scholarly journals The “little big things”: A qualitative study of ovarian cancer survivors and their experiences with the health care system.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 252-252
Author(s):  
Ana Isabel Tergas ◽  
Ana Angarita ◽  
Angelica Cristello ◽  
Melissa Lippitt ◽  
Amanda Nickles Fader ◽  
...  
Keyword(s):  
Ovarian Cancer ◽  
Health Care ◽  
Cancer Survivors ◽  
Health Care System ◽  
Well Being ◽  
Care Team ◽  
Cancer Center ◽  
Team Approach ◽  
Efficient Delivery ◽  
Care System

252 Background: Navigating a complex and ever-changing health care system can be stressful and detrimental to psychosocial well-being for patients with serious illness. This study explored women’s experiences navigating the health care system during treatment of ovarian cancer. Methods: Focus groups moderated by trained investigators were conducted with ovarian cancer survivors at an academic cancer center. Personal experiences with cancer treatment, provider relationships, barriers to care, and the health care system were explored. Sessions were audiotaped, transcribed, and coded using grounded theory. Subsequent one-on-one interviews were conducted to further evaluate common themes. Results: Sixteen ovarian cancer survivors with a median age of 59 years participated in the focus group study.Provider consistency, personal touch, and patient advocacy positively impacted care experience.Treatment with a known provider, who was well acquainted with the individual’s medical history, was deemed an invaluable aspect of care. Negative experiences that burdened patients, referred to as the “Little Big Things”, included systems-based challenges: scheduling, wait times, pharmacy, transportation, parking, financial, insurance and discharge. Consistency, a “care-team” approach, effective communication, and efficient connection to resources were suggested as ways to improve patients’ experiences. Conclusions: Systems-based challenges were perceived as burdens to ovarian cancer survivors. The role of a consistent, accessible care team and efficient delivery of resources in the care of women with ovarian cancer should be explored further.

scholarly journals “Little Big Things”: A Qualitative Study of Ovarian Cancer Survivors and Their Experiences With the Health Care System

2016 ◽  
Vol 12 (12) ◽  
pp. e974-e980 ◽  
Author(s):  
Kara Long Roche ◽  
Ana M. Angarita ◽  
Angelica Cristello ◽  
Melissa Lippitt ◽  
Adil H. Haider ◽  
...  
Keyword(s):  
Ovarian Cancer ◽  
Health Care ◽  
Cancer Survivors ◽  
Health Care System ◽  
Well Being ◽  
Care Team ◽  
Cancer Center ◽  
Team Approach ◽  
Focus Group Study ◽  
Care System

Purpose: Navigation of a complex and ever-changing health care system can be stressful and detrimental to psychosocial well-being for patients with serious illness. This study explored women’s experiences with navigating the health care system during treatment for ovarian cancer. Methods: Focus groups moderated by trained investigators were conducted with ovarian cancer survivors at an academic cancer center. Personal experiences with cancer treatment, provider relationships, barriers to care, and the health care system were explored. Sessions were audiotaped, transcribed, and coded by using grounded theory. Subsequently, one-on-one interviews were conducted to further evaluate common themes. Results: Sixteen ovarian cancer survivors with a median age of 59 years participated in the focus group study. Provider consistency, personal touch, and patient advocacy positively affected the care experience. Treatment with a known provider who was well acquainted with the individual’s medical history was deemed an invaluable aspect of care. Negative experiences that burdened patients, referred to as the “little big things,” included systems-based challenges, which were scheduling, wait times, pharmacy, transportation, parking, financial, insurance, and discharge. Consistency, a care team approach, effective communication, and efficient connection to resources were suggested as ways to improve patients’ experiences. Conclusion: Systems-based challenges were perceived as burdens to ovarian cancer survivors at our institution. The role of a consistent, accessible care team and efficient delivery of resources in the care of women with ovarian cancer should be explored further.

scholarly journals Rural Michigan Farmers’ Health Concerns and Experiences: A Focus Group Study

