scholarly journals ‘You feel like you haven’t got any control’: A qualitative study of side effects from medicines

2019 ◽  
Vol 24 (1) ◽  
pp. 13-24 ◽  
Author(s):  
Bernadine O’Donovan ◽  
Ruth M Rodgers ◽  
Anthony R Cox ◽  
Janet Krska

Objectives An aging UK population and multi-morbidity means patients are receiving an increasing number of medicines. This can lead to greater risk of unintended side effects. The aim of this study was to increase understanding of how people identify and manage side effects from their medicines. Design A qualitative interview study with patients who had experienced side effects, recruited from community pharmacies. Methods This study examined patients’ experiences of side effects and the impact of these effects on their daily life. Fifteen participants were interviewed – 10 females and 5 males, with ages that ranged between 25 and 80 years, using different types and numbers of medicines. Results Thematic analysis revealed six themes: side effect experience, identification, adherence, information use, coping and body awareness. Participants described a wide range of physical and psychological symptoms which had both explicit and implicit impact on their lives. A system of identification based on constructed cognitive processes was common across participants. A variety of strategies were used by participants to cope with their side effects which included information seeking, social support seeking and non-adherent behaviours. Conclusions Psychological factors, such as medication beliefs, symptom interpretation and body awareness, contribute to cognitive and behavioural processes used to identify and manage side effects. These processes can have significant impacts on an individual’s decisions about adherence.

2021 ◽  
Author(s):  
◽  
Paul Daniel Atkinson

<p>"Applications that gather dust... Technologies no one understands... Information that's ignored... [thus, there is still very much a need to] pay attention to Information behaviour" (Davenport, 1997, p.2). Human Information Behaviour is as important a concept today as it has ever been, as there are still millions of dollars going into improving information technology. While information seeking behaviour has been rigorously studied over the years, information use has not received the same attention. Neither has the IT artefact or choice of such technologies at the hands of users of information. This research paper aims to produce a taxonomy of the information use behaviours and ICT and non-ICT resource use of IT academics through a qualitative study involving both observation (incorporating thinking aloud) and structured face-to-face interview techniques. The research question asks "How do IT Academics manage the integration between various Information and Communication Technologies (ICT) and non-ICT sources to support their information behaviours (IB) and, therefore, achieve their desired outcome? We observed and interviewed six IT academics carrying out their normal working activities, looking into actual information events as they occurred, information outcomes, information behaviours, and the technologies used by academics in their daily interactions with information. We developed a systems model, informed by activity theory, to frame the discussion. What was uncovered by the study was a tendency for academics to converge on a single technology - that of the laptop. This together with email was what academics tended to prefer to use, both at the office and in their homes; a surprising find as it was assumed that there would be a plethora of different ICTs in use. We found that technologies contributed to a blurring of the work/life equilibrium for many academics. Academics did exhibit a wide range of behaviours in their laptop and email use. Many of them were relatively unproductive, and involved moving information from one place, or one form to another, and finally ending in deletion rather than active use. Many of our interviewees reflected a need to use their time wisely through time management, and the impact of email on time management. These results also yielded the justification of Activity Theory which was used in the study, and of the systems framework which was constructed for the study. The study also confirmed the importance of environmental influences on academic's working lives, which tended to create a somewhat cyclic nature to their information events. Overall, it was not clear that patterns of use of ICTs contributed to effective information use behaviour by IT academics.</p>


Author(s):  
Kirsty Williamson

Before health and risk messaging can have the best possible effect, there needs to be an understanding of what might influence health and associated risky behaviors. A wide range of elements needs to be considered, given the many possible influences on health habits and risky exposures. Since “ecology” is defined as the relationship between organisms and their environments, ecological models enable this consideration to be made. As a result ecological approaches have been widely used in health behavior, health planning, and health education. Ecological theory, with a communication focus, has also been developed, emerging specifically from the field of “information behavior.” Grounded in the work of Bronfenbrenner, on the experimental ecology of human development, the theory grew out of a study of older adults’ information and communication needs and uses, undertaken in the 1990s. The ecological model, as developed, enabled a wide range of personal and social influences on information seeking and communication to be explored with people aged 60 and older. Analysis of the impact of multilevel factors is facilitated by an ecological approach, increasing its value for the task of designing the content of health and risk messages. The “how” of designing health messaging is not addressed specifically by this approach. Following the study of older adults, the ecological model was broadened, modified, and applied to the study of the information and communication behavior of different community groups, involving a range of topics. The flexibility of the approach is a key strength. A study of information seeking, by women with breast cancer, indicated that several “ecological” elements, such as age, ethnicity, and stage of disease, played a part in the type of information sought and in preferences for how information was communicated. Health and risk avoidance implications emerged from a study of information seeking for online investment, providing another good example of the ways in which the model can be adapted. A range of ecological factors were shown to influence investing behavior, including level of risk taking. A study of people in the Fourth Age (the last stage of life) resulted in a further refined and extended model, as well as making a contribution to the already substantial body of accumulated gerontological knowledge.


