scholarly journals Being a safe place: a qualitative study exploring perceptions as to how a rural community hospice could respond to enactment of voluntary assisted dying legislation

2022 ◽  
Vol 21 (1) ◽  
Author(s):  
Kirsten Auret ◽  
Terri Pikora ◽  
Kate Gersbach
Keyword(s):  
Qualitative Study ◽  
Rural Community ◽  
Common Ground ◽  
Assisted Dying ◽  
Community Members ◽  
Staff Support ◽  
Safe Place ◽  
Australian Community ◽  
Policy Risk ◽  
The Ideal

Abstract Background There is a lack of research to guide the implementation of voluntary assisted dying legislation within a hospice setting. Furthermore, there is limited published information related to the expectations of the community and staff to assist decision making regarding voluntary assisted dying in a community hospice. The aim of this study was to explore the expectations of staff, volunteers and members of the community as how a rural Australian community hospice could respond in relation to imminent enactment of Voluntary Assisted Dying legislation. Methods A total of 63 Hospice staff and volunteers and community members participated in 11 workshops. This qualitative study used the interpretive description method to analyse the workshop transcripts. Results While there was not a consensus view on community expectation, there was agreement among the participants for respect for a patient’s individuality and choices. Furthermore, care offered in hospice needs to remain non-judgemental and patient focused regardless of whether voluntary assisted dying policy was implemented or not. Both opportunities and risks associated with implementation were identified by the participants. Conclusion There was common ground around the respect for the dying person and the ideal of a “safe place” despite opposing views on what this may mean in practice. There is a need for clarity in organisational responses around policy, risk management, education, and staff support.

Being A Safe Place: A Qualitative Study Exploring Perceptions As To How A Rural Community Hospice Could Respond To Enactment of Voluntary Assisted Dying Legislation

2021 ◽  
Author(s):  
Kirsten Auret ◽  
Terri Pikora ◽  
Kate Gersbach
Keyword(s):  
Qualitative Study ◽  
Rural Community ◽  
Common Ground ◽  
Theory Approach ◽  
Assisted Dying ◽  
Community Members ◽  
Staff Support ◽  
Safe Place ◽  
Policy Risk ◽  
Grounded Theory Approach

Abstract Background: There is a lack of research to guide the implementation of voluntary assisted dying legislation within a hospice setting. Furthermore, there is limited published information related to the expectations of the community and staff to assist decision making regarding voluntary assisted dying in a community hospice. The aim of this study was to explore the expectations of staff, volunteers and members of the community as how a rural community hospice could respond in relation to enactment of Voluntary Assisted Dying legislation. Methods: A total of 63 Hospice staff and volunteers and community members participated in 11 workshops. This qualitative study used a grounded theory approach to analyse the workshop transcripts. Results: While there was not a consensus view on community expectation, there was agreement among the participants for respect for a patient’s individuality and choices. Furthermore, care offered in hospice needs to remain non-judgemental and patient focused regardless of whether voluntary assisted dying policy was implemented or not. Both opportunities and risks associated with implementation were identified by the participants. Conclusion: There was common ground around the respect for the dying person and the ideal of a “safe place” despite opposing views on what this may mean in practice. There is a need for clarity in organisational responses around policy, risk management, education, and staff support.

scholarly journals ‘Why should I worry, since I have healthy feet?’ A qualitative study exploring barriers to use of footwear among rural community members in northern Ethiopia

BMJ Open ◽  
2016 ◽  
Vol 6 (3) ◽  
pp. e010354 ◽  
Author(s):  
Abebe Kelemework ◽  
Abebayehu Tora ◽  
Tsigie Amberbir ◽  
Getnet Agedew ◽  
Abiyu Asmamaw ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Rural Community ◽  
Northern Ethiopia ◽  
Community Members ◽  
Barriers To Use

scholarly journals Working with community researchers to enhance rural community engagement around Private Water Supplies: an exploration of the benefits and challenges

2020 ◽  
pp. 146879412097888
Author(s):  
Rachel Creaney ◽  
Mags Currie ◽  
Paul Teedon ◽  
Karin Helwig
Keyword(s):  
Rural Communities ◽  
Community Engagement ◽  
Rural Community ◽  
Methodological Approach ◽  
Good Practice ◽  
Duty Of Care ◽  
Community Members ◽  
Water Supplies ◽  
Employment Opportunities

