scholarly journals Mixed Messages: I. The Consequences of Communicating Negative Statements Within Emotional Support Messages to Cancer Patients

2019 ◽  
Vol 7 (4) ◽  
pp. 593-599 ◽  
Author(s):  
Colter D Ray ◽  
Kory Floyd ◽  
Cris J Tietsort ◽  
Alaina M Veluscek ◽  
Christopher D Otmar ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Emotional Support ◽  
Perceived Competence ◽  
Message Effectiveness ◽  
Negative Statement ◽  
Video Recordings ◽  
Positive Statements ◽  
Negative Statements ◽  
Mixed Messages

Background: Not all emotional support messages consist purely of positive statements. Some emotional support messages received by cancer patients simultaneously communicate statements of caring but also negative statements, such as criticisms of patients’ actions. Objective: This study tests if a negative statement occurring within an emotional support message affects cancer patients’ perceptions of the effectiveness of the entire emotional support message as well as the perceived competence of the supporter communicating the emotional support message. Methods: Cancer patients watched video recordings of emotional support messages and subsequently provided ratings on message effectiveness and supporter competence. Some emotional support messages included negative statements, whereas other messages did not. Results: Messages that included a negative statement were rated lower on message effectiveness than messages without negative statements. Cancer patients rated supporters communicating messages with a negative statement as having significantly less competence than those who did not communicate a negative statement. Conclusion: A single negative statement occurring within an emotional support message may result in cancer patients viewing the emotional support as less effective and the supporter as less competent.

scholarly journals The Association of Sources of Support, Types of Support and Satisfaction with Support Received on Perceived Stress and Quality of Life of Cancer Patients

2021 ◽  
Vol 20 ◽  
pp. 153473542199490
Author(s):  
Iván Ruiz-Rodríguez ◽  
Isabel Hombrados-Mendieta ◽  
Anabel Melguizo-Garín ◽  
Mª José Martos-Méndez
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cancer Patients ◽  
Perceived Stress ◽  
Emotional Support ◽  
Multidimensional Analysis ◽  
Informational Support ◽  
Cancer Data ◽  
The Family

Introduction: The aim of the present study is to carry out a multidimensional analysis of the relationship of social support with quality of life and the stress perceived by cancer patients. Methods: The participants were 200 patients with cancer. Data was gathered on sociodemographic characteristics, health, quality of life, social support and perceived stress. Results: Frequency of and satisfaction with different sources and types of support are related positively with improvement of quality of life and negatively with perceived stress. The emotional support from the partner and the emotional and informational support from the family are significant predictors of quality of life. Emotional support from the family reduces patients’ perceived stress. Satisfaction with emotional support from the partner and with the informational support from friends and family increases quality of life. Satisfaction with emotional support from the family and with informational support from friends decreases patients’ perceived stress. Instrumental support and support provided by health professionals are not good predictors of quality of life and perceived stress. Satisfaction with the support received is more significantly related with quality of life and stress than the frequency with which the sources provide support. Conclusions: These results have important practical implications to improve cancer patients’ quality of life and reduce their perceived stress through social support. Designing intervention strategies to improve satisfaction with the support provided to patients by their closest networks results in a global benefit for the patient’s quality of life.

scholarly journals The patient advisor, an organizational resource as a lever for an enhanced oncology patient experience (PAROLE-onco): a longitudinal multiple case study protocol

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
M. P. Pomey ◽  
M. de Guise ◽  
M. Desforges ◽  
K. Bouchard ◽  
C. Vialaron ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Clinical Oncology ◽  
Patient Experience ◽  
Emotional Support ◽  
Social Care ◽  
Legal Issues ◽  
Care Services ◽  
Health And Social Care ◽  
Ethical And Legal Issues ◽  
The Impact

