scholarly journals EXPRESS: “It is the fear of exercise that stops me” – Attitudes and dimensions influencing physical activity in pulmonary hypertension patients

2021 ◽  
pp. 204589402110565
Author(s):  
Ciara McCormack ◽  
Sarah Cullivan ◽  
Brona Kehoe ◽  
Noel McCaffrey ◽  
Sean Gaine ◽  
...  
Keyword(s):  
Physical Activity ◽  
Pulmonary Hypertension ◽  
Environmental Factors ◽  
Perceived Value ◽  
Weather Conditions ◽  
Structured Interviews ◽  
Physical Damage ◽  
Life Engagement ◽  
Considerable Morbidity

Pulmonary Hypertension (PH) is a progressive cardiorespiratory disease, that is characterized by considerable morbidity and mortality. While physical activity (PA) can improve symptoms and quality of life, engagement in this population is suboptimal. The aim of this study was to explore attitudes towards exercise and the dimensions that influence PA participation in individuals with PH. Virtual, semi-structured interviews were conducted with individuals, with a formal diagnosis of PH. Participants were recruited through the Pulmonary Hypertension Association of Ireland. Interviews were transcribed and analysed using thematic analysis. Nineteen patients were interviewed (n=19). There was a female preponderance (n=13) and the mean age was 50 ± 12 years. Three themes were identified and included fear; perceived value of exercise; and environmental factors. Fear was the primary theme and included three sub-themes of fear of (i) over-exertion, (ii) physical damage and (iii) breathlessness. The perceived value of exercise encompassed two distinct sub-themes of perceived (i) exercise importance and (ii) benefits of exercise. Environmental factors included the terrain, weather conditions and location. Fear of overexertion, harm and dyspnoea strongly influenced attitudes to and engagement in PA. This study revealed heterogenous patient perspectives regarding the importance of PA and exercise. Future interventions that mitigate fear and promote the value of PA for individuals with PH may have considerable benefits in promoting PA engagement. Such interventions require multidisciplinary involvement, including specialised PH clinicians and exercise and behaviour change specialists.

scholarly journals Understanding Experiences of Fibromyalgia Patients Involved in the Fimouv Study During COVID-19 Lockdown

2021 ◽  
Vol 12 ◽  
Author(s):  
Claire Colas ◽  
Audrey Jumel ◽  
Marie-Pierre Vericel ◽  
Nathalie Barth ◽  
Jessica Manzanares ◽  
...  
Keyword(s):  
Physical Activity ◽  
Trial Registration ◽  
Therapeutic Education ◽  
Social Constraints ◽  
Structured Interviews ◽  
Clinical Trial Registration ◽  
Physically Active ◽  
Activity Program ◽  
Regular Practice

Introduction: The COVID-19 pandemic implied a period of lockdown for the general population, increasing the risk to develop some physical or mental disorders. In fibromyalgia patients, these disorders are part of the large clinical picture of the syndrome. Fibromyalgia management is especially based on a regular practice of physical activity. Lockdown imposed a break in rhythms, requiring a restructuring of scheduling. Thus, the present study aimed to investigate the experiences of fibromyalgia patients during COVID-19 lockdown using a qualitative analysis.Method: 19 patients (52 ± 9 years old) who completed a 3-month therapeutic education and/or supervised physical activity program were invited to participate (Fimouv study, Trial registration: ClinicalTrials.gov NCT04107948). A sociologist collected data by means of semi-structured interviews and analyzed them using thematic content analysis.Results: Lockdown exacerbated the main symptoms of fibromyalgia, but adjusting the rhythms of life to fluctuations of these symptoms allowed a better quality of life. Patients felt the lack of physical activity and 68% found alternatives to remain physically active. The reduction of social constraints allowed them to better contend with their pathology. Fibromyalgia stopped being a main priority.Conclusion: Lockdown was positively experienced by fibromyalgia patients. They linked the absence of physical activity with increased pain and fatigue. Nevertheless, reducing social constraints could be a key for fibromyalgia management, where symptoms seemed to take less space in everyday life.Clinical Trial Registration:www.ClinicalTrials.gov, identifier: NCT04107948.

scholarly journals Impact of Periodontal Disease on the Quality of Life of Older People in Indonesia: A Qualitative Study

2021 ◽  
pp. 238008442110419
Author(s):  
M. Hijryana ◽  
M. MacDougall ◽  
N. Ariani ◽  
L.S. Kusdhany ◽  
A.W.G. Walls
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Environmental Factors ◽  
Periodontal Disease ◽  
Older People ◽  
Structured Interviews ◽  
Research Perspective ◽  
The Impact ◽  
People’S Perceptions