This project employed community researchers as a means of improving community engagement around their Private Water Supplies (PWS) in rural Scotland. In this paper, we reflect on working with community researchers in terms of the benefits and challenges of the approach for future rural research that seeks to improve community engagement. The paper (1) critiques the involvement of community researchers for rural community engagement, drawing on the experiences in this project and (2) provides suggestions for good practice for working with community researchers in rural communities’ research. We offer some context in terms of the role of community members in research, the importance of PWS, our approach to community researchers, followed by the methodological approach and findings and our conclusions to highlight that community researchers can be beneficial for enhancing community engagement, employability, and social capital. Future community researcher approaches need to be fully funded to ensure core researchers can fulfil their duty of care, which should not stop when data collection is finished. Community researchers need to be supported in two main ways: as continuing faces of the project after the official project end date and to transfer their newly acquired skills to future employment opportunities.

scholarly journals Rethinking success, integrity, and culture in research (part 1) — a multi-actor qualitative study on success in science

2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Noémie Aubert Bonn ◽  
Wim Pinxten
Keyword(s):  
Qualitative Study ◽  
Focus Groups ◽  
Research Integrity ◽  
Current Paper ◽  
Research Quality ◽  
Structured Interviews ◽  
Community Members ◽  
Policy Makers ◽  
The Past ◽  
Research Students

Abstract Background Success shapes the lives and careers of scientists. But success in science is difficult to define, let alone to translate in indicators that can be used for assessment. In the past few years, several groups expressed their dissatisfaction with the indicators currently used for assessing researchers. But given the lack of agreement on what should constitute success in science, most propositions remain unanswered. This paper aims to complement our understanding of success in science and to document areas of tension and conflict in research assessments. Methods We conducted semi-structured interviews and focus groups with policy makers, funders, institution leaders, editors or publishers, research integrity office members, research integrity community members, laboratory technicians, researchers, research students, and former-researchers who changed career to inquire on the topics of success, integrity, and responsibilities in science. We used the Flemish biomedical landscape as a baseline to be able to grasp the views of interacting and complementary actors in a system setting. Results Given the breadth of our results, we divided our findings in a two-paper series, with the current paper focusing on what defines and determines success in science. Respondents depicted success as a multi-factorial, context-dependent, and mutable construct. Success appeared to be an interaction between characteristics from the researcher (Who), research outputs (What), processes (How), and luck. Interviewees noted that current research assessments overvalued outputs but largely ignored the processes deemed essential for research quality and integrity. Interviewees suggested that science needs a diversity of indicators that are transparent, robust, and valid, and that also allow a balanced and diverse view of success; that assessment of scientists should not blindly depend on metrics but also value human input; and that quality should be valued over quantity. Conclusions The objective of research assessments may be to encourage good researchers, to benefit society, or simply to advance science. Yet we show that current assessments fall short on each of these objectives. Open and transparent inter-actor dialogue is needed to understand what research assessments aim for and how they can best achieve their objective. Study Registration osf.io/33v3m.

Burial rituals and cultural changes in the polish community – a qualitative study

2012 ◽  
Vol 43 (4) ◽  
pp. 288-309 ◽  
Author(s):  
Igor Pietkiewicz
Keyword(s):  
Qualitative Study ◽  
Medical Personnel ◽  
Cultural Factors ◽  
Cultural Development ◽  
Community Members ◽  
Cultural Changes ◽  
Written Narratives ◽  
Factors Affecting ◽  
Folk Beliefs ◽  
Burial Rituals

Abstract The aim of this study was to explore cultural factors affecting burial rituals in Poland. Thirty-four university students collected data from their relatives and created written narratives about deaths in their families or community. Ten additional interviews were conducted with community members, a priest, and medical personnel as part of theoretical sampling and verification of emerging theories. The qualitative material was administered with NVivo and analysed using the Grounded Theory techniques to produce a complex description of folk beliefs, superstitions, as well as symbolic and psychological meaning ascribed to traditional customs. Some of the practices were found susceptible to extinction due to industrialisation, globalisation, and cultural development

scholarly journals ‘I'll be in a safe place’: a qualitative study of the decisions taken by people with advanced cancer to seek emergency department care