Abstract Background Quebec is one of the Canadian provinces with the highest rates of cancer incidence and prevalence. A study by the Rossy Cancer Network (RCN) of McGill university assessed six aspects of the patient experience among cancer patients and found that emotional support is the aspect most lacking. To improve this support, trained patient advisors (PAs) can be included as full-fledged members of the healthcare team, given that PA can rely on their knowledge with experiencing the disease and from using health and social care services to accompany cancer patients, they could help to round out the health and social care services offer in oncology. However, the feasibility of integrating PAs in clinical oncology teams has not been studied. In this multisite study, we will explore how to integrate PAs in clinical oncology teams and, under what conditions this can be successfully done. We aim to better understand effects of this PA intervention on patients, on the PAs themselves, the health and social care team, the administrators, and on the organization of services and to identify associated ethical and legal issues. Methods/design We will conduct six mixed methods longitudinal case studies. Qualitative data will be used to study the integration of the PAs into clinical oncology teams and to identify the factors that are facilitators and inhibitors of the process, the associated ethical and legal issues, and the challenges that the PAs experience. Quantitative data will be used to assess effects on patients, PAs and team members, if any, of the PA intervention. The results will be used to support oncology programs in the integration of PAs into their healthcare teams and to design a future randomized pragmatic trial to evaluate the impact of PAs as full-fledged members of clinical oncology teams on cancer patients’ experience of emotional support throughout their care trajectory. Discussion This study will be the first to integrate PAs as full-fledged members of the clinical oncology team and to assess possible clinical and organizational level effects. Given the unique role of PAs, this study will complement the body of research on peer support and patient navigation. An additional innovative aspect of this study will be consideration of the ethical and legal issues at stake and how to address them in the health care organizations.

WHY IS THE SCHOOL DROP-OUT RATE SO HIGH?

PEDIATRICS ◽  
1989 ◽  
Vol 83 (3) ◽  
pp. 336-336
Author(s):  
Student
Keyword(s):  
High School ◽  
Self Esteem ◽  
Drop Out ◽  
Fifth Grade ◽  
Drop Out Rate ◽  
School Drop Out ◽  
Positive Statements ◽  
Negative Statements ◽  
Years Of Schooling

Eighty percent of students entering school feel good about themselves and who they are. By the fifth grade only 20 percent have high self-esteem. By the time students become seniors in high school, the percentage who have managed to keep a positive level of self-esteem has dropped to 5 percent. Students encounter the equivalent of 60 days each year reprimanding, nagging and punishment. During 12 years of schooling a student is subject to 15,000 negative statements. That's three times the amount of positive statements received.

Die mediale Darstellung des Föderalismus während der Corona-Pandemie – Eine Auswertung von Positionen, Konnotationen und Bewertungen in deutschen Tageszeitungen

2021 ◽  
Vol 14 (2-2021) ◽  
pp. 373-391
Author(s):  
Iris Reus
Keyword(s):  
Positive Statements ◽  
Negative Statements

Die vorliegende Studie stellt die erste umfassende und systematische Analyse der Medienberichterstattung zum deutschen Föderalismus dar. Ausgewertet wurden Positionen, Konnotationen und Bewertungen in 449 Statements aus 14 Tageszeitungen im Zusammenhang mit der Corona-Pandemie für den Zeitraum März bis September 2020. Methodisch werden quantitative und qualitative Ansätze kombiniert, um sowohl Verteilungsmuster als auch Themen und Motive zu erfassen. Die Ergebnisse bestätigen für die Krise, was die Literatur für ‚normale Zeiten‘ annimmt: Eine deutliche Mehrheit aller veröffentlichten Statements zum Föderalismus fällt negativ aus. Dies änderte auch die Phase der Einheitlichkeit der Landesregelungen infolge der Einigung auf einen umfassenden bundesweiten Lockdown nicht. Die erfolgreiche Stabilisierung des Infektionsgeschehens ‚trotz‘ unterschiedlicher Lockerungen in den Ländern führte (absolut) zu weniger negativen Statements, aber nicht zu substantiell positiven. Mehrheitlich negative Statements finden sich in der Gruppe der Bevölkerung, der JournalistInnen und auch der PolitikerInnen insgesamt; mehrheitlich positive Statements finden sich lediglich bei LandespolitikerInnen der CDU/CSU.

