scholarly journals Validation of the Thai version of the family reported outcome measure (FROM-16)© to assess the impact of disease on the partner or family members of patients with cancer

2019 ◽  
Vol 17 (1) ◽  
Author(s):  
Pattariya Chantarasap ◽  
Nutjaree Pratheepawanit Johns ◽  
Srivieng Pairojkul ◽  
Aumkhae Sookprasert ◽  
Kosin Wirasorn ◽  
...  
2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Susanne A. Elsner ◽  
Sam S. Salek ◽  
Andrew Y. Finlay ◽  
Anna Hagemeier ◽  
Catherine J. Bottomley ◽  
...  

Abstract Background The Family Reported Outcome Measure (FROM-16) assesses the impact of a patient’s chronic illness on the quality of life (QoL) of the patient’s partner or family members. The aim of the study was to translate, explore the structure of and validate the FROM-16. Methods The questionnaire was translated from English into German (forward, backward, four independent translators). Six interviews with family members were conducted to confirm the questionnaire for linguistic, conceptual, semantic and experiential equivalence and its practicability. The final German translation was tested for internal consistency, reproducibility and test validity. Criterion validity was tested by correlating the scores of the FROM-16 and the Global Health Scale (GHS). Principal component analysis, factor analysis, and confirmatory factor analysis was used to assess the questionnaire’s structure and its domains. Reliability and reproducibility were tested computing the intraclass correlation coefficient (ICC) using one sample t-test for testing the hypothesis that the difference between the scores was not different from zero. Results Overall, 83 family members (61% female, median age: 61 years) completed the questionnaire at two different times (mean interval: 22 days). Internal consistency was good for the FROM-16 scores (Cronbach’s α for total score = 0.86). In those with stable GHS, the ICC for the total score was 0.87 and the difference was not different from zero (p = 0.262) indicating reproducible results. A bi-factor model with a general factor including all items, and two sub-factors comprising the items from the original 2-factor construct had the best fit. Conclusions The German FROM-16 has good reliability, test validity and practicability. It can be considered as an appropriate and generic tool to measure QoL of a patient’s partner or family member. Due to the presence of several cross-loadings we do not recommend the reporting of the scores of the two domains proposed for the original version of FROM-16 when using the German version. Thus, in reporting the results emphasis should be put on the total score. Trial registration: Retrospectively registered: DRKS00021070.


2019 ◽  
Vol 7 (4) ◽  
pp. 1
Author(s):  
Marianne Fjose ◽  
Grethe Eilertsen ◽  
Marit Kirkevold ◽  
Ellen K. Grov

Objective: Studies focusing on the impact of caregiving for older adult home-dwelling patients with cancer in the palliative phase, particularly the burdens on different family caregiver groups, are limited. The objective of this study was to assess and compare caregiver reactions and social provisions among different family caregiver groups in Norway.Methods: The sample consisted of 58 family members caring for 26 home-dwelling older adult patients with advanced cancer. The Caregiver Reaction Assessment and Social Provisions Scale were used to assess the caregiver reactions and social support, respectively. The analyses were performed using descriptive statistics.Results: Significant differences were revealed between the family caregiver groups in the following three dimensions of the Caregiver Reaction Assessment: impact on schedule, lack of family support and impact on health. Significant differences were revealed between the family caregiver groups in the following two dimensions of the Social Provisions Scale: nurturance and attachment.Conclusions: In our study, children and children-in-law caring for widowed patients and spouses were the most vulnerable family caregivers. We recommend assessing the caregiver situation of all available family members caring for older adult patients with advanced cancer to identify the most vulnerable caregivers.


2020 ◽  
pp. 1-7
Author(s):  
Tara Sims

BACKGROUND: The impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences. METHODS: Nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview. RESULTS: Analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’. CONCLUSIONS: Parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.