Introduction: The impact of periodontal disease on oral health–related quality of life (OHRQoL) has often been investigated from a quantitative research perspective, which is based on clinical findings and an OHRQoL questionnaire. Very few studies have examined the issue from the view of qualitative research. To our knowledge, there have been no previous qualitative studies focusing the effect of periodontal disease on OHRQoL in Indonesian older people. Objectives: To explore and understand the impact of periodontal disease on the OHRQoL of older people as a subjective reflection in relation to periodontal disease experiences. Methods: Semi-structured interviews were conducted in a sample of 31 older people with generalized chronic periodontitis. Thematic analysis was used to identify the key issues in participants’ accounts. The analysis was undertaken by 2 independent coders to ensure reliability. To achieve thematic saturation, successive interviews were undertaken until 5 sequential interviews did not bring new themes. Results: Participants reported the negative effects likely related to periodontal disease. The impacts of periodontal disease were described by these older people as affecting more than pain, physical discomfort, and physical function restrictions. Periodontal disease also affected their psychological and social aspects of daily living. In addition, this study identified themes related to individual and environmental factors that may modify and personalize periodontal disease experiences. Furthermore, this study identified a misleading belief that problems related to periodontal disease were a normal part of aging, which might influence individuals’ expectations toward oral health. Relatedly, participants frequently reported that the progression of tooth mobility to tooth loss was an inevitable part of the aging process. Conclusions: Periodontal disease negatively affected participants’ OHRQoL. It is fundamental to understand older people’s perceptions toward their periodontal disease as well as individual and environmental factors that may have an influence on their periodontal disease experiences. Knowledge Transfer Statement: This study is a reflection of Indonesian older people’s subjective periodontal disease experiences. Therefore, the present study can be used to understand older people’s perceptions, attitudes, behaviors, and experiences toward periodontal disease and how this disease may affect their quality of life. This study also highlights a widespread and misleading belief that oral problems related to periodontal disease are an inevitable part of aging in this study population.

scholarly journals Effect of a brief physical activity-based presentation by a former patient for men treated with radical prostatectomy for prostate cancer: a mixed methods pilot study

2020 ◽  
Vol 29 (1) ◽  
pp. 145-154
Author(s):  
Louis Fox ◽  
Theresa Wiseman ◽  
Declan Cahill ◽  
Louisa Fleure ◽  
Janette Kinsella ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Prostate Cancer ◽  
Mixed Methods ◽  
Pragmatic Trial ◽  
Behavioural Intervention ◽  
Structured Interviews ◽  
Exercise Specialist ◽  
Clinically Significant

Abstract Purpose Existing research indicates that physical activity (PA) is beneficial to men with prostate cancer (PCa). We examined the potential of a single-contact peer-support-based behavioural intervention to promote PA engagement in men treated for PCa. Methods A mixed methods design was employed, comprising a two-arm pragmatic trial and semi-structured interviews. The intervention was a 10-min PA-based presentation by a former patient, delivered in group seminars that are provided for patients as standard care. Seminars were alternately allocated to (a) cancer exercise specialist talk + patient speaker talk or (b) cancer exercise specialist talk only. Self-reported PA, exercise motivation, quality of life, fatigue and clinical and demographic characteristics were obtained from n = 148 (intervention: n = 69; control: n = 79) patients immediately prior to the seminar, and at follow-up ≈ 100 days later. Data were analysed using ANCOVA models and χ2 tests. Fourteen semi-structured interviews with intervention participants, which explored how the intervention was experienced, were analysed using a grounded theory-style approach. Results The intervention had no significant effect on quantitatively self-reported PA (p = 0.4). However, the intervention was statistically and clinically beneficial for fatigue (p = 0.04) and quality of life (p = 0.01). Qualitative analysis showed that the intervention was beneficial to psychological wellbeing and some participants had increased intention to engage in PA as a result of the intervention. Conclusions A brief one-off PA-based presentation for men with PCa, delivered by a former patient alongside cancer exercise specialist advice, may result in clinically significant benefits to quality of life and may influence PA intention in certain individuals.

scholarly journals The role of the trainer in adapted physical activity for osteoporosis to improve quality of life

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Marini ◽  
A Masini ◽  
P Maietta Latessa ◽  
T Sanna ◽  
A Raggi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Control Group ◽  
Improve Quality ◽  
Adapted Physical Activity ◽  
Structured Interviews ◽  
Substantial Impact

