A survey of cancer patients’ rehabilitation therapy needs in Southwest China.

2019 ◽  
Vol 37 (15_suppl) ◽  
pp. e18003-e18003
Author(s):  
Zhou Jin ◽  
Fang Li ◽  
Peng Xiaodong ◽  
Peng Jingjing ◽  
Jiang Shasha ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Medical Treatment ◽  
Cancer Patients ◽  
Mental Stress ◽  
Financial Burden ◽  
Rehabilitation Therapy ◽  
Holistic Treatment ◽  
Cancer Breast ◽  
Medical Advance

e18003 Background: Medical advance in the recent decades has turned cancer into a chronic disease. At the same time, quality of life (LoF) during the treatment period has emerged as a new concern of cancer patients. Rehabilitation therapy, which can help patients conquer fear and be more engaged in the process, has gradually attracted more attentions in China. We designed a survey, for both the cancer patients and their families, to understand their view of the rehabilitation therapy. Methods: We sent paper-based surveys to volunteers consisted of cancer patients and their families. Majority of patients are from 10 cancer centers at the southwest region of China. The main cancer types are lung cancer, breast cancer and colon cancer. The survey questions focus on: patients and their families’ engagement of the treatment, their view on rehabilitation therapy, and their method preference for the rehabilitation therapy. Results: We sent 2,000 copies of the survey and received 1,920 valid inputs. Below are the key findings. 1. Their biggest concern: the outcome of the treatment 55.8%, side effects 19.7%, financial burden 12.8% and mental stress 11.5%. 2. The importance of the rehabilitation therapy as compared to traditional medical treatment, such as surgery and chemotherapy: equally important 67.8%, less important 17.7%, more important 10.1%, no preference 4.4%. 3. The necessity of rehabilitation therapy: very necessary 65.7%, somewhat necessary 22.7%, not necessary 11.6%. 4. The first three reasons for participating rehabilitation therapy: it helped go through the treatment 42.8%, it improved quality of life 31.6% and it helped release their mental stress 22.3%. 5. The best form to conduct rehabilitation therapy: face-to-face communicate with the doctors 60.6%, telecommunication 15.8% and combination of both 22.1%. Conclusions: The results of the survey strongly indicate the demands for rehabilitation therapy. Patients started to understand it – more than half of them think it is as important as the traditional medical treatment. Patients’ quality of life and mental health, which is part of the holistic treatment, are gradually recognized. Next, we plan to group our survey results by types of cancers, patients and their families’ genders and age, as well as the local economics, to better understand the data. We hope this study can serve as a data point to help build China’s rehabilitation therapy infrastructure.

Objective and subjective financial burden and its associations with health-related quality of life among lung cancer patients

2017 ◽  
Vol 26 (4) ◽  
pp. 1265-1272 ◽  
Author(s):  
Jieling Elaine Chen ◽  
Vivian Weiqun Lou ◽  
Hong Jian ◽  
Zhen Zhou ◽  
Meiqiong Yan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Cancer Patients ◽  
Financial Burden ◽  
Health Related Quality ◽  
Lung Cancer Patients ◽  
Related Quality ◽  
Health Related

scholarly journals A qualitative study on cancer patientś experiences with financial burden and financial distress

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
S L Schröder ◽  
N Schumann ◽  
M Richter
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Financial Distress ◽  
Financial Burden ◽  
Well Being ◽  
Money Management ◽  
Financial Toxicity ◽  
Financial Decline ◽  
The Individual

Abstract Background Financial toxicity was hardly examined in the context of public health. It is proven that financial distress following a cancer diagnosis can have an impact on the quality of life and mortality. Additionally, it was found that subjective indicators of financial toxicity have a stronger effect than objective indicators. Nevertheless, less is known about how higher costs can impact on the individual patient’s well-being. The aim of this study was to analyse the major drivers that lead from financial consequences to subjective financial distress in a country with statutory health insurance. Methods Qualitative semi-structured interviews were conducted with 39 cancer patients, aged between 40 and 86 years, in Germany. Inductive content analysis of data was performed and the individual patient's pathways are recently compared and contrasted. Results Above all, we found that financial distress is not only induced by higher costs and lower available money. Moreover, independently of whether patients experienced any financial decline, they experienced making financial adjustments and feeling financially stressed. The preliminary results show that the patient's ability of good money management and trust in one’s own skills being able to get along with less money might predict psychosocial consequences. Conclusions Screening instruments for financial toxicity are important to effectively detect patients whose quality of life might be worsened by their financial situation. It might be that rather financial skills than the amount of costs are important indicators of financial distress. Key messages Even cancer patients experiencing almost no financial decline during the period of cancer treatment might experience lower quality of life caused by financial distress. The ability and trust in oneself money management might have the strongest impact on subjective financial stress.