2021 ◽  
Vol 12 ◽  
pp. 215013272110535
Author(s):  
Nathan Wright ◽  
Marylee Scherdt ◽  
Michelle L. Aebersold ◽  
Marjorie C. McCullagh ◽  
Barbara R. Medvec ◽  
...  
Keyword(s):  
Health Care ◽  
Focus Groups ◽  
Health Care System ◽  
Health Care Services ◽  
Well Being ◽  
The United States ◽  
Full Time ◽  
Rural Residents ◽  
Care Services ◽  
Care System

Objectives: Rural residents comprise approximately 15% of the United States population. They face challenges in accessing and using a health care system that is not structured to meet their unique needs. It is important to understand rural residents’ perceptions of health and experiences interacting with the health care system to identify gaps in care. Methods: Our team conducted focus groups with members of the Michigan Farm Bureau during their 2019 Annual Meeting. Topics explored included resources to manage health, barriers to virtual health care services, and desired changes to localized healthcare delivery. Surveys were used to capture demographic and internet access information. Conclusion: Analysis included data from 2 focus groups (n = 14). Participants represented a wide age range and a variety of Michigan counties. The majority were full-time farm owners with most—93% (n = 13)—reporting they had access to the internet in their homes and 86% (n = 12) reporting that their cellphones had internet capabilities. Participants identified challenges and opportunities in 4 categories: formal health care; health and well-being supports; health insurance experiences; and virtual health care. Conclusion: The findings from this study provide a useful framework for developing interventions to address the specific needs of rural farming residents. Despite the expressed challenges in access and use of health care services and resources, participants remained hopeful that innovative approaches, such as virtual health platforms, can address existing gaps in care. The study findings should inform the design and evaluation of interventions to address rural health disparities.

scholarly journals Impact of race, socioeconomic status, and the health care system on the treatment of advanced-stage ovarian cancer in California

2014 ◽  
Vol 133 ◽  
pp. 156-157
Author(s):  
B.J. Long ◽  
J. Chang ◽  
A. Ziogas ◽  
K.S. Tewari ◽  
H. Anton-Culver ◽  
...  
Keyword(s):  
Ovarian Cancer ◽  
Health Care ◽  
Socioeconomic Status ◽  
Health Care System ◽  
Advanced Stage ◽  
Care System

A Specialized Home Care Team Does Make a Difference

1992 ◽  
Vol 5 (3) ◽  
pp. 38-41
Author(s):  
Dorothy Larson ◽  
Ralph Odegard ◽  
N.E. Brown
Keyword(s):  
Health Care ◽  
Home Care ◽  
Health Care System ◽  
Care Program ◽  
Care Team ◽  
Research Facility ◽  
Teaching And Research ◽  
The Cost ◽  
Care System ◽  
At Home

Results of a study done in a large teaching and research facility in Alberta reveal that a specialized home care team can substantially lower the cost of caring for people who are ventilator dependent. With the assistance of a pulmonary physician, the Respiratory Home Care program has shown excellent results. Patients report that they “feel as safe at home as in the hospital”, and the savings to the health care system are estimated to be about $2,000,000 per year.

The Bon Secours St. Francis Cancer Survivorship Program: A model for community-based multidisciplinary survivorship care.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 45-45
Author(s):  
Kaitlin Bomar ◽  
Nicole Vickery ◽  
Meagan Duggan ◽  
Tina Redenz ◽  
Tracey Lukker ◽  
...  
Keyword(s):  
South Carolina ◽  
Cancer Survivors ◽  
Well Being ◽  
Academic Community ◽  
Care Plan ◽  
Survivorship Care Plan ◽  
Cancer Center ◽  
Team Approach ◽  
Survivorship Care ◽  
Community Based