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012134 ◽  
Author(s):  
Lesley A Henson ◽  
Irene J Higginson ◽  
Barbara A Daveson ◽  
Clare Ellis-Smith ◽  
Jonathan Koffman ◽  
...  
Keyword(s):  
Emergency Department ◽  
Qualitative Study ◽  
Advanced Cancer ◽  
Emergency Department Care ◽  
Safe Place

scholarly journals Nonprofits and the Promotion of Civic Engagement: A Conceptual Framework for Understanding the "Civic Footprint" of Nonprofits within Local Communities

2014 ◽  
Vol 5 (1) ◽  
Author(s):  
Micheal L. Shier ◽  
Lindsey McDougle ◽  
Femida Handy
Keyword(s):  
United States ◽  
Civic Engagement ◽  
Nonprofit Organizations ◽  
Rural Community ◽  
Community Education ◽  
The United States ◽  
Local Communities ◽  
Future Research ◽  
Community Members ◽  
Education And Awareness

ABSTRACT   The literature suggests that nonprofit organizations provide civic benefits by promoting engagement within local communities. However, there exists minimal empirical evidence describing the ways in which nonprofits actually undertake this role. In order to address this omission, we conducted interviews with personnel of nonprofit organizations in one rural community in the United States. Our preliminary findings indicate that nonprofit organizations promote civic engagement through programs and activities that: 1) engage volunteers and donors; 2) bring community members together; 3) collaborate with organizations within and beyond the community; and 4) promote community education and awareness. Together, these findings help to develop a working model to understand the civic footprint of nonprofit organizations with methodological implications for future research that would seek to measure the extent to which nonprofits promote civic engagement. Il est normal de supposer que les associations à but non lucratif favorisent l’engagement du citoyen dans les communautés locales. Cependant, il existe peu de données empiriques sur la manière dont ces associations assument véritablement ce rôle. Pour combler ce manque, nous avons mené des entretiens semi-directifs approfondis auprès du personnel d’associations à but non lucratif dans une petite communauté rurale aux États-Unis. Nos résultats préliminaires indiquent que ces associations motivent les citoyens à s’impliquer quand elles offrent des programmes et des activités qui : 1) intéressent les bénévoles et les donateurs; 2) rassemblent directement ou indirectement les membres de la communauté; 3) collaborent avec d’autres associations tant au sein de la communauté qu’au-delà de celle-ci; et 4) encouragent l’éducation et la conscientisation communautaires. Ces constats aident à établir un modèle pour mieux comprendre la présence civique des associations à but non lucratif dans les communautés et indiquent une piste à suivre pour des recherches futures qui examineraient l’influence de ces associations sur le niveau de participation civique.

scholarly journals In their own words: Understanding Australians’ priority concerns regarding mental health in the context of COVID-19

2021 ◽  
Author(s):  
Marlee Bower ◽  
Amarina Donohoe-Bales ◽  
Scarlett Smout ◽  
Andre Quan Ho Nguyen ◽  
Julia Boyle ◽  
...  
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Financial Stability ◽  
Community Sample ◽  
Poor Mental Health ◽  
Community Members ◽  
Good Mental Health ◽  
Australian Community ◽  
Seeking Help ◽  
The Impact

The COVID-19 pandemic, as well as the recent bushfires and flash floods, have resulted in significant and unprecedented mental health impacts in Australia. Despite the known impacts, there is a paucity of research directly asking Australian community members about their mental health experiences and what they perceive to be the most important mental health issues in the context of the pandemic. This study utilises qualitative data from Alone Together, a longitudinal mixed-methods study investigating the effects of COVID-19 on mental health in an Australian community sample (N = 2,056). Of the 1,350 participants who completed the first follow-up survey, a total of 1,037 participants, who ranged in sex (69.9% female), age (M = 40-49 years), state/territory of residence, and socioeconomic status, shared responses to two open-ended questions regarding the most important issues for mental health in Australia and the impact of COVID-19 on their individual mental health. Responses were analysed using thematic analysis. Participants described COVID-19 as primarily impacting their mental health through the disruption it posed to their social world and financial stability. A key concern for participants who reported having poor mental health was the existence of multiple competing barriers to accessing good mental health care. According to participant responses, the pandemic had pressurized an already over-burdened mental health service system, leaving many without timely, appropriate support. Further absent or stigmatising rhetoric around mental health, at both a political and community level, also prevented participants from seeking help. Insights gained from the present research provide opportunities for policymakers and health practitioners to draw on the expertise of Australians’ lived experience and address priority issues through targeted policy planning. This could ultimately support a more responsive, integrated and effective mental health system, during and beyond the COVID-19 pandemic.

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