2015 ◽  
Vol 5 (2) ◽  
pp. 157-181 ◽  
Author(s):  
Torsten Schmidts ◽  
Deborah Shepherd

Purpose – The purpose of this paper is to use social identity theory to explore factors that contribute to the development of family social capital. Effects are investigated both for the family and the business. Design/methodology/approach – A single in-depth case study focussing on the family unit was coducted within a fourth-generation family business involved in the arts retailing. Findings – The findings suggest that social identity theory is a useful lens to explore the development of family social capital. The six themes identified highlight that there is a normative and an affective dimension, leading to family members’ desire to uphold the status of the business. Evidence suggests that the normative factors may be both positively and negatively related to the development of family social capital, due to their potentially restrictive nature. Originality/value – The paper’s findings imply that social identity can contribute to understanding family dynamics. Evidence highlights various factors for family members that are not involved in the family business to uphold its status. This is attributed to the emotional significance of the business to the family’s identity. Furthermore, this paper suggests that the strong focus on norms and values, which developed gradually, may have adverse effects on the identification with the business and the willingness to uphold its status. Propositions are offered to provide guidance for future research to investigate this controversial evidence regarding the impact of value orientation on family social capital.


2021 ◽  
pp. 136749352110399
Author(s):  
Stephanie Allen ◽  
Stephen K Bradley ◽  
Eileen Savage

Parent programmes are often used in the clinical management of children with ADHD. Research into parent programmes has predominantly been concerned with their effectiveness and much less attention has been paid to the impact that they may be having on the family and the inter-relationships between family members. This study explores the perspectives and experiences of parents of children with ADHD, who participated in a parent programme, including its impact on the family unit. A purposive sample of six mothers of children with ADHD who completed a 1-2-3 Magic parent programme in Ireland was invited to take part in this qualitative study. Data were collected by means of individual in-depth, semi-structured interviews and a narrative inquiry approach further informed analysis of the interview data. Two major narrative constructions of experience: ‘parent programme as positive’ and ‘parent programme as negative’ were identified. Outcomes from this study illustrated some unintended consequences caused by the parent programme (i.e. sibling rivalry and conflict arising between family members). Mothers believed that the parent programme was a beneficial intervention, but it was not without its flaws and they felt it was helpful for their family when used in conjunction with other supports and mediations.


Author(s):  
Darby Morhardt ◽  
Marcia Spira

When a member of a family is diagnosed with Alzheimer's disease, the impact of the disease reverberates throughout the relationships within the family. This paper explores the challenges and strengths within one family as members manage and cope with Alzheimer's disease. The person with dementia and his family members are individually interviewed and each person explores the consequences of the disease on personal well-being as well as the relationships within the family. The family demonstrates how dementia in one family member demands flexibility in family roles as they navigate life through the challenges of living with dementia.


Author(s):  
Veronica Dussel ◽  
Barbara Jones

In this chapter, we will focus on the importance of caring for the family of a child with a life-limiting condition (LLC) or life-threatening condition as a unit, each of the family members being integral to the well-being and care of the others. We recognize that the family unit itself is embedded within a wider context including the health and social care system, and more broadly within its society and culture. We discuss the concept of family, exploring the impact of having a child with an LLC, and how families adjust to this. We then expand on considerations about how to offer effective and timely support and help. We have included parents’ narratives with the aim of adding depth to the discussion, and in recognition of the truth of families’ own experiences.


1986 ◽  
Vol 31 (2) ◽  
pp. 161-165 ◽  
Author(s):  
Catherine Laroche

Opportunities for prevention of psychopathology in children and families are often overlooked in the treatment of the depressed adult patient. Research and clinical findings are reviewed which highlight the impact on children and the family of depressed parents. They range from illness serious enough to require hospitalization to cases in which depression has not yet been diagnosed. These findings are used as guidelines for the development of preventive and therapeutic interventions for all family members.