Abstract Background Osteoporosis is a major health burden worldwide and require a multi-modal approach including exercise. Fractures have a substantial impact on quality of life (QoL) so exercise programs may to be conducted by trainers able to deal with this condition, because exercise alone, even if in the right dosage, seems to be not enough to improve QoL. A quasi-experimental pilot study performed to determine the feasibility and safety of an Adapted Physical Activity (APA) protocol specifically designed for osteoporotic women with vertebral fractures and its effect on QoL, with a specific focus on trainer's role. Methods The Experimental Group (EG) performed APA protocol 1hour twice a week for 6 months, while the Control Group (CG) received standard care. QoL was assessed at baseline and follow-up with ECOS-16 questionnaire and semi structured interviews to understand women perceptions regarding trainer's role. Using mixed-methods quantitative and qualitative data were analyzed using SPSS 5 and NVivo 12, respectively. Results 40 post-menopausal women (mean age: 67.6±4.6) divided in 2 groups EG = 22 and CG = 18, completed the study. At follow-up, EG improved significantly QoL (EG: -0.5±0.5 vs CG: 0.0±0.3 p = 0.02). The APA intervention had a significant effect on all the components of QoL, as measured by the disease-specific ECOS-16 questionnaire: Physical Component Summary (PCS) (EG: -0.4±0.5 vs CG: 0.0±0.4 p = 0.06) and Mental Component Summary (MCS) (EG: -0.5±0.6 vs CG: 0.1±0.5 p = 0.02). The interviews confirmed this result, emphasizing the key role of the trainer in improving their QoL. The adherence calculated as number of sessions performed compared to the sessions proposed was 75.8%. No injuries were observed. Conclusions The feasibility, the safety, and the positive effect of the proposed exercise protocol on QoL confirmed also by the interviews, show that principles of exercise education applied by trainers should be extended also to patients with other chronic condition. Key messages Trainers specifically educated, could be a means of achieving the goal improving people’s QoL, as they occupy the role of exercise experts and also an educational, relational and support role. The management of osteoporosis is multi-modal and includes exercise, often recommended as a beneficial non-pharmacological treatment to slow the rate of bone loss and improve quality of life.

PHYSICAL ACTIVITY AND HEALTH-RELATED QUALITY OF LIFE IN PATIENTS WITH PULMONARY HYPERTENSION

2019 ◽  
Vol 73 (9) ◽  
pp. 1904
Author(s):  
Thomas Cascino ◽  
Vallerie McLaughlin ◽  
Caroline Richardson ◽  
Nilofar Behbahani-Nejad ◽  
Victor Moles ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Pulmonary Hypertension ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals The Role of Physical Activity in Cancer Survivors’ Quality of Life

2020 ◽  
Author(s):  
Tayah M. Liska ◽  
Angie Kolen
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Cancer Survivors ◽  
Cancer Diagnosis ◽  
Social Engagement ◽  
Healthcare Providers ◽  
Structured Interviews ◽  
Emotional Symptoms

Abstract Purpose As a result of a cancer diagnosis and treatment, many cancer survivors experience persistent physical, mental, and emotional symptoms that affect their quality of life. Physical activity has been identified as an intervention that may help to manage the side effects of a cancer diagnosis and its treatment. The purpose of this study was to investigate the role of physical activity on overall quality of life in adult cancer survivors.Methods One-on-one semi structured interviews were conducted in person or via telephone with 13 adult (≥18 yrs) cancer survivors who had completed cancer treatment.Results These cancer survivors described their physical activity as improving their physical functioning and mental health, as a means of positive social engagement, and adding positivity to their daily life.Conclusion These results support the role of physical activity to enhance cancer survivors’ quality of life regardless of the treatment(s) type, duration, or time since the end of active cancer treatment. Further research is warranted to (a) expand this research with a larger sample, (b) examine healthcare providers’ knowledge and application of exercise guidelines to cancer survivors in cancer care, and (c) explore implementation strategies for greater advocacy for healthcare providers to share the exercise recommendations with cancer survivors.