Barriers to end-of-life discussion with advanced cancer patient as perceived by oncologists, certified/specialized nurses in cancer nursing and medical social workers

2020 ◽  
Vol 50 (12) ◽  
pp. 1426-1433
Author(s):  
Yasutaka Kimura ◽  
Miki Hosoya ◽  
Kyoko Toju ◽  
Chikako Shimizu ◽  
Tatsuya Morita
Keyword(s):  
End Of Life ◽  
Social Workers ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Emotional Support ◽  
Health Care Team ◽  
Medical Professionals ◽  
Advanced Cancer Patients ◽  
Common View ◽  
Cancer Nursing

Abstract Objective The objectives of this study were to identify barriers to end-of-life discussion with advanced cancer patients and their families as perceived by oncologists, certified/specialized nurses in cancer nursing (hereafter, collectively referred to as ‘nurses’) and medical social workers, as well as to clarify their opinions about effective strategies to facilitate end-of-life discussion. Methods A questionnaire survey was distributed to 4354 medical professionals working at 402 designated regional cancer hospitals in Japan. Responses were obtained from 494 oncologists (valid response rate 30.7%), 993 nurses (46.7%) and 387 medical social workers (48.1%). Results Among the barriers to end-of-life discussion with advanced cancer patients, factors related to patients and families, such as ‘Family members’ difficulty accepting loved one’s poor prognosis’, were recognized as the most important issues, which was the common view shared across the three types of medical professionals who participated in this study. Nurses and medical social workers were significantly more likely than oncologists to recognize as important issues ‘Health care team disagreement about goals of care’ and ‘Lack of training to have conversations for end-of-life discussion’. To facilitate end-of-life discussion, ‘providing mental and emotional support for the patients and their families after end-of-life discussion’ was needed most as perceived by the respondents regardless of their profession. Conclusions Barriers impeding end-of-life discussion were factors related to patients and their families, and oncologists’ close cooperation with nurses and medical social workers is important in providing emotional support for patients and families. To facilitate end-of-life discussion, it is important to share information on patients’ prognosis and goals for treatment among oncologists and other medical professionals, as well as strengthen communication skill of these medical professions.

scholarly journals The care experiences of patients who die in residential hospice: A qualitative analysis of the last three months of life from the views of bereaved caregivers

2017 ◽  
Vol 16 (4) ◽  
pp. 421-431 ◽  
Author(s):  
Daryl Bainbridge ◽  
Mohanna Giruparajah ◽  
Hanyan Zou ◽  
Hsien Seow
Keyword(s):  
Palliative Care ◽  
Gold Standard ◽  
Comparison Method ◽  
Care Experience ◽  
Qualitative Survey ◽  
Dying Patients ◽  
Positive Statements ◽  
Specialized Care ◽  
Negative Perceptions ◽  
Negative Statements

AbstractObjective:Despite the increasing prominence of residential hospices as a place of death and that, in many regards, this specialized care represents a gold standard, little is known about the care experience in this setting. Using qualitative survey data, we examined the positive and negative perceptions of care in hospices and in other prior settings.Method:Qualitative comments were extracted from the CaregiverVoice survey completed by bereaved caregivers of decedents who had died in 16 residential hospices in Ontario, Canada. On this survey, caregivers reported what was good and bad about the services provided during the last three months of life as separate open-text questions. A constant-comparison method was employed to derive themes from the responses.Results:A total of 550 caregivers completed the survey, 94% (517) of whom commented on either something good (84%) and/or bad (49%) about the care experience. In addition to residential hospice, the majority of patients represented also received palliative care in the home (69%) or hospital (59%). Overall, most positive statements were about care in hospice (71%), whereas the negative statements tended to refer to other settings (81%). The hospice experience was found to exemplify care that was compassionate and holistic, in a comforting environment, offered by providers who were personable, dedicated, and informative. These humanistic qualities of care and the extent of support were generally seen to be lacking from the other settings.Significance of results:Our examination of the good and bad aspects of palliative care received is unique in qualitatively exploring palliative care experiences across multiple settings, and specifically that in hospices. Investigation of these perspectives affirmed the elements of care that dying patients and their family caregivers most value and that the hospices were largely effective at addressing. These findings highlight the need for reinforcing these qualities in other end-of-life settings to create comforting and supportive environments.

