scholarly journals Parental perspective: The role of prostheses and prosthetics services in adjusting to a child’s upper limb difference

2020 ◽  
pp. 1-7
Author(s):  
Tara Sims

BACKGROUND: The impact of paediatric upper limb difference may extend beyond the child themselves to their parents and other family members. Previous research has found that feelings of shock, numbness and loss are common amongst parents and that peer support can be a buffer against stress. OBJECTIVE: The current study aimed to explore the experiences of parents of children with limb difference, and the role of services and prosthetic devices in these experiences. METHODS: Nine parents of children with limb difference participated in either a group (n= 2) or individual (n= 7) interview. RESULTS: Analysis of the interview transcripts revealed four themes – ‘grief and guilt’, ‘prosthesis as a tool for parental adjustment’, ‘support’ and ‘fun and humour’. CONCLUSIONS: Parents may employ coping strategies to help them adjust to their child’s limb difference, including use of a prosthesis, accessing support from statutory services and peers, and use of fun and humour within the family.

2020 ◽  
Vol 11 (1) ◽  
pp. 79
Author(s):  
M. Nur Kholis Al Amin

Family is the main foundation for character formation and the role of family members. In addition, the family also plays a major role in the patterns of interaction that exist in people’s lives.  However, the development and changes that occur in society can effect the pattern (role) of family life. Today, the development of science and technology is able to influence the shape of society’s life structure toward the “modern society”, one of the impact on family structure is the existance of madern family, which is characterized by the intensity of meetings among family members is increasingly “limit” due to the high level of activity outside the household, such as: children who are out of town school, husband and wife career, husband who works outside the city and see also. Moreover, because the development of communication, so this can be made as a means to build family resilience. Therefore, this article will try to examine communication systems as a significant element to build family resiliaence throught historical contex and sociological approaches, where the presentasion is by integrating, describing, and the analyzing social phenomena—modern family life patterns, changes and developments in technology, communication—using “nilai etik theory” through several rules of Islamic communication as the value of communicating in the family. So that, when viewed from “nilai etik theory” develop by Rahman, conclusions can be obtained, that there are several elements of a very close relationship to the principles of Islamic communication, development of family structure, and family resilience as a way to build a family that is a sakinah, mawaddan and rahmah.Dewasa ini, perkembangan ilmu pengetahuan dan teknologi mampu mempengaruhi bentuk struktur kehidupan masyarakat ke arah “masyarakat modern”, yang salah satu dampaknya berpengaruh terhadap struktur yang ditandai dengan terbatasnya tingkat intensitas pertemuan antar anggota keluarga karena tingginya aktivitas di luar rumah tangga, seperti; anak yang sekolah atau kuliah di luar kota, suami-istri yang berkarir, suami yang bekerja di luar kota, dan sebaliknya. Lebih lanjut, karena perkembangan alat komunikasi yang semakin maju, maka hal tersebut dapat  dijadikan sebagai salah satu sarana untuk membangun ketahanan keluarga. Oleh karena itu, artikel ini akan coba menelaah sistem komunikasi sebagai unsur yang signifikan untuk membangun ketahanan keluarga melalui pendekatan historis (historical contex) dan pendekatan sosiologis, di mana pemaparannya dengan cara memadukan, mendeskripsikan, dan kemudian menganalisis fenomena sosial—pola kehidupan keluarga modern, perubahan dan perkembangan teknologi, komunikasi—menggunakan teori nilai etik melalui beberapa kaidah komunikasi Islam sebagai nilai berkomunikasi di dalam keluarga. Sehingga, apabila ditinjau dari “teori nilai etik” yang dikembangkan oleh Rahman, dapat diperoleh kesimpulan, bahwa terdapat beberapa unsur hubungan yang sangat erat terhadap prinsip-prinsip komunikasi Islam, perkembangan struktur keluarga, dan ketahanan keluarga sebagai jalan untuk membangun keluarga yang sakinah, mawaddah dan rahmah.