Young People’s View on Physical Activity

2015 ◽  
Vol 3 ◽  
pp. 443
Author(s):  
Aivars Kaupužs ◽  
Svetlana Ušča
Keyword(s):  
Physical Activity ◽  
Daily Activities ◽  
Activity Levels ◽  
Structured Interviews ◽  
Team Games ◽  
Personal Experiences ◽  
Sport Activities ◽  
Youth Population ◽  
Common Barriers

The habits of life obtained in period of youth may significantly affect health, development and quality of life in the future. The purpose of this qualitative study was to found out the thoughts and experience of physical activity in youth population. 30 young people aged 18 to 25 years of various activity levels provided semi-structured interviews with regard to personal experiences, barriers, and motives for physical activities. The sport trainings (team games, work out in the gym etc.) are more common associations for physical activity description than daily activities. The positive previous experience, the support from partner or friends and physical appearance are the most important factors for participation in sport activities. The most common barriers are time constraints and laziness.

scholarly journals Perceived changes to quality of life indicators following a physical activity intervention for recovering cancer patients: A qualitative study.

2016 ◽  
Vol 4 (2) ◽  
pp. 305
Author(s):  
Martyn Queen ◽  
Saul Bloxham ◽  
Phil Brown ◽  
Melissa Coyle ◽  
Ben Jane
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Qualitative Study ◽  
Cancer Patients ◽  
Psychological Health ◽  
Physical Activity Intervention ◽  
Chronic Fatigue ◽  
Theory Approach ◽  
Structured Interviews

The aim of this study was to examine the perceived changes to the quality of life (QoL) for a group of recovering cancer patients, following 6 months of physical activity.Background Evidence suggests that physical activity can improve the QoL of recovering cancer patients, reducing many of the side-effects of cancer and its related treatments, including depression, anxiety, chronic fatigue and improve physical and psychological health. Method A qualitative study with 14 mixed site cancer patients aged 43-70 (12 women, 2 men). The intervention was in 2 parts the first part was an 8-week physical activity programme, the second part related to a period of non-supervised, physical activity for 4 months (6 months in total). The Programme took place at a university in the South West of England. Semi-structured interviews with patients took place 3 times over 6 months. A grounded theory approach was used to analyse the data.Results We found that prior to the 6-month physical activity intervention many of the patients were anxious about being able to complete the initial 8 week programme. Anxieties related to low self-esteem and the chronic fatigue resulting from their cancer treatment. Consequently several patients expressed concerns about their ability to help themselves self-manage their recovery through physical activity. On completion of the intervention the majority of patients reported improvements in their perceived QoL relating to their ability to self-manage, their self-efficacy, energy levels, along with decreases in chronic fatigue.Conclusion Our study has provided valuable insights into how the perceived QoL of a group of recovering cancer patients can be improved through a combined 6-month period of supervised and independent physical activity. These findings serve as further evidence of the effectiveness of a person centred healthcare approach for recovering cancer patients.

scholarly journals How Reindeer Herders Cope with Harsh Winter Conditions in Northern Finland: Insights from an Interview Study

ARCTIC ◽  
2021 ◽  
Vol 74 (2) ◽  
pp. 188-205
Author(s):  
Minna Turunen ◽  
Päivi Soppela ◽  
Cara Ocobock
Keyword(s):  
Physical Activity ◽  
Coniferous Forest ◽  
Weather Conditions ◽  
Cold Climate ◽  
Physical Work ◽  
Extreme Conditions ◽  
Structured Interviews ◽  
Forest Zone ◽  
Winter Conditions ◽  
Cultural Strategies

Reindeer herding involves hard physical work carried out in a cold climate under variable weather conditions. In the fall and winter, herders’ work in northern Finland includes collecting and moving reindeer herds to round-up sites, working in round-ups, slaughtering and processing meat as well as daily feeding and monitoring of the animals in the field. To study the experiences and perceptions of coping with cold among physically active herders in harsh winter conditions, we interviewed 22 herders from six herding districts of the central reindeer management area within the north boreal coniferous forest zone. We focused on behavioral and cultural strategies that accompany the physiological cold adaptations. Semi-structured interviews revealed that the main behavioral and cultural strategies used by herders to successfully carry out their duties while avoiding cold-related injury include clothing, physical activity, nutrition, and shelter as well as protecting vehicles and devices. Herders across sex, age, and herding district reported using modern layered clothing developed for extreme conditions, often combined with traditional footwear and clothes made of reindeer fur or woollen fabric. In addition, herders increase their physical activity; eat warm, energy-rich foods; make fires; stay overnight or take breaks in a house or a cabin, a car, or other protected places to reduce exposure to the harsh environment. Coping with extreme conditions not only requires flexibility, preparedness, and innovation from the herders but also thoughtful caution when approaching and managing unexpected situations. We conclude that modernization of reindeer husbandry, climate change, and rapidly increasing land use competition not only drive herders to modify their behavioral and cultural coping mechanisms for extreme weather conditions but may also create new, unexpected vulnerabilities. 

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