scholarly journals Codifying Online Social Support for Breast Cancer Patients: Retrospective Qualitative Assessment (Preprint)

2018 ◽  
Author(s):  
Jude P Mikal ◽  
Stuart W Grande ◽  
Michael J Beckstrand
Keyword(s):  
Breast Cancer ◽  
Social Support ◽  
Social Media ◽  
Cancer Patients ◽  
Emotional Support ◽  
Breast Cancer Survivors ◽  
Qualitative Assessment ◽  
Breast Cancer Patients ◽  
Online Social Support ◽  
Support Exchange

BACKGROUND Social media has emerged as the epicenter for exchanging health-related information, resources, and emotional support. However, despite recognized benefits of social media for advancing health-promoting support exchange, researchers have struggled to differentiate between the different ways social support occurs and is expressed through social media. OBJECTIVE The objective of this study was to develop a fuller understanding of social support exchange by examining the ways in which breast cancer patients discuss their health needs and reach out for support on Facebook and to develop a coding schema that can be useful to other social media researchers. METHODS We conducted a retrospective qualitative assessment of text-based social support exchanges through Facebook among 30 breast cancer survivors. Facebook wall data were systematically scraped, organized, coded, and characterized by whether and which types of support were exchanged. Research questions focused on how often participants posted related to cancer, how often cancer patients reached out for support, and the relative frequency of informational, instrumental, or socioemotional support requests broadcast by patients on the site. RESULTS A novel ground-up coding schema applied to unwieldy Facebook data successfully identified social support exchange in two critical transitions in cancer treatment: diagnosis and transition off cancer therapy. Explanatory coding, design, and analysis processes led to a novel coding schema informed by 100,000 lines of data, an a priori literature review, and observed online social support exchanges. A final coding schema permits a compelling analysis of support exchange as a type of peer community, where members act proactively to buffer stress effects associated with negative health experiences. The coding schema framed operational definitions of what support meant and the forms each type of support could take in social media spaces. CONCLUSIONS Given the importance of social media in social interaction, support exchange, and health promotion, our findings provide insight and clarity for researchers into the different forms informational, resource, and emotional support may take in Web-based social environments. Findings support broader continuity for evaluating computer-mediated support exchange.

Breaking Bad News About Cancer: Patients’ Preferences for Communication

2001 ◽  
Vol 19 (7) ◽  
pp. 2049-2056 ◽  
Author(s):  
Patricia A. Parker ◽  
Walter F. Baile ◽  
Carl de Moor ◽  
Renato Lenzi ◽  
Andrzej P. Kudelka ◽  
...  
Keyword(s):  
Cancer Patients ◽  
Cancer Diagnosis ◽  
Emotional Support ◽  
Bad News ◽  
Breaking Bad News ◽  
Message Content ◽  
Breaking Bad ◽  
Physician Characteristics ◽  
Context Variables ◽  
Content Scale

PURPOSE: The goal of this study was to assess patients’ preferences regarding the way in which physicians deliver news about their cancer diagnosis and management. PATIENTS AND METHODS: A sample of 351 patients with a variety of cancers completed a measure assessing their preferences for how they would like to be told news about their cancer. Patients rated characteristics of the context and content of the conversation as well as physician characteristics. RESULTS: Factor analysis indicated that patients’ preferences for how they would like to be told news regarding their cancer can be grouped into the following three categories: (1) content (what and how much information is told); (2) facilitation (setting and context variables); and (3) support (emotional support during the interaction). Women (P = .02) and patients with higher education (P = .05) had significantly higher scores on the Content scale, women (P = .02) had higher scores on the Support scale, and younger patients (P = .001) and those with more education (P = .02) had higher scores on the Message Facilitation scale. Medical variables were not associated with patients’ ratings of the importance of the three subscales. CONCLUSION: Patients rated items addressing the message content as most important, though the supportive and facilitative dimensions were also rated highly. Understanding what is important to patients when told news about their cancer provides valuable information that may help refine how this challenging task is best performed.

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