SUN-154 Identifying Type 1 Diabetes in Electronic Medical Records and Administrative Health Data in Ontario: A Validation Study

Purpose: To determine associations between physical activity (PA) and sport participation on HbA1c levels in children with type 1 diabetes (T1D). Method: Pediatric patients with T1D were invited to complete a PA and sport participation survey. Data were linked to their medical records for demographic characteristics, diabetes treatment and monitoring plans, and HbA1c levels. Results: Participants consisted of 71 females and 81 males, were 13 ± 3 years old with an average HbA1c level of 8.75 ± 1.81. Children accumulating 60 min of activity 3 days or more a week had significantly lower HbA1c compared to those who accumulated less than 3 days (p < 0.01) of 60 min of activity. However, there was no significant difference in HbA1c values based on sport participation groups. A multiple linear regression model indicated that PA, race, age, duration of diagnosis, and CGM use all significantly predicted HbA1c (p < 0.05). Conclusion: This study demonstrated the significant relationship between daily PA and HbA1c. Those in this sample presented with lower HbA1c values even if accumulating less than the recommended number of days of activity. Further, it was shown that sport participation alone may not be adequate enough to impact HbA1c in a similar manner.

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The Faces Emotional Coping Scale as a self-reporting instrument for coping with needle-related procedures: An initial validation study with children treated for type 1 diabetes

Journal of Child Health Care ◽

10.1177/1367493517729041 ◽

2017 ◽

Vol 21 (4) ◽

pp. 392-403 ◽

Cited By ~ 1

Author(s):

Stefan Nilsson ◽

Lena Hanberger ◽

Anna Lindholm Olinder ◽

Maria Forsner

Keyword(s):

Type 1 Diabetes ◽

Validation Study ◽

Analogue Scale ◽

Older Children ◽

Initial Validation ◽

Emotional Coping ◽

Coping Scale ◽

Short Narrative ◽

Good Agreement

The aim of this study was to determine the concurrent and content validity, sensitivity and inter-rater reliability of the Faces Emotional Coping Scale (FECS) to evaluate the children’s anticipation of the level of emotional coping in conjunction with a venepuncture. A total of 153 children with type 1 diabetes and 86 of their parents participated in the study. The age of the children, 76 of whom were boys, ranged from 7 to 18 years. The child and his or her parent reported the child’s coping ability, and the child reported the pain intensity and unpleasantness of a venepuncture. The child also wrote a short narrative about his or her experience of the needle procedure. The FECS correlated negatively with the Coloured Analogue Scale and the Facial Affective Scale and positively with the FECS by proxy. The narratives of 90 children correlated negatively with the FECS. Younger children reported significantly lower scores than older children did regarding their ability to cope with a venepuncture. The children’s scores on the FECS showed good agreement with the parents’ scores. In this study, the FECS was deemed valid for measuring children’s ability to cope with their emotions when undergoing needle-related procedures like venepuncture.

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Enhancing Health Surveillance: Validation of a Novel Electronic Medical Records-Based Definition of Cases of Pediatric Type 1 and Type 2 Diabetes Mellitus

Canadian Journal of Diabetes ◽

10.1016/j.jcjd.2019.02.005 ◽

2019 ◽

Vol 43 (6) ◽

pp. 392-398

Author(s):

Leanne Kosowan ◽

Brandy Wicklow ◽

John Queenan ◽

Roseanne Yeung ◽

Shazhan Amed ◽

...

Keyword(s):

Diabetes Mellitus ◽

Type 2 Diabetes ◽

Type 2 Diabetes Mellitus ◽

Electronic Medical Records ◽

Medical Records ◽

Health Surveillance ◽

Definition Of

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Big data or big risk: general practitioner, practice nurse and practice manager attitudes to providing de-identified patient health data from electronic medical records to researchers

Australian Journal of Primary Health ◽

10.1071/py20153 ◽

2020 ◽

Vol 26 (6) ◽

pp. 466

Author(s):

Timothy Monaghan ◽

Jo-Anne Manski-Nankervis ◽

Rachel Canaway

Keyword(s):

Primary Care ◽

Health Information ◽

Electronic Medical Records ◽

Medical Records ◽

Health Data ◽

Positive Effects ◽

Patient Consent ◽

Patient Health ◽

General Practices ◽

Patient Health Information

Research utilising de-identified patient health information extracted from electronic medical records (EMRs) from general practices has steadily grown in recent years in response to calls to increase use of health data for research and other secondary purposes in Australia. Little is known about the views of key primary care personnel on this issue, which are important, as they may influence whether practices agree to provide EMR data for research. This exploratory qualitative study investigated the attitudes and beliefs of general practitioners (GPs), practice managers (PMs) and practice nurses (PNs) around sharing de-identified EMR patient health information with researchers. Semi-structured interviews were conducted with 11 participants (6 GPs, 3 PMs and 2 PNs) recruited via purposive sampling from general practices in Victoria, Australia. Transcripts were coded and thematically analysed. Participants were generally enthusiastic about research utilising de-identified health information extracted from EMRs for altruistic reasons, including: positive effects on primary care research, clinical practice and population health outcomes. Concerns raised included patient privacy and data breaches, third-party use of extracted data and patient consent. These findings can provide guidance to researchers and policymakers in designing and implementing projects involving de-identified health information extracted from EMRs.

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Autoimmune Diseases in Children and Adults With Type 1 Diabetes From the T1D Exchange Clinic Registry

The Journal of Clinical Endocrinology & Metabolism ◽

10.1210/jc.2016-2478 ◽

2016 ◽

Vol 101 (12) ◽

pp. 4931-4937 ◽

Cited By ~ 35

Author(s):

Jing W. Hughes ◽

Tonya D. Riddlesworth ◽

Linda A. DiMeglio ◽

Kellee M. Miller ◽

Michael R. Rickels ◽

...

Keyword(s):

Type 1 Diabetes ◽

Autoimmune Diseases ◽

Medical Records ◽

Age Groups ◽

Vascular Diseases ◽

Older Individuals ◽

Collagen Vascular Diseases ◽

Race Ethnicity ◽

Hispanic White

Background and Aims: Type 1 diabetes (T1D) is associated with other autoimmune diseases (AIDs), but the prevalence and associated predictive factors for these comorbidities of T1D across all age groups have not been fully characterized. Materials and Methods: Data obtained from 25 759 participants with T1D enrolled in the T1D Exchange Registry were used to analyze the types and frequency of AIDs as well as their relationships to gender, age, and race/ethnicity. Diagnoses of autoimmune diseases, represented as ordinal categories (0, 1, 2, 3, or more AIDs) were obtained from medical records of Exchange Registry participants. Results: Among the 25 759 T1D Exchange participants, 50% were female, 82% non-Hispanic white, mean age was 23.0 ± 16.9 years and mean duration of diabetes was 11 years. Of these participants, 6876 (27%) were diagnosed with at least one AID. Frequency of two or more AIDs increased from 4.3% in participants aged younger than 13 years to 10.4% in those aged 50 years or older. The most common AIDs were thyroid (6097, 24%), gastrointestinal (1530, 6%), and collagen vascular diseases (432, 2%). Addison’s disease was rare (75, 0.3%). The prevalence of one or more AIDs was increased in females and non-Hispanic whites and with older age. Conclusions: In the T1D Exchange Clinic Registry, a diagnosis of one or more AIDs in addition to T1D is common, particularly in women, non-Hispanic whites, and older individuals. Results of this study have implications for both primary care and endocrine practice and will allow clinicians to better anticipate and manage the additional AIDs that develop in patients with T1D.

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