Health insurance satisfaction, financial burden, locus of control and quality of life of cancer patients: a moderated mediation model

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Saeed Pahlevan Sharif ◽  
Navaz Naghavi ◽  
Fon Sim Ong ◽  
Hamid Sharif Nia ◽  
Hassam Waheed
Keyword(s):  
Quality Of Life ◽  
Health Insurance ◽  
Locus Of Control ◽  
Cancer Patients ◽  
Structural Equation ◽  
Financial Burden ◽  
Equation Modeling ◽  
Content Type ◽  
The Relationship

PurposeThe purpose of this paper is to examine the relationship between consumers' satisfaction with their health insurance and quality of life (QoL), the mediating role of perceived financial burden in this relationship, as well as the moderating effect of external locus of control (LoC) on the relationship between perceived financial burden and QoL among cancer patients.Design/methodology/approachA cross-sectional design was employed in order to collect quantitative data by means of a self-administrated questionnaire. Participants consisted of 387 conveniently selected consumers diagnosed with cancer in Iran. Furthermore, the questionnaire was translated into Persian using a forward–backward method. The model was tested using partial least squares structural equation modeling (PLS-SEM).FindingsThe results indicate that the more satisfied patients are with their health insurance, the higher QoL they experience, and this relationship is explained through reducing perceived financial burden in terms of direct and indirect costs of the disease. Although external LoC belief is negatively related to QoL, it buffers the negative association between financial burden and QoL.Practical implicationsReducing the disparity between consumers' expectation and perception of the comprehensiveness of health insurance policies may relieve consumers' anxiety stemming from financial worries.Originality/valueThis paper fills a gap in the literature where consumers' perception about quality of insurance and its relationship with their QoL has received little attention so far.

scholarly journals Assessment of quality of life among cancer patients in a cancer care center of Mysuru

2021 ◽  
Vol 8 (9) ◽  
pp. 4470
Author(s):  
Rufia Shaistha Khanum ◽  
Sunil Kumar D. ◽  
Satendra Kumar Verma ◽  
Narayanmurthy M. R.
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Rural Women ◽  
Communicable Disease ◽  
Financial Burden ◽  
Functional Score ◽  
European Organization ◽  
Eortc Qlq C30 ◽  
Eortc Qlq

Background: Cancer is a non-communicable disease causing high mortality and morbidity. Most risk factors of cancer are preventable, but due to lack of awareness, ignorance, poor access to healthcare and changing lifestyle the burden of the disease is rapidly increasing. Cancer causes a lot of financial and emotional distress among the patients and their families. Measures focusing on reducing the financial burden and improving the quality of life (QoL) among cancer survivors is needed. This study was done to assess the quality of life among cancer patients.Methods: A cross-sectional study was conducted in Bharat hospital and institute of oncology for a period of 5 months (February 2021 to June 2021). A total of 380 rural women diagnosed with cancer were included in the study. EORTC QLQ-C30 (European organization for research and treatment of cancer QoL questionnaire) was used to assess the quality of life among cancer patients. The data was coded and entered in MS excel and analysed using SPSS version 25. Descriptive statistical analysis was done. The quality of life scoring is done as per the EORTC QLQ-C30 scoring manual.Results: The average functional score (AFS) was 60.14 which indicates most patients have better QoL. The average symptoms score (ASS) was 38.48 which indicated 255 (67.1%) had mild symptomatology/problems and 282 (74%) had a GHS score range of 50-75 which meant the majority had a good QoL.Conclusions: Cancer causes a huge economic burden particularly in those with a low socio-economic background. Interventions and policies should be adopted to make treatment more affordable. The patient should be offered emotional strength and families should be counselled for a better understanding of patients’ emotions.

Short and long term impact of financial toxicity on quality of life in the Carolina Breast Cancer study.

2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e18299-e18299 ◽  
Author(s):  
Jennifer Spencer ◽  
Katherine Elizabeth Reeder-Hayes ◽  
Laura C Pinheiro ◽  
Lisa A. Carey ◽  
Andrew F Olshan ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Cancer Treatment ◽  
Cancer Patients ◽  
Cancer Diagnosis ◽  
White Women ◽  
Financial Burden ◽  
Financial Toxicity ◽  
Breast Cancer Patients

e18299 Background: High cancer treatment costs are associated with considerable distress and worse outcomes in cancer patients, a phenomenon known as “financial toxicity”. We examined changes in health-related quality of life (HRQoL) among women experiencing financial toxicity after cancer diagnosis compared to cancer patients without financial toxicity in a racially diverse cohort of breast cancer patients. Methods: HRQoL was self-reported at approximately 5 and 25 months post-diagnosis using the Functional Assessment of Cancer Treatment (FACT-G) in a prospective, population-based, cohort study with oversampling of Black and young (<50 years old) women. Women reported on the financial burden of their breast cancer, including whether they had declined or delayed care due to cost or transportation barriers and whether they lost a job, experienced a reduction in household income, or lost insurance coverage after their cancer diagnosis. We assessed changes in HRQoL from 5 to 25 months according to financial toxicity experience. Results: 2,432 women completed 5- and 25-month HRQoL surveys and were included in analyses. Forty-nine percent were non-Hispanic Black and 51% were non-Hispanic White; other minorities were excluded due to small numbers. Overall, 49% of women reported at least one indicator of financial toxicity (59% Black vs. 39% White). Women who reported any financial toxicity had significantly lower scores on the FACT-G at baseline (75.5 vs 87.2, p<0.001) and reported significantly less improvement in HRQoL from 5- to 25-months than women who did not report financial toxicity (incremental difference: +1.4 vs +3.8, p=.01). Black women reported lower overall HRQoL than White women (p=0.03), but impact of financial toxicity on HRQOL was similar among black and white women in stratified analyses. Conclusions: Financial toxicity is associated with lower HRQoL and with less improvement in HRQoL in the two years following breast cancer diagnosis. [Table: see text]

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