Author(s):  
Kimberly A. Kaphingst

Direct-to-consumer advertising of prescription drugs (DTCA) is a multibillion-dollar industry in the United States, affecting the health-care landscape. DTCA has been controversial, since a major increase in this type of advertising resulted from re-interpretation of existing regulations in the late 20th century. Health and risk communication research can inform many of the controversial issues, assisting physicians, policymakers, and the public in understanding how consumers respond to DTCA. Prior research addresses four major topics: (1) the content of DTCA in different channels, (2) consumers’ perceptions of and responses to DTCA, (3) individual-level factors that affect how consumers respond to DTCA, and (4) message factors that impact consumers’ responses. Such research shows that the presentation of risk and benefits information is generally not balanced in DTCA, likely affecting consumers’ attitudes toward and comprehension of the risk information. In addition, despite consumers’ generally somewhat negative or neutral perceptions of DTCA, this advertising seems to affect their health information seeking and communication behaviors. Finally, a wide range of individual-level and message factors have been shown to have an impact on how consumers process and respond to DTCA. Consumers’ responses, including how they process the information, request prescription drugs from providers, and share information about prescription drugs, have an important impact on the effects of DTCA. The fields of health and risk communication therefore bring theories and methodologies that are essential to better understanding the impact of this advertising.


2012 ◽  
Vol 24 (10) ◽  
pp. 1536-1552 ◽  
Author(s):  
Katherine Ornstein ◽  
Joseph E. Gaugler

ABSTRACTBackground: Behavioral and psychological symptoms of dementia (BPSDs) are routinely cited as important predictors of caregiver burden and depression. Although BPSDs include a wide variety of patient behaviors, they are routinely grouped together as one construct to differentiate them from cognitive symptoms of dementia. Determining the specific BPSDs that result in increased depression and burden for caregivers may elucidate the stress process for caregivers and facilitate the development of effective interventions for caregivers.Methods: We conducted a systematic review of English-language articles published from 1990 to 2010 to determine whether there are known symptoms or symptom clusters which exert undue negative impact on caregiver depression and burden. Additionally, we review systems used for classifying BSPD symptom clusters and determine whether there have been any mechanisms studied by which individual BPSD symptoms negatively affect caregivers. Finally, we examine how the role of timing of symptoms has been examined within the literature.Results: Thirty-five original research articles examined the impact of an individual behavior symptom on caregiver burden or depression/depressive symptoms. The studies had no consistent system for categorizing symptoms. Although depression, aggression, and sleep disturbances were the most frequently identified patient symptoms to impact negatively on caregivers, a wide range of symptoms was associated with caregiver burden and depression.Conclusions: The evidence is not conclusive as to whether some symptoms are more important than others. The studies reviewed were largely exploratory relative to the differential impact of individual BPSDs and did not focus on testing causal mechanisms by which specific symptoms exert more impact on caregiver mental health than others. Future research may benefit from the re-conceptualization of BPSDs from the perspective of their impact on the caregiver to examine hypothesis-driven differences among BPSD symptom clusters.


2007 ◽  
Vol 18 (9) ◽  
pp. 831-837 ◽  
Author(s):  
Shelley E. Taylor ◽  
William T. Welch ◽  
Heejung S. Kim ◽  
David K. Sherman

Social support is believed to be a universally valuable resource for combating stress, yet Asians and Asian Americans report that social support is not helpful to them, resist seeking it, and are underrepresented among recipients of supportive services. We distinguish between explicit social support (seeking and using advice and emotional solace) and implicit social support (focusing on valued social groups) and show that Asians and Asian Americans are psychologically and biologically benefited more by implicit social support than by explicit social support; the reverse is true for European Americans. Our discussion focuses on cultural differences in the construal of relationships and their implications for social support and delivery of support services.


2021 ◽  
Vol 2021 ◽  
pp. 1-14
Author(s):  
Xiaoqin Shi ◽  
Chao Yu ◽  
Dongmei Wu