45 Background: In 1974, Giulio D' Angio,MD, stated “Cure Is Not Enough” and the concept of Survivorship was ignited. Multidisciplinary survivorship clinics have since become a mainstay of many pediatric cancer programs; few such clinics exist in adult cancer programs, especially in community practice. We report on the development of a survivorship care plan and a community-based clinic designed to provide guideline-driven after care for cancer survivors. Methods: An overview of the vision and mission of the Bone Secours St. Francis Cancer Center Survivorship Program is provided. Descriptive analysis of the components and metrics of success are provided, in the context of accrediting organizations requirements for current and future goals for survivorship care. Results: BSSF, which is a non-academic, community-based cancer program, and receives over 1300 referrals annually from a referral population of 1.32 million in 10 counties. St. Francis , accredited by both the Commission on Cancer and National Accreditation Program for Breast Centers, has been providing cancer‐related services to the Upstate South Carolina region for a decade. The survivorship program at St. Francis is a STAR‐certified program and is a patient‐centered service provided in a comprehensive and coordinated multidisciplinary team approach, including integrated psychologic care. A custom survivorship care plan was developed and efforts, including successes and barriers, to implementation of plans for all cancer survivors in accordance with CoC and NAPBC goals are addressed. Conclusions: The BSSF Cancer Center Survivorship Program has developed a practical, yet comprehensive SCP, which is risk-adapted and guideline-driven in order to provide customized survivorship education and monitoring. The MDC provides comprehensive evaluations and recommendations in order to maximize health and well-being of patients navigating life after cancer diagnosis and treatment. Our efforts have demonstrated that survivorship clinics of this nature can be established and successful in a non-academic community setting.

scholarly journals Impact of race, socioeconomic status, and the health care system on the treatment of advanced-stage ovarian cancer in California

2015 ◽  
Vol 212 (4) ◽  
pp. 468.e1-468.e9 ◽  
Author(s):  
Beverly Long ◽  
Jenny Chang ◽  
Argyrios Ziogas ◽  
Krishnansu S. Tewari ◽  
Hoda Anton-Culver ◽  
...  
Keyword(s):  
Ovarian Cancer ◽  
Health Care ◽  
Socioeconomic Status ◽  
Health Care System ◽  
Advanced Stage ◽  
Care System

scholarly journals Integrating staff well-being into the Primary Health Care system: a case study in post-conflict Kosovo

2015 ◽  
Vol 9 (1) ◽  
Author(s):  
Albertien van der Veen ◽  
Tineke van Pietersom ◽  
Barbara Lopes Cardozo ◽  
Feride Rushiti ◽  
Genc Ymerhalili ◽  
...  
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Health Care System ◽  
Well Being ◽  
Primary Health Care System ◽  
System A ◽  
Post Conflict ◽  
Primary Health ◽  
Care System

scholarly journals Governance of health care systems in an ageing world – the case of Australia

2015 ◽  
Vol 13 (1) ◽  
pp. 729-735 ◽  
Author(s):  
Ewa Banasik
Keyword(s):  
Health Care ◽  
Health Care System ◽  
Health Care Systems ◽  
Well Being ◽  
World Health ◽  
The Political ◽  
Central Component ◽  
Australian Health ◽  
Care Systems ◽  
Care System

The main argument of this paper is that because the burden of diseases increases with age, a greater numbers of older individuals will increase the demand for health care, and whether this demand will be met very much depends on how health care systems are governed. This task is particularly complex in jurisdictions with multi-layer governing systems such as the Australian health care system. Governance, described in terms of stewardship of the well-being of the population and as a central component for building effective health care systems, is increasingly considered to be very important for a well performing health care system (World Health Organization, 2000, 2007). Governance is, however, the least studied function in a health care system (Alliance 2009). Furthermore, the limited governance frameworks and assessments that have been developed thus far fail to include the political context in which health care systems operate (Baez-Camargo and Jacobs, 2011). This paper intends to fill this knowledge gap by exploring the political dynamics of the Australian health care system’s governance and its accountability. Furthering the discourse on governance is especially important in times when health care systems are confronted with the challenges of ageing populations

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