study for adults with end-stage AIDS. The Yale Prevention Research Center partnered with Leeway, Inc., an AIDS-dedicated nursing facility, and other academic and clinical entities to conduct a randomized, controlled pilot trial of meditation and massage on quality of life at the end of life. Using CBPR principles, a methodology was developed that was scientifically rigorous, highly respectful, and acceptable to the 91% minority study population. Using continuous, open communication among all involved parties, challenges were satisfactorily addressed in a timely manner. Fifty-eight residents (97% of those eligible) with end-stage AIDS participated from November 2001 to September 2003. Subjects received 1-month interventions of meditation, massage, combined meditation and massage, or standard care. The study of quality-of-life in end-stage AIDS poses unique challenges well met by applying CBPR principles to an academic-community research partnership.

Photovoice as a Pedagogical Tool to Increase Research Literacy Among Community Members

2017 ◽  
Vol 4 (2) ◽  
pp. 108-114 ◽  
Author(s):  
Goldie Komaie ◽  
Keon L. Gilbert ◽  
Cassandra Arroyo ◽  
Melody S. Goodman
Keyword(s):  
Qualitative Methods ◽  
Community Based Participatory Research ◽  
Community Research ◽  
Community Members ◽  
Community Based ◽  
Pedagogical Tool ◽  
Saint Louis ◽  
Research Literacy ◽  
Health Related Research ◽  
Session Evaluations

Photovoice is a community-based participatory research method that engages individuals to use photographs to reflect on the strengths and issues affecting their community as well as advocate for positive change. This article presents using photovoice as a pedagogical tool to introduce qualitative research methods to community members enrolled in the 15-week Community Research Fellows Training Program in Saint Louis, Missouri. Seventy-eight community members across two cohorts completed individual homework assignments examining social capital and health. Completed assignments were categorized into six general themes and participants took part in facilitated small group discussions by theme. Pre- and posttest surveys were completed; statistically significant improvements were seen in participants’ knowledge of qualitative methods. On a scale of 1 to 5, participants rated the qualitative methods session positively with an overall score of 4.48 (Cohort I) and 4.80 (Cohort II). Qualitative data from session evaluations and exit interviews illustrate completing a photovoice project served as a “powerful” and “insightful” experience that enhanced experiential learning and engaged participants in health-related research in their communities. Participants’ positive session evaluations and increased knowledge of qualitative methods suggest that photovoice is an effective pedagogical tool to increase research literacy among community members. Opportunities to broadly train community members, especially those that are not part of a single community-based organization, may help build broader community capacity and as such strengthen community–academic partnerships.

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