2020 ◽  
Vol Volume 4 (Issue 3) ◽  
pp. 192-207
Author(s):  
Dr. Muhammad Shabbir Sarwar ◽  
Humara Gulzar ◽  
Muhammad Ahsan Bhatti

The purpose of this research paper is to explore the negative relationship between mobile phone and family life as well as negative impact of mobile phone usage on family life norms and traditions. The study is based on data collected through mixed method i.e. survey of a random sample of 1300 people and structured interviews conducted with a sub-sample of 13 people in Lahore, Pakistan. The study found that mobile phone is negatively affecting the family life due to its massive usage during family socialization time. The quantitative analysis found that over 85% of respondents use mobile phone for communication with the people other than their family members when they are with their family; over 50% make calls to others during their family time; 83% make SMS; 75 feel that they ignore their family due to cell phone; 86% thinks that mobile has influenced their family time face-to-face socialization negatively and 91% said that they exchanged harsh words with their family members for at least once or more due to using mobile phone during family time. The study reveals that male members of the traditional families are more responsible for using mobile phone during family time and damaging family traditions as compared to the female members. However, parents remain very concerned about the possibilities of misuse of mobile phone by female teenagers of the family. In most cases family elders were annoyed with the youth for adopting this change in their behaviors damaging the family traditions.


2020 ◽  
Vol 11 (1) ◽  
pp. 79
Author(s):  
M. Nur Kholis Al Amin

Family is the main foundation for character formation and the role of family members. In addition, the family also plays a major role in the patterns of interaction that exist in people’s lives.  However, the development and changes that occur in society can effect the pattern (role) of family life. Today, the development of science and technology is able to influence the shape of society’s life structure toward the “modern society”, one of the impact on family structure is the existance of madern family, which is characterized by the intensity of meetings among family members is increasingly “limit” due to the high level of activity outside the household, such as: children who are out of town school, husband and wife career, husband who works outside the city and see also. Moreover, because the development of communication, so this can be made as a means to build family resilience. Therefore, this article will try to examine communication systems as a significant element to build family resiliaence throught historical contex and sociological approaches, where the presentasion is by integrating, describing, and the analyzing social phenomena—modern family life patterns, changes and developments in technology, communication—using “nilai etik theory” through several rules of Islamic communication as the value of communicating in the family. So that, when viewed from “nilai etik theory” develop by Rahman, conclusions can be obtained, that there are several elements of a very close relationship to the principles of Islamic communication, development of family structure, and family resilience as a way to build a family that is a sakinah, mawaddan and rahmah.Dewasa ini, perkembangan ilmu pengetahuan dan teknologi mampu mempengaruhi bentuk struktur kehidupan masyarakat ke arah “masyarakat modern”, yang salah satu dampaknya berpengaruh terhadap struktur yang ditandai dengan terbatasnya tingkat intensitas pertemuan antar anggota keluarga karena tingginya aktivitas di luar rumah tangga, seperti; anak yang sekolah atau kuliah di luar kota, suami-istri yang berkarir, suami yang bekerja di luar kota, dan sebaliknya. Lebih lanjut, karena perkembangan alat komunikasi yang semakin maju, maka hal tersebut dapat  dijadikan sebagai salah satu sarana untuk membangun ketahanan keluarga. Oleh karena itu, artikel ini akan coba menelaah sistem komunikasi sebagai unsur yang signifikan untuk membangun ketahanan keluarga melalui pendekatan historis (historical contex) dan pendekatan sosiologis, di mana pemaparannya dengan cara memadukan, mendeskripsikan, dan kemudian menganalisis fenomena sosial—pola kehidupan keluarga modern, perubahan dan perkembangan teknologi, komunikasi—menggunakan teori nilai etik melalui beberapa kaidah komunikasi Islam sebagai nilai berkomunikasi di dalam keluarga. Sehingga, apabila ditinjau dari “teori nilai etik” yang dikembangkan oleh Rahman, dapat diperoleh kesimpulan, bahwa terdapat beberapa unsur hubungan yang sangat erat terhadap prinsip-prinsip komunikasi Islam, perkembangan struktur keluarga, dan ketahanan keluarga sebagai jalan untuk membangun keluarga yang sakinah, mawaddah dan rahmah.


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