1970 ◽  
Vol 4 (1) ◽  
Author(s):  
Yelsi Wanti ◽  
Efri Widianti ◽  
Nita Fitria

Keluarga yang merawat anggota keluarga dengan gangguan jiwa sering mengalami stres karena perilaku anggota keluarga yang mengalami gangguan jiwa dan stigma yang melekat pada keluarga. Keluarga akan melakukan strategi koping untuk mengatasi stres yang dialami. Tujuan Penelitian ini adalah untuk mengidentifikasi strategi koping keluarga dalam merawat anggota keluarga yang menderita gangguan jiwa berat di rumah di Desa Sukamaju dan Desa Kersamanah Kecamatan Kersamanah Kabupaten Garut. Jenis penelitian ini adalah deskriptif kuantitatif dengan jumlah responden sebanyak 43 orang anggota keluarga yang merawat pasien gangguan jiwa berat, diambil dengan total sampling. Data penelitian diambil menggunakan kuesioner dari instrumen baku Ways Of Coping (WOC) dan analisis data yang digunakan dalam bentuk persentase. Hasil penelitian menunjukkan sebagian dari responden yaitu 20 orang (47%) lebih cenderung menggunakan emotional focused coping, sebagian kecil responden yaitu 13 orang (30%) cenderung menggunakan problem focused coping dan sebagian kecil responden lainnya yaitu 10 orang (23%) dominan menggunakan problem focused coping dan emotional focused coping secara bersamaan. Simpulan dari penelitian ini menunjukkan bahwa keluarga dalam merawat pasien gangguan jiwa berat di rumah melakukan usaha untuk menghadapi stres dengan cara mengatur respon emosionalnya untuk menyesuaikan diri dari dampak yang ditimbulkan oleh pasien. Hasil penelitian ini diharapkan dapat memberikan masukan bagi perawat di puskesmas setempat untuk memberikan konsultasi dan konseling bagi keluarga dalam merawat pasien gangguan jiwa berat di rumah.Kata kunci: Gangguan jiwa berat, keluarga, strategi koping. Describe Of Family Coping Strategies In CaringFamily Members Suffering From Severe Mental DisordersAbstractFamilies who care for family members with mental illness often stresor due to the behavior of family members with mental illness and the stigma attached to the family. The family will do the coping strategies to overcome the stres experienced. The study purpose is to identify family coping strategies in caring for family members who suffer from severe mental disorders at home in Sukamaju and Kersamanah Villages in District of Garut. This design of study is quantitative descriptive with the number of respondents about 43 family members who care for patients with severe mental disorders, using total sampling. The data were taken using a questionnaire of raw instrument Ways Of Coping (WOC) and data analysis used form of a percentage. The results showed the majority of respondents, 20 people (47%) were more likely to use emotional focused coping, a small portion 13 respondents (30%) tend to use problem focused coping and a small portion 10 respondents (23%) predominantly use problem focused coping and emotional focused coping simultaneously. The conclusions of this study indicate that the family in caring for patients with severe mental disorders at home to make efforts to deal with stres by regulating the emotional response to adjust from the impact caused by the patient. The results of this study are expected to provide input for a nurse at a Health care to provide consultation and counseling for families in caring for patients with disorders severe mental at home.Keywords: Coping strategies, family, severe mental disorders.


2010 ◽  
Vol 25 (1) ◽  
pp. 83-108 ◽  
Author(s):  
RICHARD WALL

ABSTRACTThis article evaluates the extent of economic support provided by the family in English society. The first issue addressed is the importance given to relationships between family members both by contemporaries and by historians when attempting to distinguish different types of household. Following sections of the article discuss the role of households in redistributing income from the better-paid to the less well-paid or non-earners and the significance of economic support received from members of the family living elsewhere relative to that provided from within the household and from other outside sources, such as the community, employers and neighbours. A further section then assesses the impact of demographic change on the size and composition of the kin group and the extent to which population mobility made regular contact with close kin more difficult.