With the development of the Internet, it has increasingly become an indispensable product in people’s lives, but many problems have arisen with it. Internet language violence is one of them. At present, the main Internet users in my country are young people, and online language violence brings extremely serious psychological problems to young students. In order to understand the current mental health of young students and the impact of online language violence on them, this article investigates the students in the city’s no. 1 middle school, filters the data through decision tree analysis, and judges online language through the psychological symptoms self-rating scale. The mental health symptom self-rating scale has the characteristics of large capacity, abundant symptoms, and more accurate description of the subject’s conscious symptoms. It contains a wide range of psychiatric symptoms, from feelings, emotions, thinking, consciousness, and behavior to life habits, interpersonal relationships, eating, and sleeping, and it uses 10 factors to reflect the psychological symptoms in 10 aspects. It has good distinguishing ability for people with psychological symptoms (that is, they may be on the edge of psychological disorder or mental disorder). The chi-square statistical method is used to analyze the basic characteristics of different youth groups of verbal violence. For the research content, the school surveys all schools and adopts questionnaire surveys and case studies to analyze the factors that influence youths’ attribution of online violence behaviors and make recommendations. The impact of violence on young students will be analyzed later through psychological intervention. The results of the study found that online language violence caused serious harm to young people’s psychology and caused students’ depression, anxiety, and other mental illnesses. Active psychological interventions can effectively alleviate students’ mental health. The improvement of students’ mental health is the most obvious. The score improved by nearly 10%.


2021 ◽  
Author(s):  
◽  
Paul Daniel Atkinson

<p>"Applications that gather dust... Technologies no one understands... Information that's ignored... [thus, there is still very much a need to] pay attention to Information behaviour" (Davenport, 1997, p.2). Human Information Behaviour is as important a concept today as it has ever been, as there are still millions of dollars going into improving information technology. While information seeking behaviour has been rigorously studied over the years, information use has not received the same attention. Neither has the IT artefact or choice of such technologies at the hands of users of information. This research paper aims to produce a taxonomy of the information use behaviours and ICT and non-ICT resource use of IT academics through a qualitative study involving both observation (incorporating thinking aloud) and structured face-to-face interview techniques. The research question asks "How do IT Academics manage the integration between various Information and Communication Technologies (ICT) and non-ICT sources to support their information behaviours (IB) and, therefore, achieve their desired outcome? We observed and interviewed six IT academics carrying out their normal working activities, looking into actual information events as they occurred, information outcomes, information behaviours, and the technologies used by academics in their daily interactions with information. We developed a systems model, informed by activity theory, to frame the discussion. What was uncovered by the study was a tendency for academics to converge on a single technology - that of the laptop. This together with email was what academics tended to prefer to use, both at the office and in their homes; a surprising find as it was assumed that there would be a plethora of different ICTs in use. We found that technologies contributed to a blurring of the work/life equilibrium for many academics. Academics did exhibit a wide range of behaviours in their laptop and email use. Many of them were relatively unproductive, and involved moving information from one place, or one form to another, and finally ending in deletion rather than active use. Many of our interviewees reflected a need to use their time wisely through time management, and the impact of email on time management. These results also yielded the justification of Activity Theory which was used in the study, and of the systems framework which was constructed for the study. The study also confirmed the importance of environmental influences on academic's working lives, which tended to create a somewhat cyclic nature to their information events. Overall, it was not clear that patterns of use of ICTs contributed to effective information use behaviour by IT academics.</p>


Crisis ◽  
2017 ◽  
Vol 38 (3) ◽  
pp. 207-209 ◽  
Author(s):  
Florian Arendt ◽  
Sebastian Scherr

Abstract. Background: Research has already acknowledged the importance of the Internet in suicide prevention as search engines such as Google are increasingly used in seeking both helpful and harmful suicide-related information. Aims: We aimed to assess the impact of a highly publicized suicide by a Hollywood actor on suicide-related online information seeking. Method: We tested the impact of the highly publicized suicide of Robin Williams on volumes of suicide-related search queries. Results: Both harmful and helpful search terms increased immediately after the actor's suicide, with a substantial jump of harmful queries. Limitations: The study has limitations (e.g., possible validity threats of the query share measure, use of ambiguous search terms). Conclusion: Online suicide prevention efforts should try to increase online users' awareness of and motivation to seek help, for which Google's own helpline box could play an even more crucial role in the future.


2012 ◽  
Vol 17 (3) ◽  
pp. 190-198 ◽  
Author(s):  
Günter Krampen ◽  
Thomas Huckert ◽  
Gabriel Schui

Exemplary for other than English-language psychology journals, the impact of recent Anglicization of five former German-language psychology journals on (1) authorship (nationality, i.e., native language, and number of authors, i.e., single or multiple authorships), (2) formal characteristics of the journal (number of articles per volume and length of articles), and (3) number of citations of the articles in other journal articles, the language of the citing publications, and the impact factors (IF) is analyzed. Scientometric data on these variables are gathered for all articles published in the four years before anglicizing and in the four years after anglicizing the same journal. Results reveal rather quick changes: Citations per year since original articles’ publication increase significantly, and the IF of the journals go up markedly. Frequencies of citing in German-language journals decrease, citing in English-language journals increase significantly after the Anglicization of former German-language psychology journals, and there is a general trend of increasing citations in other languages as well. Side effects of anglicizing former German-language psychology journals include the publication of shorter papers, their availability to a more international authorship, and a slight, but significant increase in multiple authorships.


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