2021 ◽  
Vol 1 (2) ◽  
pp. 179-193
Author(s):  
Ely Muawanah

Family resilience consists of three things, namely physical, social, and psychological resilience. So, the application of this resilience pattern will lead to interactions between family members, so that happiness or family crises can emerge, such as juvenile delinquency. Thus the researcher is interested in comparing Elly Risman's thoughts and the concept of Islamic marriage. The focus of the studies examined in this article are: 1) What is the Pattern of Family Resilience to Prevent Juvenile Delinquency According to Elly Risman? 2) What is the pattern of family resilience to prevent juvenile delinquency according to the concept of an Islamic marriage? 3) How is the comparison between Elly Risman's thoughts and the concept of Islamic marriage in the pattern of family resilience to prevent juvenile delinquency? In this study, the authors took normative legal research. Based on the results and conclusions of research conducted by researchers, among others: 1) the concept of family resilience according to Elly Risman includes tips for being able to adapt and survive, factors of weakening family resilience, the impact of weakening family resilience, and efforts to maintain the family. 2) the concept of family resilience according to Islamic marriage includes the urgency of having a family, family goals, family wisdom, rights and obligations of family members, factors needed in family resilience as well as managing conflict and building family resilience. 3) The comparison of Elly Risman's thoughts and the concept of Islamic marriage in family resilience includes, Elly Risman's view on family resilience puts forward feelings that have an impact on psychology and family resilience that will have an impact on children's growth. Elly Risman also revealed the important role of parents in childcare. Whereas in the concept of Islamic marriage, it includes considering the purpose of having a family, prioritizing the rights and obligations of family members, and paying attention to equality.


Author(s):  
Gururaj Ganapati Gouda ◽  
Laveena D’Mello

Background: Most of us have experience of fear at any point of our lifetime. When this common fear turns to severe anxiety can be named as a phobia. The phobia is one of the psychological disorders which imbalance our day today’s wellbeing. Normally children have frequent experience of fear and few of them suffer from severe anxiety disorder. The influence of the external world is the main cause of any phobic problems. Result: As per this case study common fear or phobic disorder among children is affecting the academic performance of the children and their day today’s activities. It is highly recommended to expertize the teachers and educate the family members to have an insight on phobic disorders and its impacts on children. Most therapeutic approaches are currently being used for children for the prevention of phobic and anxiety disorders are individual child-focused treatments. Family members or teachers generally play a little or indirect role in the treatment process. However, the role of teacher’s and family member’s in identifying and managing anxious children will help the child for being potential in fighting against such disorders. Specific assessment, including the interview, reporting instruments, other-report measures, behavioural observations, monitoring, and physiological assessment are the tools in finding solutions for phobic problems among children. Conclusion: The above case study is giving us an experimental idea on deferent types of anxiety disorders and their impact on the child’s academic outcome. However the impact of phobia is not only on the academic outcome of the child but also on its behaviour and social wellbeing, it will also disturb the child in its day today’s activities. The timely approach with several therapies will help the child to cope-up with the phobic problems and balance well performance in academic as well as in social activities.


2021 ◽  
Author(s):  
Izabella Babayan

In this article, we present the modern family as a socio-cultural environment for the upbringing of a child, emphasizing the role of family traditions, rituals, and the re-lationship between family members in the upbringing of a child. We have analyzed our research on this issue and presented the results.


2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Susanne A. Elsner ◽  
Sam S. Salek ◽  
Andrew Y. Finlay ◽  
Anna Hagemeier ◽  
Catherine J. Bottomley ◽  
...  

Abstract Background The Family Reported Outcome Measure (FROM-16) assesses the impact of a patient’s chronic illness on the quality of life (QoL) of the patient’s partner or family members. The aim of the study was to translate, explore the structure of and validate the FROM-16. Methods The questionnaire was translated from English into German (forward, backward, four independent translators). Six interviews with family members were conducted to confirm the questionnaire for linguistic, conceptual, semantic and experiential equivalence and its practicability. The final German translation was tested for internal consistency, reproducibility and test validity. Criterion validity was tested by correlating the scores of the FROM-16 and the Global Health Scale (GHS). Principal component analysis, factor analysis, and confirmatory factor analysis was used to assess the questionnaire’s structure and its domains. Reliability and reproducibility were tested computing the intraclass correlation coefficient (ICC) using one sample t-test for testing the hypothesis that the difference between the scores was not different from zero. Results Overall, 83 family members (61% female, median age: 61 years) completed the questionnaire at two different times (mean interval: 22 days). Internal consistency was good for the FROM-16 scores (Cronbach’s α for total score = 0.86). In those with stable GHS, the ICC for the total score was 0.87 and the difference was not different from zero (p = 0.262) indicating reproducible results. A bi-factor model with a general factor including all items, and two sub-factors comprising the items from the original 2-factor construct had the best fit. Conclusions The German FROM-16 has good reliability, test validity and practicability. It can be considered as an appropriate and generic tool to measure QoL of a patient’s partner or family member. Due to the presence of several cross-loadings we do not recommend the reporting of the scores of the two domains proposed for the original version of FROM-16 when using the German version. Thus, in reporting the results emphasis should be put on the total score. Trial registration: Retrospectively registered: DRKS00021070.


2020 ◽  
Vol 10 (1) ◽  
Author(s):  
Jonghwa Kim ◽  
Wonseok Kang ◽  
So Hee Kang ◽  
Su Hyun Park ◽  
Ji Young Kim ◽  
...  

AbstractHepatic fibrogenesis is characterized by activation of hepatic stellate cells (HSCs) and accumulation of extracellular matrix (ECM). The impact of ECM on TGF-β-mediated fibrogenic signaling pathway in HSCs has remained obscure. We studied the role of non-receptor tyrosine kinase focal adhesion kinase (FAK) family members in TGF-β-signaling in HSCs. We used a CCl4-induced liver fibrosis mice model to evaluate the effect of FAK family kinase inhibitors on liver fibrosis. RT-PCR and Western blot were used to measure the expression of its target genes; α-SMA, collagen, Nox4, TGF-β1, Smad7, and CTGF. Pharmacological inhibitors, siRNA-mediated knock-down, and plasmid-based overexpression were adopted to modulate the function and the expression level of proteins. Association of PYK2 activation with liver fibrosis was confirmed in liver samples from CCl4-treated mice and patients with significant fibrosis or cirrhosis. TGF-β treatment up-regulated expression of α-SMA, type I collagen, NOX4, CTGF, TGF-β1, and Smad7 in LX-2 cells. Inhibition of FAK family members suppressed TGF-β-mediated fibrogenic signaling. SiRNA experiments demonstrated that TGF-β1 and Smad7 were upregulated via Smad-dependent pathway through FAK activation. In addition, CTGF induction was Smad-independent and PYK2-dependent. Furthermore, RhoA activation was essential for TGF-β-mediated CTGF induction, evidenced by using ROCK inhibitor and dominant negative RhoA expression. We identified that TGF-β1-induced activation of PYK2-Src-RhoA triad leads to YAP/TAZ activation for CTGF induction in liver fibrosis. These findings provide new insights into the role of focal adhesion molecules in liver fibrogenesis, and targeting PYK2 may be an attractive target for developing novel therapeutic strategies for the treatment of liver fibrosis.


2015 ◽  
Vol 5 (2) ◽  
pp. 157-181 ◽  
Author(s):  
Torsten Schmidts ◽  
Deborah Shepherd

Purpose – The purpose of this paper is to use social identity theory to explore factors that contribute to the development of family social capital. Effects are investigated both for the family and the business. Design/methodology/approach – A single in-depth case study focussing on the family unit was coducted within a fourth-generation family business involved in the arts retailing. Findings – The findings suggest that social identity theory is a useful lens to explore the development of family social capital. The six themes identified highlight that there is a normative and an affective dimension, leading to family members’ desire to uphold the status of the business. Evidence suggests that the normative factors may be both positively and negatively related to the development of family social capital, due to their potentially restrictive nature. Originality/value – The paper’s findings imply that social identity can contribute to understanding family dynamics. Evidence highlights various factors for family members that are not involved in the family business to uphold its status. This is attributed to the emotional significance of the business to the family’s identity. Furthermore, this paper suggests that the strong focus on norms and values, which developed gradually, may have adverse effects on the identification with the business and the willingness to uphold its status. Propositions are offered to provide guidance for future research to investigate this controversial evidence regarding the impact of value orientation on family social capital.


Author(s):  
Oksana V. Baskaeva ◽  

An overview of the areas of sibling research that laid the foundation for the modern understanding of sibling issues is presented. Attention is focused on the importance of sibling relationships for personal development, socialization and adaptation, and on the existing shortage of relevant work at the same time. The main stages of the development of sibling theory in their continuity are considered, starting from the first studies devoted to the search for a connection between the order of birth and achievements and dated to the end of the 19th century, to the term “individual environment” developed by the genetics of behavior in the second half of the 20th century. It emphasizes the role of A. Adler, who has made sibling a central feature of family life and personal development and has long determined the future direction of empirical family research. It shows a gradual shift in the interest of researchers from studying the influence of birth order, gender, and age intervals between siblings on personal characteristics. In this connection, an analysis of the nature of sibling relations on the basis of reciprocity and complementarity, undertaken by Dunn, is given. Early works on the jealousy and rivalry of children in the family, the study of the impact of parental differential treatment on them, as well as the influence of child characteristics on siblings in families with sick children are considered.


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